Re: Bonnie G -- Abrotose / Mannatech

[Guest guest]

Bonnie,

A while ago when Carla asked about a company called

Mannatech, I answered her directly that I had heard of

Mannatech, had used their product Ambrotose, and explained

what I knew about it. Since this subject has come up again

I will sum up what I sent to Carla for the entire group's benefit.

Mannatech is a company that has a patented formula for their

glyconutritional product called Ambrotose. They sell their

products only through an "associate program" which means

they recruit customers and other people as their sales force.

These people sell the products and are rewarded for reeling in

new customers and rewarded for meeting quotas. It's the new

wave approach to sales, and quite common in this day and

age, especially for Internet companies trying to get a toehold

in this high tech world.

My aunt sent me 2 bottles of it to try since she had heard

from her doctor that it could do wonders for energy, and cure

all sorts of diseases. It did help give me a little more energy for

about 3 weeks, then seemed to stop working. A few weeks

later I seemed to get worse PLS-wise so I stopped using it at

that time. I still have most of one bottle left.

Because PLS is so closely related to ALS which can become

worse because of excess glucose causing motor neuron

damage, I was afraid to continue using a "glyconutritional

supplement," of unknown makeup (due to it's patented formula).

And since PLS is not an autoimmune disease (according to my

neurologist), the only benefit I got from using Ambrotose was a

slight energy boost. It didn't help me walk better or talk better.

I have talked to someone who swears by it, though. She has

Multiple Sclerosis and was wheelchair bound for 4 years until

after using Ambrotose. Now she can walk without support

these past two years (she still takes baclofen between 60 & 80

mg a day). I saw her about 3 months ago and she walked with

a normal gait although she tended to be careful about where

she stepped. She only takes her wheelchair with her on

excursions which could overly tire her out -- like shopping at

the mall.

I also saw a posting on the ALS-Digest where someone had

tried a variety of Mannatech vitamins and supplements for 10

months spending $1900 and she couldn't see that it did her any

good at all since she progressed from walking with a walker to

now being in a wheelchair and having trouble breathing and

talking. She summed up her experience in the following

sentence: "Mannatech products may help alot of people with

different diseases, but I don't feel that it helped my ALS at all."

Mannatech doesn't claim to cure any diseases with their

products. They claim that their Ambrotose product contains the

8 essential sugars necessary for cellular communication, that

you get only 3 of these essential sugars from food sources, and

that your body normally produces the other essential sugars

except when the immune system has been weakened. They

also claim that the world we live in now compromises our

immune systems through pollution, exposure to chemicals and

toxins, etc., therefore our bodies are not working at 100% ability

and their (Mannatech's) supplements can help the body to

"heal" itself. Most doctors who have read their sales "hype"

say it sounds good and agree that it can't hurt to try it

(anything more than your pocketbook that is).

Three years ago when my aunt sent me the bottles of

Ambrotose it was priced at $55 plus shipping bringing the total

to over $60 per bottle (which represents a 2-4 month supply

depending on the amount taken).

That sums up my knowledge of Mannatech. For all I know,

there might be some Mannatech associates on our list. If so,

feel free to speak up if I've stated anything wrong.

Hope this was of some help to you Bonnie.

Lyndal

Hi All,

I have been reading all your messages about CoQ10 and Omega 3 etc

supplements and I am wondering if anyone has every tried or heard of

something called Ambrotose from a company called Mannatech.

This product has been recommended by my Physical Therapist/Doctor.

He says that several of his MS patients have taken this and gone into

remission or showed noticeable improvement. Now, I realize that PLS

is different than MS, but it is still nerve cells "talking" to other

nerve cells. The product is expensive (about $30/month), but

certainly if it works it would be worth it. If anyone is interested,

the site is found at

www.mannapages.com/online_health/PRDAmbrotose.asp

Please let me know what you think.

Thanks,

Bonnie G - Phoenix

[Guest guest]

Lyndal,

Thanks for a sensible, well thought out reply to the

Ambrotose questions.

It kind of supports the theory of finding out what it

is you are taking before taking it, when it comes to a

diseasea like ours. What is harmless for most people,

might not be harmless to us.

Thanks, Lyndal.

Thomson

--- LyndalGBrown@... wrote:

> Bonnie,

>

> A while ago when Carla asked about a company called

> Mannatech, I answered her directly that I had heard

> of

> Mannatech, had used their product Ambrotose, and

> explained

> what I knew about it. Since this subject has come

> up again

> I will sum up what I sent to Carla for the entire

> group's benefit.

