Re: Hi New Here.......My Story so far

[Guest guest]

Fantastic, le.. let us know how the appointment goes, okay?

Topper ()

On Mon, 18 Oct 2004 20:09:26 -0000 "renz_grl" writes:

First of all I just want to thank you for all your information. I am making a list to take with me tomorrow. I actually weigh 202 and I am 5'5. I have NEVER weighed over 150 my whole life. 30lbs just came on recently with no changes in diet or exercise. If anything I exercise more because of it. Again thank you so very much,le

[Guest guest]

Oh My God!!!! You have been horribly abused. I can't immagine what

you have suffered. Your dose is nowhere near what you need. The

healthy human thyroid makes about 4-1/2 to 5 grains of Armour

equivelent or about 333 to 370 mcg of Synthroid equivelent a day.

This last number is iffy, because most people on Synthroid or

Lavoxyl need more than this to feel well, since it doesn't quite

work as well as Armour as far as the body being able to use it. The

average dose before the TSH test became god, when they set them by

how the patient felt, was 300 to 400 mcg a day and this is for

people who still had functioning thyroids that contributed to the

total.

You may also have a conversion problem with the levoxyl and are not

getting much use from it. You must be able to convert the T4 in it

to T3 and T2 to get any energy frm your thyroid dose. Many people

have trouble with this. The healthy thyroid makes 10 - 12% of T3 for

the tissues in the body that cannot do this conversion well. The

brain espcially needs lots of T3 and is not good at converting T4 to

T3. This is why people often get depression with all T4 meds like

levoxyl. Their brains are becoming starved for oxygen and energy.

So, I'll bet you 100 bucks your dose does not even approach what is

needed to totally replace your thyroid hormone. All your symptoms

sound like extreem hypothyroidism. If you want to be healthy again,

you absolutely must adjust your dose up to where you feel good. This

could be quite high. You probably now have adrenal fatigue or

adrenal hypofunction from being so long undermedicated. Circulating

thyroid hormone controls the size and output of the adrenals. When

thyroid is low a while the adrenals become quite weak and you cannot

handle stress or control inflammation. I think this is why you

become so ill after exercising and suffer so much pain. You must get

thyroid up to optimal levels for you in order for the adrenals to

recover their proper function. But, they take some time to do this,

up to 2 years.

Because of adrenal problems, it becomes very hard to make thyroid

dose raises. You become very sensitive to thyroid hormone dose

increases. So, dose raises often have to be in tiny increments and

often you will have to wait 4 weeks to a month before another raise

in order for the adrenals to aclimate to the new thyroid dose.

Anyway, I think it is essential you find a top doc and if you have

to travel a long way, do it. You need a doctor who will get your

dose up to where you need it so you can regain your health and have

a life! Depression is a classic sign that thyroid replacement is too

low. The doctor who took you off everything must have been an evil

monster. How could anybody be so cruel? I just can't immagine it.

Go to http://thyroid.about.com/ and look through their top doc list.

Try to find one that prescribes Armour. They are more open minded.

Stay away from Endo's they are the worst on average of any type of

thyroid doctor.

You can also treat yourself and if you want to know how to do that,

you can email me or write to this group. For 83 years, before the

doctors became fixiated on the TSH test, thyroid doses were adjusted

up slowly untill the patient felt well. Today thyroid doses have

dropped to 1/3 of what they were before the TSH test came on the

scene around 1975. People lived long and healthy lives prior to the

TSH test. The first two thyroid patients who started their

treatments in the late 1800s lived to be 79 and 90 and were in good

health most of their lives.

Tish

[Guest guest]

Oh My God!!!! You have been horribly abused. I can't immagine what

you have suffered. Your dose is nowhere near what you need. The

healthy human thyroid makes about 4-1/2 to 5 grains of Armour

equivelent or about 333 to 370 mcg of Synthroid equivelent a day.

This last number is iffy, because most people on Synthroid or

Lavoxyl need more than this to feel well, since it doesn't quite

work as well as Armour as far as the body being able to use it. The

average dose before the TSH test became god, when they set them by

how the patient felt, was 300 to 400 mcg a day and this is for

people who still had functioning thyroids that contributed to the

total.

You may also have a conversion problem with the levoxyl and are not

getting much use from it. You must be able to convert the T4 in it

to T3 and T2 to get any energy frm your thyroid dose. Many people

have trouble with this. The healthy thyroid makes 10 - 12% of T3 for

the tissues in the body that cannot do this conversion well. The

brain espcially needs lots of T3 and is not good at converting T4 to

T3. This is why people often get depression with all T4 meds like

levoxyl. Their brains are becoming starved for oxygen and energy.

