Re: Re: new subscriber - similar problems

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OH ok I was worried you were coming off a high dose.  Love and Prayers, Peggy  ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." just 10 days at 30mg, and I was without sleep the entire time and my bp was high for me. I'm sure thats correct! Re: Re: new subscriber - similar problemsHi Buddy, You are weaning off under your dr.s direction right??? Prednison will most defiantly makeyou so sick. You need to talk to your Dr about that for sure.I am not on any medication either. My tx Dr. told me to take NAC for the mucus if I get it. other that thatI am doin my thing. I would love to tell you what that is but today I'm not to sure...Ox D..LOLTake care of you and y'all remember you aren't dyeing today so go do something.Go make some good memories.Love and Prayers, Peggyipf 6/04 Florida"Worry looks around,Sorry looks back,Faith looks up."gigi How well I know what your experiencing as I was told that Ihave Pulmonary Fibrosis in August this year. Its great you have theMayo clinic to help you. Still its those quiet times when your alonethat our minds take a wild run and have means to send us either tothe "Why me?" or its ok, I'll be just fine! I am to begin pulmonaryrehab this morning and hope they can help as changes are occuringphysicially. I have decided a different way of treatment, to stop allmeds that have I adverse reactions to and also decided not to have alung bisopy because of what changes to benefit me would there be orwill it prolong my life. Anyway do take care, remain upbeat,positive, enjoy the small things of life! stay well as possible andbe safe! > > >> > > In March 2007 I was diagnosed with ILD. This was found througha> > > routine physical - no symptoms on my part and no knowledge byme> > that> > > this disease even existed. The doctors still have some question> on> > > the cause, most likely connective tissue related. I am now on> > > prednisone, slowly decreasing the dosage in an effort to get it> > under> > > control. Unfortunately, my last appointment indicated abnormal> > > diffusing capacity, and we are now trying a different med toturn> > > that around. I am participating in local pulmonary rehab, and> have> > > regular pulmonary visits at Mayo Clinic, as well as with mylocal> > > physician.> > >> > > So much of what I have read on the internet has been very> negative,> > > but now I've found a couple of chatrooms like this where I can> > > connect with people who have experience and optimism, and give> > > support. I'm starting to realize what to expect with this> disease,> > > and I don't like it. The doctors tell me that all cases are> > > different, and symptoms vary as well.> > >> > > Since acknowledgement of this disease is just starting to sinkin> > to> > > me, I'm really scared about the future. I know most of you have> > > probably experienced this too. There are just so many unknowns.> > > Most days I feel "normal" and my hopes are high that I canfight> > > this. I've been noticing slight changes in how I feelphysically,> > and> > > that makes me even more nervous. I think these physical changes> can> > > sometimes be intensified by my anxiety, but then maybe I'm just> > > hoping that is the case. I've been wondering why this has> happened> > to> > > me. Those days of depression are hard to fight. I don't want to> be> > on> > > oxygen, in a wheelchair, or not be on earth to enjoy my> > grandchildren> > > or be a companion for my husband and children. This is not howmy> > > life at 55 was suppose to be!> > >> > > Does anyone know of any natural or herbal help available? Iwant> to> > > pursue all avenues available and come to my next doctor's> > appointment> > > with more knowledge. At this point, I'm willing to tryanything.> I> > > started taking cellcept about a month ago. Prior to that, I was> on> > > aziathioprine but when my diffusing capacity went into the> abnormal> > > range, the Mayo dr. thought we should change that medication to> see> > > if a change would make a difference. I'm scheduled to revisit> there> > > in January, and may undergo a lung biopsy along with newtesting> to> > > see if there is a specific reason as to why this is happening.In> > the> > > meantime, I wait. And worry. I know my life won't be "normal"> > again.> > > I'm just hoping that you with experience can give me some hope.> > >> > > gigi> > >> >>__________________________________________________