Hello

[Guest guest]

,

Welcome to our group! I'm sorry that you had to join us but I hope we can

comfort and support you. I had my ectopic in June 1999 and had to have my

right tube removed. I kept telling my doctor that it seems like an ectopic

and she didn't believe me until my tube burst. I am sorry for all you have

been through.

Dawn

hello

> Hello,

> My name is Yurkovich.

> I am new to this group and wanted to tell my story.

> Mt husband and I were excited about the possibility of a pregnancy.

> I took a test and it was neg but I had not started yet so the test

> directions said to wait a week. A week of morning sickness followed

> and I was sure I was pregnant. I took another test a week later, a

> faint line, but I was unsure so I went to the doctors office. The

> nurses thought it was positive but said to wait another week just to

> be sure. I did not make it through the weekend before I started to

> spot. I called the doctor on Monday and went in for an ultrasound, I

> was almost seven weeks along. He siad he could not find a definate

> sac in my uterus but that I may not be as far along as I thought ,

> but to rule out an ectopic preg he ordered blood tests. I was

> scared, and very unsure about everything. On Wends I started to

> bleed even heavier, the nurses put me on bed rest, and I went to see

> the doctor that afternoon. As he was preforming his exam he said

> things are much worse than expected and told me I had had a

> miscarrage , and put out what he believed to be the products of

> conception, let me tell you my heart sank. He told me I needed to go

> and have a D & C preformed that afternnon. So... for two weeks I

> greived believing I had lost my baby...yet I continued to bleed. I

> went in for my checkup and I sould have known something was wrong.

> The doctor looked at my file four or five times just going well, um...

> He finailly said you may still be pregnant with an ectopic pregnacy.

> I was shocked. They mad my take another pee test.. it was positive.

> When he did the ultrasound he asked if it was posible that I had

> gotten pregnat in the last two weeks...no way. So when I told him I

> had a little pressure on the left side that is where he looked, and

> found my baby in my left tube. He did surgery that afternoon to

> remove the pregnancy, I was heartbroken, confused, adn shocked.

> As I went to surgery one of the nurses finally explained everything

> to me. She said that the pathology report on my miscarraige had come

> back as no products of conception, it was my own scar tissue from my

> first pregnancy.

>

>

>

> ------------------------------------------------------------------------

> eLerts

> It's Easy. It's Fun. Best of All, it's Free!

> http://click./1/3864/2/_/26068/_/957321461/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Is there anyone still online I left for awhile and eveyone seemed to have

came one. Please e-mail me if anyone is here!

-Debbie

[Guest guest]

JoAnn

Thank you but I am not on aol but I think you can still IM my by putting

debbie1080 in the IM box. I just came back on-line to see if anyone is here

to talk to so if you come back on please see if I am here.

Thank You LOL

-Debbie

[Guest guest]

Debbie,

I'm here! Do you have AOL IM? Let me know!

Love & hugs,

Jo-Ann

" Debbie T. " wrote:

>

> Is there anyone one line right now? I would like someone to talk to

> if so!

> -Debbie

>

> ------------------------------------------------------------------------

> Missing old school friends? Find them here:

> http://click./1/5534/4/_/26068/_/961350416/

> ------------------------------------------------------------------------

[Guest guest]

Debbie,

Hi my name is Treasa I am here want to talk?

Treasa

[Guest guest]

Hi ie,

Go ahead and get the biopsy. It may not tell you anything, but it might

tell you whether or not you have an underlying skin disorder like lichen

sclerosus.

I had a biopsy done last year a few months before I had surgery to remove

the major and minor vestibulary glands. The injection for the local

anesthesia hurt but the pain was really brief. They gave me a long lasting

anesthetic so that it wouldnt start hurting right away. It felt better in a

couple of days.

Bunny /| |\

. .

( ! )

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

,

Hi and welcome! I am sorry you have to be here.

