Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Hello to all- I live in smooth,leather soled shoes or moccasins. The smooth soles enable me to Shuffle. Rubber or non-slip soles I find very difficult because it means I have to lift my foot to take a step--I find that difficult. When we did some remodeling, we took up the carpet and exposed the nice, smooth oak floors and we put down Pergo laminated floor in a light, marble pattern in the kitchen, dining area. These are easy for me to walk on with my smooth soles and the floors look very nice. I have never had a problem with slipping. that's my story on shoes. Regards to all, Ed Ames Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 jennifer, do you wear AFO's for your drop foot?..... maggie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 , " ski skates " sound like they may be fun if the world was flat but I have found out that there very few places that are flat. I would be in a body cast in no time. With my new orthodox they have fixed my toe drop, I walk much better and the person who is making my shoes is going to build the toe area up so as to minimize the toe drop. Have a good day! B. Oregon ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hi ! I read your e-mail about shoes & just had to e-mail you back! I HATE shoes! They are such a BIG problem for me. I haven't had a change in size tho. Shoes can't be too " rubbery " on the bottom 'cause then my feet stay in one place & the rest of my body goes on! I'm very hard on shoes because of my foot drop. And toes wear out very quickly! Shoes for me need to be " slick " on the bottom. Hard to find casual shoes that are slick on the bottom! What shoes have you been wearing? I'm new to PLS Friends but not new to PLS. I've had it since 1991 but only got a diagnosis in 1998. I'll look forward to hearing from you. Take care. Beth Plourde Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hi everyone! Thanks to everyone for all of their help on my questions about shoes! I really appreciate everyone taking the time to answer me Another question -- does everyone that wears AFO's still have a problem with their toes hitting the ground? Thanks again! Beth Plourde Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hi Beth, Yep, we are identical twins! (at least when it comes to shoes) I can't take the rubbery sole or gripper soles either. I usually wear the SAS loafer as I can slip it on easily and it is very comfy. I have black, brown, bone and grey. I wear them all the time, with socks, without. Let me know if you can't find them, I'll try to find a phone number so you can locate a store. But I do wear the toe part of the sole down and after awhile (about a year) they look pretty bad and have to be replaced. SAS doesn't have a website but they are worth seeking a SAS store out. Have you been to the PLS Awareness website? www.geocities.com/mdmfoo/pls.html --- HopeyS89@... wrote: > Hi ! > I read your e-mail about shoes & just had to e-mail > you back! I HATE shoes! > They are such a BIG problem for me. I haven't had a > change in size tho. > Shoes can't be too > " rubbery " on the bottom 'cause then my feet stay in > one place & the rest of > my body goes on! > I'm very hard on shoes because of my foot drop. And > toes wear out very > quickly! > Shoes for me need to be " slick " on the bottom. Hard > to find casual shoes > that are slick on the bottom! > What shoes have you been wearing? > I'm new to PLS Friends but not new to PLS. I've had > it since 1991 but only > got a diagnosis in 1998. > I'll look forward to hearing from you. Take care. > Beth Plourde > ===== Thomson, Solana Beach, CA www.geocities.com/mdmfoo/pls.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 Hi Beth, The AFO keeps your foot from dropping so that is not a problem. But do your homework on the type of AFO you get. Mine are so bulky that I hardly ever use them and I can't bend my foot to drive. Thomson --- HopeyS89@... wrote: > Hi everyone! > Thanks to everyone for all of their help on my > questions about shoes! I > really appreciate everyone taking the time to answer > me > Another question -- does everyone that wears AFO's > still have a problem with > their toes hitting the ground? > Thanks again! Beth Plourde > ===== Thomson, Solana Beach, CA www.geocities.com/mdmfoo/pls.