Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 In a message dated 5/31/2003 10:09:30 AM Pacific Daylight Time, madisonn99@... writes: << However, in most cases the blood thinning effect of natural thinners is not one that can be picked up by the more common protime test. >> Hi, , Did a doctor tell you that the effect of natural thinners cannot be picked up by a Protime test? I would think that the Protime test measures the actual viscosity of the blood rather than the cause of that level of viscosity. On that premise it seems that if the blood reaches a certain level of low viscosity, it would be measured by the Protime test regardless of the cause of that viscosity level. For example, when I was taking Amoxicillin, my INR shot up to 3.6 according to the Protime test. The test, of course, didn't tell me what caused the high level but simply measured the results. My doctor and I figured out the cause. As you know, I have been taking vitamin E forever, eating fish, and avoiding large quantities of leafy vegetables. (I have a friend who has had a more serious ventricular problem since childhood, and her doctor told her to eat no vegetables since she is on Coumadin. I was surprised at that because my own doctor did not approve my experiment in giving up vegetables.) My INR has stayed stable now at 2.4 to 2.7 for more than a year on 2.5 of Coumadin. I think that on the occasions when my INR has risen above 3.00, I could tell by the fact that bruising and bleeding became more of a problem. I think we also have to pay attention to what is going on with our bodies when we are taking Coumadin. in sinus in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 In a message dated 5/31/2003 3:00:19 PM Central Daylight Time, james@... writes: > I'm sure there are many monographs out there which can explain the > mechanism of action for warfarin and the INR test far better than I can, > so I wont even try > -- > D > > This certainly is not a monograph, but I have been told that coumadin/warfarin " contains " a clot until the body can desolve it. What ever that means. Sounds strange but thats what I heard. Guy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 When I was first diagnosed with Afib and told about coumadin, my cardioligist also mentioned it was rat poison. He said that the reason the rats die is they can't regurgitate the blood. Oh well. They also told me not to change my dietary intake of vitamin K, i.e. if I eat broccoli and green leafy veggies don't increase or decrease it. I like salads and broccoli, but have no idea now often they show up in my regular diet -- so I just try not to indulge too often. Later I had occasion to ask my GP what over-the-counter pain killer I could take, since I assumed aspirin was out. She said go with Tylenol. Ed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 In a message dated 5/31/2003 12:09:13 PM Central Daylight Time, madisonn99@... writes: > how safe is taking Coumadin and supplementing with > different natural blood thinners? > > The only thing my cardio says NOT to take while on Coumadin is garlic. I don't think we know how safe these natural things are for the very reasons you mention. Are you having side effects with your Coumadin and for this reason are searching for alternatives? Brenta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 Hi, I have been trying with more or less success to replace some of my Coumadin with other more natural blood thinners. However, in most cases the blood thinning effect of natural thinners is not one that can be picked up by the more common protime test. What that basically means is, that adding natural thinners, such as Vit E., garlic, ginger etc. may very well thin the blood but it can not be efficiently measured. To my knowledge there is nothing reliable yet that would give us a complete picture of our clotting time. Now to my question, how safe is taking Coumadin and supplementing with different natural blood thinners? / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 In a message dated 5/31/2003 12:34:52 PM Central Daylight Time, Starfi6314@... writes: > that premise it seems that if the blood reaches a certain level of low > viscosity, it would be measured by the Protime test regardless of the cause > of that > viscosity level. For example, when I was taking Amoxicillin, my INR shot up > to > 3.6 according to the Protime test. The test, of course, didn't tell me what > > caused the high level but simply measured the results. My doctor and I > figured > out the cause. > Actually the pro time measures the effect Coumadin is having on the Vitamin K dependent factors in the coagulation system. Since these factors are necessary in the normal course of clotting, Coumadin " thins blood " by making less of these factors available. The viscosity of the blood is not affected by Coumadin per se. If another " blood thinning " substance does not affect theVitamin K dependent factors but affects other elements of the coagulation system (of which there are many) then the pro time won't pick it up. A good example is bleeding from low platelets or from an overabundance of heparin: the protime won't pick those up--other tests are needed. Amoxicillin has a similar effect on the Vitamin K dependent factors as Coumadin