Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hi Liz, I know that you're really frustrated with this, and rightly so... but there has to be a reason. You may have said some of this already... bear with us as we ask another round of questions and see what our communal sets of eyes, ears and brains spot. Do you have copies of your labs... so we can see what they've tested and what the results were - don't forget we need the lab's ranges too. I believe you meant mcg even though you were typing mil..... so the dose that you are on... 25 mcg and 50 mcg can often be suppressive doses, depending on what your body needs. So... things that are coming to my sleep deprived mind (I've been up for 30 1/2 hours and still counting)if you are dealing with antibodies... the antibodies are going to cause your own thyroid's production to vary.... A suppressive dose of Synthroid will make you feel better at first.. then as the thyroid production slows you'll feel worse. You may not be reacting to the T4 in the Synthroid... you may be reacting to the fillers in the tablet... so with that thought in mind.... have you been using the same bottle of meds, or have you used different bottles (either another bottle of the same dose or bottles of different doses). Have they let you try other brands - Levoxyl or Levothroid? What do your basals look like as you go through these stages..? There has to be something here that we haven't seen yet... we just need you to keep telling us what you are doing, no matter how silly.... Taking pill on empty stomach or full... What time of day - always the same or different.... How often do you eat and what types of foods - high fiber, high carb.... all mixed up... any changes in patterns? As you go through the stages do your bowel habits change - constipated to diarrhea... or frequency of movements.... Tell me about your sleep patterns... when to bed, when to wake, sleep sound, dreams, nightmares, sleep soundly, wake often... that kind of stuff... To cause the hallucinations and such, it's a chemical imbalance.. but why? What is causing it? Is it an allergy to food or the pill's fillers? Could it have anything to do with some type of adrenal fluctuation that is shadowing changes in thyroid med adjustments... Could your body just be really sporadic in conversion? I know Synthroid can cause quick reactions in some... when I first started on it it made me ill... it took two years of messing around with doses and different brands and splitting tabs and multi-dosing until I could take it without wanting to barf my guts our or get headaches and what not.... The pig pills. Natural Thyroid.... there are different fillers used.... natural T4 without the extra sodium added to it.... and direct T3... also the option of taking it sublingually making each dose MUCH MUCH more consistent that what you can do with swallowing T4 only synthetics. You're working with a doctor.... so I'm not sure... but the Nutri-Meds porcine thyroid are made from the same desiccated thyroid as the prescription grade naturals, but are weaker per tab.... not as potent.... I'm wondering if trying those, splitting the tabs to get really small doses.. would be something worth trying.... maybe talk to your doc... Let's see what others in the group come up with... our heads, combined.. usually do pretty good around here. Topper () On Thu, 11 Nov 2004 15:55:19 -0000 "liznick33" writes: I am so tired of all of this. I hate doctors! Not all doctors, just mine. lol.. They think "they" know my body better than I do. I am getting tired of being passed off as a "mental case". Right now, I am on the synthyroid pill, only at 25mil. About a month ago, I was on 200mil. Okay, many questions are running through your head right now, and some of you angels have answered my posts and possible remember my pleas from before. Going back two years ago, I turned into a "mental case" kind of out of the blue. Social phobia, anxiety, depression.. The doc put me on zoloft without checking blood stats to see if I had a thyroid condition. After months of seeing things that were only in my head, and depression so bad that I wouldn't even get out of the bed , My husband switched doctors for me, and the new doc took a look at me and said "it's your thyroid"...... blood tests were done and yep, that's what it was. I was almost 300 pounds. After being on the synthyroid for just a matter of a couple of weeks, I saw a difference. Ok, so a year later, I had stomach surgery. I had lost 120 lbs.. Started with some weird symptoms of passing out and seizures. Doc again had many many tests done and could not figure out what was going on. Well, doing research on the puter, I finally figured out that it has to be one of the many pills I was on. With process of elimination of medication, I found that seizures were being caused by the zoloft..Haven't been back on that pill for about 3 months now. No seizures.....Only on one pill, the thyroid pill, I was passing out all the time. 6 to 10 times a day. Ok, it must be the synthroid pill. again, I was on the 200mil at a weight of 140 lbs now. Remember I had the stomach surgery, so now I was at the point to think that maybe I was getting to much thyroid. Doctors would dimiss anything I would tell them, still doing tests at my requests, still, they would give me the feeling that I was making this stuff up. So, I stopped the tyroid pill all together. Hey.. no passing out! It was the pill after all.. WEll, this was not a good idea, for then other things were starting to happen.. I started having "small stokes". Ok, this is where my left side of my body would go completly numb for awhile, my face would even be droopy. Called the doc, more tests were done on my head and heart. All came back normal...Ok, went to see a thyroid expect, wanted me to stil stay off the thyrois pill for another few weeks so he could do a chemical scan on thyroid. Well, after a week more of not taking the synthyoid pill, I was starting to see things and hear things again. I would be hitting myself in the head and would ramble on,even suicide thoughts... hubby decided to call doctor on his own and demand to be put on low dose of thyroid meds. Against their judgement and telling him that that is not signs of thyroid and being really nasty towards him, they put me back on it. Well guess what........... after just 10 days of being back on, the seeing thigs and thoughts went away, as well as the depression.. Cool right? I would think. At 14 days taking the med, Anxiety was stating back up, but only in the evening ( would take the pill on an empty stomach in the am).. maybe not taking enough to carry me thoughout the day.. Easy enought to think that anyways.. so I called the doctor only to get a nasty receptionist telling me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body seems to think that maybe it works a bit faster for me.. how about some blood tests.. easy enough? right? nope, they refuse. So, again, back on my own here.. I decided to up my own dose to 50 ( this was just yesterday). Just to see what happens.. Well within two hours of taking the extra dose, the passing out started again.. Who ever says this med doesn't work right away hasn't met me, that is for sure. Althought I was passing out, I had no signs of depression or anxiety. okay, today I am just on the 25 mil again. Thinking of cutting pill in half and trying the 25 plus cutting the pill (25 mil) in half and see where that takes me. Although very scared to try this pigs pill you guys have told me about because I am afraid of seeing things on the wall again telling me to kill myself, I am just about ready to "Go for it"... Anyhoo, getting back to my ligitimate bitch here about my doctors, they think I am nuts. I just wish they would just take a min to hear me out and look into my situation. I feel totally alone here in this city. My brother had told me our chiropractor, who I just love to death and admire, said that our "specialist" here in Erie, PA, are not really specialists.. that I should go to Pittsburgh, a bigger city and a 2 hour drive away to find help. He even offered some names of who he would recommend. WEll, what do you guys think? Am I nuts?? Should I use my chropractors advice and find a doc in PIttsburgh? or /should I stop taking the synthyroid pill for awhile then start on the pig pill? I do not have the money to have own blood test done, but I can't afford to be without any meds for this thyroid. Doctors won't let me have the blood work done. Should I just lean back for awhile and take the time into it and if I feel the anxiety or depression just take a valum and call it a day till they feel I have had it in my systom long enough for them to finally give me the blood work I need done? AHHHHHHHHH.... I need some angels here again... I know you all are not doctors, but neither am I and I seem to be working on my own here.. Any advice even if it is "get