Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 Hi i just heard about this forum from a forum friend over at Discussing NT. Thought i would pop in an check it out. I have been adapting NT for about 2 yrs now. I was on my way to vegetarianism. Convinced of the low fat/sat fat, fatless milk, lean cuts of meat when we did eat them (was weaning off of them) and Soy hype. So i have had a lot of changing to do. Even things that i thought were good choices and not even typically SAD diet compared to most people i knew, obviously was to NT. So it was a bit of a shocker to think we were over all doing really well then i read NT.... I had to read a lot of different things in regards to fats/dairy and NT first before doing it cause i had felt some what betrayed by all the other supposed well meaning info in regards healthy eating that was touted for yrs about nutrition. I was not ready to just accept and believe blindly again. I do have a question. I am not into taking supplements to replace food. I try to incorporate the WAPF superfoods etc.. But i really feel that a food based supplement would be a good thing. I am wondering if anyone knows of a food based supplement that hey can reccomend to me. I heard of one that juices 17 different fruits and 17 different veggies, claims research shows they still have all the enzymes, 1 serving of the supplement is = to servings of fresh produce etc. Does anyone have any ideas/info about these types of supplements. How can i tell if it is a good brand or not..... TIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 You're right. Those behaviors are not good. Treat your son with supplements as if he is autistic. Don't worry about a diagnosis unless you need it for a specific reason. I never brought in my last 3 kids for diagnoses. I just treated their symptoms, and they are now good enough to fit into regular school, so why waste my time. If your kid needs special services, then a diagnosis would be needed. Heidi N ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Dear , You are right to follow your gut insticts if something does not feel right. It is win/win by looking into this because: 1) if there is a problem, he will get help 2) if there is not a problem, you will know that you looked into it again and will have peace of mind. From what you are describing, he probably needs some kind of help, whether it is just occuational therapy to deal with sensory issues or a whole bunch of services. At this point, I would do a few things: 1) Call your county's Early Intervention Services and schedule and evaluation. If they see any delays, they will start working with him ASAP. 2) Call and set up appointments with devlopmental pediatricians and neurologists at all of the major hospitals nearby (both can evaluate/diagnose). Filling out the paperwork will be annoying, but if you set up these appointments and get on waiting lists AND call often to see if there are any cancellations, you will get him in sooner. If he does fall on the spectrum, that piece of paper with a diagnosis will be a ticket to get more help for him. 3) Google the DSM-IV criteria for autism spectrum disorders. If you feel that his behaviors fit, you will (sort of) be ready for what you may hear at that appointment. I write this because if you are on this group, you are a strong person and a go-getter. I would not tell just anyone to do this at this point. 4) Think about your son's physical symptoms. Does he have loose stool or constipation? Does he sleep horribly? Does he ever present with rashes or red cheeks and ears? Is he sick a lot, or does he have a history of ear infections? If so, read the book, Unraveling the Mystery of Autism and PDD, and you will start learning about some ways you can modify his diet to help with some of these issues. It is a geat place to start learning about the physiological problems that many kids on the spectrum have. 5) Keep us updated, and we will help you as much as humanly possible. Your son will be OK because he has YOU for a mom. Many people would have left things alone after hearing what they hoped and WANTED to hear at that inital appointment. You are a courageous woman. God bless you! Have hope, have faith, and know that you are not alone. Maureen, mom of Nick age 5 Regressed into Autism at 2 1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 >>He likes to bang > his head, all night long. This is a sign of headache, commonly because of food intolerance or yeast overgrowth or both. > As a mother I feel something is not quite right with my son. Listen to yourself. > a modified diet of wheat/gluten free to see if we can help him. We > are willing, at this point, to try different things if it means Zach > will have a chance at a better life. Removing wheat and/or milk is a good thing to consider. Digestive enzymes also. http://www.danasview.net/parent3.htm#supplements Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 My son did that too. Let me tell you it was rough. Especially since we live in a duplex that is joined at the bedrooms. He liked to bang his head on the walls and