Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 , I am pulling for you in Tuesday! Please think of us when you are going under, cuz we are there in spirit! Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 , Thanks for asking about my blood test. I should have written in my update that I had it done already. I should get the results Tue. I had my last test while I was still bleeding before my period, so I'm confident this test will be hcg less than 5, especially since it was a 6, not far to go! Hope I'm not overconfident! Joleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Pam: That is great news about your appt. You have me teary eyed, b/c I'm so happy for you that there is hope and b/c you were so upset about your friend. You're right June 9th isn't that far away and I hope it is 100% effective for you! I'll be praying all goes well and that we hear fantastic news from you by Hannauk! Have a great weekend. Kel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Joleen, I wish you the best of luck Tuesday. I'm sure it will be below 5!! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2000 Report Share Posted May 26, 2000 Joleen: I think your safe in assuming the results will be less than 5, just in case I'll keep my fingers crossed for you and wait anxiously to hear on Tues. the official results. Kel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Congratulations on the 3 years! Sounds wonderful. Now is a great time to learn to cook! Anyway, what kind of release surgery are you, or is he talking about? I am interested if it has to do with scar tissue. Are you having pain from the scar tissue? Let me know, please. Thanks, ~Mindy~ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Ruth, I hope the Ballet was wonderful!!! The ring sounds lovely!!!! I hope you are well on your way to feeling a ton better..without the additional surgery! Take care, Alison CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Keep doin' what you're doin', Ruth. Sounds like you're doing lots of stuff to help yourself, and hopefully, you won't need another surgery. How did your dinner turn out? I didn't learn to properly cook until I got married, and then I had *many* mistakes that I served for dinner! My poor husband! LOL Suzy --- nor_germ@... wrote: > Hi, > I saw my doc on Tues the 25th and asked him for > testostorone cream > and he prescribed me some. He said the cap and > estrace was OK. When > I asked him about another surgery, if the cap > doesn't work, he said > it would only be a 'releasing' surgery, like an > epiesiotomy (sp?). I > told him that the six o'clock area still hurt, and > all around the > scar tissue, and I asked him if he would remove that > skin like that > last surgery, and he said, no. Why not? I think > that would really > do that trick. Well, that won't be for another 1/2 > yr, if at all. I > am going to try the cap for a few more months and > other treatments > before I go through THAT hell again! So, I am > using test and > estrace at night, 30 min of cap a day, taking > turmeric, and working > on relaxing my pelvic floor (which is very hard!). > That's it! > > Anyways, My boyfriend and I are going to the > Houston Ballet for our > 3 yr anniversary! He got me a beautiful ring with 2 > opals and 2 > diamonds!!! I have to make dinner (I don't know how > to cook!! Oh, > well...). It will be fun. Well, I have to get > ready and > start 'cooking'!! Ha ha. > Love and Prayers, > Ruth > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 Congratulations!! That is wonderful! I love hearing the success stories!! take care, Kathy (lin's Mom) Reply-To: ketogenic Date: Mon, 29 Oct 2001 21:50:48 -0500 To: <ketogenic > Subject: update It has been a couple of weeks since I let this group know how is doing. She is now on her 8th week on the diet. She is down from 1275mg daily of Epival to 1000mg. She is down from 150mg of Topamax to 75mg. She drops another 25mg of Topamax on Thursday. She will be completely weaned off of Topamax in 2 more weeks. 's hair has stopped falling out after several months of it laying thick on her pillow in the morning. She no longer naps all afternoon every day. (in fact, she doesn't nap at all!) She no longer wets the bed every night. She has brighter eyes. Her reading has improved. She is improving in many other areas as well. As far as her seizures go....the first 2 weeks on her Topamax wean, she seizured the day after dropping the dose. I suppose the most incredible thing that has happenned to date was this past week. got a bad cold and was throwing up. Normally my daughter crashes and ends up in the hospital because of seizuring so much. This time, she had a normal kid cold. She seizured ONCE the whole week of her cold. I could just cry writing this to you. I never dreamed that I could ever have my daughter back. Still in awe on week 8 of this wonderful diet!!!! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 Wonderful to hear this! I'm so happy for you..... and for . She must feel like she is waking up from a bad dream. Patti, mom to Katera update It has been a couple of weeks since I let this group know how is doing. She is now on her 8th week on the diet. She is down from 1275mg daily of Epival to 1000mg. She is down from 150mg of Topamax to 75mg. She drops another 25mg of Topamax on Thursday. She will be completely weaned off of Topamax in 2 more weeks. 