a grip Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hi Liz, I know that you're really frustrated with this, and rightly so... but there has to be a reason. You may have said some of this already... bear with us as we ask another round of questions and see what our communal sets of eyes, ears and brains spot. Do you have copies of your labs... so we can see what they've tested and what the results were - don't forget we need the lab's ranges too. I believe you meant mcg even though you were typing mil..... so the dose that you are on... 25 mcg and 50 mcg can often be suppressive doses, depending on what your body needs. So... things that are coming to my sleep deprived mind (I've been up for 30 1/2 hours and still counting)if you are dealing with antibodies... the antibodies are going to cause your own thyroid's production to vary.... A suppressive dose of Synthroid will make you feel better at first.. then as the thyroid production slows you'll feel worse. You may not be reacting to the T4 in the Synthroid... you may be reacting to the fillers in the tablet... so with that thought in mind.... have you been using the same bottle of meds, or have you used different bottles (either another bottle of the same dose or bottles of different doses). Have they let you try other brands - Levoxyl or Levothroid? What do your basals look like as you go through these stages..? There has to be something here that we haven't seen yet... we just need you to keep telling us what you are doing, no matter how silly.... Taking pill on empty stomach or full... What time of day - always the same or different.... How often do you eat and what types of foods - high fiber, high carb.... all mixed up... any changes in patterns? As you go through the stages do your bowel habits change - constipated to diarrhea... or frequency of movements.... Tell me about your sleep patterns... when to bed, when to wake, sleep sound, dreams, nightmares, sleep soundly, wake often... that kind of stuff... To cause the hallucinations and such, it's a chemical imbalance.. but why? What is causing it? Is it an allergy to food or the pill's fillers? Could it have anything to do with some type of adrenal fluctuation that is shadowing changes in thyroid med adjustments... Could your body just be really sporadic in conversion? I know Synthroid can cause quick reactions in some... when I first started on it it made me ill... it took two years of messing around with doses and different brands and splitting tabs and multi-dosing until I could take it without wanting to barf my guts our or get headaches and what not.... The pig pills. Natural Thyroid.... there are different fillers used.... natural T4 without the extra sodium added to it.... and direct T3... also the option of taking it sublingually making each dose MUCH MUCH more consistent that what you can do with swallowing T4 only synthetics. You're working with a doctor.... so I'm not sure... but the Nutri-Meds porcine thyroid are made from the same desiccated thyroid as the prescription grade naturals, but are weaker per tab.... not as potent.... I'm wondering if trying those, splitting the tabs to get really small doses.. would be something worth trying.... maybe talk to your doc... Let's see what others in the group come up with... our heads, combined.. usually do pretty good around here. Topper () On Thu, 11 Nov 2004 15:55:19 -0000 "liznick33" writes: I am so tired of all of this. I hate doctors! Not all doctors, just mine. lol.. They think "they" know my body better than I do. I am getting tired of being passed off as a "mental case". Right now, I am on the synthyroid pill, only at 25mil. About a month ago, I was on 200mil. Okay, many questions are running through your head right now, and some of you angels have answered my posts and possible remember my pleas from before. Going back two years ago, I turned into a "mental case" kind of out of the blue. Social phobia, anxiety, depression.. The doc put me on zoloft without checking blood stats to see if I had a thyroid condition. After months of seeing things that were only in my head, and depression so bad that I wouldn't even get out of the bed , My husband switched doctors for me, and the new doc took a look at me and said "it's your thyroid"...... blood tests were done and yep, that's what it was. I was almost 300 pounds. After being on the synthyroid for just a matter of a couple of weeks, I saw a difference. Ok, so a year later, I had stomach surgery. I had lost 120 lbs.. Started with some weird symptoms of passing out and seizures. Doc again had many many tests done and could not figure out what was going on. Well, doing research on the puter, I finally figured out that it has to be one of the many pills I was on. With process of elimination of medication, I found that seizures were being caused by the zoloft..Haven't been back on that pill for about 3 months now. No seizures.....Only on one pill, the thyroid pill, I was passing out all the time. 6 to 10 times a day. Ok, it must be the synthroid pill. again, I was on the 200mil at a weight of 140 lbs now. Remember I had the stomach surgery, so now I was at the point to think that maybe I was getting to much thyroid. Doctors would dimiss anything I would tell them, still doing tests at my requests, still, they would give me the feeling that I was making this stuff up. So, I stopped the tyroid pill all together. Hey.. no passing out! It was the pill after all.. WEll, this was not a good idea, for then other things were starting to happen.. I started having "small stokes". Ok, this is where my left side of my body would go completly numb for awhile, my face would even be droopy. Called the doc, more tests were done on my head and heart. All came back normal...Ok, went to see a thyroid expect, wanted me to stil stay off the thyrois pill for another few weeks so he could do a chemical scan on thyroid. Well, after a week more of not taking the synthyoid pill, I was starting to see things and hear things again. I would be hitting myself in the head and would ramble on,even suicide thoughts... hubby decided to call doctor on his own and demand to be put on low dose of thyroid meds. Against their judgement and telling him that that is not signs of thyroid and being really nasty towards him, they put me back on it. Well guess what........... after just 10 days of being back on, the seeing thigs and thoughts went away, as well as the depression.. Cool right? I would think. At 14 days taking the med, Anxiety was stating back up, but only in the evening ( would take the pill on an empty stomach in the am).. maybe not taking enough to carry me thoughout the day.. Easy enought to think that anyways.. so I called the doctor only to get a nasty receptionist telling me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body seems to think that maybe it works a bit faster for me.. how about some blood tests.. easy enough? right? nope, they refuse. So, again, back on my own here.. I decided to up my own dose to 50 ( this was just yesterday). Just to see what happens.. Well within two hours of taking the extra dose, the passing out started again.. Who ever says this med doesn't work right away hasn't met me, that is for sure. Althought I was passing out, I had no signs of depression or anxiety. okay, today I am just on the 25 mil again. Thinking of cutting pill in half and trying the 25 plus cutting the pill (25 mil) in half and see where that takes me. Although very scared to try this pigs pill you guys have told me about because I am afraid of seeing things on the wall again telling me to kill myself, I am just about ready to "Go for it"... Anyhoo, getting back to my ligitimate bitch here about my doctors, they think I am nuts. I just wish they would just take a min to hear me out and look into my situation. I feel totally alone here in this city. My brother had told me our chiropractor, who I just love to death and admire, said that our "specialist" here in Erie, PA, are not really specialists.. that I should go to Pittsburgh, a bigger city and a 2 hour drive away to find help. He even offered some names of who he would recommend. WEll, what do you guys think? Am I nuts?? Should I use my chropractors advice and find a doc in PIttsburgh? or /should I stop taking the synthyroid pill for awhile then start on the pig pill? I do not have the money to have own blood test done, but I can't afford to be without any meds for this thyroid. Doctors won't let me have the blood work done. Should I just lean back for awhile and take the time into it and if I feel the anxiety or depression just take a valum and call it a day till they feel I have had it in my systom long enough for them to finally give me the blood work I need done? AHHHHHHHHH.... I need some angels here again... I know you all are not doctors, but neither am I and I seem to be working on my own here.. Any advice even if it