Re: Lavon/answers to ??

[Guest guest]

Jeanne Ann,

Keep me informed about how the CoQ10 helps you. I started with 50 mg

per day for 30 days, then switched to 100 mg per day, which is my current

dose. I have noticed that if I get enough sleep, then I can make it through

the day now. I still believe my dose needs increased and will up it for

the next 30 days when I am out of the current bottle.

Mike

jeanneannneff@... wrote:

Hi Lavon,

Also how do you get from the driver's seat to the lift?

*I walk - easily on some days and not so easily on others.

Sometimes I use

the side of the van for support. I often wonder what people

must think that

see me shopping in a wheelchair and then get out of it - load it

- and drive

off on my own. I'm probably the topic of some very interesting

conversations. Actually that used to really bother me a lot.

Not anymore, I

am just so thankful that I can still go on my own that I don't

care what

others think.

Do you have to get into the van yourself? (I find I don't have the

leg

strength to get into most vans- I have to get into a car

by putting my right

leg in then kind of falling

into the seat and then pick up my left leg and put it into the

car

*It is amazing how different we all are. I can get into and

out of my van

much easier than my car. I have a Ford Escort and I just

get one leg in and

then fall in. That one leg usually get stuck between the

steering wheel and

the floor and I have a time prying it loose. What a sight.

Oh the other

hand, my van allows me to step up slowly (using my arms somewhat)

and they

sitting down instead of falling into it. I feel much more

in control and it

is much easier for me.

also I have a lot of trouble walking from the front of the

car to the trunk

now

and don't know how I would do that without using the roof to hang

on).

*Hopefully this will improve. I go thru times (sometimes

months) that I can

hardly drag my body around and then I get to where I can function

better. Do

you do this? I think mine has to do with energy. Do

you take NADH? I don't

think I could function at all without it. I also started

taking CoQ10

yesterday. I will try anything to get rid of that mind-numbing

fatigue.

Good luck and I'll pass on the lift info as soon as I get it.

Jeanne Ann Neff