Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Hi - I'm very familiar with the " I'm too young and way too healthy to have cancer " thoughts. I was diagnosed in April of 2000 when I was 28. I had just run the Boston Marathon 2 1/2 weeks earlier which was my 3rd marathon in 10 months. I was feeling at my peak in terms of health. One of the ironic things was I ran my first marathon with Team in Training and raised over $5000 for the Leukemia & Lymphoma Society. One of my friends from the event made a comment that he could do his next race for me and it totally freaked me out. I felt like my kind of cancer was not nearly as terrible as the little 7 year old girl who had leukemia that I had done my marathon for not to mention the fact that I was still having trouble grasping the fact that I had cancer. First off, I'm thankful that I was in such good shape because I think it made a huge difference in the healing process. As far as the medication, I have not really had any problems. I think it just depends because I've read posts here about it taking months, maybe even a year to get the medication right. For me I only had to make one adjustment and that was just based on labs not because I was feeling bad or anything. Recently though, I'm wondering if increased activity can have an affect. Up until now I have continued to workout but nothing too major. Now I'm training for my first triathlon and working out 5-6 times a week. I notice that I'm feeling a little weird lately and am anxious to get my labwork done so I can see where I'm at. I'll let you know when I do that and talk to my Dr. As far as being a cancer survivor, I think it takes some time to come to terms with it all. When it's all still so new and you are going through tests and surgery and drinking radioactive stuff out of a 30 lb lead container that a technician is barely able to hold (I don't know if you had to do this since you had a lower dose but when I was in hospital isolation that is how I received my dose), it's hard to see past that word...cancer. You look in the mirror and see this 8 1/2 inch smiley scar across your neck and think how am I ever going to hide this! I'm at the point where I see nothing to hide, but that didn't happen overnight. I was very angry that this whole thing happened to me in the first place. I felt like it was messing up all my plans and ruining my life. Keeping a sense of humor and positive attitude was essential for me. Life-long monitoring is just something we have to accept, but it doesn't mean you can't live your life. Stay Active!! Lara 5/00 pap ca TT w/ neck dissection 6/00 152 mCi RAI 6/01 Clean Scan > Greetings, All ~ > > My name is and I'm brand new to this list, so, please excuse any > inadvertent faux-pas I may make, and also, I don't know all of the correct > medical terms and dosages, as you all seem to, being I'm very new to all of > this business and still learning!! > > I was diagnosed with Papillary Thyroid Carcinoma on 3/14/02, following the > excision of a thyro-glossal duct cyst on 3/7/02 that had come up benign on > the initial cyst aspiration pathology. The focus of cancer was very small, > and the ensuing thyroid MRI was clear, but as a necessary precaution, I > underwent a total thyroidectomy and exploratory surgery on 3/28/02 - which > showed a small focus of cancer in the left lobe of my thyroid, but no other > areas of spread were detected. I started Cytomel immediately after the > surgery and then stopped it 9 days prior to my I-131 treatment, which I > underwent yesterday afternoon, 4/24/02, and which was a very low dose - 50 > something or other. I follow-up the treatment with a full body scan (for > gamma radiation) in one week. Both my Endocrinologist and Nuclear Medicine > Docs feel very confident that this will be the last of my thyroid cancer, > and that my risk for recurrence is very low - which is all great news!! : ) > But even so, doubts still linger, and the emotional effects of being > diagnosed with " The Big C " have been difficult to grapple with. > > I am writing to bring up a few subjects that have been bothering me, and see > if anyone else has also been plagued by these troublesome thoughts, or, who > might have some advice for me. I realize, of course, that everyone's > experiences are different, and won't necessarily match my own. Thank you in > advance for your time!! : ) > > 1) I'm very concerned about my life-long thyroid replacement therapy, and > it's effects on my metabolism (specifically, weight control, energy levels, > fertility issues), as I am an extremely active and athletic gal, and want to > be a mom some day (soon!) (Btw, I haven't resumed my thyroid medication > yet - will start this Sat., 4/27, with a new medication - can't remember the > name of it.) Has anyone had problems with proper regulation of their med > levels, and if so, how was eventual regulation obtained? How did improper > levels affect you?? Or, is this such an exact science that I won't even > notice my thyroid is gone??! (So far, I haven't really noticed any > significant effects.) > > 2) This may sound silly - but I'm concerned about my cat while I'm currently > " Radioactive Girl " !! : } The Doc said she can stay with me, but to avoid > contact with her for three days, and don't let