Re: TLC...Contortionists/ question

[Guest guest]

I watched this again last night with Rod. He had heard what I'd said about

it, and decided to watch too. The doctor made it sound like there isn't a

problem with lax joints.

So many of the things remind me of my sister and I doing these positions for

fun. I thought every one could them as both sides of the family are

hypermobile.

I wondered too if anyone had written to TLC -- The Learning Channel stating

the other side of collagen disorders with hypermobile joints, and some of

the ramifications.

A letter from one of the national organizations would perhaps interest

them enough to do a program on it. They have covered many other genetic

disorders. (I can dream, can't I?)

~~

Subject: Re: TLC...Contortionists/ question

(clip) So, we watched the program. Boy, did it

trigger memories of some of the things I could do in phy ed class! Yikes!

Has anyone written The Learning Channel to explain what a injustice to EDS

this show is? Shall we start a writing campaign to let them know about the

effects EDS has on our bodies?

[Guest guest]

Sadly, TLC did approach the national organizations before the show aired and

I have to assume that they didn't want that information to overshadow their

focus of the show.

Most irritating!!!!!

Jill

I wondered too if anyone had written to TLC -- The Learning Channel stating

the other side of collagen disorders with hypermobile joints, and some of

the ramifications.

A letter from one of the national organizations would perhaps interest

them enough to do a program on it. They have covered many other genetic

disorders. (I can dream, can't I?)