Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 In a message dated 12/30/01 8:35:20 AM Central Standard Time, v.waller@... writes: > This morning in bed I had some form of Seizure.....I was laid on my left > side and felt my body Jerk....I then had a more > violent Jerk and ended up on my back. > > I have no history of Seizures and don't feel that I have any after effects. > > Any advice is welcome. > > Happy New Year > Veena > > > Call your doctor ... NOW ... don't wait for the office to open. If you have a neurologist by chance that's the doc to call. If not call your primary. Seizures are nothing to mess with ... at all! Especially an adult having one for the first time. CALL ... NOW. Love ya ... Pk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 I wonder if anyone could help me. This morning in bed I had some form of Seizure.....I was laid on my left side and felt my body Jerk....I then had a more violent Jerk and ended up on my back. I have no history of Seizures and don't feel that I have any after effects. Any advice is welcome. Happy New Year Veena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Hi Veena, If you've never had this before, I would tend to think along the lines of a myoclonus rather than a true seizure. Often when we are in bed either waking up or going to sleep, we can have these jerks, some forms of this are more severe and happen with more regularity and are called restless leg syndrome. Myoclonus can be a normal thing for some people, occurring irregularly or seldom at all or it can be a marker for a more serious disorder but typically this myoclonus happening with regularity. A true seizure would leave you unaware of what had happened to you and in a mental state of confusion, so there is a difference between a epileptic seizure and myoclonus. Myoclonus happens in epilepsy, as it is the description of muscle movement, but the person having the seizure is not usually as aware of their body movements at the time. To learn more, go here: http://www.myoclonus.com/ Do talk to your doctor about this, if this is a regular occurrence, there is treatment available for it. I hope this helps! Jill I wonder if anyone could help me. This morning in bed I had some form of Seizure.....I was laid on my left side and felt my body Jerk....I then had a more violent Jerk and ended up on my back. I have no history of Seizures and don't feel that I have any after effects. Any advice is welcome. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 Thanks Jill - and I've spoke to an out of hours GP and he thinks I may have a Electrolyte Imbalance which is common in 's Disease. I've to have bloods taken tomorrow and Blood pressure monitored....it was ok on friday. It's worrying all this 's stuff...they think my high-dose steroid Inhaler is the cause of it. I shall mention the Myoclonic Jerks to my doctor. Happy New Year Take care Veena Re: ? Seizures > Hi Veena, > > If you've never had this before, I would tend to think along the lines of a > myoclonus rather than a true seizure. Often when we are in bed either > waking up or going to sleep, we can have these jerks, some forms of this are > more severe and happen with more regularity and are called restless leg > syndrome. Myoclonus can be a normal thing for some people, occurring > irregularly or seldom at all or it can be a marker for a more serious > disorder but typically this myoclonus happening with regularity. A true > seizure would leave you unaware of what had happened to you and in a mental > state of confusion, so there is a difference between a epileptic seizure and > myoclonus. Myoclonus happens in epilepsy, as it is the description of > muscle movement, but the person having the seizure is not usually as aware > of their body movements at the time. > > To learn more, go here: http://www.myoclonus.com/ > > Do talk to your doctor about this, if this is a regular occurrence, there is > treatment available for it. > > I hope this helps! > > Jill > > > > I wonder if anyone could help me. > > This morning in bed I had some form of Seizure.....I was laid on my left > side and felt my body Jerk....I then had a more > violent Jerk and ended up on my back. > > I have no history of Seizures and don't feel that I have any after effects. > > Any advice is welcome. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 <snip> >He thinks some bacteria became lodged in some channel -can't >remember exactly what he said-and caused the ?seizure. I have >had a chest infection for 5 weeks - as soon as I end a course of >antibiotics it comes back. I've had an x-ray today and am awaiting >lab report on sputum specimen...since I began the steroids for the >'s in August I've had very many infections - my immune >system is pretty low and I pick up everything going. Veena, how long was the antibiotics course? If you have done the eight weeks one and it still has come back, you may need IV antibiotics. I had to do this in May when the infection reappeared and was very keen to take over my body. In the end, I was so ill, I almost died. Not fun. Trust me, don't let it get that bad. I was in hospital for a week with that. Luckily I don't remember much about it. I must admit no knowledge