To Warren/Dofetilide

[Guest guest]

Hi Warren and a very warm welcome to our group. I am sure glad you found

us!

I have been on Dofetilide (375 twice a day) since October 2000. During this

time period, I have experienced five episodes; three of them were about 8

hours in length and two were 16 hours - all triggered from plain ole stress!

Back in October of 2000, I was admitted to Duke Medical Center to start the

drug, after a history of permanent Afib. The Hospital Monitor registered

normal sinus rhythm (a/k/a NSR) after the second dose.

I was very apprehensive about this particular hospital stay. One of our

Moderators, Codling, went into the hospital about a month before me,

and with his support, it was a cinch! In fact, I printed out a couple of

his posts and actually brought them to the hospital with me. I read them

often, and I can't begin to tell you the comfort that I got from his written

word. I have thanked him so often - he was my Guardian Angel in a time of

need. Can you imagine, I found my Guardian Angel on the other side of the

world. lives in England and I'm in the US, and I will be forever

grateful.

I was on a variety of drugs before Dofetilide, including Flecainide; decided

to go with Dofetilide because all the others made me awfully sick -

absolutely no side effects with Dofetilide. However, I must confess, like

many of us on any drug, I do have thoughts now and again about *long term*

effects, and growing two heads <g>. I also have a Pacemaker. What I do

know for sure right now is that I have my life back and its a wonderful

wonderful feeling.

This is an excellent Pfizer site about Dofetilide/Tikosyn - and should

address all of your concerns.

http://www.pfizer.com/hml/know/knowtikosyn.html

You might also want to check out our Dofetilide Therapy Database. This is a

list of members who are now, or have been, on Dofetilide. Just click below:

http://groups.yahoo.com/group/AFIBsupport/database

Also check out the following message from one of our Dofetilide members.

Dolores and I went on Dofetilide just about the same time.

http://groups.yahoo.com/group/AFIBsupport/message/9103

And, of course, ' Database is a MUST! This is a huge list of our

members with lots of information. If your name is not on this list, please

please, I encourage you to do so. This is so very beneficial to us all.

http://www.dialsolutions.com/af/

Hopefully, this post has been of some assistance to you. This is an amazing

drug! And the three day hospital stay was so easy - nothing to it! However,

please keep in mind, one drug is a miracle for one, and the same drug,

useless for another. Keep us posted as to what you decide to do - we're

here for you.

Ellen

70 NC

(NSR on Dofetilide going into my third year)

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Warren wrote~~~~~~~~

I heard you've been on Dofetilide for three years. AFter reading it I got

very scared of trying it. (snip) Any side effects or dangers with

Dofetilide?

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