her sleep on my bed - which > is proving difficult, but we're making it. Has anyone heard of any > statistics on the danger to pets following an I-131 treatment?? > > 3) I've been having moderate to severe vision disturbances in my left eye - > ever since my TT surgery. I've been to my ophthalmologist twice already, and > he said my vision is right on, and he doesn't know what's causing the > disturbances, neither does my Endocrinologist. Has anyone else experienced > this?? Or, any ideas on what's causing this?? (It's very bothersome!! Sort > of feels like muscle strain.) > > 4) Now that all of the worst parts are over, I've started freaking out over > being labeled with the term " Cancer Survivor " and all that this implies (and > I also feel silly for getting so upset, when my form of cancer has been so > " mellow " compared to what it could have been - breast cancer, testicular > cancer, etc.) But I keep thinking - How can this be?? This isn't me!! In the > words of a " Talking Heads " song, " This is not my beautiful life!! " Cancer > wasn't supposed to be part of my life story!! I'm young, extremely healthy, > very active - how could this happen to me??!! And I'm pretty much okay > during the days, but at night, everything closes in on me and my anxieties > run wild - it's a very scary time!! I'm starting to dread sundown!! Anyway, > I was just wondering how others of you are coping with your diagnosis and > life-long cancer monitoring, and how you've obtained the emotional support > you've needed to accept and deal with your situation (other than this list, > of course!) Should I seek out a counselor who specializes in the recovery > from serious diseases?? (I'm near Los Angeles, CA, btw.) > > Once again, thank you very much for your time and any comments you may have > will be greatly appreciated!! : ) > > ~ : ) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 , > Has anyone had problems with proper regulation of their med levels, > and if so, how was eventual regulation obtained? I suspect that many of us had problems getting our meds regulated at the beginning. It's a trial-and-error process, and since each trial takes 6-8 weeks it can be a frustrating experience for the patient. If you take the same dose of meds conscientiously for 8 weeks and still don't feel " right " at the end of that time, ask your doctor to do a blood test and adjust the dose. Repeat every 8 weeks until you feel like yourself again (if your doctor gets tired of this drill, it's up to you to insist). > 2) This may sound silly - but I'm concerned about my cat while I'm currently > " Radioactive Girl " !! It's not silly at all; you can easily ablate your cat's thyroid if you're not careful. Keep her well away from your neck and don't touch her food or her bowls with your bare hands (if there's nobody else who can feed her for you, wear gloves when handling her food and water bowls and the litter box). The easiest way to keep her safe for a few days is to keep a closed door between you at all times. The cat won't like it, but she'll forgive you eventually :-). > 3) I've been having moderate to severe vision disturbances in my left eye - > ever since my TT surgery. You don't say what kind of vision disturbances you're experiencing. When I'm off meds (hypo) I always have terrible problems with blurred vision. I don't focus very well, and changing focus from near to far doesn't work at all. It's very annoying, but the ophthalmologist never finds anything amiss and my vision always clears up on its own after I've been back on meds for a few weeks. > I'm pretty much okay during the days, but at night, everything > closes in on me and my anxieties run wild - it's a very scary time!! I can relate; I coped well during the day, but my nights were pretty awful for a while after my dx. I was beginning to think that I'd never be able to lie down and just go to sleep without exhausting myself with thoughts of death and debility first. But it passed. I think everyone who's diagnosed with a serious illness experiences these anxieties. My personal choice was not to attempt to medicate them away as long as they weren't impairing my ability to function. By and by I noticed that I was still alive and feeling more like myself every day, and the nighttime anxiety faded away on its own. I think it's one of those rites of passage that all cancer patients have to go through :-(. > Should I seek out a counselor who specializes in the recovery > from serious diseases?? Only you can answer that question. It can be very important to your recovery to be able to talk to someone about your feelings. If you're lucky enough to have a friend or relative who can listen sympathetically, that may be enough. If not, finding a support group or a professional counselor may be a good idea. The hospital where you had your treatment would be a good place to enquire, as many now offer support services for cancer patients. Hope this helps. Best of luck! ellen -- mailto:ellen@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Hi , I am going to start with your last question because I think it will offer you the most stability as a new patient. Before seeing a therapist, attend the local thyca meeting where everyone there has had the surgery, RAI and fears that you have.There is