Re: Environment News Service Gulf War Service Linked to Lou Gehrig's Disease.html

[Guest guest]

Sue Ellen,

That is great news about your local MDA. It seems as

if we are just banging our heads against a wall when

talking to them about the PLS issue, but it sounds as

if it is actually doing some good!! Maybe it is worth

the headache (play on words here, hehe) of arguing

with them.

Thomson

__________________________________________________

[Guest guest]

Dear Group,

The issue of mycoplasmas is intriguing. They have been shown to be related to lots of maladies, among them being ALS, cancer and fibromyalgia . Is it coincidence that I have all three of these? That opens a whole new can of worms, doesn't it?

Dolores Carron

---- Original Message -----

From: Sue-Ellen Ledford

To: 'PLS Friends'

Sent: Wednesday, December 12, 2001 12:43 PM

Subject: Environment News Service Gulf War Service Linked to Lou Gehrig's Disease.html

Hi everyone,Found the following attachment in our paper. This sounds very promising,maybe they'll be able to find a common toxic episode that links these. WithDoD interested in it now some big money could be directed at finding thelink. I've read several interesting articles online about a pathogen called"mycoplasmas" which NIH is currently studying as related to GWI and it hasalso been found in ALS patients. You might want to look at some of thosearticles, several can be found on the website for one of the vitamincompanies Thomson has on the PLS fund-raising website. Also, my local MDA has a new Health Care Services Coordinator who says I cango to the ALS clinic here! She says she talked to a lady at national whosaid, although it is not currently a covered disease, there are many clinicswho are seeing PLS patients and it would be fine if I wanted to go to theclinic here. Don't give up talking to the MDA, she said you still have towork thru your local Health Care Services coordinator.Regards, Sue Ellen Ledford <<Environment News Service Gulf War ServiceLinked to Lou Gehrig's Disease.html>>

[Guest guest]

I'm in the other category- I don't have those but have had documented

mycoplasma lung infection (cleared up well with erythromycin)

Lavon

At 02:37 PM 12/12/2001 -0500, you wrote:

Dear

Group,

The issue of mycoplasmas is intriguing.

They have been shown to be related to lots of maladies, among them being

ALS, cancer and fibromyalgia . Is it coincidence that I have all

three of these? That opens a whole new can of worms, doesn't it?

Dolores Carron

[Guest guest]

On his ALS website Steve Shackel has a section on mycoplasmas with mention

of places which can do the specialised testing necessary. I had some

tests done which showed some mycoplasma and also chlamydia pneumoniae infection

so went to a doctor over here who specialises in that area.

For several months I was on various strong antibiotics but did not really

notice any difference. I still feel like my mind is the biggest contributor

to my PLS so have been working on that area. If I felt that mycoplasma

or chlamydia infection really played a big part in my PLS and if the oral

antibiotics had made any difference I would/should have gone on to IV antibiotics.

Even so, I feel it is an area that people with PLS should follow up

for themselves if possible.

Dolores Carron wrote:

Dear

Group,The issue of mycoplasmas

is intriguing. They have been shown to be related to lots of maladies,

among them being ALS, cancer and fibromyalgia . Is it coincidence

that I have all three of these? That opens a whole new can of worms, doesn't

it?Dolores Carron ----

Original Message -----

From:

Sue-Ellen

Ledford

To: 'PLS

Friends'

Sent: Wednesday, December 12, 2001

12:43 PM

Subject: Environment

News Service Gulf War Service Linked to Lou Gehrig's Disease.html

Hi everyone,

Found the following attachment in our paper. This sounds very

promising,

maybe they'll be able to find a common toxic episode that links these.

With

DoD interested in it now some big money could be directed at finding

the

link.

I've read several interesting articles online about a pathogen

called

"mycoplasmas" which NIH is currently studying as related to GWI and

it has

also been found in ALS patients. You might want to look at some

of those

articles, several can be found on the website for one of the vitamin

companies Thomson has on the PLS fund-raising website.

Also, my local MDA has a new Health Care Services Coordinator who says

I can

go to the ALS clinic here! She says she talked to a lady at national

who

said, although it is not currently a covered disease, there are many

clinics

who are seeing PLS patients and it would be fine if I wanted to go

to the

clinic here. Don't give up talking to the MDA, she said you still

have to

work thru your local Health Care Services coordinator.

Regards, Sue Ellen Ledford <<Environment News Service Gulf War

Service

Linked to Lou Gehrig's Disease.html>>

[Guest guest]

I have a P.S. to my previous message about mycoplasmas. They are responsible for "walking" pneumonia. I don't think I ever had that, but the winter before I developed my foot drop, I had at least 5 viral infections. I had laryngitis for about a month, and also had a cough that would cause my throat to spasm. I am not prone to chest things--colds are rare, but are always head colds when they occur. When I had that unusual cough and throat spasm, believe it or not, I was diagnosed as having "kennel cough"--yep!! just like dogs have. My treatment was asthma drugs and inhalers. Who knows what that was all about?

Dolores Carron

Environment News Service Gulf War Service Linked to Lou Gehrig's Disease.html Hi everyone, Found the following attachment in our paper. This sounds very promising, maybe they'll be able to find a common toxic episode that links these. With DoD interested in it now some big money could be directed at finding the link. I've read several interesting articles online about a pathogen called "mycoplasmas" which NIH is currently studying as related to GWI and it has also been found in ALS patients. You might want to look at some of those articles, several can be found on the website for one of the vitamin companies Thomson has on the PLS fund-raising website. Also, my local MDA has a new Health Care Services Coordinator who says I can go to the ALS clinic here! She says she talked to a lady at national who said, although it is not currently a covered disease, there are many clinics who are seeing PLS patients and it would be fine if I wanted to go to the clinic here. Don't give up talking to the MDA, she said you still have to work thru your local Health Care Services coordinator. Regards, Sue Ellen Ledford <<Environment News Service Gulf War Service Linked to Lou Gehrig's Disease.html>>

[Guest guest]

Ironic that someone with PLS which makes walking difficult/impossible gets

something called Walking Pneumonia!

Dolores Carron wrote:

I have a P.S.

to my previous message about mycoplasmas. They are responsible for

"walking" pneumonia. I don't think I ever had that, but the winter

before I developed my foot drop, I had at least 5 viral infections.

I had laryngitis for about a month, and also had a cough that would cause

my throat to spasm. I am not prone to chest things--colds are rare,

but are always head colds when they occur. When I had that unusual

cough and throat spasm, believe it or not, I was diagnosed as having

"kennel cough"--yep!! just like dogs have. My treatment was asthma

drugs and inhalers. Who knows what that was all about?Dolores

Carron

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,-._|\ Covington

/ Oz \

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