>

> Mannatech is a company that has a patented formula

> for their

> glyconutritional product called Ambrotose. They sell

> their

> products only through an " associate program " which

> means

> they recruit customers and other people as their

> sales force.

> These people sell the products and are rewarded for

> reeling in

> new customers and rewarded for meeting quotas. It's

> the new

> wave approach to sales, and quite common in this day

> and

> age, especially for Internet companies trying to get

> a toehold

> in this high tech world.

>

> My aunt sent me 2 bottles of it to try since she had

> heard

> from her doctor that it could do wonders for energy,

> and cure

> all sorts of diseases. It did help give me a little

> more energy for

> about 3 weeks, then seemed to stop working. A few

> weeks

> later I seemed to get worse PLS-wise so I stopped

> using it at

> that time. I still have most of one bottle left.

>

> Because PLS is so closely related to ALS which can

> become

> worse because of excess glucose causing motor neuron

>

> damage, I was afraid to continue using a

> " glyconutritional

> supplement, " of unknown makeup (due to it's patented

> formula).

> And since PLS is not an autoimmune disease

> (according to my

> neurologist), the only benefit I got from using

> Ambrotose was a

> slight energy boost. It didn't help me walk better

> or talk better.

>

> I have talked to someone who swears by it, though.

> She has

> Multiple Sclerosis and was wheelchair bound for 4

> years until

> after using Ambrotose. Now she can walk without

> support

> these past two years (she still takes baclofen

> between 60 & 80

> mg a day). I saw her about 3 months ago and she

> walked with

> a normal gait although she tended to be careful

> about where

> she stepped. She only takes her wheelchair with her

> on

> excursions which could overly tire her out -- like

> shopping at

> the mall.

>

> I also saw a posting on the ALS-Digest where someone

> had

> tried a variety of Mannatech vitamins and

> supplements for 10

> months spending $1900 and she couldn't see that it

> did her any

> good at all since she progressed from walking with a

> walker to

> now being in a wheelchair and having trouble

> breathing and

> talking. She summed up her experience in the

> following

> sentence: " Mannatech products may help alot of

> people with

> different diseases, but I don't feel that it helped

> my ALS at all. "

>

> Mannatech doesn't claim to cure any diseases with

> their

> products. They claim that their Ambrotose product

> contains the

> 8 essential sugars necessary for cellular

> communication, that

> you get only 3 of these essential sugars from food

> sources, and

> that your body normally produces the other essential

> sugars

> except when the immune system has been weakened.

> They

> also claim that the world we live in now compromises

> our

> immune systems through pollution, exposure to

> chemicals and

> toxins, etc., therefore our bodies are not working

> at 100% ability

> and their (Mannatech's) supplements can help the

> body to

> " heal " itself. Most doctors who have read their

> sales " hype "

> say it sounds good and agree that it can't hurt to

> try it

> (anything more than your pocketbook that is).

>

> Three years ago when my aunt sent me the bottles of

> Ambrotose it was priced at $55 plus shipping

> bringing the total

> to over $60 per bottle (which represents a 2-4 month

> supply

> depending on the amount taken).

>

> That sums up my knowledge of Mannatech. For all I

> know,

> there might be some Mannatech associates on our

> list. If so,

> feel free to speak up if I've stated anything wrong.

>

>

> Hope this was of some help to you Bonnie.

>

> Lyndal

>

>

> In a message dated 12/8/01 10:25:33 AM Mountain

> Standard Time,

> bguzelf@... writes:

>

>

> >

> > Hi All,

> > I have been reading all your messages about

> CoQ10 and Omega 3 etc

> > supplements and I am wondering if anyone has every

> tried or heard of

> > something called Ambrotose from a company called

> Mannatech.

> >

> > This product has been recommended by my

> Physical Therapist/Doctor.

> > He says that several of his MS patients have taken

> this and gone into

> > remission or showed noticeable improvement. Now,

> I realize that PLS

> > is different than MS, but it is still nerve cells

> " talking " to other

> > nerve cells. The product is expensive (about

> $30/month), but

> > certainly if it works it would be worth it. If

> anyone is interested,

> > the site is found at

> > www.mannapages.com/online_health/PRDAmbrotose.asp

> >

> > Please let me know what you think.

