Newly Diagnosed

[Guest guest]

I am new to motor neuron

diseases.

Welcome, Bebe,

I am relatively new to this chat, too, and I have been amazed at the tremendously supportive group of people here. You have come to a good place.

What symptoms are you having? Why do doctors think it's an "unusual" beginning? What have the doctors ruled out?

best,

Kathi

[Guest guest]

Hi:

Am new to this chat room because I am new to motor neuron

diseases.After 17 tests the doctors are positive that I have a motor

neuron disease. However, they don't know if it is an unusual

beginning of ALS or PLS. Right now I'm in a " waiting zone " . Playing

havoc with my emotions.

Would appreciate contact with anyone that might have suggestions or

who has had a similar experience. Right now I feel so alone.

Bebe

[Guest guest]

Hello Bebe,

I, too, am recently diagnosed (99.44%....just like ivory snow) in

November 2001, at the U of Michigan, after a possible diagnosis from

Mayo Clinic in February 2001. I can only say AMEN to the postings

from others on this site.....we are not alone out here, and we

struggle together....there is so much help on this site (and the

other sites which you will become aware of) and support from the

members. As I read the stories online, I find myself nodding in

agreement, knowing that someone out here knows what I am going

through, and knowing what someone else is experiencing helps me to

reach out in support. I am glad that you found this group, Bebe. I

believe it will be very helpful for you.

Thom <><

" social1997 " <social1997@a...> wrote:

> Hi:

> Am new to this chat room because I am new to motor neuron

> diseases.After 17 tests the doctors are positive that I have a

motor

> neuron disease. However, they don't know if it is an unusual

> beginning of ALS or PLS. Right now I'm in a " waiting zone " . Playing

> havoc with my emotions.

> Would appreciate contact with anyone that might have suggestions or

> who has had a similar experience. Right now I feel so alone.

> Bebe