Re: The List Split Question

December 28, 2001

Well said Mark! Often times our emails are peppered with medical as well as

personal and spiritual messages, as it is hard to separate all of this, as

EDS impacts so tremendously, and impacts other avenues of our lives. When I

write in and need prayers because my sister has brain cancer, what I really

am saying is how am I going to take care of her, with all my health issues?

How am I supposed to keep up with the physical demands that will be required

of me? And believe it or not I am able to find support from others on this

list who have gone through similar experiences, and somehow muddle through.

Love, Sue G.

December 29, 2001

ok ok ok I see that everyone here wants it to be the same. I only made the

suggestion out of practicality and the fact that I like to ba helpful.

Consider the matter closed, Please.

Love Jocelyn

December 29, 2001

No problem Jocelyn! I am sometimes too quick whipping through the emails, but I

hadn't seen your name before- if you have been here a long time please excuse

me! Where are you from and how long have you known you had EDS? Do you have any

children? Do they have it? Curiosity killed the cat

Love

Kristi

Re: The List Split Question

ok ok ok I see that everyone here wants it to be the same. I only made the

suggestion out of practicality and the fact that I like to ba helpful.

Consider the matter closed, Please.

Love Jocelyn

December 30, 2001

In a message dated 12/29/01 7:54:18 AM Pacific Standard Time,

AKHDDEVO@... writes:

> No problem Jocelyn! I am sometimes too quick whipping through the emails,

> but I hadn't seen your name before- if you have been here a long time

> please excuse me! Where are you from and how long have you known you had

> EDS? Do you have any children? Do they have it? Curiosity killed the cat

>

> Love

> Kristi

>

No I havent been here a long time. I just joined the group a couple of weeks

ago. Im AJ's daughter. I have Hypermobility type EDS. Ive only known for a

few years though, and it took a while to get used to. It was nice to have an

explanation of what was going on with my body. A relief really. I dont have

any kids. Thank god!! j.k. I love kids but Im not really ready for them

yet. Im only 20 and going to college. My majors range from Astronomy, Art,

to teaching, depending on if I feel analytical or artsy or helpful at any

givin time. Right now it is art. Too much math with astronomy. I have one

sister who has EDS and she is 17.

Do you have kids. What was it like growing up with EDS? How old are you?

Are you in school? working? Curiosity only makes this cat smarter!!!

hehehe

Well take care

Jocelyn

December 30, 2001

Hi Jocelyn!

I'm Kristi, I'm 26, married to 27, we have been married for 7 years. I did

work for Blue Cross Blue Shield of IL, but now I am on disability. we have 2

sons Hunter age 6, and Dakota age 4, and we are expecting our third child - I am

22 weeks pregnant right now. My mom has EDS as well, I *think* she is 50, I kind

of lose track and she definitely doesn't look her age. I am her only child. I

was diagnosed with EDS in February 2001, and my mom has never been formally

diagnosed although there is no doubt in my mind. I have always been extremely

hypermobile, but felt stiff at the same time- KWIM? I remember having to move my

joints around and crack and pop my neck and back as early as memories of waking

up in my playpen. So I can remember EDS all the way back to the age of two.

Great to meet you!