Re: How Did you all handle the waiting??????? Or did you have 2 surgeries

[Guest guest]

Hi ,

YES, you should be here. While I didn't have your particular experience (my

frozen section showed thyca so I had a TT from the get-go) many on the list have

had 2 surgeries or more, so I know you will get some great input. I just wrote

to say stick around. You definitely belong here. It's an exclusive club that

none of us really wanted to join, but I'm so glad I found this group and you

will be as well. The waiting is hard; perhaps the most difficult part, and I

hear your frustration. In the meantime, get as much education as you can so you

are " armed " for whatever comes next. Ask any question(s) that come(s) to mind.

Best wishes,

on OH

[Guest guest]

Hi ,

I ended up having 2 surgeries, about 6 weeks apart. Originally, I had

a FNA which was inconclusive and ruled the largest nodule a

follicular neoplasm. I had partial thyroidectomy to remove that, the

frozen section in the OR came back benign, as did the followup

pathology as week later. A MONTH later, the surgeon called me to say

they had received a followup pathology report that indicated the

original benign diagnosis on the largest nodule was in fact

follicular/hurthle thyca and they found 2 very small papillary

nodules. According to this list, many, many people have the frozen

section indicate benign and then later have the subsequent pathology

come back malignant. There is a post about that specifically, maybe

our friend Nick can re-post that. Good luck to you, if you do indeed

have 2 surgeries, my 2nd one was even easier than the first, which

was pretty easy anyway.

- Rochester, NY

pt 05/01, tt 06/01

RAI 08/01, 02/02 150 mci

pap/foll/hurthle thyca

> Hi I have posted here a couple of times though I have read most of

> your posts. I was not sure if I should post here at first as I do

not

> have a definitive diagnosis yet. But then I thought what the heck.

>

> I had a partial thyroidectomy for the right side on Jan 21st 2002!

I

> had a huge alien nodule called ned. Was told it was not cancerous

but

> since it was pressing on esphogus I finally had it removed. First

> pathology report said inconclusive cells. Now it has been sent off

to

> a specialist in Toronto. Lucky me my Surgeon is on holidays so

guess

> what. I have to wait for the results. UNVELIEVABLE! I know that I

> still can get a positive result. But the waiting is sure hard. I am

a

> little worried as I had multiple nodules. The large one Ned on the

> right side and two smaller on the left that they did not touch. Dr

> said that if still a little doubt they will do the rest of the

> surgery due to the other nodules. A. Why tell a person they are

fine

> until they know?!! It sets a person up for false hope. B. why did

> they not just do it all at the same time?!! Frustrating .

>

> Have any of you had to have two surgeries

>

> I am so glad that I found you all. I find you freindly and

informative

>

> Thanks

>

>

[Guest guest]

I also would be interested in the previous posting that covers the frozen

section being benign and then subsequent reports being malignant. I would

appreciate if Nick would repost it too.

Cindi

Re: How Did you all handle the waiting??????? Or did you

have 2 surgeries

Hi ,

I ended up having 2 surgeries, about 6 weeks apart. Originally, I had

a FNA which was inconclusive and ruled the largest nodule a

follicular neoplasm. I had partial thyroidectomy to remove that, the

frozen section in the OR came back benign, as did the followup

pathology as week later. A MONTH later, the surgeon called me to say

they had received a followup pathology report that indicated the

original benign diagnosis on the largest nodule was in fact

follicular/hurthle thyca and they found 2 very small papillary

nodules. According to this list, many, many people have the frozen

section indicate benign and then later have the subsequent pathology

come back malignant. There is a post about that specifically, maybe

our friend Nick can re-post that. Good luck to you, if you do indeed

have 2 surgeries, my 2nd one was even easier than the first, which

was pretty easy anyway.

- Rochester, NY

pt 05/01, tt 06/01

RAI 08/01, 02/02 150 mci

pap/foll/hurthle thyca

> Hi I have posted here a couple of times though I have read most of

> your posts. I was not sure if I should post here at first as I do

not

> have a definitive diagnosis yet. But then I thought what the heck.

>

> I had a partial thyroidectomy for the right side on Jan 21st 2002!

I

> had a huge alien nodule called ned. Was told it was not cancerous

but

> since it was pressing on esphogus I finally had it removed. First

> pathology report said inconclusive cells. Now it has been sent off

to

> a specialist in Toronto. Lucky me my Surgeon is on holidays so

guess

> what. I have to wait for the results. UNVELIEVABLE! I know that I

> still can get a positive result. But the waiting is sure hard. I am

a

> little worried as I had multiple nodules. The large one Ned on the

> right side and two smaller on the left that they did not touch. Dr

> said that if still a little doubt they will do the rest of the

> surgery due to the other nodules. A. Why tell a person they are

fine

> until they know?!! It sets a person up for false hope. B. why did

> they not just do it all at the same time?!! Frustrating .