of 's Disease, but if your body is worrying about that, a smart bug could get past the early warning system. With my RA, an auto immune disease, my body is so busy trying to attack itself, that leaves me more vulnerable to whatever else is going around. The treatment involve suppressing the immune system. Catch 22. <sigh> Speak to your GP. You may need to have a flu jab every year. They usually start doing them around the end of September. It is not a 'live vaccine' one, so it won't give you flu. If you are allergic to eggs, speak to your GP in advance so that they can order another type of flu jab where eggs are not used. They don't give these routinely for cost reasons. Apparently they are substantially more expensive than the egg based one. There is also a ten year vaccine for 31 (out of 33) types of pneumonia. Due to my asthma, as soon as something like that appears on the horizon, I am whipped into hospital. I'll take a sore arm any day if it means I do not have to go to hospital. If 's is affecting your immune system in any way, you are a higher risk for flu and pneumonia, so you will need to look into this as soon as possible. I don't know if you should have this year's flu jab or not. Another thing to ask your GP about. -- Fuller Owned and operated by fur kids Grace, Poppy and Flo Folding for the future with the Arthritis Warriors team. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Hi Thanks for your reply. I'm on my 5th course of antibiotics. I've had 4 x 5 day courses and 1 x 7 day course. I am seeing my GP tomorrow. With 's Disease the steroids boost you up.... after being so ill for a year I changed overnight with the meds.....I don't know when I am becoming ill until it gets worse and you have to double the steroids to cope with the stress on your adrenals. I too have Asthma and have a yearly Flu Jab....I had a Pneumonia Jab 4 years ago and got a Pneumonia 2 years ago.....My Endocrinologist wants me to have one every year but it causes side-effects if you have them less than every 3 years.....I'm due to have one now but with the infections I've not been able to. My Endo thinks my high-dose Inhaled steroids may have caused my 's....he is admitting me in the next couple of weeks to do some tests......Himself and a Chest Consultant are to see me together to assess my Meds and steroids...he is also starving me for 24 hours to monitor my blood sugar levels....I'm not relishing that. I'll have to have IV steroids as you need to take them after food. I'm due surgery on my knee in the next few weeks but I've got to have these tests first.......so it's a race against time. Hope to see you in May. Take care Veena Re: ? Seizures > <snip> > >He thinks some bacteria became lodged in some channel -can't > >remember exactly what he said-and caused the ?seizure. I have > >had a chest infection for 5 weeks - as soon as I end a course of > >antibiotics it comes back. I've had an x-ray today and am awaiting > >lab report on sputum specimen...since I began the steroids for the > >'s in August I've had very many infections - my immune > >system is pretty low and I pick up everything going. > > Veena, how long was the antibiotics course? If you have done the eight > weeks one and it still has come back, you may need IV antibiotics. I had > to do this in May when the infection reappeared and was very keen to > take over my body. In the end, I was so ill, I almost died. Not fun. > Trust me, don't let it get that bad. I was in hospital for a week with > that. Luckily I don't remember much about it. > > I must admit no knowledge of 's Disease, but if your body is > worrying about that, a smart bug could get past the early warning > system. With my RA, an auto immune disease, my body is so busy trying to > attack itself, that leaves me more vulnerable to whatever else is going > around. The treatment involve suppressing the immune system. Catch 22. > <sigh> > > Speak to your GP. You may need to have a flu jab every year. They > usually start doing them around the end of September. It is not a 'live > vaccine' one, so it won't give you flu. If you are allergic to eggs, > speak to your GP in advance so that they can order another type of flu > jab where eggs are not used. They don't give these routinely for cost > reasons. Apparently they are substantially more expensive than the egg > based one. There is also a ten year vaccine for 31 (out of 33) types of > pneumonia. Due to my asthma, as soon as something like that appears on > the horizon, I am whipped into hospital. I'll take a sore arm any day if > it means I do not have to go to hospital. If 's is affecting your > immune system in any way, you are a higher risk for flu and pneumonia, > so you will need to look into this as soon as possible. I don't know if > you should have this year's flu jab or not. Another thing to ask your GP > about. > -- > Fuller > Owned and operated by fur kids Grace, Poppy and Flo > Folding for the future with the Arthritis Warriors team. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 In a message dated 1/3/02 7:57:30 PM Central Standard Time, bheint@... writes: > > What type of steriods were you on that were inhaled? is on Flovent > and has been for 5 years for her asthma. I've been put on a combo of 2 > steroids in one inhaler to get rid of my bronchitis. I just found out > recently that the inhaled Flovent can cause stunting of growth. Most of > 's friends are taller than their mom's but is still shorter > than me. Anyone know if I should be worried? She's 13 years old and 4 months > and is about 5' 2 " tall where I'm 5' 5 1/4 " tall (call me the shrinking > woman - I've lost 1/2 " over time) > > Bonnie > > > OK, these are the growth charts that the CDC has. The first link growth charts 2 is the listing of all the charts. The second one is the one you specifically need to check your daughters height. <A HREF= " http://www.cdc.gov/nchs/about/major/nhanes/growthcharts/charts.htm#Set 2 " >growth charts2</A> <A HREF= " http://www.cdc.gov/nchs/about/major/nhanes/growthcharts/set2/chart%2002.PD\ F " > http://www.cdc.gov/nchs/about/major/nhanes/growthcharts/set2/chart 02.PDF</A> had a growth delay because of steroid cream. Any steroid can stunt growth, inhaled, cream, lotion, oral or injected. caught his growth up as soon as he lowered the dose of his steroid. So ... it's a judgement call. Which is worse ...the growth pattern, or the asthma. Also, in some cases they choose to keep the steroid while giving growth hormone. Pk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Re: ? Seizures > My Endo thinks my high-dose Inhaled steroids may have caused > my 's.... What type of steriods were you on that were inhaled? is on Flovent and has been for 5 years for her asthma. I've been put on a combo of 2 steroids in one inhaler to get rid of my bronchitis. I just found out recently that the inhaled Flovent can cause stunting of growth. Most of 's friends are taller than their mom's but is still shorter than me. Anyone know if I should be worried? She's 13 years old and 4 months and is about 5' 2 " tall where I'm 5' 5 1/4 " tall (call me the shrinking woman - I've lost 1/2 " over time) Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Hi Bonnie, I didn't clear 4ft 6inches until after I turned 14. Josh has been on puffers with steroids and prednisone several times a year since he was 3 months old. In the last 12 months has grown 7.5 inches. I have often asked the docs about the steroids but have been reminded that even if he is an inch or two shorter it is much better that he is still breathing. Give a hug for me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Hi Bonnie I am taking Pulmicort (Budesonide). I was diagnosed as having Asthma in 1994......two weeks after returning from a holiday to Australia. Over the years I have needed to increase the dosage....I ended up taking 1600 mcg a day........I had been on this dose for two years getting repeat after repeat prescription.....I was never warned by my GP's that such a high dose may infact cause a life-threatening disease....as you have probably gathered I am very angry about this. I managed to reduce to 800 mcg daily but my Asthma has increased. My GP added Seravent (Salmetarol.)..this is a Green Inhaler. It helped a little then I got a chest Infection and now I'm having breathing difficulties again. I have seen my GP this morning and I have to double-up on the Seravent. I am due to be admitted soon to have all my meds assessed and also I am having a chest consultant together with my Endo to see me and assess my Asthma and steroid meds. With regards to growth I'm not sure. I am 5' but was 5' 1/2 " ...I don't know if I lost 1/2 " due to the Inhalers or a mild spinal curvature. Take care Veena Re: ? Seizures > > > > My Endo thinks my high-dose Inhaled steroids may have caused > > my 's.... > > What type of steriods were you on that were inhaled? is on Flovent > and has been for 5 years for her asthma. I've been put on a combo of 2 > steroids in one inhaler to get rid of my bronchitis. I just found out > recently that the inhaled Flovent can cause stunting of growth. Most of > 's friends are taller than their mom's but is still shorter > than me. Anyone know if I should be worried? She's 13 years old and 4 months > and is about 5' 2 " tall where I'm 5' 5 1/4 " tall (call me the shrinking > woman - I've lost 1/2 " over time) > > Bonnie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 I was on the asmacort inhaler as a child and it also has a side effect of stunting the growth. I am 5'5 and my mother and father are 5'11 and 6'0 respectively. I never grew an inch after age 13. Kristi Re: ? Seizures > > > > My Endo thinks my high-dose Inhaled steroids may have caused > > my 's.... > > What type of steriods were you on that were inhaled? is on Flovent > and has been for 5 years for her asthma. I've been put on a combo of 2 > steroids in one inhaler to get rid of my bronchitis. I just found out > recently that the inhaled Flovent can cause stunting of growth. Most of > 's friends are taller than their mom's but is still shorter > than me. Anyone know if I should be worried? She's 13 years old and 4 months > and is about 5' 2 " tall where I'm 5' 5 1/4 " tall (call me the shrinking > woman - I've lost 1/2 " over time) > > Bonnie > > > > Quote Link to comment Share on other sites More sharing options...
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