Guest guest Posted April 3, 2002 Report Share Posted April 3, 2002 In a message dated 4/3/02 1:46:46 AM Eastern Standard Time, d.carron@... writes: > We, who love you, want you to be safe and sound. > > Dolores Ditto!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Thank you Mike, Fenella. > > I had to read that three times to get it , but I believe she > was talking about any given group of diabetics that have out of > control numbers and won't go on meds or anything. > > Mike > > > > I am not sure what group you are referring to that are in denial about > > needing to take meds unless you are discussing your patients. I > think most > > everyone here is on meds and trying to manage. I am one of the ones > that is > > not on any meds at the moment and I have a HbA1c of 5.3 It has been at > > this level for over a year. As long as my HbA1c stays here and my > sugars > > aren't running high, I see no need to continue on meds. I am not > refusing > > meds, I have been on them. I don't think anyone here is refusing meds. > > This list wasn't intended to replace our doctors but to support, > encourage > > and answers questions. Keeping this in mind, we have to be careful > about > > people are advised. > > in NC > > Co Moderator > > From Fenella, clarifying my stand. > > > > > > > Dear Nick > > > > > > I will correspond with anyone who wants. On or off list. > > > I should point out that my opinions are based on my being diabetic > with a > > > professional background, rather than as a professional. I am a trained > > > psychiatric nurse who has had general nurse training although my > expertise > > is > > > mental health. My expertise is NOT diabetes as a professional > HOWEVER I > > > counsel a lot of diabetics who when first diagnosed and thereafter > find > > > things tough. Some refuse meds and do extremely well, some refuse > meds and > > do > > > lousy and I have a real concern and others take meds and juggle > around for > > a > > > bit then get a good balance and are very well. > > > I have a concern for the group who say no to meds and continually > have an > > > HbA1c above 9%. However that is their body and their business. My > opinion > > on > > > this group is that they either are not managing but feel that they are > > > failing and too stubborn to accept meds or are in denial of the > facts of > > long > > > term risks. This group worries me. To refuse meds and have an > ongoing high > > > HbA1c is for me putting yourself at risk, and the denial is surely > there? > > > > > > Fenella > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 HI again, I have to say that I asked my ONC the same question about having my ovaries removed instead of tamoxifen.....lol......and was told the same thing that Mike and his wife were told. THIS IS THE STANDARD OF CARE. I am not only a BC survivor but also a nurse. Even though every one is different we still have a standard of care that most go by. It is up to us and our Dr to choose what we feel is right for us as an individual. If we do not choose to be aggressive about how we are being treated then the Dr's will go by the standard of care......that is why we have study groups and how they come up with the standard of care. surviving together Rena mike heads up, Mike! I have some explaining to do. 1.You obviously do not understand the term "standard" as applied medically. We are fortunate to have nne, who sends us the reports of the latest studies, techniques, etc of new developments in the breast cancer field. And if you go back far enough you will find that the latest techniques and treatments and new surgeries and chemicals were called The Gold Standard" meaning the highest obtainable treatment at the time (available to very few women worldwide, which is still true) And if you had read hundreds of studies (as many of us have) you would know that the word "gold" was gradually dropped as these treatments became more available. And if you know the dictionary meaningof standard you would know that it means "something established by authority orgeneral consent as a model and a rule for quality", as a means of determining what a thing should be, the value of something intangible as in fine service." (am I being cheery and civil enough? It DOES NOT MEAN treatment that everybody gets. And if you have been reading posts, you will see that there is a great variety of treatment given to various patients ACCORDING TO PRESENT KNOWLEDGE. 2. Have you met the members of this group? They are intelligent,highly diverse, highly educated about breast cancer,highly realistic, and dedicated to sharing knowledge and SUPPORTING EACH OTHER. They are not "quite plainly rude uncivil, etc. etc. as you state. 3. Unless you are an oncologist and/or researcher, I am not interested in your"explanation of staging". 4. I want to write much more, but othermembers have done a better job and saved me from having a stroke. Thanks especially to nne, Doris, Dianna, Lucilla, Sharon, and everybody else who responded. You all have affirmed my faith in this group. Rosemary Quote Link to comment Share on other sites More sharing options...
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