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 jennifer, I also have great difficulty driving with my AFO because I can'y bend my. I didn't know there were other kinds. is there a web site to actually see other types? maggie > > Hi everyone! > > Thanks to everyone for all of their help on my > > questions about shoes! I > > really appreciate everyone taking the time to answer > > me > > Another question -- does everyone that wears AFO's > > still have a problem with > > their toes hitting the ground? > > Thanks again! Beth Plourde > > > > > ===== > Thomson, Solana Beach, CA > www.geocities.com/mdmfoo/pls.html > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 Maggie, I have two AFO braces and don't wear them much because they do not bend at the ankle and I don't like the idea of driving that way. Alan K. has one that bends and he drives with it. Alan, can you jump in here? Dolores Re: Shoes > jennifer, I also have great difficulty driving with my AFO because I > can'y bend my. I didn't know there were other kinds. is there a web > site to actually see other types? > maggie > > > > > > > > > > > Hi everyone! > > > Thanks to everyone for all of their help on my > > > questions about shoes! I > > > really appreciate everyone taking the time to answer > > > me > > > Another question -- does everyone that wears AFO's > > > still have a problem with > > > their toes hitting the ground? > > > Thanks again! Beth Plourde > > > > > > > > > ===== > > Thomson, Solana Beach, CA > > www.geocities.com/mdmfoo/pls.html > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 Yes, my toes drag with the AFOs. When I first got them, there was considerable improvement, little toe drag. Now I've had them about two years, and due to my progression my toes are dragging again. Have to work hard to lift enough. Someone suggested saying "lift" with each step. It helps me. I only wear them when I'm going to walk a lot (mostly for work). Weekends are usually AFO free. I wear leather soled shoes with rubber heals. Rubber soles make it more difficult to walk. I'm getting a power-chair via my insurance company. My doc and outfitter fought hard to get me a really nice chair - http://www.permobilusa.com/products-c2kcorpus.htm. I'm having some breathing problems, so it includes tilt and recline to take the pressure off my stomach when I have discomfort. Should get it the next few weeks. Mostly for work and to be able to take my daughter places my limited walking prevents now. Next I have to get a van. As I said, I've "progressed" (hate to use that word, "progress" and getting worse don't go together!) quite a bit recently. Still walking. Still working. Maxed out on Baclofen (120 mg), so now very slowly starting to add Zanaflex. Sorry to ramble, but it has been a while since I've updated the group. Alan Kirk Re: Shoes Hi everyone!Thanks to everyone for all of their help on my questions about shoes! I really appreciate everyone taking the time to answer meAnother question -- does everyone that wears AFO's still have a problem with their toes hitting the ground?Thanks again! Beth Plourde Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 Mine are made from plastic or fiberglass. Lightweight, but I don't like wearing them. Without them could not work. They do not bend at the ankle much. Makes driving difficult, not impossible. I passed an exhaustive driving test (4 hours) wearing AFOs, with no problems. Because I brake with my left foot, my reaction times were better than some race car drivers (they said, not me). Alan Kirk Re: Shoes> jennifer, I also have great difficulty driving with my AFO because I> can'y bend my. I didn't know there were other kinds. is there a web> site to actually see other types?> maggie>>>>>>>> > > > Hi everyone!> > > Thanks to everyone for all of their help on my> > > questions about shoes! I> > > really appreciate everyone taking the time to answer> > > me> > > Another question -- does everyone that wears AFO's> > > still have a problem with> > > their toes hitting the ground?> > > Thanks again! Beth Plourde> > >> >> >> > =====> > Thomson, Solana Beach, CA> > www.geocities.com/mdmfoo/pls.html> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Hi < Thanks so much for your kind e-mail concerning shoes!! I really appreciate all the help that everyone is giving me! I'll be sure to try the SAS. I used to work with a woman that wore them so I won't have any trouble finding a store. Like everyone else, I am so hard on the toes of the shoes. I tried having rubber toe plates put on where the most wear was. Worked GREAT except - the plates wore down too, of course. So I had metal plates put on. Disaster!! I made so much noise that the whole world heard me coming & I also fell in them. NOT a good idea. Well, I tried. I still hate shoes!!! Thanks again! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Hi ! I know I just e-mailed you but forgot to mention the AFO's. I didn't know that there was more than one kind. I guess the AFO's I had were the correct ones 2 years ago. But now they aren't 'cause I still have foot drop with them on. What do yours look like? Thanks again! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 Am the same way . The more shoes the worse it is I walk around in the house with no shoes all the time just socks. I need rubber soles on the shoes I do wear. I wear keds classic the old ones. If I wear a leather sole I buy those rubber soles to prevent slipping. Everyone is different...........Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 My AFO's don't have any hinge action at the ankle, thus my foot can't drop. There is a slight amount of give at the ankle, but it is maybe 1/4 inch. I recently found an AFO that really looks interesting. It isn't as bulky as mine and I'd love to try them, but you have to go to them to get fitted, and they are pretty expensive. But then all afo's are expensive. Here is the website: http://www.rothschildsorthopedics.com/foot-drop.html --- HopeyS89@... wrote: > Hi ! > I know I just e-mailed you but forgot to mention the > AFO's. I didn't know > that there was more than one kind. I guess the > AFO's I had were the correct > ones 2 years ago. But now they aren't 'cause I > still have foot drop with > them on. What do yours look like? Thanks again! > Beth > ===== Thomson, Solana Beach, CA www.geocities.com/mdmfoo/pls.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 , I am just the opposite. The weight of shoes seems to drag my foot down. I walk pretty good barefoot, but the more shoe I have the worse it gets. I guess that is why I like slip on loafers. --- Orme wrote: > Since there has been a lot of discussion about shoes > lately, I am wondering > whether I am the only person that has more comfort > with shoes ON than with > them OFF. When I take them off at night I really > have trouble walking right > and balance is a real problem. A good pair of shoes > with good support, and > sometimes I can make my gait almost normal, but > NEVER with shoes off. Just > curious if there is anyone else like me. > > ===== Thomson, Solana Beach, CA www.geocities.com/mdmfoo/pls.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 Reply to --I, too, am better with shoes " on " than " off " . I have gotten some serious bruising of my toes when I was barefoot and my toes caught on the carpet. I love my Reebok sneakers because they are not heavy and I wash them in the machine. When they are new, I have trouble because they often get stuck. Now I just have my husband grind the treads off the new ones to resemble the smooth spots on the old ones. Dolores Into/jennifer movie/stem cells > > > > hi there, > > This is my first post. I take care of my mom who was > > diagnosed with ALS 8/99 she has gone down hill pretty quickly > > and she has pretty much said she will not make it to her 50th > > birthday (a year and a half away). She does not want a bi-pap, > > trak (sp?), feeding tube, or anything that keeps her alive longer > > than she can do on her own. > > > > Anyway, I saw the movie tonight too and I thought it > > was a great movie. I was only surprised that her voice was still > > as good as it was in the movie. I know that with some people it > > is different, but I have not seen many people that had a voice > > that was still good. My mom is really hard to understand now > > she is getting a voice translator machine Monday and that > > should help some. > > > > I would hope that stem cells are going to be tested on humans > > soon. But I wonder when the movie was made because they > > were still saying 9months to a year. I like the idea of stem cells > > being used but I know there is a lot of arguments about the > > stem cells and I can not help but wonder if that might stop/slow > > things down. > > > > That is all for now > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 : I also get around better with shoes. I have always loved to run around the house barefoot but now my toes turn under, my ankles turn in somewhat, my balance is worse (even though I use a walker), and some slick surfaces seem to pull the skin away from my toenails. That last one is hard to understand unless it happens to you personally. I have yet to find the perfect shoe because my needs keep changing. When in the movie brought up the question of shoes I sure related. in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 --, I have better balance with my shoes on also.I think one reason I do is I have very high arches and I have more support than when their off.Carolyn - In PLS-FRIENDS@y..., " Orme " <@y...> wrote: > Since there has been a lot of discussion about shoes lately, I am wondering > whether I am the only person that has more comfort with shoes ON than with > them OFF. When I take them off at night I really have trouble walking right > and balance is a real problem. A good pair of shoes with good support, and > sometimes I can make my gait almost normal, but NEVER with shoes off. Just > curious if there is anyone else like me. > > > Into/jennifer movie/stem cells > > > > hi there, > > This is my first post. I take care of my mom who was > > diagnosed with ALS 8/99 she has gone down hill pretty quickly > > and she has pretty much said she will not make it to her 50th > > birthday (a year and a half away). She does not want a bi-pap, > > trak (sp?), feeding tube, or anything that keeps her alive longer > > than she can do on her own. > > > > Anyway, I saw the movie tonight too and I thought it > > was a great movie. I was only surprised that her voice was still > > as good as it was in the movie. I know that with some people it > > is different, but I have not seen many people that had