I just had three biopsies done two weeks ago

and am waiting for the results. The biopsy itself

dosn't hurt since you will be shot full of good

numbing drugs, the most uncomfortable part is the

shot. Afterwards you will be uncomfortable if you

have stitches (which I did). I still have one area

that is red and tender but this was an area were I

have been experiencing most of my burning. I experi-

enced no pain what so ever from my vaginal biopsy.

My doctor told me to soak once to twice a day in the

tub and to add a Tbl. of salt to help with the healing

process, plus the soaking just feels better. I also

applied estrace to the vulva biopsies which helped in

the healing process. I hope this info helps.

Good Luck!

Hugs, Pam

[Guest guest]

,

Thank you. Yes I am going to have the biopsy done. He

wants to rule out other things to make sure that the

first doctors diagnoses of vestibulitis isn't possibly

something else, like you said lichen sclerosus.

Thank you!!!

--- Bunny

wrote:

> Hi ie,

>

> Go ahead and get the biopsy. It may not tell you

> anything, but it might

> tell you whether or not you have an underlying skin

> disorder like lichen

> sclerosus.

>

> I had a biopsy done last year a few months before I

> had surgery to remove

> the major and minor vestibulary glands. The

> injection for the local

> anesthesia hurt but the pain was really brief. They

> gave me a long lasting

> anesthetic so that it wouldnt start hurting right

> away. It felt better in a

> couple of days.

>

>

>

> Bunny /| |\

> . .

> ( ! )

>

>

>

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com/intl.asp

>

>

>

[Guest guest]

Pam,

Thanks so much. Yes the information helps to relieve a

bit of my fear and now I'm a bit prepared for what I

will need to do afterwards to help with being

uncomfortable. One question - If you work, was it hard

to return to work? I sit all day long and I don't want

anyone aware at work of my problem so I'm wondering

how I'm going to handle the uncomfortable part

afterwards.

Thanks so much!

--- RSand66893@... wrote:

>

> ,

>

> Hi and welcome! I am sorry you have to be here.

> I just had three biopsies done two weeks ago

> and am waiting for the results. The biopsy itself

> dosn't hurt since you will be shot full of good

> numbing drugs, the most uncomfortable part is the

> shot. Afterwards you will be uncomfortable if you

> have stitches (which I did). I still have one area

> that is red and tender but this was an area were I

> have been experiencing most of my burning. I experi-

> enced no pain what so ever from my vaginal biopsy.

> My doctor told me to soak once to twice a day in the

>

> tub and to add a Tbl. of salt to help with the

> healing

> process, plus the soaking just feels better. I also

>

> applied estrace to the vulva biopsies which helped

> in

> the healing process. I hope this info helps.

> Good Luck!

>

> Hugs, Pam

>

>

>

[Guest guest]

Hi Jami,

Where do you live? Your email address sounds familiar like I may have

coresponded with you before. Do you live in MN?

If you do, I can recomend some doctors in the area that will know more then

the average OB about our condition. The only real specialist close to MN is

in Milwaukee WI. That is who I am seeing.

Depending on who does the biopsy and if they are looking for the right

thing, a biopsy can tell them whether or not you have any underlying skin

disorder like Lichen Sclerosus. Unfortunatly the Biopsy dosent always show

the skin disorder when one is present.

Personally, I would refuse to take any more topical medication untill you

see a doctor that knows more about your condition. If you are having that

kind of a reaction to those meds (which is common with us). Then the

topicals will only make the vulvodynia worse.

For me, before resorting to surgery, the only thing that ever did anything

to heal my tissue was topical estrogen cream. Estrace may burn you too, but

it can be compounded by a compounding pharmacist without the alcohol and

other preservatives that can be irritants. If you live in MN in the twin

citys area, I can tell you of a compounding pharmacist that I go too. He

has worked with vulvodynia patients before too.

