Hello

December 20, 2003

Hello Ronda,

Have been reading my journals from this group also. You are a dear

lady and Betty is such a beloved friend. I always include her in my

prayers with all the wonderful people in this group.

My daughter also worked the kettles when she was with a youth group.

But for the life of me I cannot remember the name of the group -

Rainbow Girls ?

Stay strong and rest when you can,

Terrie in Philly

December 23, 2003

,

Lots of prayers that you don't need any chemo etc.

Hugs

nne

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Hello

> I saw the plastic surgeon yesterday and got my stitches out, my 1st

> fill (expanders)will be 1/7/04. Today I have a consult with the

> oncologist. So far the doctors have said I don't have to do chemo

> we will see what he says. This is a new onc mine left the group, so

> I'm a little nervous.

>

> Also, I wish everyone a happy and healthy holiday season.

>

> Hugs,

> M

>

January 26, 2006

Yes, Nan, he sure is quite a brother. Somehow I think he is a pretty good

brother even if he is a big teaser. Actually, that is probably the best part

about a brother, biological or not, is when they kid you like Cy kids you.

Becky and Cassidy, Pilot Dog, Poodle

maddpoodle27@...

Hello

>>>>

>>>> Hi I would like to ask a question. I was told by my doctor that my

>>>> blood

>>>>

>>>> sugar was high the last two blood tests. It was 111 both times. He

>>>> warned me

>>>> that if I did not change my eating habits I could become a diabetic. my

>>>> question is this. I have kept a record for the last five weeks. I Had

>>>> one

>>>> reading of 111 and three readings of 96, 97 and 96.. The middle week

>>>> was

>>>>

>>>> 112. that week I had eaten more sweets than usual. will I be safe in

>>>> believing that I am not diabetic but might have to watch my sugar not

>>>> to

>>>>

>>>> become a diabetic. I hope my question is clear. the doctor wants to

>>>> give

>>>> me

>>>> a two hour blood sugar test. but i believe I do not need this test yet.

>>>> What

>>>> are your opinions? Thanks in advance. Nan

>>>>

May 26, 2007

Lorri, it certainly is typical of us who have MS to have this happen; heat and high

altitude do tend to magnify our sympoms. Welcome aboard, and love to you and

to yours, dogs included; we are dog lovers in this group! Love,

n, wMS Rojas5915@...

hello

Hi everyone. My name is Lorri and I am 38 years old. I just receivedmy dx in October and until this week I was just fine. I take avonexevery Friday and have been very lucky with the side effects. I amtired all the time but I guess that is normal. I do work a full timejob and live with my boyfriend, his family and our 3 dogs inland. Which is time and energy consuming. They are all wonderfulto me and understand when I just cant run up and down the stairs. Myparents live in Brooklyn, NY and they are having a hard time with meliving so far away. I tried the marriage thing and after 6 yearsdecided to move on and then this happened.That is about all I can type right now but I do have a question...Isit normal when the season changes to summer to have your symptomsbecome so much worse? does it go away or do I have to wait for Fall?\I appreciate this group and any answers I can get.KissesLorri

May 26, 2007

---Hi Sharon

my symptoms started a few years back. I got this horrible headache

that would not go away. they said it was migranes. so I just lived

with it. in November 06 I had a car accident and had a MRI taken. 5

neurologist later and someone finally found what was wrong. it took a

spinal tap. all the other tests came back negative. I had googled my

symptoms and was not surprised with the dx. not that that makes it

any easier but I have been doing a good job living with it (with the

exceptional pity party I am sure everyone has) This week land has

gotten to the 80's with probably 85% humidity and all I have been

doing since Wednesday is sleeping. the pain in my right leg and arm

are torture. it hurts to wash my hair. i am sure i am not telling

all of you something you have not experienced. it is good to have

people that understand. My boyfriend has been wonderful but he just

dont get it all the time.

thanks for the tips on staying cool. I guess this summer is going to

be a bad one. I have never really loved the heat to start off. LOL.

do you think my leg will feel better? or will I just get used to it.