and often affects the INR in the way you describe. Brenta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 In a message dated 5/31/2003 2:11:03 PM Pacific Daylight Time, B6426@... writes: << Amoxicillin has a similar effect on the Vitamin K dependent factors as Coumadin and often affects the INR in the way you describe. >> Thanks, and Brenta for setting me straight on Coumadin. I guess I should do more research on this drug which I am putting into my body every day. in sinus and Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 Consider that warafin in rat poison causes the mice to leave the building in search of water and then they bleed to death and die. So, doubt coumadin contains a clot until the body can dissolve it. As I understand it, the principle is to thin some property in the blood that keeps it from readily clotting, thus why the PT tests are necessary to keep one from getting blood too thin that there's a bleeed out like the mice. (SNIP), but I have been told that coumadin/warfarin " contains " a clot until the body can desolve it. What ever that means. > Sounds strange but thats what I heard. > Guy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 Wrote: > Hi, , > Did a doctor tell you that the effect of natural thinners cannot be picked up > by a Protime test? I would think that the Protime test measures the actual > viscosity of the blood rather than the cause of that level of viscosity. On > that premise it seems that if the blood reaches a certain level of low > viscosity, it would be measured by the Protime test regardless of the cause of that > viscosity level. Hi , Protime test / INR is not a measure of blood viscosity. It's a shame we call warafain a blood thinner because it gives people an entirely false idea of how it operates - it does not thin the blood. I believe the protime test is a very specific test which doesn't give you the whole picture but it is very useful to monitor warfarin dosage. I'm sure there are many monographs out there which can explain the mechanism of action for warfarin and the INR test far better than I can, so I wont even try -- D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 In a message dated 5/31/2003 4:10:58 PM Central Daylight Time, B6426@... writes: > Actually the pro time measures the effect Coumadin is having on the > Vitamin > K dependent factors in the coagulation system. Since these factors are > necessary in the normal course of clotting, Coumadin " thins blood " by making > less of > these factors available. The viscosity of the blood is not affected by > Coumadin > per se This reminded me that my cardio also told me that coumadin did not effect blood viscosity. So now back to the rat poison effect that makes them bleed to death internally. Do rats have a pre-existing condition like ulcers or some other condition that requires constant coagulation? guy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 In a message dated 6/1/2003 8:27:45 AM Pacific Daylight Time, madisonn99@... writes: << As to my diet - I think I have done all the right things - eliminated all dairy (8 months now), avoided additives, stayed with natural foods and vitamins, but without any change. However, I would not discourage anyone else from trying - as proven it does work for some. >> Hi, , I would stay with the dairy elimination a bit longer since you have come this far because it may take varying amounts of time for different people. It took Angus eight months and me nine months to see reduction in afib after giving up dairy. The whole time element is unknown because I think so far Angus and I are the only ones who have given up dairy 100 percent AND seen improvement in afib. You and , another member who doesn't write often to the group, have given up dairy 100 percent but have not seen an effect on afib yet. However, it may take longer for you, or as you say it may not work at all. I agree with your philosophy. It's worth a try because I assume it hasn't hurt your health at all, and if it works, it certainly beats taking stronger drugs, ablation, or surgery, which I would do if I must but would rather avoid. Giving up dairy has helped my health in so many other ways that I believe I must have had some special sensitivity like an allergy to milk products. Perhaps that factor would explain why giving up dairy helps some but not others. However, I continually return to the fact that most people do not give up dairy 100 percent as you did, but merely cut down on it, and that may not work at all. in sinus in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 In a message dated 6/1/2003 10:41:07 AM Central Daylight Time, madisonn99@... writes: > Why did your cardio single out garlic? > He seems to believe that this is the only thing(of all the herbs, vitamins etc. we've been warned about) that will really get the INR out of whack! I'm taking his word for it, although I haven't tested it! Brenta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 Hi , answered already your question and I cannot improve on it. I know alcohol and certain meds will raise your INR - but many other natural blood thinners will not - even though they will affect clotting time. According to the information I received, there are a number of different (very technical) pathways