Guest guest Posted March 4, 2002 Report Share Posted March 4, 2002 I just wanted to take the time to introduce myself to the PLS group. My name is Kurt Ohlgren, age 44, Northville MI. I was diagnosed February 02 after 12 months of testing and an initial ALS mis-diagnosis. It has been a trying year for me, many late nights at the computer checking out the latest on the ALS/PLS websites. PLS friends & news has really been lifesaver in a sea of uncertainy. Reading what PLSers go through and to know that we are not alone is important. Leg weakness & spasticity, balance, sloppy speach and heightened reflexes are my most obvious symptoms. I walk with a single point cane depending on distance and the availablity of an arm to hold. Hand dexterity and muscle twitches are agravating factors. The downturn in the economy was phasing out my current job and the PLS was affecting my motor skills so I timed the demise of my work with early retirement/disabilty. This happened this past Friday March 1, 02. If I think back my symptoms started in 97. Having to think about going down stairs and stumbling on flat surfaces (97). Difficulty getting up from the floor (98). Falling off the mountain bike forced me onto the roads and flat ground (99). Falling on flat pavement made me give up the bicycle alltogether (00). A bad fall in the Denver airportand a few bad spills on jobsites convinced me to go to a doctor (Feb 01) who sent me to a Neuro, who mentioned ALS (Apr 01) which led me to an internet search and new Neuro at the Henry Ford ALS Clinic in Detroit. Enough about me. I do read all of the e-mails posted on the PLS-New and PLS-Friends groups. It is important to hear from others in the group even though nobody want to be part of these groups. The humor is important too, tatoos and secret handshakes are absurd, but the banter is good for the soul. I do have one question that I have not seen addressed. I have twiches in my muscles, small areas that spasm. These happen all over my body 24/7, arms, hands, legs, torso, head, you get the picture. Some times the size of a quarter, sometime the size of my fist. They vary from one twitch to a period of 20 minutes in length. The ALS crowd calls them faciculations. Does any body else have these twitches? Thanks for listening to me and thanks for being there for me Kurt Ohlgren _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.