Good luck with your treatments, I hope you get relife soon:)

Bunny

Reply-To: VulvarDisorders

To: VulvarDisorders

Subject: Hello

Date: Thu, 13 Dec 2001 01:27:16 -0000

Hi Everybody,

I've been reading alot of posts here, and I have found alot of

useful information. Thankyou all. I'm 23 years old and I've had

vulvodynia for about 3 years. Before that I had painful sexual

contact and what I thought was a yeast infection. For days after any

sexual contact, my vulvar would burn and I was starting to have

problems sitting down, but it would go away if I was abstainate. I

also was treated numerous times with antibiotics for reacurrent

urinary tract infections. In March of 2000 I used OTC Monistat and

had an EXTREME reaction to it. That started a constant 24/7 burn and

I could not stand to sit down. My obgyn prescriped Nystatin and

Triamcinolone Cream (did nothing), Terazol (burned), Bactroban (did

nothing), Diflucan (did nothing), Clobetasol (did nothing then

burned), Xylocaine (burned really bad), and now I'm on 20 mg of

Nortripyline tricylic anti-depressant. It is helping me I think and I

am completly abstaining from anything sexual and I do not sit down

very much at all. The 24/7 burn is gone, but I can not sit down very

well and I can not do anything sexual. Somewhere in there I found out

that my bacteria and yeast levels are normal. I don't know if the doc

knew before or after she prescriped all those yeast and bacteria meds

or what. Kinda make you wonder!

I think I'm gonna try to raise the level of the Nortriptyline if I

can stand it. And I'm thinking about trying Estrace. My OBGYN asked

me if I want to do a biopsy(and I have one scheduled) but I don't

know if I want to do it. There are no visual changings on my vulva,

and I'm finally starting to feel better! I think I'm gonna try to

find someone that has treated more woman with vulvodynia. My Obgyn

said I should try Aldara,(I don't have HPV) but I refuse to put

anymore medicated creams on that might make me any worse. I got my

oxalate levels tested and I'm waiting for the results on that.My pain

is located between 9:00 and 3:00/ mostly the UPPER part of the

vestibule. So my doc said that I don't have VVS. It's kinda confusing.

Well anyway:) Thanks for listening. Thankyou everyone for all the

useful information or just the stories to read. Good Luck to all of

you, I pray for everyone suffering. Love,

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi,

How could your doc say that you don't have VVS? It sounds exactly

like VVS!! You should get the biopsy done b/c any info is good. And

do try the estrace. Try pretty much anything you can, unless it

could make it worse, of course. Your symptoms sound exactly like

mine. I would have sex and it would burn for 2+ days and I had

recurrenct yeast infections. If you don't trust your doc, get a new

one.

Ruth

> Hi Everybody,

> I've been reading alot of posts here, and I have found alot of

> useful information. Thankyou all. I'm 23 years old and I've had

> vulvodynia for about 3 years. Before that I had painful sexual

> contact and what I thought was a yeast infection. For days after

any

> sexual contact, my vulvar would burn and I was starting to have

> problems sitting down, but it would go away if I was abstainate. I

> also was treated numerous times with antibiotics for reacurrent

> urinary tract infections. In March of 2000 I used OTC Monistat and

> had an EXTREME reaction to it. That started a constant 24/7 burn

and

> I could not stand to sit down. My obgyn prescriped Nystatin and

> Triamcinolone Cream (did nothing), Terazol (burned), Bactroban (did

> nothing), Diflucan (did nothing), Clobetasol (did nothing then

> burned), Xylocaine (burned really bad), and now I'm on 20 mg of

> Nortripyline tricylic anti-depressant. It is helping me I think and

I

> am completly abstaining from anything sexual and I do not sit down

> very much at all. The 24/7 burn is gone, but I can not sit down

very

> well and I can not do anything sexual. Somewhere in there I found

out

> that my bacteria and yeast levels are normal. I don't know if the

doc

> knew before or after she prescriped all those yeast and bacteria

meds

> or what. Kinda make you wonder!