a voice > > that was still good. My mom is really hard to understand now > > she is getting a voice translator machine Monday and that > > should help some. > > > > I would hope that stem cells are going to be tested on humans > > soon. But I wonder when the movie was made because they > > were still saying 9months to a year. I like the idea of stem cells > > being used but I know there is a lot of arguments about the > > stem cells and I can not help but wonder if that might stop/slow > > things down. > > > > That is all for now > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 --, I have better balance with my shoes on also.I think one reason I do is I have very high arches and I have more support than when their off.Carolyn - In PLS-FRIENDS@y..., " Orme " <@y...> wrote: > Since there has been a lot of discussion about shoes lately, I am wondering > whether I am the only person that has more comfort with shoes ON than with > them OFF. When I take them off at night I really have trouble walking right > and balance is a real problem. A good pair of shoes with good support, and > sometimes I can make my gait almost normal, but NEVER with shoes off. Just > curious if there is anyone else like me. > > > Into/jennifer movie/stem cells > > > > hi there, > > This is my first post. I take care of my mom who was > > diagnosed with ALS 8/99 she has gone down hill pretty quickly > > and she has pretty much said she will not make it to her 50th > > birthday (a year and a half away). She does not want a bi-pap, > > trak (sp?), feeding tube, or anything that keeps her alive longer > > than she can do on her own. > > > > Anyway, I saw the movie tonight too and I thought it > > was a great movie. I was only surprised that her voice was still > > as good as it was in the movie. I know that with some people it > > is different, but I have not seen many people that had a voice > > that was still good. My mom is really hard to understand now > > she is getting a voice translator machine Monday and that > > should help some. > > > > I would hope that stem cells are going to be tested on humans > > soon. But I wonder when the movie was made because they > > were still saying 9months to a year. I like the idea of stem cells > > being used but I know there is a lot of arguments about the > > stem cells and I can not help but wonder if that might stop/slow > > things down. > > > > That is all for now > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2001 Report Share Posted October 23, 2001 & Delores.....oh wow, without any shoes on I flop around like a fish or maybe more closely resemble " EGOR " from enstien. <BG> I, too, live in my Reeboks. and if I don't wear my AFO for some reason, I wear a helpful ankle brace i found at WalMart. It keeps that ankle from collapsing. Beth, I think, mentioned her AFO not helping her drop foot any more. Mine has a spring at the back of the ankle. I replace the spring every 6 weeks or so and VOILA! it works like new again. the only real problem I have with it now is that my leg is shrinking and eventually I'll need a new brace made to fit my leg. also, when I wear only the small ankle brace, my limp is so much worse and I have little control over my leg and foot. so, I do wear the AFO most of the time. my foot swells and gets quite red, though after a day of being on my feet. then the AFO feels awful and I can't wait to get it and my shoes off. A couple of years ago I had such terrible itching on the roof of my mouth and tongue. I went to my primary care doc and she said well, geez, you've got allergies!!!! I started taking antihistamines and I've not had the problem since. could it be that for some you? maggie > Reply to --I, too, am better with shoes " on " than " off " . I have gotten > some serious bruising of my toes when I was barefoot and my toes caught on > the carpet. I love my Reebok sneakers because they are not heavy and I wash > them in the machine. When they are new, I have trouble because they often > get stuck. Now I just have my husband grind the treads off the new ones to > resemble the smooth spots on the old ones. > Dolores > Into/jennifer movie/stem cells > > > > > > > hi there, > > > This is my first post. I take care of my mom who was > > > diagnosed with ALS 8/99 she has gone down hill pretty quickly > > > and she has pretty much said she will not make it to her 50th > > > birthday (a year and a half away). She does not want a bi-pap, > > > trak (sp?), feeding tube, or anything that keeps her alive longer > > > than she can do on her own. > > > > > > Anyway, I saw the movie tonight too and I thought it > > > was a great movie. I was only surprised that her voice was still > > > as good as it was in the movie. I know that with some people it > > > is different, but I have not seen many people that had a voice > > > that was still good. My mom is really hard to understand now > > > she is getting a voice translator machine Monday and that > > > should help some. > > > > > > I would