Radioactive iodine therapy

[Guest guest]

I had my thyroid removed in December and are now preparing for the

iodine-free diet and total body scan.

I have heard the combination of no thryoid hormone and the low iodine

diet are pretty miserable.

Please share experiences.

adambsmom@...

[Guest guest]

The lack of hormone makes you tired, bloated, crabby, constipated for

some, cold, dry,,, its pretty unpleasant. The LID is just tricky

eating but it doesn't have to be miserable. Good recipies and a bit

of forward planning and it can really be quite manageable. I've done

dinner parties that were LID and non of my guests knew till I told

them and no one thought the quality was below what we usually serve.

But that said, the caveat comes that I cook, and folks who prefer

convenience foods, eating out, or aren't comfortable in the kitchen

often have more difficulty figuring out what to eat on the LID.

barb

> I had my thyroid removed in December and are now preparing for the

> iodine-free diet and total body scan.

>

> I have heard the combination of no thryoid hormone and the low

iodine

> diet are pretty miserable.

>

> Please share experiences.

>

> adambsmom@y...

[Guest guest]

I wouldn't consider the LID a miserable experience,

just a little inconvienient at times, and more

expensive than anything else. While most individuals

are only on it for two weeks, my endo ordered me on it

for one month - and I cannot say it wasn't difficult,

because it was, but it went by quickly and in the end,

it was the healthiest diet I had ever been on.

I thought that going back to " normal " foods would be

awesome, but I found it to be very anticlimatic - I

had richer, better tasting food on the LID, certianly

better than all the processed garbage I was eating

before. Ironically, I lost my sense of taste after

the radiation, so coming off the LID was a

dissapointing experience - at least I could taste food

then.

In terms of going hypo... don't assume that will be a

terrible, debilitating experience - because many don't

experience few or no symptoms at all. Even though my

TSH was sky high, I felt greater hypo symptoms last

year when I was actually living with hypothyroidism

(before any thyca had been diagnosed) and my TSH was

much lower than what it was when I was preparing for

the treatment. You may experience many hypo symptoms

or you may experience very few. Even though it's

difficult, try to remind yourself that it's only for a

few weeks and that before you know it you will be

feeling healthy again.

Best of luck!

Pattie

=====

Dx Familial Pap Thyca, Hashimoto's Thyroiditis - 11/01

TT - 12/20/01

RAI 150 mCi - 2/12/02

__________________________________________________

[Guest guest]

Hello Pattie,

THank you for your support.

I had originally brushed this whole experience off as

no big deal. But I am becoming increasingly concerned

and a little crazy, I think.

Everyone, including physicians, tell me this is a good

cancer - talk about a ridiculous oxymoron - but

whenever you put the word " cancer " in a diagnosis,

there is nothing good about it. THis is my second

bout of cancer and I am very concerned that there will

be a third one and I will not be so lucky next time.

I will think positively about going hypo (this is a

new term for me) but the closer it gets, the more

concerned I will be even though I know there's not

much to do but wait and see what my reaction is. I

usually do not react strongly to medications of any

kind. Sometimes waiting is the hardest thing of all.

I am off on a 10 day trip to Spain and will return

March 20. THis is my gift to myself after diagnosis

#2.

Regards and thanks again,

Bette

--- " P. De " wrote:

> I wouldn't consider the LID a miserable experience,

> just a little inconvienient at times, and more

> expensive than anything else. While most

> individuals

> are only on it for two weeks, my endo ordered me on

> it

> for one month - and I cannot say it wasn't

> difficult,

> because it was, but it went by quickly and in the

> end,

> it was the healthiest diet I had ever been on.

> I thought that going back to " normal " foods would be

> awesome, but I found it to be very anticlimatic - I

> had richer, better tasting food on the LID,

> certianly

> better than all the processed garbage I was eating

> before. Ironically, I lost my sense of taste after

> the radiation, so coming off the LID was a

> dissapointing experience - at least I could taste

> food

> then.

> In terms of going hypo... don't assume that will be

> a

> terrible, debilitating experience - because many

> don't

> experience few or no symptoms at all. Even though

> my

> TSH was sky high, I felt greater hypo symptoms last

> year when I was actually living with hypothyroidism

> (before any thyca had been diagnosed) and my TSH was

> much lower than what it was when I was preparing for

> the treatment. You may experience many hypo

> symptoms

> or you may experience very few. Even though it's

> difficult, try to remind yourself that it's only for

> a

> few weeks and that before you know it you will be

> feeling healthy again.