> >

> > Thanks,

> > Bonnie G - Phoenix

> >

> >

>

>

>

>

=====

Thomson, Solana Beach, CA

www.geocities.com/mdmfoo/pls.html

__________________________________________________

[Guest guest]

Lynda,

Thank you so much for the information. I am glad I did not spend

the money to try this. I am on disability now, and my income has

been greatly reduced. I need to be more careful these days what I

spend my money on. My Doctor/Physical Therapist has been pushing

this stuff. Perhaps he is an " associate " . Anyway, after what you

have told me I don't think I even want to try it. I'd rather spend

the money on creatine. Also expensive, but more likley to make a

difference.

That is what is so great about this group. It is a wealth of

information that you cannot get anywhere else.

Thanks again!!!

Bonnie

> Bonnie,

>

> A while ago when Carla asked about a company called

> Mannatech, I answered her directly that I had heard of

> Mannatech, had used their product Ambrotose, and explained

> what I knew about it. Since this subject has come up again

> I will sum up what I sent to Carla for the entire group's benefit.

>

> Mannatech is a company that has a patented formula for their

> glyconutritional product called Ambrotose. They sell their

> products only through an " associate program " which means

> they recruit customers and other people as their sales force.

> These people sell the products and are rewarded for reeling in

> new customers and rewarded for meeting quotas. It's the new

> wave approach to sales, and quite common in this day and

> age, especially for Internet companies trying to get a toehold

> in this high tech world.

>

> My aunt sent me 2 bottles of it to try since she had heard

> from her doctor that it could do wonders for energy, and cure

> all sorts of diseases. It did help give me a little more energy for

> about 3 weeks, then seemed to stop working. A few weeks

> later I seemed to get worse PLS-wise so I stopped using it at

> that time. I still have most of one bottle left.

>

> Because PLS is so closely related to ALS which can become

> worse because of excess glucose causing motor neuron

> damage, I was afraid to continue using a " glyconutritional

> supplement, " of unknown makeup (due to it's patented formula).

> And since PLS is not an autoimmune disease (according to my

> neurologist), the only benefit I got from using Ambrotose was a

> slight energy boost. It didn't help me walk better or talk better.

>

> I have talked to someone who swears by it, though. She has

> Multiple Sclerosis and was wheelchair bound for 4 years until

> after using Ambrotose. Now she can walk without support

> these past two years (she still takes baclofen between 60 & 80

> mg a day). I saw her about 3 months ago and she walked with

> a normal gait although she tended to be careful about where

> she stepped. She only takes her wheelchair with her on

> excursions which could overly tire her out -- like shopping at

> the mall.

>

> I also saw a posting on the ALS-Digest where someone had

> tried a variety of Mannatech vitamins and supplements for 10

> months spending $1900 and she couldn't see that it did her any

> good at all since she progressed from walking with a walker to

> now being in a wheelchair and having trouble breathing and

> talking. She summed up her experience in the following

> sentence: " Mannatech products may help alot of people with

> different diseases, but I don't feel that it helped my ALS at all. "

>

> Mannatech doesn't claim to cure any diseases with their

> products. They claim that their Ambrotose product contains the

> 8 essential sugars necessary for cellular communication, that

> you get only 3 of these essential sugars from food sources, and

> that your body normally produces the other essential sugars

> except when the immune system has been weakened. They

> also claim that the world we live in now compromises our

> immune systems through pollution, exposure to chemicals and

> toxins, etc., therefore our bodies are not working at 100% ability

> and their (Mannatech's) supplements can help the body to

> " heal " itself. Most doctors who have read their sales " hype "

> say it sounds good and agree that it can't hurt to try it

> (anything more than your pocketbook that is).

>

> Three years ago when my aunt sent me the bottles of

> Ambrotose it was priced at $55 plus shipping bringing the total

> to over $60 per bottle (which represents a 2-4 month supply

> depending on the amount taken).

>

> That sums up my knowledge of Mannatech. For all I know,

> there might be some Mannatech associates on our list. If so,

> feel free to speak up if I've stated anything wrong.

>

> Hope this was of some help to you Bonnie.

>

> Lyndal

>

>

> In a message dated 12/8/01 10:25:33 AM Mountain Standard Time,

> bguzelf@h... writes:

>

>

> >

> > Hi All,

> > I have been reading all your messages about CoQ10 and Omega 3

etc

> > supplements and I am wondering if anyone has every tried or heard

of

> > something called Ambrotose from a company called Mannatech.

> >

> > This product has been recommended by my Physical

Therapist/Doctor.

> > He says that several of his MS patients have taken this and gone

into

> > remission or showed noticeable improvement. Now, I realize that

PLS

> > is different than MS, but it is still nerve cells " talking " to

other

> > nerve cells. The product is expensive (about $30/month), but

> > certainly if it works it would be worth it. If anyone is

interested,

> > the site is found at

> > www.mannapages.com/online_health/PRDAmbrotose.asp

> >

> > Please let me know what you think.