hope that stem cells are going to be tested on humans > > > soon. But I wonder when the movie was made because they > > > were still saying 9months to a year. I like the idea of stem cells > > > being used but I know there is a lot of arguments about the > > > stem cells and I can not help but wonder if that might stop/slow > > > things down. > > > > > > That is all for now > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Hi Everyone!!! Shoes seem to be a hot topic right now & I thinkI started it! I never wear shoes in the house. Can't wear tennis shoes anywhere at anytime. They stick to the floor. One problem in not wearing shoes in the house is - because of my foot drop I sometimes bend my toes backward on the floor. OUCH!!! I really hate shoes - I know I've said that before - I sound like a stuck record. Sorry. Shopping for shoes is torture. And then finding a pair that sort of work & having them wear down in no time because of foot drop, etc. A lot of PLS'ers suggested SAS & I do plan to check them out. My husband who has cerebellar atrophy HAS to have shoes that offer support. Tennis shoes are best for him Thanks to everyone for your help! I had asked about botox injections. Anyone know about them? Someone said they had used them for speech problems. Everyone take care. Beth Plourde Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Hi ! Thanks for the website address!! I will definitely check that out. I had no idea that there were different kinds of AFO's. Mine are just solid plastic - no hinge or spring!!! Thanks for your help! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Hi ! Shoes or not...seems to be the topic of the day. A few years ago I was able to walk barefooted around the house. But since then I must wear tie shoes with a sole that glides...basically, worn out tennis shoes. When my legs get tired, I tend to drag my foot and can fall. I would love to wear loafers but I need firmer support. So our barefoot-days are over! You are not alone! Bette > >Reply-To: PLS-FRIENDS >To: <PLS-FRIENDS > >Subject: Shoes >Date: Tue, 23 Oct 2001 07:15:11 -0400 > >Since there has been a lot of discussion about shoes lately, I am wondering >whether I am the only person that has more comfort with shoes ON than with >them OFF. When I take them off at night I really have trouble walking >right >and balance is a real problem. A good pair of shoes with good support, and >sometimes I can make my gait almost normal, but NEVER with shoes off. Just >curious if there is anyone else like me. > > > Into/jennifer movie/stem cells > > > > hi there, > > This is my first post. I take care of my mom who was > > diagnosed with ALS 8/99 she has gone down hill pretty quickly > > and she has pretty much said she will not make it to her 50th > > birthday (a year and a half away). She does not want a bi-pap, > > trak (sp?), feeding tube, or anything that keeps her alive longer > > than she can do on her own. > > > > Anyway, I saw the movie tonight too and I thought it > > was a great movie. I was only surprised that her voice was still > > as good as it was in the movie. I know that with some people it > > is different, but I have not seen many people that had a voice > > that was still good. My mom is really hard to understand now > > she is getting a voice translator machine Monday and that > > should help some. > > > > I would hope that stem cells are going to be tested on humans > > soon. But I wonder when the movie was made because they > > were still saying 9months to a year. I like the idea of stem cells > > being used but I know there is a lot of arguments about the > > stem cells and I can not help but wonder if that might stop/slow > > things down. > > > > That is all for now > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 To all who are writing about shoes: I have found this to be fascinating. I cannot wear shoes with slick soles. I will fall on my, well, I'll fall. I can wear leather shoes with soles like a walking shoe. I can wear walking shoes. Because of my foot size, I have problems finding any shoe that fits, though. Slip ons are out. I can't find any that don't feel like they are falling off and that causes me to walk very gingerly. I am not going to do that. However, something I thought might be of interest to all is boat shoes. I have had two pair, one slip ons, which I can no longer wear, and the other were lightweight canvas. The soles are usually rubber or leather, but they are flat with tiny grooves cut in a jagged pattern across the sole. They helped keep from slipping on a wet sail boat and were very comfortable to wear. Sperry is the major brand name I can remember, but there are many others. If there is a Marine shop near you, you might want to try them out. Some shoe stores around large bodies of water also carry them. They do come in my size and fit very well. Just a thought, Mike Gray Quote Link to comment Share on other sites More sharing options...
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