>

> I think I'm gonna try to raise the level of the Nortriptyline if I

> can stand it. And I'm thinking about trying Estrace. My OBGYN asked

> me if I want to do a biopsy(and I have one scheduled) but I don't

> know if I want to do it. There are no visual changings on my vulva,

> and I'm finally starting to feel better! I think I'm gonna try to

> find someone that has treated more woman with vulvodynia. My Obgyn

> said I should try Aldara,(I don't have HPV) but I refuse to put

> anymore medicated creams on that might make me any worse. I got my

> oxalate levels tested and I'm waiting for the results on that.My

pain

> is located between 9:00 and 3:00/ mostly the UPPER part of the

> vestibule. So my doc said that I don't have VVS. It's kinda

confusing.

>

> Well anyway:) Thanks for listening. Thankyou everyone for all the

> useful information or just the stories to read. Good Luck to all of

> you, I pray for everyone suffering. Love,

[Guest guest]

Hi, ! Nice to see a partner of a vulvodynia

patient here. Has your girlfriend found a

specialist and/or doctor knowledgeable about

vestibulitis yet? I hope so! Has she tried any

treatments yet, and if so, what were the results? I

also hope she can join our little group and benefit

from the knowledge of all these wonderful women.

Take care.

Suzy

--- Bellon wrote:

> Hi. Well, I just wanted to say hello and introduce

> myself. I am 28 and live in the midwest. I am a

> school teacher and personal trainer. My girlfriend

> suffers from vestibulitis. I am doing all I can to

> learn to be supportive and let her know how much I

> love her. I think this thing can be beaten but it

> takes alot of work to find that catalyst that has

> been causing her so much pain.

>

__________________________________________________

[Guest guest]

Suzy,

Thanks. She is on this list I believe. She is BettyEx@... :-)

Re: Hello

> Hi, ! Nice to see a partner of a vulvodynia

> patient here. Has your girlfriend found a

> specialist and/or doctor knowledgeable about

> vestibulitis yet? I hope so! Has she tried any

> treatments yet, and if so, what were the results? I

> also hope she can join our little group and benefit

> from the knowledge of all these wonderful women.

>

> Take care.

>

> Suzy

>

> --- Bellon wrote:

> > Hi. Well, I just wanted to say hello and introduce

> > myself. I am 28 and live in the midwest. I am a

> > school teacher and personal trainer. My girlfriend

> > suffers from vestibulitis. I am doing all I can to

> > learn to be supportive and let her know how much I

> > love her. I think this thing can be beaten but it

> > takes alot of work to find that catalyst that has

> > been causing her so much pain.

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi,

It makes me so happy that there are great guys out there who would

not only support his girlfriend, but actually research the

information! Is she on this list, too?

Love and Prayers,

Ruth

> Hi. Well, I just wanted to say hello and introduce myself. I am

28 and live in the midwest. I am a school teacher and personal

trainer. My girlfriend suffers from vestibulitis. I am doing all I

can to learn to be supportive and let her know how much I love her.

I think this thing can be beaten but it takes alot of work to find

that catalyst that has been causing her so much pain.

[Guest guest]

Thanks! Yes, she is. BettyEx@... She is busy the last few days with

work but its a team effort. I think I am a bit more zealous but its easier

for me and in some ways its harder. Yes, she feels the physical pain. But

you have no idea how much I hurt knowing I am helpless to keep her from that

pain. I am driven to be attentive and supportive while hopefully finding a

cure....if there is one.

Re: Hello

> Hi,

> It makes me so happy that there are great guys out there who would

> not only support his girlfriend, but actually research the

> information! Is she on this list, too?

>

> Love and Prayers,

> Ruth

>

>

> > Hi. Well, I just wanted to say hello and introduce myself. I am

> 28 and live in the midwest. I am a school teacher and personal

> trainer. My girlfriend suffers from vestibulitis. I am doing all I

> can to learn to be supportive and let her know how much I love her.

