Re: Frustrated - Kristi!!

[Guest guest]

Kristi

Firstly there is really very little you can do about your family. I am sorry to

be the bearer of bad news, but you may as well know the truth now. I have

always... and still do recieve a lot of flack (abuse) from most of my family

members. (8 children and Mum and Dad) They have for the longest time said that

I am a faker.... a malingerer.... a hypocondriac.... and they still do. Even

though I have sufffered multiple dislocations, live in a permanent elbow and

knee brace, and collapse in the heat.

The thing is.... I don't live for THEM. I LIVE for ME!!! <Smile> If you can

find a way to ignore their comments you will find life will be a lot easier.

There is NOTHING you can do to change the way they will think. This will

remain, until THEY choose, to change the way they think. You can do what I did,

and even put all the information in front of them, and they will still think the

way they do. Let them!! You are powerless to change that.... what you can

empower yourself with though... is knowing that You have educated yourself and

know what your body is doing and going through. You are the one who has to live

with this........ Not THEM!!! So empower yourself and leave them behind. Smile

and Nod and don't make eye contact with them. The more you get upset about it

the more you empower them!!! <sad smile>

You know what you have... where you stand....... and you are educating

yourself.... thats all that matters.

I don't understand why your doctor would be upset with you because you became

pregnant. It is not for him to judge you. And for this reason alone.... I

think I would be seeking out another doctor. <weak smile> Some people with EDS

find that having a baby can be the best thing they ever did. Sure there is a

chance that you will pass it on..... but there is a chance of being hit by a bus

too. If we all lived our lives around the What if's ... We would never

accomplish anything. I think that doctor is being unreasonable..... no matter

what the reasons for being upset with you.

And in regards to venting. Part of the healing process is to be able to let out

negative energy in a constructive way. And that is what you did. <Smile> So ...

Power to you lady.

Hugz to you................ Helen

You said:

I am so fed up with my family thinking that I am lazy and crazy and

that nothing is wrong with me. I swear that if I hear " you'll just

have to get over it " one more time I will crack. OR the good old " Are

you just seeing that doctor to get insurance money? " or " You don't

even know that you have EDS. You just came up with that from the

internet. " I never even heard of EDS before I was diagnosed. It

definitely took me a while to find my way here! Not to mention that I

have had it confirmed by a geneticist!....... I am pregnant I am so

miserable. My doctor was angry at me for being pregnant and told me

that he won't see me until after the baby is born - meanwhile I am in

pain and having to deal with these people. I am sick of all of this

to say the least.

Sorry to be so negative, but I am just having a bad day and really

needed to vent.

[Guest guest]

Thank you Helen!

I really wish I could find a doctor around here that knew something about EDS

without having to travel forever. I am in so much pain and I - well you get the

picture. It is very frustrating and then to have people being unsupportive on

top of that- well it is just intolerable. I don't really intend on going back to

that doctor as it became apparent during my last visit that he thinks that EDS

and fibro are the same. I don't have fibro- thank God! But I need someone who

knows what the heck they are talking about and he is not the type to be

educated- plus if I was going to educate someone it wouldn't be someone that I

had to endure a 8 hour round trip to go and see.

Kristi

Re: Frustrated - Kristi!!

Kristi

Firstly there is really very little you can do about your family. I am sorry

to be the bearer of bad news, but you may as well know the truth now. I have

always... and still do recieve a lot of flack (abuse) from most of my family

members. (8 children and Mum and Dad) They have for the longest time said that

I am a faker.... a malingerer.... a hypocondriac.... and they still do. Even

though I have sufffered multiple dislocations, live in a permanent elbow and

knee brace, and collapse in the heat.

The thing is.... I don't live for THEM. I LIVE for ME!!! <Smile> If you can

find a way to ignore their comments you will find life will be a lot easier.

There is NOTHING you can do to change the way they will think. This will

remain, until THEY choose, to change the way they think. You can do what I did,

and even put all the information in front of them, and they will still think the

way they do. Let them!! You are powerless to change that.... what you can

empower yourself with though... is knowing that You have educated yourself and

know what your body is doing and going through. You are the one who has to live

with this........ Not THEM!!! So empower yourself and leave them behind. Smile

and Nod and don't make eye contact with them. The more you get upset about it

the more you empower them!!! <sad smile>

You know what you have... where you stand....... and you are educating

yourself.... thats all that matters.

I don't understand why your doctor would be upset with you because you became

pregnant. It is not for him to judge you. And for this reason alone.... I

think I would be seeking out another doctor. <weak smile> Some people with EDS

find that having a baby can be the best thing they ever did. Sure there is a

chance that you will pass it on..... but there is a chance of being hit by a bus

too. If we all lived our lives around the What if's ... We would never

accomplish anything. I think that doctor is being unreasonable..... no matter

what the reasons for being upset with you.

And in regards to venting. Part of the healing process is to be able to let

out negative energy in a constructive way. And that is what you did. <Smile> So

.... Power to you lady.

Hugz to you................ Helen

You said:

I am so fed up with my family thinking that I am lazy and crazy and

that nothing is wrong with me. I swear that if I hear " you'll just

have to get over it " one more time I will crack. OR the good old " Are

you just seeing that doctor to get insurance money? " or " You don't

even know that you have EDS. You just came up with that from the

internet. " I never even heard of EDS before I was diagnosed. It

definitely took me a while to find my way here! Not to mention that I

have had it confirmed by a geneticist!....... I am pregnant I am so

miserable. My doctor was angry at me for being pregnant and told me

that he won't see me until after the baby is born - meanwhile I am in

pain and having to deal with these people. I am sick of all of this

to say the least.

Sorry to be so negative, but I am just having a bad day and really

needed to vent.