is "get a grip Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hi Liz, I know that you're really frustrated with this, and rightly so... but there has to be a reason. You may have said some of this already... bear with us as we ask another round of questions and see what our communal sets of eyes, ears and brains spot. Do you have copies of your labs... so we can see what they've tested and what the results were - don't forget we need the lab's ranges too. I believe you meant mcg even though you were typing mil..... so the dose that you are on... 25 mcg and 50 mcg can often be suppressive doses, depending on what your body needs. So... things that are coming to my sleep deprived mind (I've been up for 30 1/2 hours and still counting)if you are dealing with antibodies... the antibodies are going to cause your own thyroid's production to vary.... A suppressive dose of Synthroid will make you feel better at first.. then as the thyroid production slows you'll feel worse. You may not be reacting to the T4 in the Synthroid... you may be reacting to the fillers in the tablet... so with that thought in mind.... have you been using the same bottle of meds, or have you used different bottles (either another bottle of the same dose or bottles of different doses). Have they let you try other brands - Levoxyl or Levothroid? What do your basals look like as you go through these stages..? There has to be something here that we haven't seen yet... we just need you to keep telling us what you are doing, no matter how silly.... Taking pill on empty stomach or full... What time of day - always the same or different.... How often do you eat and what types of foods - high fiber, high carb.... all mixed up... any changes in patterns? As you go through the stages do your bowel habits change - constipated to diarrhea... or frequency of movements.... Tell me about your sleep patterns... when to bed, when to wake, sleep sound, dreams, nightmares, sleep soundly, wake often... that kind of stuff... To cause the hallucinations and such, it's a chemical imbalance.. but why? What is causing it? Is it an allergy to food or the pill's fillers? Could it have anything to do with some type of adrenal fluctuation that is shadowing changes in thyroid med adjustments... Could your body just be really sporadic in conversion? I know Synthroid can cause quick reactions in some... when I first started on it it made me ill... it took two years of messing around with doses and different brands and splitting tabs and multi-dosing until I could take it without wanting to barf my guts our or get headaches and what not.... The pig pills. Natural Thyroid.... there are different fillers used.... natural T4 without the extra sodium added to it.... and direct T3... also the option of taking it sublingually making each dose MUCH MUCH more consistent that what you can do with swallowing T4 only synthetics. You're working with a doctor.... so I'm not sure... but the Nutri-Meds porcine thyroid are made from the same desiccated thyroid as the prescription grade naturals, but are weaker per tab.... not as potent.... I'm wondering if trying those, splitting the tabs to get really small doses.. would be something worth trying.... maybe talk to your doc... Let's see what others in the group come up with... our heads, combined.. usually do pretty good around here. Topper () On Thu, 11 Nov 2004 15:55:19 -0000 "liznick33" writes: I am so tired of all of this. I hate doctors! Not all doctors, just mine. lol.. They think "they" know my body better than I do. I am getting tired of being passed off as a "mental case". Right now, I am on the synthyroid pill, only at 25mil. About a month ago, I was on 200mil. Okay, many questions are running through your head right now, and some of you angels have answered my posts and possible remember my pleas from before. Going back two years ago, I turned into a "mental case" kind of out of the blue. Social phobia, anxiety, depression.. The doc put me on zoloft without checking blood stats to see if I had a thyroid condition. After months of seeing things that were only in my head, and depression so bad that I wouldn't even get out of the bed , My husband switched doctors for me, and the new doc took a look at me and said "it's your thyroid"...... blood tests were done and yep, that's what it was. I was almost 300 pounds. After being on the synthyroid for just a matter of a couple of weeks, I saw a difference. Ok, so a year later, I had stomach surgery. I had lost 120 lbs.. Started with some weird symptoms of passing out and seizures. Doc again had many many tests done and could not figure out what was going on. Well, doing research on the puter, I finally figured out that it has to be one of the many pills I was on. With process of elimination of medication, I found that seizures were being caused by the zoloft..Haven't been back on that pill for about 3 months now. No seizures.....Only on one pill, the thyroid pill, I was passing out all the time. 6 to 10 times a day. Ok, it must be the synthroid pill. again, I was on the 200mil at a weight of 140 lbs now. Remember I had the stomach surgery, so now I was at the point to think that maybe I was getting to much thyroid. Doctors would dimiss anything I would tell them, still doing tests at my requests, still, they would give me the feeling that I was making this stuff up. So, I stopped the tyroid pill all together. Hey.. no passing out! It was the pill after all.. WEll, this was not a good idea, for then other things were starting to happen.. I started having "small stokes". Ok, this is where my left side of my body would go completly numb for awhile, my face would even be droopy. Called the doc, more tests were done on my head and heart. All came back normal...Ok, went to see a thyroid expect, wanted me to stil stay off the thyrois pill for another few weeks so he could do a chemical scan on thyroid. Well, after a week more of not taking the synthyoid pill, I was starting to see things and hear things again. I would be hitting myself in the head and would ramble on,even suicide thoughts... hubby decided to call doctor on his own and demand to be put on low dose of thyroid meds. Against their judgement and telling him that that is not signs of thyroid and being really nasty towards him, they put me back on it. Well guess what........... after just 10 days of being back on, the seeing thigs and thoughts went away, as well as the depression.. Cool right? I would think. At 14 days taking the med, Anxiety was stating back up, but only in the evening ( would take the pill on an empty stomach in the am).. maybe not taking enough to carry me thoughout the day.. Easy enought to think that anyways.. so I called the doctor only to get a nasty receptionist telling me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body seems to think that maybe it works a bit faster for me.. how about some blood tests.. easy enough? right? nope, they refuse. So, again, back on my own here.. I decided to up my own dose to 50 ( this was just yesterday). Just to see what happens.. Well within two hours of taking the extra dose, the passing out started again.. Who ever says this med doesn't work right away hasn't met me, that is for sure. Althought I was passing out, I had no signs of depression or anxiety. okay, today I am just on the 25 mil again. Thinking of cutting pill in half and trying the 25 plus cutting the pill (25 mil) in half and see where that takes me. Although very scared to try this pigs pill you guys have told me about because I am afraid of seeing things on the wall again telling me to kill myself, I am just about ready to "Go for it"... Anyhoo, getting back to my ligitimate bitch here about my doctors, they think I am nuts. I just wish they would just take a min to hear me out and look into my situation. I feel totally alone here in this city. My brother had told me our chiropractor, who I just love to death and admire, said that our "specialist" here in Erie, PA, are not really specialists.. that I should go to Pittsburgh, a bigger city and a 2 hour drive away to find help. He even offered some names of who he would recommend. WEll, what do you guys think? Am I nuts?? Should I use my chropractors advice and find a doc in PIttsburgh? or /should I stop taking the synthyroid pill for awhile then start on the pig pill? I do not have the money to have own blood test done, but I can't afford to be without any meds for this thyroid. Doctors won't let me have the blood work done. Should I just lean back for awhile and take the time into it and if I feel the anxiety or depression just take a valum and call it a day till they feel I have had it in my systom long enough for them to finally give me the blood work I need done? AHHHHHHHHH.... I need some angels here again... I know you all are not doctors, but neither am I and I seem to be working on my own here.. Any advice even