RE: Newbie - Hello!(w/response)

[Guest guest]

<<Hi,

Thanks for your welcome.

I think if I may I will ‘lurk’ for the moment.. I’m seeming to tolerate the

w/d fairly well, and my reactions to foods and supplements are not

unfortunately in the ‘normal’ sphere due to the underlying ME: I react very

strangely to practically every med and most supplements too L.

Is it ok to post when/if I have a specific query?

BW

Rosie>>

** You react this way to supplements and drugs because your adrenals are

worn out. Guess how you restore thrm? Supplements --- carefully cchosen,

individually titrated doses chosen just for you.

As far as occasionally posting specific queries, perhaps. It depends on

the nature of them. Most of these require info about you and the time factor

involved in responding when people don't engage is more time than I have to do

this. You see, if you don't interact regularly, your specifics fade into all

the others and it's just like I am just meeting you when you post only

occasionally.

Regards,

Hi Rosie, You have come to the right place to get the help you need. I know

will be able to answer your questions and help you. In the

meantime, have you read the files? Could you post a 4 day food diary? This

will help to help you. Welcome to the group.

octrosie20 wrote:

Hi all,

I have just joined this list having been pointed to it by someone on

another list.

I'll very quickly introduce myself and the drugs which I have

withdrawn from / am with drawing from.

I suffer with ME (Myalgic Encephalomyelitis - otherwise known in some

quarters as CFS or CFIDs) which is essentially a

neurological/immunolgical disease.

I have had this since 1970 when I was 10 yrs old, and have been

sunstantially replapsed with it since 1994. I had the mother of all

crashes of this illness in 2004 and this is when I was very

inappropriately treated with psyche meds (lots of SSRI's/ SNRI's and

benzos) and went though hell all that year from the side effects of

the drugs and the withdawal symptoms. I was given a very low dose of

the TCA Dothiepin (dosulepin) - 25mg in the October of that year

which calmed my CNS enough to fully come off the last of the benzo,

and whist it helped in this regard it threw up other side effects

which I would prefer to be without.

Consequently at the beginning of the summer I started to taper this

drug at 1/14th increments approx every two or three weeks - which is

quite tolerable. Unqustionably getting off a TCA (for me) is a good

deal easier than getting off a SSRI or a benzo!

I've had a few hairy moments; notably at the very beginning of the

taper, and when I took magnesium. I have discovered via my sister (a

physiologist who read medicine) that Magnesium acting on the ion

channels can block the action of a TCA and effectively plunge one

into cold turkey - and this is unquestionably what happened to

me..and I was back on an even keel within a day or two of stopping

the supplement. I'm trying depserately to get hold of the text which

provided this info as it is not available in the usual formularies

nor in the product info inserts, but clearly has a risk associated

with it. I'm not sure if the individual needs to have underlying

problems with their ion channels for this to be a concern or not?

Anyway, at present thinsg seem to be 'chugging along' ok, I'm coping

with the w/d side effects so far (mostly nausea/ dizziness/ and

inability to cope with too mcuh brain stimulation.. but TBH alot of

these are exacerbations of what it is already like to have ME !)

I hope I can find yet more info which will help me with my withdrawal

on this list..

many thanks for bearing with me,

Rosie (UK)

_____

Shape Yahoo! in your own image. Join

<http://us.rd.yahoo.com/evt=48517/*http:/surveylink.yahoo.com/gmrs/yahoo_pan

el_invite.asp?a=7> our Network Research Panel today!