a meeting this weekend in Calabassas It will go a long way to inspiring you!! Check out www.thyca.org and look at the local support to find the meeting nearest you! And certainly attend the conference next Oct. in LA! After an RAI treatment it takes time for the level to reach suppression 0.10. No two patients are identical in their response but all feel fine....eventually! For some it is a month, others 2 months and we've even had some much longer than that. With regard to your cat, you need to keep that pet away from you and the contaminated area. Their thyroid can be damaged from your contamination. My son in law is a vet and he told me they isolate cats who receive RAI treatment ( cats are prone to thyroid disease). There is a period of adjustment for all cancer patients reckoning with the hard facts. You are barely out of the gate so it is understandable all the pent up worries you have. But once you get through that, understand the ongoing treatment and learn all that you can about the disease, thyca just becomes an extension of your daily needs. You need to take a pill everyday, you need to be vigilant about changes and you need to make sure you are followed correctly. I've been at this now for 34 years. The alternative would not have been very desireable. Life does return to normal. If you think it's difficult considering yourself a cancer survivor right now....you won't in time. Cancer has a way of adding pluses to our lives that we never imagined. You have to live it to understand the changes. I honestly feel my life has been changed for the better as a result of having had cancer and I know there are others on this list who feel the same way. But that feeling takes time, it doesn't happen overnight. For some of us who are long term survivors there was no such thing as a support group or even another thyca patient to speak to. I went 30 years before I met another thyca patient. So even out there alone with no support patients get through the trauma of the diagnosis and get on with leading a normal life. I'm sure, with your excellent prognosis, this is exactly what will happen to you. Have faith!! Gail dx: 1968, TT, pap. & foll. well differentiated w/hurthle cell, RAI, rad.neck dissection,lung surgery, hashimoto, tg antibody 575, iodine resistant,existing thyca nodules in lungs. Last surgery 1972 > . I started Cytomel immediately after the > surgery and then stopped it 9 days prior to my I-131 treatment, which >> > 1) I'm very concerned about my life-long thyroid replacement therapy, and > it's effects on my metabolism (specifically, weight control, energy levels, > fertility issues), as I am an extremely active and athletic gal, and want to > be a mom some day (soon!) (Btw, I haven't resumed my thyroid medication > yet - will start this Sat., 4/27, with a new medication - can't remember the > name of it.) Has anyone had problems with proper regulation of their med > levels, and if so, how was eventual regulation obtained? How did improper > levels affect you?? Or, is this such an exact science that I won't even > notice my thyroid is gone??! (So far, I haven't really noticed any > significant effects.) > > 2) This may sound silly - but I'm concerned about my cat while I'm currently > " Radioactive Girl " !! : } The Doc said she can stay with me, but to avoid > contact with her for three days, and don't let her sleep on my bed - which > is proving difficult, but we're making it. Has anyone heard of any > statistics on the danger to pets following an I-131 treatment?? > > 3) I've been having moderate to severe vision disturbances in my left eye - > ever since my TT surgery. I've been to my ophthalmologist twice already, and > he said my vision is right on, and he doesn't know what's causing the > disturbances, neither does my Endocrinologist. Has anyone else experienced > this?? Or, any ideas on what's causing this?? (It's very bothersome!! Sort > of feels like muscle strain.) > > 4) Now that all of the worst parts are over, I've started freaking out over > being labeled with the term " Cancer Survivor " and all that this implies (and > I also feel silly for getting so upset, when my form of cancer has been so > " mellow " compared to what it could have been - breast cancer, testicular > cancer, etc.) But I keep thinking - How can this be?? This isn't me!! In the > words of a " Talking Heads " song, " This is not my beautiful life!! " Cancer > wasn't supposed to be part of my life story!! I'm young, extremely healthy, > very active - how could this happen to me??!! And I'm pretty much okay > during the days, but at night, everything closes in on me and my anxieties > run wild - it's a very scary time!! I'm starting to dread sundown!! Anyway, > I was just wondering how others of you are coping with your diagnosis and > life-long cancer monitoring, and how you've obtained the emotional support > you've needed to accept and deal with your situation (other than this list, > of course!) Should I seek out a counselor who specializes in the recovery > from serious diseases?? (I'm near Los Angeles, CA, btw.) > > Once again, thank you very much for your time and any comments you may have > will be greatly appreciated!! : ) > > ~ : ) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Dear : i was dx 9-01follic/with METs to bones ! i did have a healthy life style never smoke drink or did any drugs loved life and all people around !'