if it is "get a grip Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Okay, I think 4 months is a long time to wait to see the doctor.. God, you sound like me a few years ago. Not to say that you do not have bipolor, but I would really look into this further. I was a mess until the the thyroid meds kicked in. Again, I would see things on the walls, a burning cross, men wearing black capes comming after me. Hearing things that no one else would hear.. I would scream and cry alot. I wouldn't get out of bed, and the blankets would be over my head ... all the time.. now for the normal me, I can't stand anything confinding especially anything covering my head.... so it was a serious drawback for me.I would sleep ALL THE TIME>>> Thyroid can seriously mess you up in a big way. And I have found that with my own research ( not a doctor here) that anyone who is having problems with depression, anything in the " mental " way should really look into their thyroid. Alot of " mental " things that have happened to me was dismissed as a " mental condition " when in fact it wasn't that at all, it was the thyroid. I have found that I am not a normal book case thyroid person. thanks for the reply and keep me posted on you.. I would like to hear how things are with you and what your and their ( doctors) findings are. I think for myself, I am going to try splitting my pill, and calling some places in Pittsburgh. Chat with you soon.. Liz > > > > > I am so tired of all of this. I hate doctors! Not all doctors, just > > mine. lol.. They think " they " know my body better than I do. I am > > getting tired of being passed off as a " mental case " . Right now, I am > > on the synthyroid pill, only at 25mil. About a month ago, I was on > > 200mil. Okay, many questions are running through your head right now, > > and some of you angels have answered my posts and possible remember > > my pleas from before. Going back two years ago, I turned into > > a " mental case " kind of out of the blue. Social phobia, anxiety, > > depression.. The doc put me on zoloft without checking blood stats to > > see if I had a thyroid condition. After months of seeing things that > > were only in my head, and depression so bad that I wouldn't even get > > out of the bed , My husband switched doctors for me, and the new doc > > took a look at me and said " it's your thyroid " ...... blood tests were > > done and yep, that's what it was. I was almost 300 pounds. After > > being on the synthyroid for just a matter of a couple of weeks, I saw > > a difference. Ok, so a year later, I had stomach surgery. I had lost > > 120 lbs.. Started with some weird symptoms of passing out and > > seizures. Doc again had many many tests done and could not figure out > > what was going on. Well, doing research on the puter, I finally > > figured out that it has to be one of the many pills I was on. With > > process of elimination of medication, I found that seizures were > > being caused by the zoloft..Haven't been back on that pill for about > > 3 months now. No seizures.....Only on one pill, the thyroid pill, I > > was passing out all the time. 6 to 10 times a day. Ok, it must be the > > synthroid pill. again, I was on the 200mil at a weight of 140 lbs > > now. Remember I had the stomach surgery, so now I was at the point to > > think that maybe I was getting to much thyroid. Doctors would dimiss > > anything I would tell them, still doing tests at my requests, still, > > they would give me the feeling that I was making this stuff up. So, I > > stopped the tyroid pill all together. Hey.. no passing out! It was > > the pill after all.. WEll, this was not a good idea, for then other > > things were starting to happen.. I started having " small stokes " . Ok, > > this is where my left side of my body would go completly numb for > > awhile, my face would even be droopy. Called the doc, more tests were > > done on my head and heart. All came back normal...Ok, went to see a > > thyroid expect, wanted me to stil stay off the thyrois pill for > > another few weeks so he could do a chemical scan on thyroid. Well, > > after a week more of not taking the synthyoid pill, I was starting to > > see things and hear things again. I would be hitting myself in the > > head and would ramble on,even suicide thoughts... hubby decided to > > call doctor on his own and demand to be put on low dose of thyroid > > meds. Against their judgement and telling him that that is not signs > > of thyroid and being really nasty towards him, they put me back on > > it. Well guess > > what........... after just 10 days of being back on, the seeing thigs > > and > > thoughts went away, as well as the depression.. Cool right? I would > > think. At 14 days taking the med, Anxiety was stating back up, but > > only in the evening ( would take the pill on an empty stomach in the > > am).. maybe not taking enough to carry me thoughout the day.. Easy > > enought to think that anyways.. so I called the doctor only to get a > > nasty receptionist telling > > me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body > > seems to think that maybe it works a bit faster for me.. how about > > some blood tests.. easy enough? right? nope, they refuse. So, again, > > back on my own here.. I decided to up my own dose to 50 ( this was > > just yesterday). Just to see what happens.. Well within two hours of > > taking the extra dose, the passing out started again.. Who ever says > > this med doesn't work right away hasn't met me, that is for sure. > > Althought I was passing out, I had no signs of depression or anxiety. > > okay, today I am just on the 25 mil again. Thinking of cutting pill > > in half and trying the 25 plus cutting the pill (25 mil) in half and > > see where that takes me. Although very scared to try this pigs pill > > you guys have told me about because I am afraid of seeing things on > > the wall again telling me to kill myself, I am just about ready > > to " Go for it " ... Anyhoo, getting back to my ligitimate bitch here > > about my doctors, they think I am nuts. I just wish they would just > > take a min to hear me out and look into my situation. I feel totally > > alone here in this city. My brother had told me our chiropractor, who > > I just love to death and admire, said that our " specialist " here in > > Erie, PA, are not really specialists.. that I should go to > > Pittsburgh, a bigger city and a 2 hour drive away to find help. He > > even offered some names of who he would recommend. WEll, what do you > > guys think? Am I nuts?? Should I use my chropractors advice and find > > a doc in PIttsburgh? or /should I stop taking the synthyroid pill for > > awhile then start on the pig pill? I do not have the money to have > > own blood test done, but I can't afford to be without any meds for > > this thyroid. Doctors won't let me have the blood work done. Should I > > just lean back for awhile and take the time into it and if I feel the > > anxiety or depression just take a valum and call it a day till they > > feel I have had it in my systom long enough for them to finally give > > me the blood work I need done? AHHHHHHHHH.... I need some angels here > > again... I know you all are not doctors, but neither am I and I seem > > to be working on my own here.. Any advice even if it is " get a grip > > Liz " advice would be gladly appeciated .. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Okay, I think 4 months is a long time to wait to see the doctor.. God, you sound like me a few years ago. Not to say that you do not have bipolor, but I would really look into this further. I was a mess until the the thyroid meds kicked in. Again, I would see things on the walls, a burning cross, men wearing black capes comming after me. Hearing things that no one else would hear.. I would scream and cry alot. I wouldn't get out of bed, and the blankets would be over my head ... all the time.. now for the normal me, I can't stand anything confinding especially anything covering my head.... so it was a serious drawback for me.I would sleep ALL THE TIME>>> Thyroid can seriously mess you up in a big way. And I have found that with my own research ( not a doctor here) that anyone who is having problems with depression, anything in the " mental " way should really look into their thyroid. Alot of " mental " things that have happened to me was dismissed as a " mental condition " when in fact it wasn't that at all, it was the thyroid. I have found that I am not a normal book case thyroid person. thanks for the reply and keep me posted on you.. I would like to hear how things are with you and what your and their ( doctors) findings are. I think for myself, I am going to try splitting my pill, and calling some places in Pittsburgh. Chat with you soon.. Liz > > > > > I am so tired of all of this. I hate doctors! Not all doctors, just > > mine. lol.. They think " they " know my body better