Fwd: The Search Is Over

March 9, 2002

Rita

I got you message of 7:46 PM pacific time.Time here in FL is 12 01 AM ,I

longed on about 11:30 and yours was 30 of 32 posting Coming in O K Byron

in FL

March 9, 2002

Rita I got cha Thanks Shirley

March 9, 2002

I sent this letter last night, and have not had one PLS posting since

early yesterday, am I not getting thru?

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

Hi Gang:

I have to write my thoughts down before they are gone, so bear with me

please.

I received a call (long distance) from a fellow PLSer this evening, and

this person asked me a question, hat left me thinking long after we hung

up. The question went something like this " when did I decide and why as

was not as active on the PLS Line as I use to be " . I really never

thought about it before, but I think I have the answer and want to share

it with you.

When I was first diagnosed, I was alone with a diagnosis and no PLS Line

nor did I have a clue as to what PLS was. I had to search it out and

many doors were closed to me because nobody ever heard of PLS.

Thru NORD I found a list of names of other people who had this disease.

I was so excited, wrote letter's, and thats when I met Joe Alberstadt

(thank God for that). After numerous letter's to other PLSer's I was

able to meet Mark Weber, my first encounter with another person with

PLS. If you remember Mark I WAS SO NERVOUS! He was a lawyer and I was

just " me " . We had a wonderful lunch and a friendship was established

between us.

Than I arranged a gathering in VT, there we met Sue Niquette,

Cecere, and Mark joined us and we spent an entire afternoon in a

wonderful restaurant in the mountains. Then arranged another gathering

in VT, Then met Sue again, and Alan Kirk and my mountain man Galen. Then

put together the CT Connection where I met 19 other's (Sue was

there again, can't get rid of her) LOL!

As I drove home from CT, I remember thinking that I had reached my goal

of meeting other's in the same situation as I was in and my search was

over and I could get on with my life and let the chips fall where they

may.

In the beginning I also was looking for answers, desperately at times,

we (my husband & I) were frustrated many many times, but that was a long

time ago, and now I have put what energy I have in to just living my

life the best I can. So I hope I am getting message out as to what I am

trying to say. It's almost like we have to go thru stages with PLS like

and alcoholic does when he or she is in a 12 step program, takes time.

Here I go rambling, but I really wanted to share my feelings with all of

you. And my dear friend who called me tonight, one step at a time,

things will get better. Hope to see you in CT in June.

Good Night All!

PS: Sue is now in Vegas, poor Gerry he will come home broke if I know

Sue.

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

March 9, 2002

I tried sending this letter last night, and i think I am having a

problem sending and receiving postings. Please if anybody receives this

let me know.

Thanks