-) cancer had no right to be in my life but it is ! thanx God it is thy ca and not the other kinds! how i feel is to be grateful to be here! everyday i wake up i thank God for another day! Every moment with my kids / friends and family or here with my thyca buddy is blessing! I used to say if I don't win lottery ticket its OK as long as I don't have some other awful thing happen to me '-) so now I expect to win the lotto too! Jolie /ca/ l.a, goo Lakerssssssss ;-)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Hi , > I was just wondering how others of you are coping with your > diagnosis and life-long cancer monitoring...(snip) I was diagnosed a few weeks before my 16th birthday, in my final school year. Even though back then my family and doctors couldn't bring themselves to mention the " C " word, I saw the future I had dreamed for myself shutting down before me, but oddly, because people didn't talk about cancer back then, and because I had no more problems after recovering from surgery, it took me only a short while to " forget " about it. That was more than 36 years ago - years in which I completed school and university on schedule, married, embarked on an ambitious career, and had two wonderful and healthy children. And became a fitness and aerobics freak a bit late in life, in my 40's. When I had a recurrence 17 years later I found the " cancer " diagnosis even more difficult to deal with because by then I had a one-year-old child. As one doctor said to me " You've been confronted with your own mortality " . The acknowledgment that someone understood how I felt helped me take the first step towards recovery. I feel that far from damaging my life, my life has - is - all the richer for the experience. Wishing you a beautiful and healthy life, Judith (in Holland) dx 1965 T4-N1-M0 pap thy ca PT London 09/1965 TT The Netherlands 04/1982 RAI 75 mCi The Netherlands 04/1982 clean WBS 09/1982 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Hi , Most of your concerns have been addressed, but I wanted to chime in and say that I too, am a long term survivor and I'll wear the shirt proudly as I walk the survivor's lap of our local Relay for Life next week. I was diagnosed at age 21. I use to think that I didn't have the " right " to think about the big " C " word, (it wasn't discussed back then) but to go ahead and live life. There is no " worse than " case scenerio. Cancer is cancer and I also thought I would die in the beginning. Ours is usually more responsive to treatment than other forms. The lifelong followup is inconvenient at best, but very doable, especially with the support of this group. Regarding your concern about starting a family, it is advised to wait 6 months to one year out from your RAI treatment to get pregnant. Then your TSH will need followed while pregnant as you will more than likely need an increase in your thyroid medicine during the pregnancy. There are several posts on pregnancy at the group site: http://groups.yahoo.com/group/thyca A thorough checkup after giving birth is also a good thing. I've never had a giant problem becoming stabilized on meds. I worked strenuous jobs after thyca, raised a family and now I'm enjoying my grandchildren. I hardly missed a beat and never knew my thyroid was missing except for the scar. Like Gail said, find a ThyCa support group. People there (and here) know where you have been. Best wishes, in OH ===== 1965 Radical TT, P/F thyca, No RAI, HPTH 1982 Recurrence in neck & chest, RAI 176 mCi 2001 Clean scan 2002- 37 years survivorship Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 > Now that all of the worst parts are over, I've started freaking out >over being labeled with the term " Cancer Survivor " and all that this >implies (and I also feel silly for getting so upset, when my form of >cancer has been so " mellow " compared to what it could have been - >breast cancer, testicular cancer, etc.) , You're absolutely correct; it could have been alot worse. And while thyca patients bristle,(and justifiably so), when a non-cancer patient says this, the fact remains that compared to my mother's bone cancer or my father's stomach cancer, or most other cancers, your prognosis is excellent. Regards, Miami, FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 > Greetings, All ~ > > My name is and I'm brand new to this list Hi , welcome.. you've come to a great place for information and support. 