than I do. I am > > getting tired of being passed off as a " mental case " . Right now, I am > > on the synthyroid pill, only at 25mil. About a month ago, I was on > > 200mil. Okay, many questions are running through your head right now, > > and some of you angels have answered my posts and possible remember > > my pleas from before. Going back two years ago, I turned into > > a " mental case " kind of out of the blue. Social phobia, anxiety, > > depression.. The doc put me on zoloft without checking blood stats to > > see if I had a thyroid condition. After months of seeing things that > > were only in my head, and depression so bad that I wouldn't even get > > out of the bed , My husband switched doctors for me, and the new doc > > took a look at me and said " it's your thyroid " ...... blood tests were > > done and yep, that's what it was. I was almost 300 pounds. After > > being on the synthyroid for just a matter of a couple of weeks, I saw > > a difference. Ok, so a year later, I had stomach surgery. I had lost > > 120 lbs.. Started with some weird symptoms of passing out and > > seizures. Doc again had many many tests done and could not figure out > > what was going on. Well, doing research on the puter, I finally > > figured out that it has to be one of the many pills I was on. With > > process of elimination of medication, I found that seizures were > > being caused by the zoloft..Haven't been back on that pill for about > > 3 months now. No seizures.....Only on one pill, the thyroid pill, I > > was passing out all the time. 6 to 10 times a day. Ok, it must be the > > synthroid pill. again, I was on the 200mil at a weight of 140 lbs > > now. Remember I had the stomach surgery, so now I was at the point to > > think that maybe I was getting to much thyroid. Doctors would dimiss > > anything I would tell them, still doing tests at my requests, still, > > they would give me the feeling that I was making this stuff up. So, I > > stopped the tyroid pill all together. Hey.. no passing out! It was > > the pill after all.. WEll, this was not a good idea, for then other > > things were starting to happen.. I started having " small stokes " . Ok, > > this is where my left side of my body would go completly numb for > > awhile, my face would even be droopy. Called the doc, more tests were > > done on my head and heart. All came back normal...Ok, went to see a > > thyroid expect, wanted me to stil stay off the thyrois pill for > > another few weeks so he could do a chemical scan on thyroid. Well, > > after a week more of not taking the synthyoid pill, I was starting to > > see things and hear things again. I would be hitting myself in the > > head and would ramble on,even suicide thoughts... hubby decided to > > call doctor on his own and demand to be put on low dose of thyroid > > meds. Against their judgement and telling him that that is not signs > > of thyroid and being really nasty towards him, they put me back on > > it. Well guess > > what........... after just 10 days of being back on, the seeing thigs > > and > > thoughts went away, as well as the depression.. Cool right? I would > > think. At 14 days taking the med, Anxiety was stating back up, but > > only in the evening ( would take the pill on an empty stomach in the > > am).. maybe not taking enough to carry me thoughout the day.. Easy > > enought to think that anyways.. so I called the doctor only to get a > > nasty receptionist telling > > me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body > > seems to think that maybe it works a bit faster for me.. how about > > some blood tests.. easy enough? right? nope, they refuse. So, again, > > back on my own here.. I decided to up my own dose to 50 ( this was > > just yesterday). Just to see what happens.. Well within two hours of > > taking the extra dose, the passing out started again.. Who ever says > > this med doesn't work right away hasn't met me, that is for sure. > > Althought I was passing out, I had no signs of depression or anxiety. > > okay, today I am just on the 25 mil again. Thinking of cutting pill > > in half and trying the 25 plus cutting the pill (25 mil) in half and > > see where that takes me. Although very scared to try this pigs pill > > you guys have told me about because I am afraid of seeing things on > > the wall again telling me to kill myself, I am just about ready > > to " Go for it " ... Anyhoo, getting back to my ligitimate bitch here > > about my doctors, they think I am nuts. I just wish they would just > > take a min to hear me out and look into my situation. I feel totally > > alone here in this city. My brother had told me our chiropractor, who > > I just love to death and admire, said that our " specialist " here in > > Erie, PA, are not really specialists.. that I should go to > > Pittsburgh, a bigger city and a 2 hour drive away to find help. He > > even offered some names of who he would recommend. WEll, what do you > > guys think? Am I nuts?? Should I use my chropractors advice and find > > a doc in PIttsburgh? or /should I stop taking the synthyroid pill for > > awhile then start on the pig pill? I do not have the money to have > > own blood test done, but I can't afford to be without any meds for > > this thyroid. Doctors won't let me have the blood work done. Should I > > just lean back for awhile and take the time into it and if I feel the > > anxiety or depression just take a valum and call it a day till they > > feel I have had it in my systom long enough for them to finally give > > me the blood work I need done? AHHHHHHHHH.... I need some angels here > > again... I know you all are not doctors, but neither am I and I seem > > to be working on my own here.. Any advice even if it is " get a grip > > Liz " advice would be gladly appeciated .. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 I certainly feel worse now that I'm on synthroid than I did before I started taking it - physically. All I want to do is sleep. I'm really having a rough time getting off the sofa. At least my moods are stable ( & I'm a rapid cycler). I have been bipolar most of my life - since I was a teenager. My thyroid has been tested over & over, all along my life, and has always tested *normal.* But, I wonder, if it was *normal* for me? Perhaps what is normal for others isn't normal for me? Anyway, my son is also being dx bipolar - he is 12. Should he have his thyroid tested????? He has some serious meltdowns!! But I'm waiting for a court date for disability, for bipolar, so I'm not going to fight my dx right now. Whatever is wrong with me, I can't work or manage a *real* life. I am lucky I can make it to the bathroom, LOL. hugs, peg " Life is like a beautiful melody, only the lyrics are messed up. " ~ Anonymous > > Okay, I think 4 months is a long time to wait to see the doctor.. > God, you sound like me a few years ago. Not to say that you do not > have bipolor, but I would really look into this further. I was a mess > until the the thyroid meds kicked in. Again, I would see things on > the walls, a burning cross, men wearing black capes comming after > me. Hearing things that no one else would hear.. I would scream and > cry alot. I wouldn't get out of bed, and the blankets would be over > my head ... all the time.. now for the normal me, I can't stand > anything confinding especially anything covering my head.... so it > was a serious drawback for me.I would sleep ALL THE TIME>>> Thyroid > can seriously mess you up in a big way. And I have found that with my > own research ( not a doctor here) that anyone who is having problems > with depression, anything in the " mental " way should really look into > their thyroid. Alot of " mental " things that have happened to me was > dismissed as a " mental condition " when in fact it wasn't that at all, > it was the thyroid. I have found that I am not a normal book case > thyroid person. thanks for the reply and keep me posted on you.. I > would like to hear how things are with you and what your and their ( > doctors) findings are. I think for myself, I am going to try > splitting my pill, and calling some places in Pittsburgh. Chat with > you soon.. Liz > > > > > > > > > > > > > I am so tired of all of this. I hate doctors! Not all doctors, > just > > > mine. lol.. They think " they " know my body better than I do. I am > > > getting tired of being passed off as a " mental case " . Right now, > I am > > > on the synthyroid pill, only at 25mil. About a month ago, I was > on > > > 200mil. Okay, many questions are running through your head right > now, > > > and some of you angels have answered my posts and possible > remember > > > my pleas from before. Going back two years ago, I turned into > > > a " mental case " kind of out of the blue. Social phobia, anxiety, > > > depression.. The doc put me on zoloft without checking blood > stats to > > > see if I had a thyroid condition. After months of