Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 I have a power chair I use all the time as I can't walk but I'd be interested in the lift for the back of the car. Where you got it and how much it cost. Now every thing is slide board in and out but no way to take my electric one. Ajy help would be great. In. Re: Time for a rant The crux of the conversation was that the doc had decided (without input from me) that I was the patient to bounce. When I called and asked and told them my situation I was told I could go to the appt. but I should expect a long wait since there were other "critical" patients to be seen. I see that as a warning that I will be appropriately punished should I choose to be recalcitrant. I go to see the doc in her office (with no PT, OT, social work, or pulmonary) later today. I intend to tell her to shove her ALS clinic and get me into the MDA one. I still will have to wait until May to see the PT but at least I will never get maltreated in the ALS clinic again. LavonAt 12:05 AM 12/14/2001 -0500, you wrote: Lavon: Did you try to explain your dire need to be seen? If not, do you still have time? I also go to an ALS/MDA clinic and have an appt. next week. When they called me today to confirm my appt., I was afraid they were going to put off my appt. (has happened a couple of times). One of the Drs. at the clinic makes me feel like I'm wasting his time since I have PLS, but others are kind and helpful. Maybe everyone doesn't understand the comprehensive benefit of an ALS clinic. A patient receives a wide range of expertise and help that would be hard to duplicate with a private Neurologist. I recently got a power chair (Jazzy 1143) that I carry on a lift on the back of my car. You need heavy duty suspension and air shocks, but many cars are equipped that way as mine was. I have even been caught in the rain several times and it didn't seem to hurt the chair. I have a cover, but I can't handle it alone. I wish you the best. You sound desperate and rightly so. My prayers are with you. A PLS Friend, in Texas Quote Link to comment Share on other sites More sharing options...
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