doors. I had 3 months of no sleep. He woke us up more than a new born. When I laid in his room one night to stop him from headbanging I realized he was in pain. It did go away and does come back if I do not watch it. We are dealing with it once again right now but it is not as frequent in the night right now so I am trying to nip it in the bud. We took away milk. Also, we took away apple juice. We then only gave him pear juice. It is a lot easier on the belly and not filled with so much sugar. We then started the enzymes. You can call Houstin Nutraceutical www.houstonni.com they will send you free samples. We introduced the enzymes with the Great Low and Slow Method http://www.enzymestuff.com/basicsdosing.htm Just brace yourself an know that things usually get worse before they get better. Definitely read about die-off reactions. http://www.enzymestuff.com/discussionadjustments.htm http://www.danasview.net/yeast.htm (I decided a while ago that my son probably was not autistic and stopped doing the enzymes. I was WRONG and everything came back after a few months. We are started the Great Low and Slow Method again.) A wonderful book that I would recommend you buy is :Enzymes for Autism and other Neurological Conditions " by DeFelice I go back to it over and over and it will explain a lot. It also talks about Dana the head of this group and explains some of what she has gone through. I dried the first time I read that someone knew what I was going through withe lack of sleep and a headbanging son who kept the whole family awake at night. I hope this encourages you. I know I really needed some encouragement when it first started. This group has been wonderful. Feel free to e- mail me if you like. crazyaboutryan@... Have a great day. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Hi ! We went through similar things with all my sons specialists! We was even told that he should see doc for mental/meds! I said absolutly not, that is a misdiagnoses!! I knew from the very beginning when his headbanging, screaming, etc started it was pain! It started the very day of his vaccine reaction(extreme personality opposite from his norm/typically this is a slower built up occurance, so most dont connect the vacs to SDB). He is non verbal and this was his way of communicating gi distress/pain! My son's abdomin cavity area never completely formed and so I was able to connect/see his symptoms happening during his SDB(self destructive behaiviour)! What we thought was a hernia turned out to be his intestines protuding! When ever his SDB started I could see the contractions of his intestines moving!! I suspect from over 2yrs of all this, doc after doc, that he has muscle/nerve damage/sensitivity in his gastrointenal tract! Even my sons nuero, gently said(referring to vacs with out actually using the word) that they become very sensitive ie autism, adhd, sensory issues, etc. This is the nerves in the intestinal tract! The GI and brain are nuero linked! We found that when we focused on natural supplementing to calm the gi his behaiviour improves! This would include GI viral healing also! Seems viral/bacteria issues can really affect there neuro. We found that aloe vera juice would help a lot, it is a natural anti inflamatory/pain reliever and helps calm the gi! Magnesium is a calming mineral also. Garlic is a very strong viral/bacteria killer ie. Natural enzyme, flora balance, etc. This group also finds success with OLE , enzymes etc. etc.We are fairly new to these other supplements also, but have found success with the ones I mentioned! If you have not seen this group, they also can help support with the SDB/GI issues. thoughtfulhousecenterforchildren/ Jennie<>< bowandjen <bowandjenn@...> wrote: Hi, my name is . I am a homeschooling mom to 7 children, 5 bio, 2 adopted. My little guy who is 2 1/2 does things that we feel may be a *sign* of an autistic spectrum disorder. He likes to bang his head, all night long. He bangs on anything he can find, the wall, his head board, the floor, mattress, anything. All night, while making noises. He likes to rock and he used to flip his wrists and feet while doing so. I would carry him in my Ergo carrier and stop him as much as I could and started giving him texture balls to give his hands something else to do. He does not like to make eye contact and people out of his comfort zone just set him over the edge. We took him to be evaluated at about 1 1/2 to a specialist. He was having a great day and because he could play with some toys, stack blocks, put things in a cup the nurse practitioner said he was *fine*. She would not listen to any of the other things we said about what he did. As a mother I feel something is not quite right with my son. His anger and temper are difficult to control when he is frustrated. He will bite, kick, hit and scream for what seems like forever when he gets upset over we do not even know what. So, we have decided to try a modified diet of wheat/gluten free to see if we can help him. We are willing, at this point, to try different things if it means Zach will have a chance at a better