> I think this thing can be beaten but it takes alot of work to find

> that catalyst that has been causing her so much pain.

>

>

>

> *****END OF MESSAGE*****

> -------------------------------------------------

> To post message: VulvarDisorders

> To Subscribe: VulvarDisorders-subscribe

> Unsubscribe: VulvarDisorders-unsubscribe

> List owner: VulvarDisorders-owner

>

> *****

[Guest guest]

my husband has supported my efforts at finding a cure and most of all he just keeps saying that we will beat this .......refuse to believe that we will live like this forever there is an answer we just have to persistantly persue it.

Re: Hello> Hi,> It makes me so happy that there are great guys out there who would> not only support his girlfriend, but actually research the> information! Is she on this list, too?>> Love and Prayers,> Ruth>> > > Hi. Well, I just wanted to say hello and introduce myself. I am> 28 and live in the midwest. I am a school teacher and personal> trainer. My girlfriend suffers from vestibulitis. I am doing all I> can to learn to be supportive and let her know how much I love her.> I think this thing can be beaten but it takes alot of work to find> that catalyst that has been causing her so much pain.>>>> *****END OF MESSAGE*****> -------------------------------------------------> To post message: VulvarDisorders > To Subscribe: VulvarDisorders-subscribe > Unsubscribe: VulvarDisorders-unsubscribe > List owner: VulvarDisorders-owner >> *****

[Guest guest]

Hi Kimbell and welcome to the group. I found my lump when I was 44 and had a

mastectomy with 6 mo of chemo and no radiation and no reconstruction. I

celebrated my 13th year of being cancer free in May.

It will get easier as time goes on. I know right now it may not seem like it

but it truly does. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:

http://www.geocities.com/chucky5741/bcornament.html

also check out my other ornaments and lots of nice gifts at:

http://www.cancerclub.com

Hello

> Hello Everyone,

>

> My name is Kimbell and I just joined the group. I found the group last

night

> after researching for a while and I was immediately taken with all of your

> stories. I wanted to join and add my voice.

>

> I was diagnosed with DCIS this past April after my first screening

> mammogram. I knew something was wrong when they called my back the

> same day to set up another mammogram for the next day. After the next

> mammogram, I looked at the picture of my breast with little white specks

all

> over it and asked the radiologist what she thought. She calmly but with

> compassion said, " it looks malignant to me. " I've thought a lot about her

> during all of this. I looked at my partner and said, " I'm 41. We have a

6 year

> old. No one we know has breast cancer. I think I have it.

>

> Thus began our lightning fast introduction to the world all of you know.

We

> found a great surgeon, oncologist and plastic surgeon. I did mountains of

> research (that's how I cope with BIG things). The biopsy was awful and

> showed DCIS all over my left breast. It had not infiltrated but was a

high

> nuclear grade with necrosis. After a big team meeting we all decided that

a

> mastectomy with sentinal node biopsy was needed. It was all I could do to

> catch up with the pace. All I knew was that I wanted it out of me and

that we

> had a lot of work to do to help our son understand what was going on. I'd

love

> to talk with people who have young children and compare notes.

>

> I had a skin saving mastectomy with the node biopsy on May 1st. I also

had a

> TRAM flap reconstruction at the same time with a reduction of my healthy

> breast. Part of the reason I did that was to be able to have pathology

get a

> good look at a lot of that tissue in my healthy breast. The other reason

was so

> that my reconstruction would not have to be so large, thus making

> complications more of an issue. I did have a post-op infection in my

> reconstructed breast that landed me back in the hospital for 5 days a week

> after my surgery. I was sick, in pain, depressed, missed my son, felt

> overwhelmed. Once I got home I tried to put it all back together fast but

my

> body kept me honest. Our son spent his time glued to my side and checking

> out my recontruction scar which wasn't healing well.