that our blood uses to clot - Vit. K is only one of them. As to my diet - I think I have done all the right things - eliminated all dairy (8 months now), avoided additives, stayed with natural foods and vitamins, but without any change. However, I would not discourage anyone else from trying - as proven it does work for some. / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 Hi Brenta, If given a choice, I would certainly prefer vitamins. On the other hand I would like the assurance my clotting time is in the proper range. Many of the natural thinners, such as garlic and Vit. E are also highly recommended for heart health and I really want them to be part of my diet. Why did your cardio single out garlic? / The only thing my cardio says NOT to take while on Coumadin is garlic. I don't think we know how safe these natural things are for the very reasons you mention. Are you having side effects with your Coumadin and for this reason are searching for alternatives? > Brenta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 To all who beleive in the give up dairy theory it is all a wisetale.Many of us who gave it up,or never even consumed dairy have AF.I consume two glasses a day if milk and actually find my AF has improved.This theory goes alomg the with the ones that if you stand on your left foot on Tuesday afternoon at 3:00 p.m,after eating an apple,and if your birthday falls on a leap year,your AF will be cured.Its not that simple folks.Milk or dairy as I have discussed with many nutrionists,Dr's,and homiopaths,find this theory out in left field.Sorry for the negative feedback,but too many people like myself fall prey to these out of space theories,and others and find our diet poor in nutrition,which creates other health problems. ie - In AFIBsupport , Starfi6314@a... wrote: > In a message dated 6/1/2003 8:27:45 AM Pacific Daylight Time, > madisonn99@A... writes: > > << As to my diet - I think I have done all the right things - eliminated > all dairy (8 months now), avoided additives, stayed with natural > foods and vitamins, but without any change. However, I would not > discourage anyone else from trying - as proven it does work for some. > >> > Hi, , > I would stay with the dairy elimination a bit longer since you have come this > far because it may take varying amounts of time for different people. It > took Angus eight months and me nine months to see reduction in afib after giving > up dairy. The whole time element is unknown because I think so far Angus and > I are the only ones who have given up dairy 100 percent AND seen improvement > in afib. You and , another member who doesn't write often to the group, > have given up dairy 100 percent but have not seen an effect on afib yet. > However, it may take longer for you, or as you say it may not work at all. I agree > with your philosophy. It's worth a try because I assume it hasn't hurt your > health at all, and if it works, it certainly beats taking stronger drugs, > ablation, or surgery, which I would do if I must but would rather avoid. Giving up > dairy has helped my health in so many other ways that I believe I must have > had some special sensitivity like an allergy to milk products. Perhaps that > factor would explain why giving up dairy helps some but not others. However, I > continually return to the fact that most people do not give up dairy 100 > percent as you did, but merely cut down on it, and that may not work at all. > in sinus in Seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 ie: You may be 100% right about milk products and a-fib. Then again, I have found that many things Doctors tell me don't always coincide with what my body tells me. I think if avoiding milk products helps some people, for whatever reason, great for them. By the way, I always heard you were supposed to stand on your right foot. Maybe thats why it never worked for me. Jim on rat poison in Florida. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2003 Report Share Posted June 1, 2003 I consume two glasses a day if milk and actually find my AF has > improved. > > ie > > > So what you are saying is that you have noticed an effect of milk on your afib.Interesting.Were you off dairy for long? Thanks for the feedback,it's all good.Angus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 > To all who beleive in the give up dairy theory it is all a > wisetale.Many of us who gave it up,or never even consumed dairy have > AF.I consume two glasses a day if milk and actually find my AF has > improved.This theory goes alomg the with the ones that if you stand > on your left foot on Tuesday afternoon at 3:00 p.m,after eating an > apple,and if your birthday falls on a leap year,your AF will be > cured.Its not that simple folks.Milk or dairy as I have discussed > with many nutrionists,Dr's,and homiopaths,find this theory out in > left field.Sorry for the negative feedback,but too many people like > myself fall prey to these out of space theories,and others and find > our diet poor in nutrition,which creates other health problems. > > ie I'd be interested in hearing why you think drinking milk helps your AF ie - sounds a bit like standing on you right foot and singing Yankee Doodle Dandy to me -- D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Hi ,good humour is always a welcome.Maybe your right changing feet and singing a different tune was the trick.My AF was worse when I cut out milk for 7 months and all dairy.Since drinking milk again,and going on the demand approach with Propafanone my AF has improved.I know its not the milk,but my point was weither or not I was on dairy products made no difference in my AF.The improvement came thru the change in drug usage.I also tried looking for any data or studies done with elimination of certain foods such as milk and dairy and could find nothing.If eliminating dairy was key a factor in eliminating AF it would be out there.Certain people maybe sensitive to dairy that have AF and might find some relief in giving it up all together,but not to actually be the root of their AF in the first place. Just my thoery!! Regards ie - In AFIBsupport , Driscoll <james@d...> wrote: > > > To all who beleive in the give up dairy theory it is all a > > wisetale.Many of us who gave it up,or never even consumed dairy have > > AF.I consume two glasses a day if milk and actually find my AF has > > improved.This theory goes alomg the with the ones that if you stand > > on your left foot on Tuesday afternoon at 3:00 p.m,after eating an > > apple,and if your birthday falls on a leap year,your AF will be > > cured.Its not that simple folks.Milk or dairy as I have discussed > > with many nutrionists,Dr's,and homiopaths,find this theory out in > > left field.Sorry for the negative feedback,but too many people like > > myself fall prey to these out of space theories,and others and find > > our diet poor in nutrition,which creates other health problems. > > > > ie > I'd be interested in hearing why you think drinking milk helps your AF ie - > sounds a bit like standing on you right foot and singing Yankee Doodle Dandy to me > > -- > D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 In a message dated 6/2/2003 3:02:32 PM Central Daylight Time, fross@... writes: > Although rat poison is warfarin it also contains ground > glass, to make sure that the rats bleed to death. > > > Thanks for the info! It sounds like a plan to me! Brenta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 > Hi ,good humour is always a welcome.Maybe your right changing > feet and singing a different tune was the trick.My AF was worse when > I cut out milk for 7 months and all dairy.Since drinking milk > again,and going on the demand approach with Propafanone my AF has > improved.I know its not the milk,but my point was weither or not I > was on dairy products made no difference in my AF.The improvement > came thru the change in drug usage.I also tried looking for any data > or studies done with elimination of certain foods such as milk and > dairy and could find nothing.If eliminating dairy was key a factor > in eliminating AF it would be out there.Certain people maybe > sensitive to dairy that have AF and might find some relief in giving > it up all together,but not to actually be the root of their AF in > the first place. Just my thoery!! > > Regards > ie Hi ie, personally, I don't believe that eliminating dairy will turn out to be a key factor in curing AF but I don't agree that if it was, it would be already out there. The cure for AF, whatever it is, is not out there yet. This is a long way off from saying that eliminating dairy is guaranteed not to help anyone. I may be putting 2 and 2 together to make 5 here but has seen a lot of success by stopping dairy. I'm sure she'll correct me if I'm wrong but I think she is also still taking verapamil. So we can't say that the elimination of dairy ALONE has cured her AF. here's where I might be making 5 Verapamil is a calcium channel blocker and dairy if a fine source of calcium. Perhaps this combination is what has helped that verapamil alone would not fix? Angus too has reported success (Angus are you med free?) If you would like some further reading... in the dim and distant past Angus posted some links which you may want to browse (I hope the links are all still active) ..... Opiate receptors presynaptically inhibit transmission of excitatory pathways including acetylcholine, the catecholamines, serotonin, and substance P http://www.pharmcentral.com/endorphins.htm http://wwwsoc.nii.ac.jp/tjps/kyoto/jjp/TOC98-78(1)/98-78-093.html http://www.a2corporation.com/ http://www.commercial-companies.com/tob/Thesis.html ...... and Dr Lams site has some interesting things to say about milk http://www.lammd.com/A3R_brief_in_doc_format/lone_atrial_fib.cfm and I've just done a search for " human consumption " AND " dairy " at PubMed (http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?CMD=Search & DB=PubMed) enough reading there to keep you happy until the cows come home To be honest, having eliminated (not 100% but massive amounts) dairy for several months and seen no change (good or bad) I don't think it's going to help me. That's not to say it might not help others. In the past 5 years although I have done very many experiments I have been unable to affect my AF in any way. (this includes experiment with 7 different meds). Should I stop experimenting? It seems like I can't rely on the doctors to fix my problem so I'm left with very little choice. I hope we all find are own Yankee Doodle Dandy All the