>

> Have any of you had to have two surgeries

>

> I am so glad that I found you all. I find you freindly and

informative

>

> Thanks

>

>

[Guest guest]

-

Many people on this list have had two surgeries, with, of course, different

opinions of the experience.

Why do you have to wait for the results while your surgeon is on holiday?

Surely the results have been received in his/her office; if they won't release

a copy directly to you, surely they will

send a copy to your general practitioner. Personally, there's no way I would

wait for a diagnosis if I knew that the answer is sitting on somebody's desk.

- too

kvanderyt wrote:

> Hi I have posted here a couple of times though I have read most of

> your posts. I was not sure if I should post here at first as I do not

> have a definitive diagnosis yet. But then I thought what the heck.

>

> I had a partial thyroidectomy for the right side on Jan 21st 2002! I

> had a huge alien nodule called ned. Was told it was not cancerous but

> since it was pressing on esphogus I finally had it removed. First

> pathology report said inconclusive cells. Now it has been sent off to

> a specialist in Toronto. Lucky me my Surgeon is on holidays so guess

> what. I have to wait for the results. UNVELIEVABLE! I know that I

> still can get a positive result. But the waiting is sure hard. I am a

> little worried as I had multiple nodules. The large one Ned on the

> right side and two smaller on the left that they did not touch. Dr

> said that if still a little doubt they will do the rest of the

> surgery due to the other nodules. A. Why tell a person they are fine

> until they know?!! It sets a person up for false hope. B. why did

> they not just do it all at the same time?!! Frustrating .

>

> Have any of you had to have two surgeries

>

> I am so glad that I found you all. I find you freindly and informative

>

> Thanks

>

>

[Guest guest]

--

WOW thanks for responding. I was so shocked that anything was even

inconclusive that the waiting is a killer! But then everyone here

knows that! I should here soon I would think. 1 to 3 weeks, this

will be week 2 coming up. Though DRS office and staff are closed for

vacation. SO more like next week. I see my endocrinologist on Tuesday

so maybe he got a copy of the results.

I will let you all know

Thanks for your support.

- In Thyca@y..., Cindi <cgroetsch@p...> wrote:

> I also would be interested in the previous posting that covers the

frozen

> section being benign and then subsequent reports being malignant.

I would

> appreciate if Nick would repost it too.

>

> Cindi

> Re: How Did you all handle the waiting??????? Or

did you

> have 2 surgeries

>

>

> Hi ,

> I ended up having 2 surgeries, about 6 weeks apart. Originally, I

had

> a FNA which was inconclusive and ruled the largest nodule a

> follicular neoplasm. I had partial thyroidectomy to remove that,

the

> frozen section in the OR came back benign, as did the followup

> pathology as week later. A MONTH later, the surgeon called me to

say

> they had received a followup pathology report that indicated the

> original benign diagnosis on the largest nodule was in fact

> follicular/hurthle thyca and they found 2 very small papillary

> nodules. According to this list, many, many people have the frozen

> section indicate benign and then later have the subsequent

pathology

> come back malignant. There is a post about that specifically,

maybe

> our friend Nick can re-post that. Good luck to you, if you do

indeed

> have 2 surgeries, my 2nd one was even easier than the first, which

> was pretty easy anyway.

>

> - Rochester, NY

> pt 05/01, tt 06/01

> RAI 08/01, 02/02 150 mci

> pap/foll/hurthle thyca

>

>

>

> > Hi I have posted here a couple of times though I have read most

of

> > your posts. I was not sure if I should post here at first as I

do

> not

> > have a definitive diagnosis yet. But then I thought what the

heck.

> >

> > I had a partial thyroidectomy for the right side on Jan 21st

2002!

> I

> > had a huge alien nodule called ned. Was told it was not

cancerous

> but

> > since it was pressing on esphogus I finally had it removed.

First

> > pathology report said inconclusive cells. Now it has been sent

off

> to

> > a specialist in Toronto. Lucky me my Surgeon is on holidays so

> guess

> > what. I have to wait for the results. UNVELIEVABLE! I know that

I

> > still can get a positive result. But the waiting is sure hard.

I am

> a

> > little worried as I had multiple nodules. The large one Ned on

the

> > right side and two smaller on the left that they did not touch.

Dr

> > said that if still a little doubt they will do the rest of the

> > surgery due to the other nodules. A. Why tell a person they are

> fine

> > until they know?!! It sets a person up for false hope. B. why

did

> > they not just do it all at the same time?!! Frustrating .

> >

> > Have any of you had to have two surgeries

> >

> > I am so glad that I found you all. I find you freindly and

> informative

> >

> > Thanks

> >

> >

>

>

>

[Guest guest]

Hi....

My situation is a bit different than yours but I had two surgeries. My initial

surgery was to remove the left lobe which contained a " suspicious " follicular

2.5cm nodule. The frozen section was read as bengin but final pathology

determined the nodule to be a follicular carcinoma. During the final pathology

another .9 cm papillary nodule was identified, also. I was readmitted to the

hosptial 2 1/2 weeks later to remove the remaining right lobe.