>

> The best news was that my nodes were clear and none of the DCIS was

> infiltrating. I feel like the poster child for mammography and I feel

fragile all of

> the time. I have never felt fragile in my life. I've experienced other

things with

> my health (epilepsy, depression, neck injury) but this has really put me

into a

> different space. I have healed my body but my psyche will take more time

I

> think.

>

> Currently I am back to work and taking Tamoxifen. I would love to hear

from

> anyone and will continue to read along with the conversation. Thanks for

> being here.

>

> Kimbell

>

>

>

>

[Guest guest]

Thanks for the welcome. Most days I am sure I am cancer free, others not so

sure. As one of my friends says, " Kimbell it's just another one of those adult

growth opportunities. " Yup!

> Hi Kimbell and welcome to the group. I found my lump when I was 44 and

had a

> mastectomy with 6 mo of chemo and no radiation and no reconstruction. I

> celebrated my 13th year of being cancer free in May.

> It will get easier as time goes on. I know right now it may not seem like it

> but it truly does. I will keep you in my prayers.

> Hugs

> nne

> Breast Cancer Patients Soul Mates for Life

> http://www.geocities.com/chucky5741/breastcancerpatients.html

>

> Check out my breast cancer ornaments at:

> http://www.geocities.com/chucky5741/bcornament.html

> also check out my other ornaments and lots of nice gifts at:

> http://www.cancerclub.com

> Hello

>

>

> > Hello Everyone,

> >

> > My name is Kimbell and I just joined the group. I found the group last

> night

> > after researching for a while and I was immediately taken with all of your

> > stories. I wanted to join and add my voice.

> >

> > I was diagnosed with DCIS this past April after my first screening

> > mammogram. I knew something was wrong when they called my back the

> > same day to set up another mammogram for the next day. After the next

> > mammogram, I looked at the picture of my breast with little white specks

> all

> > over it and asked the radiologist what she thought. She calmly but with

> > compassion said, " it looks malignant to me. " I've thought a lot about her

> > during all of this. I looked at my partner and said, " I'm 41. We have a

> 6 year

> > old. No one we know has breast cancer. I think I have it.

> >

> > Thus began our lightning fast introduction to the world all of you know.

> We

> > found a great surgeon, oncologist and plastic surgeon. I did mountains of

> > research (that's how I cope with BIG things). The biopsy was awful and

> > showed DCIS all over my left breast. It had not infiltrated but was a

> high

> > nuclear grade with necrosis. After a big team meeting we all decided that

> a

> > mastectomy with sentinal node biopsy was needed. It was all I could do to

> > catch up with the pace. All I knew was that I wanted it out of me and

> that we

> > had a lot of work to do to help our son understand what was going on. I'd

> love

> > to talk with people who have young children and compare notes.

> >

> > I had a skin saving mastectomy with the node biopsy on May 1st. I also

> had a

> > TRAM flap reconstruction at the same time with a reduction of my healthy

> > breast. Part of the reason I did that was to be able to have pathology

> get a

> > good look at a lot of that tissue in my healthy breast. The other reason

> was so

> > that my reconstruction would not have to be so large, thus making

> > complications more of an issue. I did have a post-op infection in my

> > reconstructed breast that landed me back in the hospital for 5 days a week

> > after my surgery. I was sick, in pain, depressed, missed my son, felt

> > overwhelmed. Once I got home I tried to put it all back together fast but

> my

> > body kept me honest. Our son spent his time glued to my side and

checking

> > out my recontruction scar which wasn't healing well.

> >

> > The best news was that my nodes were clear and none of the DCIS was

> > infiltrating. I feel like the poster child for mammography and I feel

> fragile all of

> > the time. I have never felt fragile in my life. I've experienced other

> things with

> > my health (epilepsy, depression, neck injury) but this has really put me

> into a

> > different space. I have healed my body but my psyche will take more time

> I

> > think.