's hair has stopped falling out after several months of it laying thick on her pillow in the morning. She no longer naps all afternoon every day. (in fact, she doesn't nap at all!) She no longer wets the bed every night. She has brighter eyes. Her reading has improved. She is improving in many other areas as well. As far as her seizures go....the first 2 weeks on her Topamax wean, she seizured the day after dropping the dose. I suppose the most incredible thing that has happenned to date was this past week. got a bad cold and was throwing up. Normally my daughter crashes and ends up in the hospital because of seizuring so much. This time, she had a normal kid cold. She seizured ONCE the whole week of her cold. I could just cry writing this to you. I never dreamed that I could ever have my daughter back. Still in awe on week 8 of this wonderful diet!!!! Pam "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Hi Pam, This is great news, and is awe inspiring! I just have to tell you, I had that same awe- filled feeling when our went on the diet! It was truly like a miracle. I took one child into the hospital and brought another child home with me! I am hoping you continue to see such wonderful changes and progress in your ! Best of luck! Kandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 In a message dated 3/29/2003 7:45:47 AM Eastern Standard Time, stews@... writes: > I've been walking every day....and feel better...but the counts Hi Sue, Don't let high numbers depress you. This will only lead to higher numbers. They will come down. Keep up your walking. You're doing fine. Hugs Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 I think your still considered a type II Update Hi gang!! Thanks for all your respones during the week....they helped keep me sane....sorta. The week hasn't been so great...but here's the update ~~ I finished my diabetic classes on Thurs. They were a huge source of information and help. My counts stink still! My doctor upped my Insulin AGAIN....and this morning it was still 306....I have a question...I started out as a Type II, but since I'm now on Insulin to bring my sugar down....am a I? I've been walking every day....and feel better...but the counts !!!! ARRGGGH!!!! Have a good weekend! Sue in Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2003 Report Share Posted March 29, 2003 , You are still a type 2. What makes one a type 1 is the function or nonfunctioning of the pancreas. Most type 2's still have a working pancreas which produces insulin, but are insulin resistant. Type 1's don't produce their own insulin, thus requiring the insulin injections. Caitlyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2003 Report Share Posted April 19, 2003 I could tell when my husbands bs was low-I don't know how-I could just sense it.How does a spouse help her husbnd when he dosn't want it-I am his wife-I can't help but be concerned for him.I should have some kinds of rights as far as his health is concerned. > > Hi > > This is an update on my huband who is the double amputee due to > > diabetes.He went to rehab to learn to walk on his new prosthesis on > > April 7th and he was stressed about it.We had talked and he > > apologized to me for shutting me out of his life.I talked to him > for > > 3 days while he was in rehab and he was not doing so good-his bs > was > > bottoming out.Then it suddenly got too high-so they had to give him > > more insulin.This was the last I heard.I had talked to several of > you > > about his strange behavior-which happens when his bs goes up and > down > > like this.When I was told that he didn't want anymore calls from me- > I > > tried to tell them that this happens.But because of the new hippa > > laws-they could not let him talk to me-or me to him-they will not > > even give him a message to him that I called.I got a letter from > him > > the day before he shut my calls off that said that I am his > strength- > > to please stand with him and since he is not home yet-then he is > not > > well-because he should have come home yesterday or today. Perhaps > his > > bs has a lot to do with his behavior-he was supposed to get help > with > > this while there-I hope he did.I have seen him so bad that he just > > rolled around the house and could not remember doing it-as if he > were > > looking for something.Hopefully-he will have seen a doctor to get > > better-he would not eat a healthy diet-he smoked-he was overweight- > > none of this was good either........Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2003 Report Share Posted April 19, 2003 Carolyn Take it from someone married to the hardest head in the universe (german/irish on top of a pol) they have to learn the hard way sometimes. The best coping skill is to " be prepared " . My sister has been type 1 for almost 50 years so I was used to her behavior in conjunction to highs and lows. That made it easier for me to recognize it in my husband when all the while he was in denial. I stay clear of him when he is high because he is just going to be nasty. I avoid encouraging this behavior by not having the things he should not eat in the house. When he gets lows I am able to react quickly with thing that he likes that will bring it back up. I am lucky in one respect that he hates to fix his insulin shots so monitoring has become a joint venture. The tells me what his reading are and I adjust the insulin according. When he finally agreed to go to classes the VA diabetic program encourages spouses to come too so I went. I do have one advantage over you in that I too am diabetic on insulin. Being supportive is the most important issue. Talking to the doctors in confidence and letting them know how you feel can also be helpful. If they know you are supportive then they may force him into some kind of counceling that will bring him around to accepting your support. Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2003 Report Share Posted September 19, 2003 Lots of prayers for your biopsy. Keep us posted. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com update I now have my biopsy scheduled for 9/30. More waiting Margaret Mom to the Monsters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Just emailed it to you . Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at: http://www.geocities.com/chucky5741/bcornament.html also check out my other ornaments and lots of nice gifts at: http://www.cancerclub.com Update > Well, I had blood work today, and I am seeing the oncologist before > they do this ultrasound guided biopsy. Its time for my 4 month > check anyways. They actually assigned me a new oncologist but I > called the one who treated me and he has agreed to see me, of course > the insurance won't pay for it, but for peace of mind its way worth > it. He took care of my mom when she was so ill. I will keep you > all posted as I know things. Lorraine I hope your still feeling > well after that chemo. nne I was going to call you but can't > find your # so if you have a moment please email me privately.... > > Hugs to all, > M > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2003 Report Share Posted October 20, 2003 , Lots of prayers that all goes well for you on Friday. Keep me posted. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at: http://www.geocities.com/chucky5741/bcornament.html also check out my other ornaments and lots of nice gifts at: http://www.cancerclub.com Update > Hi all, hope everyone is doing ok. Its nice and warm here in Calif. > I am having the Ultrasound Guided Biopsy on Friday and I am a > nervous wreak. Even after all the stuff I have been through the > thought of them sticking a needle in my breast scares me......I am > scheduled for 10:30am. I hope this goes well, I'm such a chicken > when it comes to needles. Anyways just needed to vent. > > Take care > Hugs, > M. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 Hi , I had a stereotactic biopsy and after they numbed me up (a couple of seconds of stinging) I didn’t feel a thing. I agree with you that the idea of needles and breasts is icky. Hope all goes well Kimbell Hi all, hope everyone is doing ok. Its nice and warm here in Calif. I am having the Ultrasound Guided Biopsy on Friday and I am a nervous wreak. Even after all the stuff I have been through the thought of them sticking a needle in my breast scares me......I am scheduled for 10:30am. I hope this goes well, I'm such a chicken when it comes to needles. Anyways just needed to vent. Take care Hugs, M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 You mentioned that people want to talk about b.c. with you...well, I encourage it because I have educated myself about b.c. since I was diagnosed 4 1/2 years ago and I now even go out and give talks about it ...I encourage the women I speak with to do their monthly BSE, to have a yearly mammogram and to educate themselves and their friends (even men friends) because b.c. likes both men and women and knowledge is power. If you tell just one person to do this and explain anything to them and they do the BSE and/or get a mammogram, you may have saved a life. But if you feel uncomfortable about talking about it, then for goodness sakes, tell them that you prefer not talking about b.c. Some people are not like me, in fact the majority are probably not. Doris My family and friends are very supportive. The only thing that continues to shock me is how much people want to talk about cancer with me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Hi Marsha, Congratulations on finishing your chemo. Thats one down and then the rads and you will be all done. I am glad your Mom is able to take care of you. Everyone wonders about how long they will be around. But it DOES get easier as the years go by. Continued prayer for you. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com Update Hi everyone:I haven't been able to get to my personal email that often. No PC at my mom's and my PC at home is too out-dated.Brief history--diagnosed with Stage 2 grade 3 aggressive ductual carcinoma with 3-4 lymph nodes involved in April 2003. Had lymphectomy and went on chemo. My last chemo is tomorrow 10/30 and I am so excited. A/C treatments were uncomfortable and I had an allergic reaction to the Taxotere but I am getting good care, so I can't complain.I have a good attitude most of the time but there were so many days where I just didn't feel good that I am frustrated in trying to get my life back to normal. So many errands, so many tasks.Work has been good to me which has made life easier. My mom has been great. I stay at her house after treatments and it really helps to be able to lie down when you need to and to have support when things aren't going well. My family and friends are very supportive. The only thing that continues to shock me is how much people want to talk about cancer with me. I feel like my name