> >

> > Thanks,

> > Bonnie G - Phoenix

> >

> >

[Guest guest]

I responded to the original post about this product. Perhaps it did not reach the group, so here is my "two cents" again. The product information indicates that this is composed of polysaccharides, which means complex carbohydrates, which means sugars. Unfortunately, it is a very high price for sugar. An explanation for the alleged success in treating MS is that a form of MS is exacerbating and remitting. Essentially, that means that the MS gets better and worse by itself. Perhaps the intake of the product happened to coincide with the remitting phase and seemed to be the source of the relief. Also, my neurologist says that we are not sure if PLS is an autoimmune disease or not. I'd rather err on the side of caution.

Dolores Carron

Re: Bonnie G -- Abrotose / Mannatech

Bonnie,A while ago when Carla asked about a company called Mannatech, I answered her directly that I had heard of Mannatech, had used their product Ambrotose, and explained what I knew about it. Since this subject has come up again I will sum up what I sent to Carla for the entire group's benefit. Mannatech is a company that has a patented formula for their glyconutritional product called Ambrotose. They sell their products only through an "associate program" which means they recruit customers and other people as their sales force. These people sell the products and are rewarded for reeling in new customers and rewarded for meeting quotas. It's the new wave approach to sales, and quite common in this day and age, especially for Internet companies trying to get a toehold in this high tech world.My aunt sent me 2 bottles of it to try since she had heard from her doctor that it could do wonders for energy, and cure all sorts of diseases. It did help give me a little more energy for about 3 weeks, then seemed to stop working. A few weeks later I seemed to get worse PLS-wise so I stopped using it at that time. I still have most of one bottle left.Because PLS is so closely related to ALS which can become worse because of excess glucose causing motor neuron damage, I was afraid to continue using a "glyconutritional supplement," of unknown makeup (due to it's patented formula). And since PLS is not an autoimmune disease (according to my neurologist), the only benefit I got from using Ambrotose was a slight energy boost. It didn't help me walk better or talk better. I have talked to someone who swears by it, though. She has Multiple Sclerosis and was wheelchair bound for 4 years until after using Ambrotose. Now she can walk without support these past two years (she still takes baclofen between 60 & 80 mg a day). I saw her about 3 months ago and she walked with a normal gait although she tended to be careful about where she stepped. She only takes her wheelchair with her on excursions which could overly tire her out -- like shopping at the mall.I also saw a posting on the ALS-Digest where someone had tried a variety of Mannatech vitamins and supplements for 10 months spending $1900 and she couldn't see that it did her any good at all since she progressed from walking with a walker to now being in a wheelchair and having trouble breathing and talking. She summed up her experience in the following sentence: "Mannatech products may help alot of people with different diseases, but I don't feel that it helped my ALS at all." Mannatech doesn't claim to cure any diseases with their products. They claim that their Ambrotose product contains the 8 essential sugars necessary for cellular communication, that you get only 3 of these essential sugars from food sources, and that your body normally produces the other essential sugars except when the immune system has been weakened. They also claim that the world we live in now compromises our immune systems through pollution, exposure to chemicals and toxins, etc., therefore our bodies are not working at 100% ability and their (Mannatech's) supplements can help the body to "heal" itself. Most doctors who have read their sales "hype" say it sounds good and agree that it can't hurt to try it (anything more than your pocketbook that is). Three years ago when my aunt sent me the bottles of Ambrotose it was priced at $55 plus shipping bringing the total to over $60 per bottle (which represents a 2-4 month supply depending on the amount taken). That sums up my knowledge of Mannatech. For all I know, there might be some Mannatech associates on our list. If so, feel free to speak up if I've stated anything wrong. Hope this was of some help to you Bonnie. Lyndal

Hi All, I have been reading all your messages about CoQ10 and Omega 3 etc supplements and I am wondering if anyone has every tried or heard of something called Ambrotose from a company called Mannatech. This product has been recommended by my Physical Therapist/Doctor.He says that several of his MS patients have taken this and gone into remission or showed noticeable improvement. Now, I realize that PLS is different than MS, but it is still nerve cells "talking" to other nerve cells. The product is expensive (about $30/month), but certainly if it works it would be worth it. If anyone is interested, the site is found atwww.mannapages.com/online_health/PRDAmbrotose.asp Please let me know what you think.Thanks,Bonnie G - Phoenix