> >

> > Currently I am back to work and taking Tamoxifen. I would love to hear

> from

> > anyone and will continue to read along with the conversation. Thanks for

> > being here.

> >

> > Kimbell

> >

> >

> >

> >

[Guest guest]

Welcome, you will be a great new member to have here with your

positive attitude. Keep us posted and give that 6 year old a big hug

from me. doris

> Hello Everyone,

>

> My name is Kimbell and I just joined the group. I found the group

last night

> after researching for a while and I was immediately taken with all

of your

> stories. I wanted to join and add my voice.

>

> I was diagnosed with DCIS this past April after my first screening

> mammogram. I knew something was wrong when they called my back the

> same day to set up another mammogram for the next day. After the next

> mammogram, I looked at the picture of my breast with little white

specks all

> over it and asked the radiologist what she thought. She calmly but

with

> compassion said, " it looks malignant to me. " I've thought a lot

about her

> during all of this. I looked at my partner and said, " I'm 41. We

have a 6 year

> old. No one we know has breast cancer. I think I have it.

>

> Thus began our lightning fast introduction to the world all of you

know. We

> found a great surgeon, oncologist and plastic surgeon. I did

mountains of

> research (that's how I cope with BIG things). The biopsy was awful and

> showed DCIS all over my left breast. It had not infiltrated but was

a high

> nuclear grade with necrosis. After a big team meeting we all

decided that a

> mastectomy with sentinal node biopsy was needed. It was all I could

do to

> catch up with the pace. All I knew was that I wanted it out of me

and that we

> had a lot of work to do to help our son understand what was going

on. I'd love

> to talk with people who have young children and compare notes.

>

> I had a skin saving mastectomy with the node biopsy on May 1st. I

also had a

> TRAM flap reconstruction at the same time with a reduction of my

healthy

> breast. Part of the reason I did that was to be able to have

pathology get a

> good look at a lot of that tissue in my healthy breast. The other

reason was so

> that my reconstruction would not have to be so large, thus making

> complications more of an issue. I did have a post-op infection in my

> reconstructed breast that landed me back in the hospital for 5 days

a week

> after my surgery. I was sick, in pain, depressed, missed my son, felt

> overwhelmed. Once I got home I tried to put it all back together

fast but my

> body kept me honest. Our son spent his time glued to my side and

checking

> out my recontruction scar which wasn't healing well.

>

> The best news was that my nodes were clear and none of the DCIS was

> infiltrating. I feel like the poster child for mammography and I

feel fragile all of

> the time. I have never felt fragile in my life. I've experienced

other things with

> my health (epilepsy, depression, neck injury) but this has really

put me into a

> different space. I have healed my body but my psyche will take more

time I

> think.

>

> Currently I am back to work and taking Tamoxifen. I would love to

hear from

> anyone and will continue to read along with the conversation.

Thanks for

> being here.

>

> Kimbell

[Guest guest]

,

You might want to make up a questionaire and post it plus post a little more

info about your paper and school. We get all sorts of people joining the

group. Most are legitimate but there have some that are not. With more info

plus a questionaire or something similar you would stand a better chance of

getting replies.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:

http://www.geocities.com/chucky5741/bcornament.html

also check out my other ornaments and lots of nice gifts at:

http://www.cancerclub.com

hello

> This is I am currently a student at North Carolina

> State University. I am writing a paper on what it's like to live

> with breast cancer. I personally don't have breast cancer but have a

> lot of relatives to die from cancer. If anyone has information that

> would be helpful I would greatly appriecate it. Thanks so much.

>

>

>

>

>

>

[Guest guest]

We are trying to do chat on Mon wed & fri at 7pm central we do voice and

type what ever you want

Jeana

Hello

> Hi everyone,

> Is the chat limited to typing or voice. I can do voice through my

> soundcard and microphone.How do I get on it? Is it only on Mondays?I

> am a poor,poor typist!