best. -- D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 >Message: 2 > Date: Sun, 1 Jun 2003 09:46:41 EDT > From: B6426@... >Subject: Re: Re: Coumadin / Blood thinners > >My understanding is that the dose in the poison that kills rats is a great >deal higher than any of us humans is supposed to get. If our dosage isn't >regulated properly I suppose we could suffer the same fate as the rats!!! >Brenta It is my understanding that there is one significent difference between rat poison and coumadin. Although rat poison is warfarin it also contains ground glass, to make sure that the rats bleed to death. > * * * * * * * * * * * * * * * * * * * * * * * Get your free @ecosse.net account http://www.ecosse.net Scotland's Free Internet Service Provider * * * * * * * * * * * * * * * * * * * * * * * Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 In a message dated 6/2/2003 10:02:16 AM Pacific Daylight Time, james@... writes: h << has seen a lot of success by stopping dairy. I'm sure she'll correct me if I'm wrong but I think she is also still taking verapamil. So we can't say that the elimination of dairy ALONE has cured her AF. here's where I might be making 5 Verapamil is a calcium channel blocker and dairy if a fine source of calcium. Perhaps this combination is what has helped that verapamil alone would not fix? >> , You are absolutely right, and I suspect that my E.P. may agree with your idea because he was adamant that I should not stop my medication even though I had been afib free for eight months the last time I saw him. He certainly didn't seem to believe that stopping dairy alone would be sufficient to justify stopping the meds. He didn't elaborate on reasons for continuing the medication, but he repeatedly said, " Let's not rock the boat. What you're doing is working, so why change it? " Yes, I am still taking 240 m.g. of Verapamil daily and probably will be for the foreseeable future. I also continue to practice many of the afib avoidance strategies which had become habit by the time I dropped dairy, such as avoiding other trigger foods like onions, acid, grease, sugar, caffeine, drinking cold water carefully, watching posture while eating, and on and on. I won't repeat them all here because neither these strategies nor the Verapamil were enough to prevent my afib before I added the component of stopping dairy. (Again, these are personal triggers for me, and this doesn't mean that everyone should avoid acidic foods, onions, etc.) I don't know if continuing these strategies is necessary now, but I am following my E.P.'s advice and trying not to rock the boat. I suspect that if I were to start drinking coffee or alcohol or even just a big cool glass of lemonade, I would be back on my old afib schedule, for example. I'm certainly not going to try to find out. I did find out this past week that my old enemy, stress, can certainly cause ectopic beats and runs of tachycardia which fortunately did not lead to afib as they certainly would have in the past before my dairy experiment. Just as meds affect different people differently, I'm sure that dairy elimination would have differing results, also, working for some but not for others. I think I mentioned before that my older brother in permanent afib tried dairy elimination when he saw the good results I experienced, but his outcome was a vitamin B12 deficiency which caused him considerable trouble. Dairy elimination undoubtedly will not work for everyone just as Dofetilide and Sotalol do not work for everyone, but it is certainly easier, less expensive, and less risky than some other afib treatments. Although the dairy avoidance strategy is not as entertaining as standing on one's right foot and singing " Yankee Doodle, " :-) if dairy elimination works, it's certainly worth the relatively innocuous pangs of deprivation. I consider myself to be very fortunate in being among the apparently small number who have stopped their afib by stopping dairy. Thanks again to Angus for showing me the way. :-) in sinus in Seattle :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 My AF was worse when > I cut out milk for 7 months and all dairy.Since drinking milk > again,and going on the demand approach with Propafanone my AF has > improved. > ie > In my case when I quit dairy the afib got worse for the first 3 months before it improved and my last episode was at 8 months,s afib was worse on the 6 and 7th month,She was in afib 50% of the time on those two months and by the 9th month shes been in mostly sinus. ie if being dairy free makes your afib worse then this is a good thing, it was the only clue I had to go on.Angus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 > > Angus too has reported success (Angus are you med free?) I have never used meds for afib.After 7 years of worsning SVT and then 10 years afib I never managed a diagnoses of anything .I live remote and didnt like going anywhere in an episode.The one time I did make it to A & E the docs treated it like it was a one off and told me to not to do it again like it was my fault, they didnt lissen to a word I said.Its hard to write about without using swear words.Angus Quote Link to comment Share on other sites More sharing options...
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