1) I'm very concerned about my life-long thyroid replacement therapy, and > it's effects on my metabolism (specifically, weight control, energy levels, > fertility issues), as I am an extremely active and athletic gal, and want to > be a mom some day (soon!) (Btw, I haven't resumed my thyroid medication > yet - will start this Sat., 4/27, with a new medication - can't remember the > name of it.) Has anyone had problems with proper regulation of their med > levels, and if so, how was eventual regulation obtained? How did improper > levels affect you?? Or, is this such an exact science that I won't even > notice my thyroid is gone??! (So far, I haven't really noticed any > significant effects.) It took me months to get to the right level, but it wasn't too bad a journey, each dosage change takes 6 weeks to level off in the system and then for me, my TSH was still too high so i had another change, all in all it was 4 dose changes so 24 weeks or so. Now 2 1/2 years later, I forget that i don't have a thyroid, one pill in the morning and it seems so routine. And I'm as active as ever. I'm heavy but I don't blame that on the thyroid, I've always been a chunky person, my weight is the same as it was before i was diagnosed. > 2) This may sound silly - but I'm concerned about my cat while I'm currently > " Radioactive Girl " !! : } The Doc said she can stay with me, but to avoid > contact with her for three days, and don't let her sleep on my bed - which > is proving difficult, but we're making it. Has anyone heard of any > statistics on the danger to pets following an I-131 treatment?? I don't have any statistics, but I know they use I131 to ablate the thyroid of cats who are hyperthyroid. I keep all my pets away from me when I'm " GLOWING " - when I had my 60mci RAI, the cats were locked out of my room for a week and they were mad and picketing, but they got over it, they don't know it yet, but they're out in the hall next Wed when i get my scanning dose. > > 3) I've been having moderate to severe vision disturbances in my left eye - > ever since my TT surgery. I've been to my ophthalmologist twice already, and > he said my vision is right on, and he doesn't know what's causing the > disturbances, neither does my Endocrinologist. Has anyone else experienced > this?? Or, any ideas on what's causing this?? (It's very bothersome!! Sort > of feels like muscle strain.) When I'm hypo I find my eyes get drifty, its like i need new glasses, i think its caused by the extra fluid build up in being hypo. > Anyway, I was just wondering how others of you are coping with your diagnosis and > life-long cancer monitoring, and how you've obtained the emotional support > you've needed to accept and deal with your situation (other than this list, > of course!) This gets better with time, each day you live as a survivor is proof to your body and your state of mind that this really is " your beautiful life " and that it will continue. Right now, it seems like a mountainous tower in the road of life, it will become more of a hill, then a speed bump, then a pothole, finally just rough pavement in the road of life.. Time and distance from it helps. I really only think about it when I have an appointment or am queing up for a scan - (its hard NOT to think of the LID :-) See if you can go to a live thyca group meeting. I found for me, although I think i only went once, it made a big difference to meet other living, breathing, walking around, people who had been through the same thing. Good luck, Welcome barb tt 8/99 RAI 4/00 Clean Scan 12/00 Thyrogen Scan next Friday... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Hi , Being diagnosed with cancer, especially at a young age, is a tough one. I was diagnosed with breast cancer in 1993 at age 44 with a 10 year old! I had a modified radical mastectomy with reconstruction and 6 months of chemotherapy during which I lost all my hair, was nauseous constantly and gained 20 lbs (which I had recently lost). Needless to say it was and is a devastating diagnosis. However, I have been in remission for 8 years with a good prognosis, if that is possible with breast cancer. In Dec, 2001, I was diagnosed with papillary thyroid cancer and had a total thyroidectomy. Although a TT usually results in 95% cure, it is still cancer - not a " good " cancer like everyone will tell you, but a " treatable " one. (this is something I learned from the good people on this site). Another devastating blow, nonetheless. My breast cancer diagnosis sent me into such anger that it almost ruined my marriage and my life. I did not even realize I was as angry as I was until one of my breast cancer support buddies asked me why I was so angry. I stayed in that state for 2-1/2 years and survived, but not very happily. Then, in what I can only describe as a " born again " experience (I am not even Christian), I decided I had had enough and felt the anger actually leave my body. It started from my feet and went out throuch my head. Sounds weird, I know. But boy, did it feel good. Having breast cancer has taught me how to deal with other crises, like thryoid cancer. Although I cannot forget either cancer, the thoughts will eventually move from the forefront of your daily life, slowly to the background. It is not an easy process. You have to be the one to do it and it is way to early in your illness to even think about doing it. But, it will happen. Until then, you have to decide whether to be crazy or not. I always say having cancer is like walking a tightrope. It is very easy to slip off and let it make you crazy. You have to work very hard to prevent it and only you can do it. I hope I have not been too much of a " downer " . I have gone through so much in the past 8 years and have survived and become a stronger person for it. With hard work, you can too! Good luck. Bette TT 12/01 pap/ w/fol var RAI 4/24/02 60 mCi TBS scheduled 4/30/02 --- Cohen wrote: > Greetings, All ~ > > My name is and I'm brand new to this list, so, > please excuse any > inadvertent faux-pas I may make, and