The waiting is extremely hard. Good luck.... let us know how things turn out.

Christy, 42, Las Vegas

2.5 cm Follicular and .9 cm Papillary

2/26/01 LL (Frozen Section thought to be benign)

3/10/01 TT after a positive final pathology

Hypoparathyroidism (.5 Rocaltrol/1500 mg calcium), PTH 0

3/28/01 148 mCi RAI (w/o LID), .250 Synthroid, 0 Tg

---------------------------------

[Guest guest]

Thanks Christy for responding. WOW two sugeries so close together. I

bet you are glad that it is all behind you. Still waiting for my

results. I will let you know what they say

---

In Thyca@y..., Christy Wagner <thycamail@y...> wrote:

>

> Hi....

>

> My situation is a bit different than yours but I had two

surgeries. My initial surgery was to remove the left lobe which

contained a " suspicious " follicular 2.5cm nodule. The frozen section

was read as bengin but final pathology determined the nodule to be a

follicular carcinoma. During the final pathology another .9 cm

papillary nodule was identified, also. I was readmitted to the

hosptial 2 1/2 weeks later to remove the remaining right lobe.

>

> The waiting is extremely hard. Good luck.... let us know how

things turn out.

>

>

> Christy, 42, Las Vegas

>

> 2.5 cm Follicular and .9 cm Papillary

> 2/26/01 LL (Frozen Section thought to be benign)

> 3/10/01 TT after a positive final pathology

> Hypoparathyroidism (.5 Rocaltrol/1500 mg calcium), PTH 0

> 3/28/01 148 mCi RAI (w/o LID), .250 Synthroid, 0 Tg

>

>

> ---------------------------------

>

[Guest guest]

Cindi,

I had my original surgery for a " nodule " on my thyroid in 1981. The

result of the frozen section was that the nodule was benign, so all

that the surgeon did was remove half of my thyroid and some

lymph glands. Guess what! Further histological studies revealed

pap ca, so I was put on suppressive therapy.

20 years later I discovered a lump in my neck--decided just to have

it removed rather than dink around with FNA. Again frozen section

came back negative. AGAIN histology revealed pap ca!. So back

into surgery for the third time--13days after the second time. I

asked the surgeon to install a zipper!

The good news: the surgeries are easy and recovery is quick--at

least in my case!

I've just had my RAI and my first hypo experience. It really wasn't

too bad for me---so hang in there!

c

[Guest guest]

Wow you sure have gone through a lot. I am still waiting the path

report. I saw my endocrinologist today for the first time since my

surgery. He is pleased with the scar. I had blood tests done. He

thinks I am now slightly hypo as I was slightly hyper before or my

nodule was!

I wish you all the best

--

- In Thyca@y..., " Colly Tettelbach " <ctettelb@h...> wrote:

> Cindi,

>

> I had my original surgery for a " nodule " on my thyroid in 1981.

The

> result of the frozen section was that the nodule was benign, so all

> that the surgeon did was remove half of my thyroid and some

> lymph glands. Guess what! Further histological studies revealed

> pap ca, so I was put on suppressive therapy.

>

> 20 years later I discovered a lump in my neck--decided just to have

> it removed rather than dink around with FNA. Again frozen section

> came back negative. AGAIN histology revealed pap ca!. So back

> into surgery for the third time--13days after the second time. I

> asked the surgeon to install a zipper!

>

> The good news: the surgeries are easy and recovery is quick--at

> least in my case!

>

> I've just had my RAI and my first hypo experience. It really

wasn't

> too bad for me---so hang in there!

>

> c

[Guest guest]

I'm very glad to hear that you went 20 yrs with no problems but sad to hear that

now your going through it again. I'm just beginning my journey with this have

had thyroid and 1 lymph node remv. and am awaiting my first RAI treatment.

Feeling very depressed today, like the journey will never get any better than

this, don't want to go up and down for the rest of my life!!!!! RENEE

RE: Re: How Did you all handle the waiting??????? Or did you

have 2 surgeries

Cindi,

I had my original surgery for a " nodule " on my thyroid in 1981. The

result of the frozen section was that the nodule was benign, so all

that the surgeon did was remove half of my thyroid and some

lymph glands. Guess what! Further histological studies revealed

pap ca, so I was put on suppressive therapy.

20 years later I discovered a lump in my neck--decided just to have

it removed rather than dink around with FNA. Again frozen section

came back negative. AGAIN histology revealed pap ca!. So back

into surgery for the third time--13days after the second time. I

asked the surgeon to install a zipper!

The good news: the surgeries are easy and recovery is quick--at

least in my case!

I've just had my RAI and my first hypo experience. It really wasn't

too bad for me---so hang in there!

c