seeing things > that > > > were only in my head, and depression so bad that I wouldn't even > get > > > out of the bed , My husband switched doctors for me, and the new > doc > > > took a look at me and said " it's your thyroid " ...... blood tests > were > > > done and yep, that's what it was. I was almost 300 pounds. After > > > being on the synthyroid for just a matter of a couple of weeks, > I saw > > > a difference. Ok, so a year later, I had stomach surgery. I had > lost > > > 120 lbs.. Started with some weird symptoms of passing out and > > > seizures. Doc again had many many tests done and could not > figure out > > > what was going on. Well, doing research on the puter, I finally > > > figured out that it has to be one of the many pills I was on. > With > > > process of elimination of medication, I found that seizures were > > > being caused by the zoloft..Haven't been back on that pill for > about > > > 3 months now. No seizures.....Only on one pill, the thyroid > pill, I > > > was passing out all the time. 6 to 10 times a day. Ok, it must > be the > > > synthroid pill. again, I was on the 200mil at a weight of 140 lbs > > > now. Remember I had the stomach surgery, so now I was at the > point to > > > think that maybe I was getting to much thyroid. Doctors would > dimiss > > > anything I would tell them, still doing tests at my requests, > still, > > > they would give me the feeling that I was making this stuff up. > So, I > > > stopped the tyroid pill all together. Hey.. no passing out! It > was > > > the pill after all.. WEll, this was not a good idea, for then > other > > > things were starting to happen.. I started having " small > stokes " . Ok, > > > this is where my left side of my body would go completly numb for > > > awhile, my face would even be droopy. Called the doc, more tests > were > > > done on my head and heart. All came back normal...Ok, went to > see a > > > thyroid expect, wanted me to stil stay off the thyrois pill for > > > another few weeks so he could do a chemical scan on thyroid. > Well, > > > after a week more of not taking the synthyoid pill, I was > starting to > > > see things and hear things again. I would be hitting myself in > the > > > head and would ramble on,even suicide thoughts... hubby decided > to > > > call doctor on his own and demand to be put on low dose of > thyroid > > > meds. Against their judgement and telling him that that is not > signs > > > of thyroid and being really nasty towards him, they put me back > on > > > it. Well guess > > > what........... after just 10 days of being back on, the seeing > thigs > > > and > > > thoughts went away, as well as the depression.. Cool right? I > would > > > think. At 14 days taking the med, Anxiety was stating back up, > but > > > only in the evening ( would take the pill on an empty stomach in > the > > > am).. maybe not taking enough to carry me thoughout the day.. > Easy > > > enought to think that anyways.. so I called the doctor only to > get a > > > nasty receptionist telling > > > me it takes 6 weeks to see a diffeerence. Yes, I agree, but my > body > > > seems to think that maybe it works a bit faster for me.. how > about > > > some blood tests.. easy enough? right? nope, they refuse. So, > again, > > > back on my own here.. I decided to up my own dose to 50 ( this > was > > > just yesterday). Just to see what happens.. Well within two > hours of > > > taking the extra dose, the passing out started again.. Who ever > says > > > this med doesn't work right away hasn't met me, that is for sure. > > > Althought I was passing out, I had no signs of depression or > anxiety. > > > okay, today I am just on the 25 mil again. Thinking of cutting > pill > > > in half and trying the 25 plus cutting the pill (25 mil) in half > and > > > see where that takes me. Although very scared to try this pigs > pill > > > you guys have told me about because I am afraid of seeing things > on > > > the wall again telling me to kill myself, I am just about ready > > > to " Go for it " ... Anyhoo, getting back to my ligitimate bitch > here > > > about my doctors, they think I am nuts. I just wish they would > just > > > take a min to hear me out and look into my situation. I feel > totally > > > alone here in this city. My brother had told me our > chiropractor, who > > > I just love to death and admire, said that our " specialist " here > in > > > Erie, PA, are not really specialists.. that I should go to > > > Pittsburgh, a bigger city and a 2 hour drive away to find help. > He > > > even offered some names of who he would recommend. WEll, what do > you > > > guys think? Am I nuts?? Should I use my chropractors advice and > find > > > a doc in PIttsburgh? or /should I stop taking the synthyroid > pill for > > > awhile then start on the pig pill? I do not have the money to > have > > > own blood test done, but I can't afford to be without any meds > for > > > this thyroid. Doctors won't let me have the blood work done. > Should I > > > just lean back for awhile and take the time into it and if I > feel the > > > anxiety or depression just take a valum and call it a day till > they > > > feel I have had it in my systom long enough for them to finally > give > > > me the blood work I need done? AHHHHHHHHH.... I need some angels > here > > > again... I know you all are not doctors, but neither am I and I > seem > > > to be working on my own here.. Any advice even if it is " get a > grip > > > Liz " advice would be gladly appeciated .. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 I certainly feel worse now that I'm on synthroid than I did before I started taking it - physically. All I want to do is sleep. I'm really having a rough time getting off the sofa. At least my moods are stable ( & I'm a rapid cycler). I have been bipolar most of my life - since I was a teenager. My thyroid has been tested over & over, all along my life, and has always tested *normal.* But, I wonder, if it was *normal* for me? Perhaps what is normal for others isn't normal for me? Anyway, my son is also being dx bipolar - he is 12. Should he have his thyroid tested????? He has some serious meltdowns!! But I'm waiting for a court date for disability, for bipolar, so I'm not going to fight my dx right now. Whatever is wrong with me, I can't work or manage a *real* life. I am lucky I can make it to the bathroom, LOL. hugs, peg " Life is like a beautiful melody, only the lyrics are messed up. " ~ Anonymous > > Okay, I think 4 months is a long time to wait to see the doctor.. > God, you sound like me a few years ago. Not to say that you do not > have bipolor, but I would really look into this further. I was a mess > until the the thyroid meds kicked in. Again, I would see things on > the walls, a burning cross, men wearing black capes comming after > me. Hearing things that no one else would hear.. I would scream and > cry alot. I wouldn't get out of bed, and the blankets would be over > my head ... all the time.. now for the normal me, I can't stand > anything confinding especially anything covering my head.... so it > was a serious drawback for me.I would sleep ALL THE TIME>>> Thyroid > can seriously mess you up in a big way. And I have found that with my > own research ( not a doctor here) that anyone who is having problems > with depression, anything in the " mental " way should really look into > their thyroid. Alot of " mental " things that have happened to me was > dismissed as a " mental condition " when in fact it wasn't that at all, > it was the thyroid. I have found that I am not a normal book case > thyroid person. thanks for the reply and keep me posted on you.. I > would like to hear how things are with you and what your and their ( > doctors) findings are. I think for myself, I am going to try > splitting my pill, and calling some places in Pittsburgh. Chat with > you soon.. Liz > > > > > > > > > > > > > I am so tired of all of this. I hate doctors! Not all doctors, > just > > > mine. lol.. They think " they " know my body better than I do. I am > > > getting tired of being passed off as a " mental case " . Right now, > I am > > > on the synthyroid pill, only at 25mil. About a month ago, I was > on > > > 200mil. Okay, many questions are running through your head right > now, > > > and some of you angels have answered my posts and possible > remember > > > my pleas from before. Going back two years ago, I turned into > > > a " mental case " kind of out of the blue. Social phobia, anxiety, > > > depression.. The doc put me on zoloft without checking blood > stats to > > > see if I had a thyroid condition. After months of seeing things > that > > > were only in my head, and depression so bad that I wouldn't even > get > > > out of the bed , My husband switched doctors for me, and the new > doc > > > took a look at me and said " it's your thyroid " ...... blood tests > were > > > done and yep, that's what it