> Jean

>

>

>

>

>

[Guest guest]

Chat is M-W-F at 7pm central. I believe you can either use voice chat or

type.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:

http://www.geocities.com/chucky5741/bcornament.html

also check out my other ornaments and lots of nice gifts at:

http://www.cancerclub.com

Hello

> Hi everyone,

> Is the chat limited to typing or voice. I can do voice through my

> soundcard and microphone.How do I get on it? Is it only on Mondays?I

> am a poor,poor typist!

> Jean

>

>

>

>

>

[Guest guest]

Hi Dayna,

Welcome to the group. I had a mastectomy May 24, 1990 and I am doing great.

I was/am Stage II, I had 6 mo of chemo and no radiation and no

reconsturction. If I would have thought about I would have had both breasts

taken at the same time. But when I was diagnosed I didn't know anyone with

breast cancer. In my opinion it would be a good idea.

I am sorry it took so long for your post to show up. I am cofounder and have

made so the new members are moderated so I can see what is wanting to be

posted. We have been getting some people posting X rated sites etc. and

found out in another group that you can moderate new members. We were not

home all day so this is why it took so long. Sorry.

You are in my prayers.

Hugs

marianne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:

http://www.geocities.com/chucky5741/bcornament.html

also check out my other ornaments and lots of nice gifts at:

http://www.cancerclub.com

hello

> Hello. My name is Dayna. I was recently (Dec 4) diagnosed with DCIS

> breast cancer. I have been extensively gathering as much information

> about the type of cancer I have. However, I would like to hear from

> others who are experiencing or have experienced the same emotions I

> am.

> I am scheduled for a mastectomy on January 15. I have opted for a

> mastectomy because the cancer is located directly behind my nipple

> and a lumpectomy would take so much tissue that my breast would have

> a large concave center. I am considering a bilateral because of the

> likelihood of the cancer developing in my right breast.

> This is all very new to me. I feel I am processing things as well as

> can be expected. I would like some feed back on your experiences. I

> am looking forward to getting to know you and your stories. We have

> an unusual kinship in our diagnosis.

> I will continue to keep you in my prayers as I learn more from you.

> Dayna

>

>

>

>

>

[Guest guest]

Hi Dayna

Nice to meet you. My name is Sue-Anne. I live in Ontario Canada. I was diagnosed in May of this year with infiltrating ductal carcinoma. Had a lumpectomy and sentinel node biopsy in July. Had 2 out of 11 nodes come back positive. I started chemo in Sept. I will have my last chemo treatment on Dec. 29. I will be having 4 to 5 weeks of radiation in Feb. Feel free to ask any questions. This is a wonderful site and everyone is very helpful.

Talk to you Soon

Sue-Anne

hello

Hello. My name is Dayna. I was recently (Dec 4) diagnosed with DCIS breast cancer. I have been extensively gathering as much information about the type of cancer I have. However, I would like to hear from others who are experiencing or have experienced the same emotions I am.I am scheduled for a mastectomy on January 15. I have opted for a mastectomy because the cancer is located directly behind my nipple and a lumpectomy would take so much tissue that my breast would have a large concave center. I am considering a bilateral because of the likelihood of the cancer developing in my right breast. This is all very new to me. I feel I am processing things as well as can be expected. I would like some feed back on your experiences. I am looking forward to getting to know you and your stories. We have an unusual kinship in our diagnosis.I will continue to keep you in my prayers as I learn more from you.Dayna

[Guest guest]

Rhonda,

I am sorry you are so tired. Please try to take care the best you can. After Christmas you need to rest, rest, rest. You are in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Hello

Hello Everyone:I am trying to read everyones post when I can but it has been hard I have over 100 in my mail box right now. It has been so hard but I am glad that there is only five more days of kettles. I am looking forward to Thursday! I am so tired, I go all day and come home and eat and go to bed then I get up and do it all over again.