Cant wait for fall I should feel wonderful then>LOL

kisses

Lorri

In MSersLife , Sharon Marsden wrote:

>

> Hi Lorri:

>

> I'm so glad you joined us. Is your weather getting warmer yet?

It's common for MSers to feel worse in the heat. I live in the

Arizona desert and when it gets hot I can't go outside in the heat.

It will wipe me out completely. I get tired from the heat but it can

also bring on leg spasms and other increased symptoms. I suppose you

already know that MSers shouldn't take hot showers/baths, saunas or

hot jacuzzis. There's a really good article on the subject at

http://neurologicalillness.suite101.com/article.cfm/multiple_sclerosis_and_heat

Here is part of it below:

>

> People

> with MS can take a dive in the heat. Summer months are the roughest,

> but simple tricks can keep those with multiple sclerosis from wilting.

> Summer

> is coming and so is the heat. For people with multiple sclerosis, this

> often means experiencing more symptoms. All MSers are not affected by

> the temperature, but quite a few are. Hot tubs, humidity, stuffy rooms,

> and even fevers can also cause symptoms to flare. Any of these factors

> can leave a person with MS feeling weak, numb, dizzy, and achey. It has

> been rumored that some neurologists, before the invention of the MRI,

> would place a suspected multiple sclerosis patient in a hot tub to see

> if MS symptoms could be evoked. It sounds like quackery, but the heat

> phenomenon seems to be a common thread with people who have MS.

> Fortunately, some of the discomfort can be minimized with several

> tricks, some more large-scale than others.

>

> The theory behind multiple sclerosis heat sensitivity is that nerves

> have a harder time conducting messages at higher temperatures. So if a

> person with MS already has faulty nerves, the rise in temperature is

> doubly bad. Perhaps worse for a patient is a rise in body temperature,

> or a fever. This is thought to cause an actual flare-up or worsening of

> MS, whereas external heat fluctuations merely cause pseudo- or

> " pretend " flare-ups which aren't marked by a worsening of a person's

> MS, and once the patient is cooled off, these symptoms often go away on

> their own. A true flare-up caused by a fever can actually worsen

> someone's MS and cause new damage and new symptoms.

>

> Ways to KEEP COOL both externally and internally include:

>

> air conditioning/ fans cool showers/ baths pools cold drinks/food

cool or cold compresses cooling vests, which have removable ice packs

avoiding illnesses that involve fevers the yearly flu vaccine I

personally do not get the flu vaccine because I do believe it

triggered the MS to come out in full force. There are others who feel

the same way.

>

> What kind of symptoms did you have that brought you to a diagnosis

of MS last October?

>

> hugs))

>

> Sharon

>

> hello

>

> Hi everyone. My name is Lorri and I am 38 years old. I

just received

>

> my dx in October and until this week I was just fine. I take avonex

>

> every Friday and have been very lucky with the side effects. I am

>

> tired all the time but I guess that is normal. I do work a full time

>

> job and live with my boyfriend, his family and our 3 dogs in

>

> land. Which is time and energy consuming. They are all wonderful

>

> to me and understand when I just cant run up and down the stairs. My

>

> parents live in Brooklyn, NY and they are having a hard time with me

>

> living so far away. I tried the marriage thing and after 6 years

>

> decided to move on and then this happened.

>

> That is about all I can type right now but I do have a question...Is

>

> it normal when the season changes to summer to have your symptoms

>

> become so much worse? does it go away or do I have to wait for Fall?\

>

> I appreciate this group and any answers I can get.

>

> Kisses

>

> Lorri

>

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May 26, 2007

We were pretty far away from you, about 2 1/2 to 3 hours away. You're closer to Baltimore we were West of you. hugs Akiba -- hello> > > > Hi everyone. My name is Lorri and I am 38 years old. I just received> > my dx in October and until this week I was just fine. I take avonex> > every Friday and have been very lucky with the side effects. I am> > tired all the time but I guess that is normal. I do work a full time> > job and live with my boyfriend, his family and our 3 dogs in> > land. Which is time and energy consuming. They are all wonderful> > to me and understand when I just cant run up and down the stairs. My> > parents live in Brooklyn, NY and they are having a hard time with me> > living so far away. I tried the marriage thing and after 6 years> > decided to move on and then this happened.> > > > That is about all I can type right now but I do have a question...Is> > it normal when the season changes to summer to have your symptoms> > become so much worse? does it go away or do I have to wait for Fall?\> > I appreciate this group and any answers I can get.> > Kisses> > Lorri>

May 26, 2007

Hi Lorri~

I don't remember if I welcomed you to the group or not. But, if I haven't, let me do so now.