So, I'll bet you 100 bucks your dose does not even approach what is

needed to totally replace your thyroid hormone. All your symptoms

sound like extreem hypothyroidism. If you want to be healthy again,

you absolutely must adjust your dose up to where you feel good. This

could be quite high. You probably now have adrenal fatigue or

adrenal hypofunction from being so long undermedicated. Circulating

thyroid hormone controls the size and output of the adrenals. When

thyroid is low a while the adrenals become quite weak and you cannot

handle stress or control inflammation. I think this is why you

become so ill after exercising and suffer so much pain. You must get

thyroid up to optimal levels for you in order for the adrenals to

recover their proper function. But, they take some time to do this,

up to 2 years.

Because of adrenal problems, it becomes very hard to make thyroid

dose raises. You become very sensitive to thyroid hormone dose

increases. So, dose raises often have to be in tiny increments and

often you will have to wait 4 weeks to a month before another raise

in order for the adrenals to aclimate to the new thyroid dose.

Anyway, I think it is essential you find a top doc and if you have

to travel a long way, do it. You need a doctor who will get your

dose up to where you need it so you can regain your health and have

a life! Depression is a classic sign that thyroid replacement is too

low. The doctor who took you off everything must have been an evil

monster. How could anybody be so cruel? I just can't immagine it.

Go to http://thyroid.about.com/ and look through their top doc list.

Try to find one that prescribes Armour. They are more open minded.

Stay away from Endo's they are the worst on average of any type of

thyroid doctor.

You can also treat yourself and if you want to know how to do that,

you can email me or write to this group. For 83 years, before the

doctors became fixiated on the TSH test, thyroid doses were adjusted

up slowly untill the patient felt well. Today thyroid doses have

dropped to 1/3 of what they were before the TSH test came on the

scene around 1975. People lived long and healthy lives prior to the

TSH test. The first two thyroid patients who started their

treatments in the late 1800s lived to be 79 and 90 and were in good

health most of their lives.

Tish

[Guest guest]

Oh My God!!!! You have been horribly abused. I can't immagine what

you have suffered. Your dose is nowhere near what you need. The

healthy human thyroid makes about 4-1/2 to 5 grains of Armour

equivelent or about 333 to 370 mcg of Synthroid equivelent a day.

This last number is iffy, because most people on Synthroid or

Lavoxyl need more than this to feel well, since it doesn't quite

work as well as Armour as far as the body being able to use it. The

average dose before the TSH test became god, when they set them by

how the patient felt, was 300 to 400 mcg a day and this is for

people who still had functioning thyroids that contributed to the

total.

You may also have a conversion problem with the levoxyl and are not

getting much use from it. You must be able to convert the T4 in it

to T3 and T2 to get any energy frm your thyroid dose. Many people

have trouble with this. The healthy thyroid makes 10 - 12% of T3 for

the tissues in the body that cannot do this conversion well. The

brain espcially needs lots of T3 and is not good at converting T4 to

T3. This is why people often get depression with all T4 meds like

levoxyl. Their brains are becoming starved for oxygen and energy.

So, I'll bet you 100 bucks your dose does not even approach what is

needed to totally replace your thyroid hormone. All your symptoms

sound like extreem hypothyroidism. If you want to be healthy again,

you absolutely must adjust your dose up to where you feel good. This

could be quite high. You probably now have adrenal fatigue or

adrenal hypofunction from being so long undermedicated. Circulating

thyroid hormone controls the size and output of the adrenals. When

thyroid is low a while the adrenals become quite weak and you cannot

handle stress or control inflammation. I think this is why you

become so ill after exercising and suffer so much pain. You must get

thyroid up to optimal levels for you in order for the adrenals to

recover their proper function. But, they take some time to do this,

up to 2 years.

Because of adrenal problems, it becomes very hard to make thyroid

dose raises. You become very sensitive to thyroid hormone dose

increases. So, dose raises often have to be in tiny increments and

often you will have to wait 4 weeks to a month before another raise

in order for the adrenals to aclimate to the new thyroid dose.

Anyway, I think it is essential you find a top doc and if you have

to travel a long way, do it. You need a doctor who will get your

dose up to where you need it so you can regain your health and have

a life! Depression is a classic sign that thyroid replacement is too

low. The doctor who took you off everything must have been an evil

monster. How could anybody be so cruel? I just can't immagine it.

Go to http://thyroid.about.com/ and look through their top doc list.

Try to find one that prescribes Armour. They are more open minded.

Stay away from Endo's they are the worst on average of any type of

thyroid doctor.

You can also treat yourself and if you want to know how to do that,

you can email me or write to this group. For 83 years, before the

doctors became fixiated on the TSH test, thyroid doses were adjusted

up slowly untill the patient felt well. Today thyroid doses have

dropped to 1/3 of what they were before the TSH test came on the

scene around 1975. People lived long and healthy lives prior to the

TSH test. The first two thyroid patients who started their

treatments in the late 1800s lived to be 79 and 90 and were in good

health most of their lives.