also, I don't > know all of the correct > medical terms and dosages, as you all seem to, being > I'm very new to all of > this business and still learning!! > > I was diagnosed with Papillary Thyroid Carcinoma on > 3/14/02, following the > excision of a thyro-glossal duct cyst on 3/7/02 that > had come up benign on > the initial cyst aspiration pathology. The focus of > cancer was very small, > and the ensuing thyroid MRI was clear, but as a > necessary precaution, I > underwent a total thyroidectomy and exploratory > surgery on 3/28/02 - which > showed a small focus of cancer in the left lobe of > my thyroid, but no other > areas of spread were detected. I started Cytomel > immediately after the > surgery and then stopped it 9 days prior to my I-131 > treatment, which I > underwent yesterday afternoon, 4/24/02, and which > was a very low dose - 50 > something or other. I follow-up the treatment with a > full body scan (for > gamma radiation) in one week. Both my > Endocrinologist and Nuclear Medicine > Docs feel very confident that this will be the last > of my thyroid cancer, > and that my risk for recurrence is very low - which > is all great news!! : ) > But even so, doubts still linger, and the emotional > effects of being > diagnosed with " The Big C " have been difficult to > grapple with. > > I am writing to bring up a few subjects that have > been bothering me, and see > if anyone else has also been plagued by these > troublesome thoughts, or, who > might have some advice for me. I realize, of course, > that everyone's > experiences are different, and won't necessarily > match my own. Thank you in > advance for your time!! : ) > > 1) I'm very concerned about my life-long thyroid > replacement therapy, and > it's effects on my metabolism (specifically, weight > control, energy levels, > fertility issues), as I am an extremely active and > athletic gal, and want to > be a mom some day (soon!) (Btw, I haven't resumed my > thyroid medication > yet - will start this Sat., 4/27, with a new > medication - can't remember the > name of it.) Has anyone had problems with proper > regulation of their med > levels, and if so, how was eventual regulation > obtained? How did improper > levels affect you?? Or, is this such an exact > science that I won't even > notice my thyroid is gone??! (So far, I haven't > really noticed any > significant effects.) > > 2) This may sound silly - but I'm concerned about my > cat while I'm currently > " Radioactive Girl " !! : } The Doc said she can stay > with me, but to avoid > contact with her for three days, and don't let her > sleep on my bed - which > is proving difficult, but we're making it. Has > anyone heard of any > statistics on the danger to pets following an I-131 > treatment?? > > 3) I've been having moderate to severe vision > disturbances in my left eye - > ever since my TT surgery. I've been to my > ophthalmologist twice already, and > he said my vision is right on, and he doesn't know > what's causing the > disturbances, neither does my Endocrinologist. Has > anyone else experienced > this?? Or, any ideas on what's causing this?? (It's > very bothersome!! Sort > of feels like muscle strain.) > > 4) Now that all of the worst parts are over, I've > started freaking out over > being labeled with the term " Cancer Survivor " and > all that this implies (and > I also feel silly for getting so upset, when my form > of cancer has been so > " mellow " compared to what it could have been - > breast cancer, testicular > cancer, etc.) But I keep thinking - How can this > be?? This isn't me!! In the > words of a " Talking Heads " song, " This is not my > beautiful life!! " Cancer > wasn't supposed to be part of my life story!! I'm > young, extremely healthy, > very active - how could this happen to me??!! And > I'm pretty much okay > during the days, but at night, everything closes in > on me and my anxieties > run wild - it's a very scary time!! I'm starting to > dread sundown!! Anyway, > I was just wondering how others of you are coping > with your diagnosis and > life-long cancer monitoring, and how you've obtained > the emotional support > you've needed to accept and deal with your situation > (other than this list, > of course!) Should I seek out a counselor who > specializes in the recovery > from serious diseases?? (I'm near Los Angeles, CA, > btw.) > > Once again, thank you very much for your time and > any comments you may have > will be greatly appreciated!! : ) > > ~ : ) > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 trejolie10@... wrote: Dear : i was dx 9-01follic/with METs to bones ! i did have a healthy life style never smoke drink or did any drugs loved life and all people around !'-) cancer had no right to be in my life but it is ! thanx God it is thy ca and not the other kinds! how i feel is to be grateful to be here! everyday i wake up i thank God for another day! Every moment with my kids / friends and family or here with my thyca buddy is blessing! I used to say if I don't win lottery ticket its OK as long as I don't have some other awful thing happen to me '-) so now I expect to win the lotto too! Jolie /ca/ l.a, goo Lakerssssssss ;-)) Quote Link to comment Share on other sites More sharing options...
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