My name is Val. I'm 47, mother of 4, newly married to a police officer who has 6 kids of his own. Between the two of us, we have 17 grandchildren.

I was dx'd in 1985. Summer is the worse time of year for me. There was a time, when summer was my favorite time of year. Now, I'm a spring/fall kinda girl. Even then, living here in NC., those seasons can at times be pretty uncomfortable. The best thing I can suggest is, stay out of the direct heat as much as possible. Wear light loose-fitting clothes. And if you're like me...when my feet get hot, I'm hot all over. So breathable shoes or sandles.

Hope you enjoy your stay with us. I look forward to getting to know you better.

God bless...Val

hello

Hi everyone. My name is Lorri and I am 38 years old. I just receivedmy dx in October and until this week I was just fine. I take avonexevery Friday and have been very lucky with the side effects. I amtired all the time but I guess that is normal. I do work a full timejob and live with my boyfriend, his family and our 3 dogs inland. Which is time and energy consuming. They are all wonderfulto me and understand when I just cant run up and down the stairs. Myparents live in Brooklyn, NY and they are having a hard time with meliving so far away. I tried the marriage thing and after 6 yearsdecided to move on and then this happened.That is about all I can type right now but I do have a question...Isit normal when the season changes to summer to have your symptomsbecome so much worse? does it go away or do I have to wait for Fall?\I appreciate this group and any answers I can get.KissesLorri

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May 26, 2007

Yes we sure are dog lovers! In my household there are 6 large dogs! As well as 7 cats, 6 hermit crabs and 3 tanks of fish. lollove.Sharon hello

Hi everyone. My name is Lorri and I am 38 years old. I just receivedmy dx in October and until this week I was just fine. I take avonexevery Friday and have been very lucky with the side effects. I amtired all the time but I guess that is normal. I do work a full timejob and live with my boyfriend, his family and our 3 dogs inland. Which is time and energy consuming. They are all wonderfulto me and understand when I just cant run up and down the stairs. Myparents live in Brooklyn, NY and they are having a hard time with meliving so far away. I tried the marriage thing and after 6 yearsdecided to move on and then this happened.That is about all I can type right now but I do have a question...Isit normal when the season changes to summer to have your symptomsbecome so much worse? does it go away or do I have to wait for Fall?\I appreciate this group and any answers I can get.KissesLorri

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May 27, 2007

--- Hey Val,thanks for the welcome and the advice. I can honestly say

I have never felt this horrible in my whole life. but I just wont

give in and lay down without a fight. Today I got up early and went

to watch the bf race his car. I know you are all thinking not the

smartest but I can not accept just sitting in the house. I guess

eventually I will have no choice. till then....

Kisses

Lorri

In MSersLife , " Val Lee " wrote:

>

> Hi Lorri~

> I don't remember if I welcomed you to the group or not. But, if I

haven't, let me do so now.

> My name is Val. I'm 47, mother of 4, newly married to a police

officer who has 6 kids of his own. Between the two of us, we have 17

grandchildren.

> I was dx'd in 1985. Summer is the worse time of year for me. There

was a time, when summer was my favorite time of year. Now, I'm a

spring/fall kinda girl. Even then, living here in NC., those seasons

can at times be pretty uncomfortable. The best thing I can suggest is,

stay out of the direct heat as much as possible. Wear light

loose-fitting clothes. And if you're like me...when my feet get hot,

I'm hot all over. So breathable shoes or sandles.

> Hope you enjoy your stay with us. I look forward to getting to know

you better.

> God bless...Val

> hello

>

> Hi everyone. My name is Lorri and I am 38 years old. I just received