Tish

[Guest guest]

Tish,

Thank you so so much. The info you gave me is priceless. I NEVER

knew any of this. Sometimes I just cry and cry because I can't

understand what is going on with my body. I am a whole different

person because of this. I once was fairly athletic and vibrant and

now I am tired (exhausted mostly), my once shiney long hair is

brittle and dry, my smooth complexion is changed, my whole body

hurts a majority of the time especially lower back and hips. The

nausea is incredible. I always try to eat good though because I need

energy I know this. I have to very active boys who need me and I

feel like I am failing them. I am too young to feel so damn old. God

has graced me with such a wonderful husband though. Without his love

and support I just don't think I could get through this. I have

never not worked in my life, I am very career oriented and loved my

job. Now I can't work because of the brain fog and dizziness. I am

not depressed I know that is not causing the symptoms, the symptoms

are causing me to be depressed if that makes any sense. I still

exercise everyday no matter how crappy I feel because I feel like I

am giving in to the disease if I don't. It usually makes me feel

even worse after but I pull myself up by bootstraps and suck it up.

I have to! I don't understand these Dr's I really don't. I haven't

seen and Endo in about 3yrs mainly just Internal Med docs. So I have

to hope that this Dr will help me. I want to go back to work and get

my life back, but I KNOW I can't right now.

Sorry for babbling. It feels so good though to talk to people that

understand.

God bless your heart!

>

> Oh My God!!!! You have been horribly abused. I can't immagine what

> you have suffered. Your dose is nowhere near what you need. The

> healthy human thyroid makes about 4-1/2 to 5 grains of Armour

> equivelent or about 333 to 370 mcg of Synthroid equivelent a day.

> This last number is iffy, because most people on Synthroid or

> Lavoxyl need more than this to feel well, since it doesn't quite

> work as well as Armour as far as the body being able to use it.

The

> average dose before the TSH test became god, when they set them by

> how the patient felt, was 300 to 400 mcg a day and this is for

> people who still had functioning thyroids that contributed to the

> total.

>

> You may also have a conversion problem with the levoxyl and are

not

> getting much use from it. You must be able to convert the T4 in it

> to T3 and T2 to get any energy frm your thyroid dose. Many people

> have trouble with this. The healthy thyroid makes 10 - 12% of T3

for

> the tissues in the body that cannot do this conversion well. The

> brain espcially needs lots of T3 and is not good at converting T4

to

> T3. This is why people often get depression with all T4 meds like

> levoxyl. Their brains are becoming starved for oxygen and energy.

>

> So, I'll bet you 100 bucks your dose does not even approach what

is

> needed to totally replace your thyroid hormone. All your symptoms

> sound like extreem hypothyroidism. If you want to be healthy

again,

> you absolutely must adjust your dose up to where you feel good.

This

> could be quite high. You probably now have adrenal fatigue or

> adrenal hypofunction from being so long undermedicated.

Circulating

> thyroid hormone controls the size and output of the adrenals. When

> thyroid is low a while the adrenals become quite weak and you

cannot

> handle stress or control inflammation. I think this is why you

> become so ill after exercising and suffer so much pain. You must

get

> thyroid up to optimal levels for you in order for the adrenals to

> recover their proper function. But, they take some time to do

this,

> up to 2 years.

>

> Because of adrenal problems, it becomes very hard to make thyroid

> dose raises. You become very sensitive to thyroid hormone dose

> increases. So, dose raises often have to be in tiny increments and

> often you will have to wait 4 weeks to a month before another

raise

> in order for the adrenals to aclimate to the new thyroid dose.

>

> Anyway, I think it is essential you find a top doc and if you have

> to travel a long way, do it. You need a doctor who will get your

> dose up to where you need it so you can regain your health and

have

> a life! Depression is a classic sign that thyroid replacement is

too

> low. The doctor who took you off everything must have been an evil

> monster. How could anybody be so cruel? I just can't immagine it.

>

> Go to http://thyroid.about.com/ and look through their top doc

list.

> Try to find one that prescribes Armour. They are more open minded.

> Stay away from Endo's they are the worst on average of any type of

> thyroid doctor.

>

> You can also treat yourself and if you want to know how to do

that,

> you can email me or write to this group. For 83 years, before the

> doctors became fixiated on the TSH test, thyroid doses were

adjusted

> up slowly untill the patient felt well. Today thyroid doses have

> dropped to 1/3 of what they were before the TSH test came on the

> scene around 1975. People lived long and healthy lives prior to

the

> TSH test. The first two thyroid patients who started their

> treatments in the late 1800s lived to be 79 and 90 and were in

good

> health most of their lives.

>

> Tish