Question on stool softeners-safety with ketogenic diet`

[Guest guest]

Thank You Patti, for the info. I guess it's time to get the Cal-Mag Zinc again!

Take care,

Kandy and

[Guest guest]

Hi all,

I know it's been awhile since I've been here- I'm just happy that I

have you all to come to, when I need some advice!

As most of you know, my daughter , who has Rett Syndrome, has

been on a modified version of the keto diet, since 10/99, when the

real keto alone no longer worked, and we had to go back to also using

a med. She has proven over and over that sugars and high carbs can

send her back into clusters of seizures, very quickly!

We stick to no sugar, low carbs, and we continue to put butter on all

meals,and she continues to drink her cream, or we freeze it into a

small ice cream dessert!

Anyway, to my point here- has been having fairly good luck with

her BM's, but occassionally,as is common in Rett girls, she will

revert back to very large, hard stools.

She is on a good multi vitamin powder that has fiber in it, along

with a potent vitamin C powder. Both are free of all that could harm

her, as I got these from our naturopathic doctor, who is well aware

of the keto diet and how it works.

My question is: what can I give to help her with her BM's, that

would not cause more seizures, that would be safe for her, not cause

cramping, etc.

We have been on Cal-Mag Zinc II before, but now her new vitamin has a

lot of calcium in it already, and I don't want to end up with too

much of this.

Senekot sent her stomach into spasms and we had one miserable little

girl!

Thank you anyone, for your help! I appreciate it!

Take care,

Kandy

11, former ketokid 2/96-10/99, seizure free one year,went to

modified in '99, fairly well controlled with the help of Lamictal

(alot depends on how she is feeling, etc.)

Idaho

[Guest guest]

Kandy,

I would give her a supplement of magnesium to go with her other vites. I don't know what the ratio of calcium to magnesium is in the Whole Life product but I think most people agree that it should be at least 2:1 calcium to mag, if not 1:1. If she gets diarrhea, then you'll know you've exceeded her personal requirement for magnesium and you can back off from there. There shouldn't be any other negative effect from the increase. Anyway, this is the safest thing I know of ..... and works well for most kids.

Patti, mom to Katera

Question on stool softeners-safety with ketogenic diet`

Hi all,I know it's been awhile since I've been here- I'm just happy that I have you all to come to, when I need some advice!As most of you know, my daughter , who has Rett Syndrome, has been on a modified version of the keto diet, since 10/99, when the real keto alone no longer worked, and we had to go back to also using a med. She has proven over and over that sugars and high carbs can send her back into clusters of seizures, very quickly!We stick to no sugar, low carbs, and we continue to put butter on all meals,and she continues to drink her cream, or we freeze it into a small ice cream dessert!Anyway, to my point here- has been having fairly good luck with her BM's, but occassionally,as is common in Rett girls, she will revert back to very large, hard stools. She is on a good multi vitamin powder that has fiber in it, along with a potent vitamin C powder. Both are free of all that could harm her, as I got these from our naturopathic doctor, who is well aware of the keto diet and how it works.My question is: what can I give to help her with her BM's, that would not cause more seizures, that would be safe for her, not cause cramping, etc.We have been on Cal-Mag Zinc II before, but now her new vitamin has a lot of calcium in it already, and I don't want to end up with too much of this.Senekot sent her stomach into spasms and we had one miserable little girl!Thank you anyone, for your help! I appreciate it!Take care,Kandy 11, former ketokid 2/96-10/99, seizure free one year,went to modified in '99, fairly well controlled with the help of Lamictal (alot depends on how she is feeling, etc.)Idaho "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe

[Guest guest]

We use 1.5 cc of Phospha soda with Ariana. These seems

to keep her bowels regular. The soda is given with

water between feedings and Phosphorus seems to prompt

bowel movement naturally. The things we have to

consider others without keto kids don't have to have a

clue about. Oh well, we all do our best.

--- " GAVAN J. CANAVAN " wrote:

> ----- Original Message -----

>

> > My question is: what can I give to help her

> with her BM's, that

> > would not cause more seizures, that would be safe

> for her, not cause

> > cramping, etc.

> > We have been on Cal-Mag Zinc II before, but now

> her new vitamin has a

> > lot of calcium in it already, and I don't want to

> end up with too

> > much of this.

> > Senekot sent her stomach into spasms and we had

> one miserable little

> > girl!

>

> Kandy, we had lots of trouble with constipation

> until we increased magnesium

> intake. We had been using lactulose (a keto safe

> stool softener) but as

> things got worse and worse, we changed to using Milk

> Of Magnesia (the

> sweetened but unflavoured form is keto friendly).

> The magnesium it provided

> did help, but it made Hannah very explosive and

> gave her pains. More

> recently I had her cal-mag preparation altered to

> provide more magnesium, so

> that cal:mag is at least 1:1. This is working very

> well and only

> occasionally does Hannah have pain with a BM, and

> she is never constipated.

>

> (Hannah's mum, Australia)

>

>

__________________________________________________

[Guest guest]

We use 1.5 cc of Phospha soda with Ariana. These seems

to keep her bowels regular. The soda is given with

water between feedings and Phosphorus seems to prompt

bowel movement naturally. The things we have to

consider others without keto kids don't have to have a

clue about. Oh well, we all do our best.

This is for sure! It's so easy for a doctor to prescribe something, only to get it home and say, "OH MY GOSH, this ingredient causes seizures!"........and it's back to square one! thanks for the tips!

Take care, Kandy