> Best of luck!

>

> Pattie

>

> =====

> Dx Familial Pap Thyca, Hashimoto's Thyroiditis -

> 11/01

> TT - 12/20/01

> RAI 150 mCi - 2/12/02

>

> __________________________________________________

>

[Guest guest]

Hello

" pretty miserable. "

I don't know about keeping the LIdiet, since my endo didn't mention it and I

found this group only after my rai, but no thyroid hormone definately makes

you feel quiet miserable after a while...... just keep thinking that after

the treatment when you start to take the hormone again you'll get better,

because otherwise it all seems black....

Sofi

(THYca 10/01, TT11/01, 85 mci 02/02)

_________________________________________________________________

Kom med i världens största e-posttjänst; MSN Hotmail.

http://www.hotmail.com/sv

[Guest guest]

Hi,

I also had a TT in December and have been off of T3 since the 1st. I have

been on a LID since last Thursday. My scan dose is the 18th with scans on

the 20th and 21st. That said, so far it hasn't been too bad. I am more

tired than usual, I get way too sore when I work out so I stopped lifting

weights and am just taking a Pilates class and walking on the treadmill or

elliptical cross trainer. This past weekend when I had been off of the

hormone for a whole week, I started having some dizzy spells and some nausea

(which was caused from severe acid indigestion). I have been taking Tagemet

75 (OTC) since Saturday and it has helped.

I really wanted some bread and butter last night to help settle my stomach

but didn't have it because of the butter and bread was commercial, then I

turned right around an hour latter and had bread and fresh ground no salt

peanut butter with fresh raspberries smooched up into instead. It was

really great until I realized not only was the butter not on LID but neither

was the commercial bread I ate with it. LOL. Since my dose is 18th. I

have 7 days from today to make sure I do it right. I went and bought some

bread at the health food store with fruit and nuts that was recommended on

the list as okay for LID and plan on having it tonight with dinner instead

of fruit which is what I had been having. It should help with the stomach

acid. Although today has been pretty good. I woke up before the alarm at

5:30 and jumped up (no dizziness) and got ready to go work out. I guess it

comes and goes. But I really feel pretty good. So much better then I

expected that I am afraid that when I get my blood test on Thursday to test

TSH that it won't be high enough. One other symptom that I am having is

absentmindness (more then usual ; - /), so I am writing a ton of notes to

myself. As for the LID it hasn't been that bad. But I already ate fresh

meats, veggies, didn't eat soy although it may have been in some of the

commercial products that I have purchased, I did buy non-iodnized salt to

use instead of seasalt. So the only thing was to cut out dairy, eggs and

seafood (that hurts).

Good Luck!!

TT 12/13/01

Foll variant of pap carcinoma 1.3 cm and a 2nd pap carcinoma .5 cm.

Currently going hypo for 1st scan.

Radioactive iodine therapy

I had my thyroid removed in December and are now preparing for the

iodine-free diet and total body scan.

I have heard the combination of no thryoid hormone and the low iodine

diet are pretty miserable.

Please share experiences.

[Guest guest]

> .... didn't eat soy although it may have been in some of the

> commercial products that I have purchased ....

that counts, too!

It's important to read labels, preferably before you get so hypo that it's an

overwhelming chore.

-

[Guest guest]

,

This was before the LID diet. I am not eating any commercial products at

all now except the Natures Own Manna bread (Fruit and Nut). Nothing in

there but Organic grains, fruit and nuts. I was talking about what I have

given up to be on the LID. Like I said I never eat soy products but may

have been getting soy stuff in commercial items consumed before the LID

diet. Anyway when I was preparing to go on LID I was reading all kinds of

labels and Soy Lecithin was in a lot of stuff, so I know I HAD been

consuming some soy, just not straight soy products. Sorry it was confusing

to read. A couple of typos that spell check didn't catch, etc.. I am

getting pretty hypo right now. Hope this clears up any confusion.

Re: Radioactive iodine therapy

> .... didn't eat soy although it may have been in some of the

> commercial products that I have purchased ....

that counts, too!

It's important to read labels, preferably before you get so hypo that it's

an overwhelming chore.

-