life. I look forward to hearing any advice for you all. Thank you much! in VA --------------------------------- Need a vacation? Get great deals to amazing places on Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Hi , your son sounds like he has sensory issues (which often go hand in hand with autism). I never thought much about occupational therapy because my guy can run and climb like a monkey. Just recently I learned that he has severe sensory issues and occupational therapy (OT) has done wonders. He used to fall on purpose to get sensory input. Now I have ways to give him the input he needs. We're also doing brushing therapy (sounds crazy, I know) and joing compression which seem to be helping. His therapist says the goal is to reset his sensory system so he recieves input the way a normal child would. He has made tremendous gains in this area in the 4 weeks he's been doing OT. Not as sensory seeking, a lot less stimming, much more aware of where his body is in space. He has learned to jump, will now swing on a swing and do a lot of other things that used to terrify him. If you want to email me privately I'd be happy to discuss further. I'm in VA too. Where in VA are you? Sissy New intro Hi, my name is . I am a homeschooling mom to 7 children, 5 bio, 2 adopted. My little guy who is 2 1/2 does things that we feel may be a *sign* of an autistic spectrum disorder. He likes to bang his head, all night long. He bangs on anything he can find, the wall, his head board, the floor, mattress, anything. All night, while making noises. He likes to rock and he used to flip his wrists and feet while doing so. I would carry him in my Ergo carrier and stop him as much as I could and started giving him texture balls to give his hands something else to do. He does not like to make eye contact and people out of his comfort zone just set him over the edge. We took him to be evaluated at about 1 1/2 to a specialist. He was having a great day and because he could play with some toys, stack blocks, put things in a cup the nurse practitioner said he was *fine*. She would not listen to any of the other things we said about what he did. As a mother I feel something is not quite right with my son. His anger and temper are difficult to control when he is frustrated. He will bite, kick, hit and scream for what seems like forever when he gets upset over we do not even know what. So, we have decided to try a modified diet of wheat/gluten free to see if we can help him. We are willing, at this point, to try different things if it means Zach will have a chance at a better life. I look forward to hearing any advice for you all. Thank you much! in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Out of curiosity, have they checked his ears? My son was a major head-banger as a child. But, he had dual-ear infections so often. He eventually had tubes placed because nothing would get rid of the fluid in his canals, and therefore they aren't sure how much he heard for a long time there due to bad ear pressure. (One audiologist said to picture the type of ear pressure many of us experience while flying, and that was similar to what ds was feeling.) It's hard to say if he'd have been a head-banger or not if he'd not had hearing issues -- I expect that yes, to an extent he would have still done it because he's frequently self-injurious when he's upset or can't communicate properly, but I am sure his ear difficulties contributed. bowandjen wrote: > > Hi, my name is . I am a homeschooling mom to 7 children, 5 > bio, 2 adopted. My little guy who is 2 1/2 does things that we feel > may be a *sign* of an autistic spectrum disorder. He likes to bang > his head, all night long. He bangs on anything he can find, the > wall, his head board, the floor, mattress, anything. All night, > while making noises. He likes to rock and he used to flip his wrists > and feet while doing so. I would carry him in my Ergo carrier and > stop him as much as I could and started giving him texture balls to > give his hands something else to do. He does not like to make eye > contact and people out of his comfort zone just set him over the > edge. We took him to be evaluated at about 1 1/2 to a specialist. > He was having a great day and because he could play with some toys, > stack blocks, put things in a cup the nurse practitioner said he was > *fine*. She would not listen to any of the other things we said > about what he did. > > As a mother I feel something is not quite right with my son. His > anger and temper are difficult to control when he is frustrated. He > will bite, kick, hit and scream for what seems like forever when he > gets upset over we do not even know what. So, we have decided to try > a modified diet of wheat/gluten free to see if we can help him. We > are willing, at this point, to try different things if it means Zach > will have a chance at a better life. > > I look forward to hearing any advice for you all. Thank you much! > > in VA > > > > Quote Link to comment Share on other sites More sharing options...
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