was. I was almost 300 pounds. After > > > being on the synthyroid for just a matter of a couple of weeks, > I saw > > > a difference. Ok, so a year later, I had stomach surgery. I had > lost > > > 120 lbs.. Started with some weird symptoms of passing out and > > > seizures. Doc again had many many tests done and could not > figure out > > > what was going on. Well, doing research on the puter, I finally > > > figured out that it has to be one of the many pills I was on. > With > > > process of elimination of medication, I found that seizures were > > > being caused by the zoloft..Haven't been back on that pill for > about > > > 3 months now. No seizures.....Only on one pill, the thyroid > pill, I > > > was passing out all the time. 6 to 10 times a day. Ok, it must > be the > > > synthroid pill. again, I was on the 200mil at a weight of 140 lbs > > > now. Remember I had the stomach surgery, so now I was at the > point to > > > think that maybe I was getting to much thyroid. Doctors would > dimiss > > > anything I would tell them, still doing tests at my requests, > still, > > > they would give me the feeling that I was making this stuff up. > So, I > > > stopped the tyroid pill all together. Hey.. no passing out! It > was > > > the pill after all.. WEll, this was not a good idea, for then > other > > > things were starting to happen.. I started having " small > stokes " . Ok, > > > this is where my left side of my body would go completly numb for > > > awhile, my face would even be droopy. Called the doc, more tests > were > > > done on my head and heart. All came back normal...Ok, went to > see a > > > thyroid expect, wanted me to stil stay off the thyrois pill for > > > another few weeks so he could do a chemical scan on thyroid. > Well, > > > after a week more of not taking the synthyoid pill, I was > starting to > > > see things and hear things again. I would be hitting myself in > the > > > head and would ramble on,even suicide thoughts... hubby decided > to > > > call doctor on his own and demand to be put on low dose of > thyroid > > > meds. Against their judgement and telling him that that is not > signs > > > of thyroid and being really nasty towards him, they put me back > on > > > it. Well guess > > > what........... after just 10 days of being back on, the seeing > thigs > > > and > > > thoughts went away, as well as the depression.. Cool right? I > would > > > think. At 14 days taking the med, Anxiety was stating back up, > but > > > only in the evening ( would take the pill on an empty stomach in > the > > > am).. maybe not taking enough to carry me thoughout the day.. > Easy > > > enought to think that anyways.. so I called the doctor only to > get a > > > nasty receptionist telling > > > me it takes 6 weeks to see a diffeerence. Yes, I agree, but my > body > > > seems to think that maybe it works a bit faster for me.. how > about > > > some blood tests.. easy enough? right? nope, they refuse. So, > again, > > > back on my own here.. I decided to up my own dose to 50 ( this > was > > > just yesterday). Just to see what happens.. Well within two > hours of > > > taking the extra dose, the passing out started again.. Who ever > says > > > this med doesn't work right away hasn't met me, that is for sure. > > > Althought I was passing out, I had no signs of depression or > anxiety. > > > okay, today I am just on the 25 mil again. Thinking of cutting > pill > > > in half and trying the 25 plus cutting the pill (25 mil) in half > and > > > see where that takes me. Although very scared to try this pigs > pill > > > you guys have told me about because I am afraid of seeing things > on > > > the wall again telling me to kill myself, I am just about ready > > > to " Go for it " ... Anyhoo, getting back to my ligitimate bitch > here > > > about my doctors, they think I am nuts. I just wish they would > just > > > take a min to hear me out and look into my situation. I feel > totally > > > alone here in this city. My brother had told me our > chiropractor, who > > > I just love to death and admire, said that our " specialist " here > in > > > Erie, PA, are not really specialists.. that I should go to > > > Pittsburgh, a bigger city and a 2 hour drive away to find help. > He > > > even offered some names of who he would recommend. WEll, what do > you > > > guys think? Am I nuts?? Should I use my chropractors advice and > find > > > a doc in PIttsburgh? or /should I stop taking the synthyroid > pill for > > > awhile then start on the pig pill? I do not have the money to > have > > > own blood test done, but I can't afford to be without any meds > for > > > this thyroid. Doctors won't let me have the blood work done. > Should I > > > just lean back for awhile and take the time into it and if I > feel the > > > anxiety or depression just take a valum and call it a day till > they > > > feel I have had it in my systom long enough for them to finally > give > > > me the blood work I need done? AHHHHHHHHH.... I need some angels > here > > > again... I know you all are not doctors, but neither am I and I > seem > > > to be working on my own here.. Any advice even if it is " get a > grip > > > Liz " advice would be gladly appeciated .. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 I certainly feel worse now that I'm on synthroid than I did before I started taking it - physically. All I want to do is sleep. I'm really having a rough time getting off the sofa. At least my moods are stable ( & I'm a rapid cycler). I have been bipolar most of my life - since I was a teenager. My thyroid has been tested over & over, all along my life, and has always tested *normal.* But, I wonder, if it was *normal* for me? Perhaps what is normal for others isn't normal for me? Anyway, my son is also being dx bipolar - he is 12. Should he have his thyroid tested????? He has some serious meltdowns!! But I'm waiting for a court date for disability, for bipolar, so I'm not going to fight my dx right now. Whatever is wrong with me, I can't work or manage a *real* life. I am lucky I can make it to the bathroom, LOL. hugs, peg " Life is like a beautiful melody, only the lyrics are messed up. " ~ Anonymous > > Okay, I think 4 months is a long time to wait to see the doctor.. > God, you sound like me a few years ago. Not to say that you do not > have bipolor, but I would really look into this further. I was a mess > until the the thyroid meds kicked in. Again, I would see things on > the walls, a burning cross, men wearing black capes comming after > me. Hearing things that no one else would hear.. I would scream and > cry alot. I wouldn't get out of bed, and the blankets would be over > my head ... all the time.. now for the normal me, I can't stand > anything confinding especially anything covering my head.... so it > was a serious drawback for me.I would sleep ALL THE TIME>>> Thyroid > can seriously mess you up in a big way. And I have found that with my > own research ( not a doctor here) that anyone who is having problems > with depression, anything in the " mental " way should really look into > their thyroid. Alot of " mental " things that have happened to me was > dismissed as a " mental condition " when in fact it wasn't that at all, > it was the thyroid. I have found that I am not a normal book case > thyroid person. thanks for the reply and keep me posted on you.. I > would like to hear how things are with you and what your and their ( > doctors) findings are. I think for myself, I am going to try > splitting my pill, and calling some places in Pittsburgh. Chat with > you soon.. Liz > > > > > > > > > > > > > I am so tired of all of this. I hate doctors! Not all doctors, > just > > > mine. lol.. They think " they " know my body better than I do. I am > > > getting tired of being passed off as a " mental case " . Right now, > I am > > > on the synthyroid pill, only at 25mil. About a month ago, I was > on > > > 200mil. Okay, many questions are running through your head right > now, > > > and some of you angels have answered my posts and possible > remember > > > my pleas from before. Going back two years ago, I turned into > > > a " mental case " kind of out of the blue. Social phobia, anxiety, > > > depression.. The doc put me on zoloft without checking blood > stats to > > > see if I had a thyroid condition. After months of seeing things > that > > > were only in my head, and depression so bad that I wouldn't even > get > > > out of the bed , My husband switched doctors for me, and the new > doc > > > took a look at me and said " it's your thyroid " ...... blood tests > were > > > done and yep, that's what it was. I was almost 300 pounds. After > > > being on the synthyroid for just a matter of a couple of weeks, > I saw > > > a difference. Ok, so a year later, I had stomach surgery. I had > lost > > > 120 lbs.. Started with some weird symptoms of passing out and > > > seizures. Doc again had many