Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Jill, i would be very interested in reading this article, can you please send it to me? thanx lisa Re: Chest Conditions There can be a few Veena. There are lung issues related to EDS. I will forward an article for you to read. There are also structural issues as well, like pectus excavatum, which is a growth anomaly of the sternum. Many here have a painful tangle with costochondritis, which is a painful inflammation of the cartilage which joins the ribs to the sternum. There are vascular issues which may arise in the chest as well, can you be a bit more specific about what you are looking for? Jill I would like to know what chest conditions are associated with EDS....I have Hypermobility Type and ?Asthma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 There can be a few Veena. There are lung issues related to EDS. I will forward an article for you to read. There are also structural issues as well, like pectus excavatum, which is a growth anomaly of the sternum. Many here have a painful tangle with costochondritis, which is a painful inflammation of the cartilage which joins the ribs to the sternum. There are vascular issues which may arise in the chest as well, can you be a bit more specific about what you are looking for? Jill I would like to know what chest conditions are associated with EDS....I have Hypermobility Type and ?Asthma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 Hi Jill Thanks for you very swift response. My Endocrinologist is admitting me for tests this week.... He thinks my high-dose Steroid Inhaler is the cause of my 's Disease. I will be having tests to find out what degree of Adrenal Function I have left. I am also to have an assessment by a Chest Physician......I have a diagnosis of Asthma by my GP but my problem is Inhaling not Exhaling and I have good peak-flow measurements. I was so bad this week I was on Prednisolone aswell as Hydrocortisone. I was advised by my Endo to reduce my 1600mcg Pulmicort to 800mcg daily 8 weeks ago and have had increasing breathing problems eversince. I have bad pain in my right rib-cage permanently and all my rib-cage is very sore.........is this Costocondritis..? My Gastro suspects Gallstones but I don't get the pain on eating certain foods or have vomiting........I've an U.S.Scan 31/1.. I had Pleurisy three months ago with Infection. With HEDS I wouldn't get the Vascular Issues would I.....? I would like to be aware of any possible problems that may be affecting my Lungs / breathing. Thanks for any help Jill Take care Veena Re: Chest Conditions > There can be a few Veena. There are lung issues related to EDS. I will > forward an article for you to read. There are also structural issues as > well, like pectus excavatum, which is a growth anomaly of the sternum. Many > here have a painful tangle with costochondritis, which is a painful > inflammation of the cartilage which joins the ribs to the sternum. There > are vascular issues which may arise in the chest as well, can you be a bit > more specific about what you are looking for? > > Jill > > > > > I would like to know what chest conditions are associated > with EDS....I have Hypermobility Type and ?Asthma. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 I have costal chondritis- inflamation and possible subluxations of the lining of the rib cage. Makes it difficult to breathe. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Veena, My heart goes out to you. I hope that you get to the bottom of this soon. Have you had allergy testing done, and had your home inspected for moulds which may be causing issues for you? Environmental issues are difficult to diagnose quickly but your long-term use of powerful steroids may be something to consider in the mix of finding out why you need them. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 I will indeed , I hope it helps! Jill Jill, i would be very interested in reading this article, can you please send it to me? thanx lisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 JILLSERICKSON@... wrote: > I have costal chondritis- inflamation and possible subluxations of the > lining > of the rib cage. Makes it difficult to breathe. Hi Jill, I think maybe you're a " new " Jill since I've been " away " ...didn't really go anywhere, just haven't been able to keep up. Anyway, I saw this post and was wondering if you had any other info on this. If not I'm sure Jill - our leader - " Master of Articles " has some info on it. I've cracked/bent/broken, whatever you want to call it - with all of my ribs so much that I stay in a hospital bed most of the time so that I can have even support against my back, keeping my ribs in " proper alignment " . Otherwise, slouching in a chair and laughing or coughing is all it takes to go SNAP! My pain management doc gives me " manatain intercostal nerve " blocks if they bend inwards and have a danger of puncturing my lung...that (the block) hurts. My dad dern near passed out watching it. The cracking sound of the rib when the needle goes in does freak ya out kinda! : ) Anyway, do you notice that your posture affects your rib condition? Please....DO SHARE!! : ) Many blessings and welcome to the group!!! Janet D : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 In a message dated 01/14/2002 4:08:59 PM Eastern Standard Time, LIVINwEDS@... writes: << Anyway, do you notice that your posture affects your rib condition? Please....DO SHARE!! : ) >> Even with my minimal joint problems, YES the posture affects rib condition. I can no longer sleep on my side (some of yall it may have been years since you have). I now have to sleep either on my back or kind of on the side with my leg up towards my body so I don't roll over on my belly. I can not lay on my side. It hurts the front of my chest too much. Laying on my back is painful too as it hurts my lower back and hips causing them to lock and be extremely painful to move. But if I lay completely still and cross my ankles then I am find on my back...which is way I should lay since I tend to grow kidney stones. kim Looking for a mortgage? Call me, I can provide you with your mortgage needs. or Why get a mortgage from a stranger? Help support the following!!!!!!! <A HREF= " http://www.girlscoutsnwga.org/ " >Girl Scout Council of Northwest Georgia</A> Volunteers Needed <A HREF= " http://www.ednf.org/index.htm " >Ehlers-Danlos National Foundation</A> A Rarely diagnosed genetic Collagen Disorder that can be a silent time bomb. If any family members have had an early death or for an unspecified collagen disorder you owe it to your children to check into it. ><((((º>`·.¸¸.·´¯`·.¸.·´¯`·...¸><((((º>¸.·´¯`·.¸. , . .·´¯`·.. > ><((((º>`·.¸¸.·´¯`·.¸.·´¯`·...¸><((((º> Protect your waters!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 Kim wrote: >Laying on my back is painful too as it hurts my lower back (clip) >But if I lay completely still and cross my ankles then I am >find on my back... (clip) Ditto that! Side sleeping is getting more and more difficult to do because of my shoulders-and a 'scrunched' chest feeling, so I sleep on my back. I also have used pillows to elevate my lower legs so it removes some of the stress off my low back. Just curious--what position tends to promote the development of kidney stones? (One has shown up in x-rays in the past.) cindyh ~ Re: Chest Conditions Laying on my back is painful too as it hurts my lower back and hips causing them to lock and be extremely painful to move. But if I lay completely still and cross my ankles then I am find on my back...which is way I should lay since I tend to grow kidney stones. kim Quote Link to comment Share on other sites More sharing options...
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