is Marsha the girl with breast cancer. I'll never be just plain Marsha again.I start radiation 11/24 for seven and a half weeks. Everyone says I'll get tired but I hope I don't get so tired that I can't function. I want to run and dance.I have tried to be optomistic. I want to be a survivor but every time I make any long-term plans I wonder how long I'll really be around.When people look at me sympathetically, in my mind, I wonder, don't they understand, we will all die sometime and many die much more tragic deaths. I think I'm lucky.I can't wait for my hair to grow back, I miss it, but now I can say I've had the experience of being bald. I don't think I looked good as a bald person. Oh well, no roles in Star Trek for me.The hardest part of my ordeal has been that I lost my cat, Penny, while I was in chemo. I couldn't be there for her as much as I wanted. But, I was there when she passed away.Even though I will still be under the care of my oncologist for the next five years and I am making a bet I'll make it for five years, I can't wait for 2004, so I can make plans to do lots of things I love to do.I wish everyone well and thanks for listening. While I read as many of the emails as I can, I can't keep up. Love, Luck, and Laughter, Marsha"We must respect our Mother, the Earth, or we can never grow as human beings, her children."--Phil Lane, Sr., Yankton Lakota Elder Join Excite! - http://www.excite.comThe most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 ----- Original Message ----- From: Mildred Gilman My family and friends are very supportive. The only thing that continues to shock me is how much people want to talk about cancer with me. I feel like my name is Marsha the girl with breast cancer. I'll never be just plain Marsha again. When people look at me sympathetically, in my mind, I wonder, don't they understand, we will all die sometime and many die much more tragic deaths. I think I'm lucky. = = = = = These are two of the things that really bother me, too. Neither my husband nor myself have any problem talking about my BC . . . it's just that it gets tiring saying the same thing over and over again each time a different person asks. I am already almost dreading answering the phone or bumping into someone who knows. What irked me the most was last Saturday when one of our seasonal campers asked how I was and I said I was just fine. She said she didn't mean physically cause she knew I hadn't even started my chemo yet, but how was I mentally. I explained that really I was fine. And Randy was fine, too. I said we were over the initial shock. We had accepted the diagnosis as something we had no control over. And we were now moving forward with the treatments over the winter and surgery next spring and that our plans for the future weren't going to change one bit, although they might be slowed down a bit on days I wasn't feeling well. She kinda huffed and said something like - well, if you don't want to tell me anything, then don't. Well, excuse me, but what did she want me to do? Lie to her? This is exactly how we feel and plan to live our lives. We both have things we still want to do and sitting around moping about something uncontrollable that happened in the past isn't going to make them happen, now is it? We have to look forward to what is ahead of us. And that is just what we are going to do. Debbie K --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.532 / Virus Database: 326 - Release Date: 10/27/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 you know some people just amaze me......when i went through chemo this last time(1yr & 10 months ago) i was so sick that i just slept most of the time.....i just turned the ringer off on the phone and let the answering machine take the calls......i didn't get out much because of my resistance being so low most of the time, i didn't want to get sicker on top of the chemo....but there were times where i just had to go somewhere because i would get stir crazy looking at the same 4 walls and yes every time i went some place i got sick...this doesn't mean you will be the same way, this is just how i was.....i came on here to vent and cry and laugh......and when i wanted to talk to my family and friends i would call them at MY convenience.....you just have to do it that way or you would never get any rest ....but not everyone gets sick from the chemo either......if you have any questions, please ask and someone will answer you or find you the answers.... hugs and prayers from carol in michigan oh by the way ....i went out and bought me a new truck on time so i plan on being around at least 5 more years so i can pay for it......lol..... ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Marsha I understand you get tired of repeating yourself to many people about the same thing, but did you ever stop and think that maybe they care........ Or maybe they dont understand bc................ Or maybe they are trying to help.................... If you dont fell comfortable talking about it then just tell them you dont feel like talking about it now that if you need someone to talk to that you will remember them. But dont push people away either, you never know when you will need someone or be helping someone down the line who may get bc Just my thoughts Hugs Debbie Quote Link to comment Share on other sites More sharing options...
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