Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Hi , I am not really sure of the high dose, other than the fact that I had stage 3 papillary carcinoma when they caught my cancer and it had started to leave the capsule. in CT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I had the tracer dose and it showed a lot of uptake in the neck area. At that time it had not spread to my nodes. My nuclear medicine doc at the time has since retired. Now that I have learned a lot more about all this stuff, he isn't around to ask. in Ct Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Mine had left the capsule and was in 1 lymph node which they removed with the thyroid, they said papillary (just papillary) stage 1. This can get very confusing. when they did your first scan to see how high of a dosage to give you what did they find? Re: high dose of RAI Hi , I am not really sure of the high dose, other than the fact that I had stage 3 papillary carcinoma when they caught my cancer and it had started to leave the capsule. in CT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 In a message dated 2/26/02 5:27:44 PM Pacific Standard Time, crsherman@... writes: > > The reason I asked is because in the 5 years I've been on this > listserv, I don't remember anyone receiving as much as your 431mCi's in > a single dose. In the cases that there were high doses given (like > 300ish), they always seemed to do dosimetry studies to ascertain that > the bone marrow could handle such a high dose. I don't know if there > are 'hard & fast' rules for the amount given and the need for dosimetry > studies, but 431mCi's without the study seems worrisome to me. > > Maybe someone who had a really high dose will post more on these > studies and what size dose necessitates them? Anyone? > > Marilyn > > I had a high dose of RAI in 94,, my 2nd dose. I had a total of 507mci's.. I did do the dosimetry studies for this dose. I also didnt have the 507 in one drink,, I had half one day and the rest the very next day. And the reason for the high dose for me is my cancer is aggressive, I have mets to bone and already had mets before I even knew it was Thyca. Hope this helps someone.. judi (dx 93, follicular w/mets to bone, 3 RAI's,, no clean scans) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 The reason I asked is because in the 5 years I've been on this listserv, I don't remember anyone receiving as much as your 431mCi's in a single dose. In the cases that there were high doses given (like 300ish), they always seemed to do dosimetry studies to ascertain that the bone marrow could handle such a high dose. I don't know if there are 'hard & fast' rules for the amount given and the need for dosimetry studies, but 431mCi's without the study seems worrisome to me. Maybe someone who had a really high dose will post more on these studies and what size dose necessitates them? Anyone? Marilyn > I had the tracer dose and it showed a lot of uptake in the neck area. At > that time it had not spread to my nodes. My nuclear medicine doc at the time > has since retired. Now that I have learned a lot more about all this stuff, > he isn't around to ask. in Ct Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 i wish some doctor ,, tell us on what bases they decide on the amount of rai dose? jolie /ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 oh does it? well so why i had 161.8 why? not 161. lol i really want to know! many thanx Jolie /ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Hi Marilyn, I hope high RAI people will post too. I think you are right. I believe I am the highest so far. The same goes for my meds. I am on 425mcg of Levoxyl. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Jolie It is based on science, experience,...and divine inspiration! :-) -- ############################ ARTURO R. ROLLA, MD arolla@... arolla@... arolla@... ############################ Quote Link to comment Share on other sites More sharing options...
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