many tests done and could not > figure out > > > what was going on. Well, doing research on the puter, I finally > > > figured out that it has to be one of the many pills I was on. > With > > > process of elimination of medication, I found that seizures were > > > being caused by the zoloft..Haven't been back on that pill for > about > > > 3 months now. No seizures.....Only on one pill, the thyroid > pill, I > > > was passing out all the time. 6 to 10 times a day. Ok, it must > be the > > > synthroid pill. again, I was on the 200mil at a weight of 140 lbs > > > now. Remember I had the stomach surgery, so now I was at the > point to > > > think that maybe I was getting to much thyroid. Doctors would > dimiss > > > anything I would tell them, still doing tests at my requests, > still, > > > they would give me the feeling that I was making this stuff up. > So, I > > > stopped the tyroid pill all together. Hey.. no passing out! It > was > > > the pill after all.. WEll, this was not a good idea, for then > other > > > things were starting to happen.. I started having " small > stokes " . Ok, > > > this is where my left side of my body would go completly numb for > > > awhile, my face would even be droopy. Called the doc, more tests > were > > > done on my head and heart. All came back normal...Ok, went to > see a > > > thyroid expect, wanted me to stil stay off the thyrois pill for > > > another few weeks so he could do a chemical scan on thyroid. > Well, > > > after a week more of not taking the synthyoid pill, I was > starting to > > > see things and hear things again. I would be hitting myself in > the > > > head and would ramble on,even suicide thoughts... hubby decided > to > > > call doctor on his own and demand to be put on low dose of > thyroid > > > meds. Against their judgement and telling him that that is not > signs > > > of thyroid and being really nasty towards him, they put me back > on > > > it. Well guess > > > what........... after just 10 days of being back on, the seeing > thigs > > > and > > > thoughts went away, as well as the depression.. Cool right? I > would > > > think. At 14 days taking the med, Anxiety was stating back up, > but > > > only in the evening ( would take the pill on an empty stomach in > the > > > am).. maybe not taking enough to carry me thoughout the day.. > Easy > > > enought to think that anyways.. so I called the doctor only to > get a > > > nasty receptionist telling > > > me it takes 6 weeks to see a diffeerence. Yes, I agree, but my > body > > > seems to think that maybe it works a bit faster for me.. how > about > > > some blood tests.. easy enough? right? nope, they refuse. So, > again, > > > back on my own here.. I decided to up my own dose to 50 ( this > was > > > just yesterday). Just to see what happens.. Well within two > hours of > > > taking the extra dose, the passing out started again.. Who ever > says > > > this med doesn't work right away hasn't met me, that is for sure. > > > Althought I was passing out, I had no signs of depression or > anxiety. > > > okay, today I am just on the 25 mil again. Thinking of cutting > pill > > > in half and trying the 25 plus cutting the pill (25 mil) in half > and > > > see where that takes me. Although very scared to try this pigs > pill > > > you guys have told me about because I am afraid of seeing things > on > > > the wall again telling me to kill myself, I am just about ready > > > to " Go for it " ... Anyhoo, getting back to my ligitimate bitch > here > > > about my doctors, they think I am nuts. I just wish they would > just > > > take a min to hear me out and look into my situation. I feel > totally > > > alone here in this city. My brother had told me our > chiropractor, who > > > I just love to death and admire, said that our " specialist " here > in > > > Erie, PA, are not really specialists.. that I should go to > > > Pittsburgh, a bigger city and a 2 hour drive away to find help. > He > > > even offered some names of who he would recommend. WEll, what do > you > > > guys think? Am I nuts?? Should I use my chropractors advice and > find > > > a doc in PIttsburgh? or /should I stop taking the synthyroid > pill for > > > awhile then start on the pig pill? I do not have the money to > have > > > own blood test done, but I can't afford to be without any meds > for > > > this thyroid. Doctors won't let me have the blood work done. > Should I > > > just lean back for awhile and take the time into it and if I > feel the > > > anxiety or depression just take a valum and call it a day till > they > > > feel I have had it in my systom long enough for them to finally > give > > > me the blood work I need done? AHHHHHHHHH.... I need some angels > here > > > again... I know you all are not doctors, but neither am I and I > seem > > > to be working on my own here.. Any advice even if it is " get a > grip > > > Liz " advice would be gladly appeciated .. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 I just read that hypothyroidism can cause increased cycling in bipolar disorder. So, that could be why I was a rapid cycler ........ Interesting. hugs, peg " Life is like a beautiful melody, only the lyrics are messed up. " ~ Anonymous Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 This is where I am. It's been a month since I was cutting the 100mcgs in half. Doc told me it would take me " months " to feel better after something like that. But I feel worse now that before I ever started taking anything. At first, maybe 3 weeks into taking synthroid, I felt wonderful. Could get up & out, do things. Now I can barely get off the sofa. Feel like my arms & legs are leaden. Spent a couple days just sleeping. I sleep an average of 11 hours a night! I remember my dreams - not bad ones. I may wake up a couple times a night, but not for very long. (I take 50mcgs synthroid, about 5:30am, empty stomach. I take other meds at 9:30am.) I have a horrible diet. I recently reduced my seroquel from 200mgs to 150mgs - it is a weight gainer drug (anti-psychotic - for my bipolar). I think the seroquel messed up my thyroid, btw. I'm trying to completely cut it out, but I need some to sleep --- or I did before starting the synthroid, LOL. BTW, hypothroidism can cause rapid cycling in bipolars and that was what I was dx with! Since starting synthroid, I've been *even* and haven't been cycling all over the place. So, the synthroid has worked wonders on the bipolar. It has also been known to be used as a mood stabilizer! But I'm wondering if cutting down the seroquel has made me feel worse?? I only know I don't like sleeping or feeling like *dead weight* all the time - which is why I was cutting the seroquel. I'm also wondering if cutting out the seroquel, my thyroid will return to *normal?* This is a horrible disease. I thought bipolar was bad ........ hugs, peg <snip> > So... things that are coming to my sleep deprived mind (I've been up > for 30 1/2 hours and still counting)if you are dealing with > antibodies... the antibodies are going to cause your own thyroid's > production to vary.... A suppressive dose of Synthroid will make you > feel better at first.. then as the thyroid production slows you'll > feel worse. > Â <snip> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Ahhh, one of my angels ( Troper ) that I have spoken of has answered, and asked many many questions... lol... okay, let's see if I can answer any of these questions, but before I do, while I was sleeping this afternoon, after I posted my note here, Hubby called a doctor friend of his ( from our church) and has made an apt with a recommended new doctor for me on December 6th. So, I will be getting all my records soon and then I will have everything in front of me to tell you all of my blood test stats. Anyways, back to questions... 1. No i do not have any blood work stuff in front of me, but I will here in the next few days, we can then disect that then. 2. yes, I meant mcg's not mil's, sorry. 3. When hubby called to put me back on the thyroid med, he asked for a new rx without the dye in it, thought maybe I was having a reaction to the dyes in the thyroid pill. The only one that doesn't have any dyes in it is the 50 mcg's. So I have to cut them in half. So I am working off the same bottle of pills, not other pills of other doses. 4. Nope, they have not tried any thing else except for the Synthroid. I was told that there was no other pills. ( Do you now get that I am working with doctors who have no clue here) 5. Taking pill on empty stomach or full... Empty first thing in the am. an hour before food. 6. How often do you eat and what types of foods - high fiber, high carb....Honestly, I am not a morning eater, I do start to eat around 10 or 11:am. Ususally a lunch of some sort, since I have a small stomach now since surgery, I don't eat very much. Sometimes a cin and raisin bagel ( maybe 4 small bites of one) with no fat cream cheese. Sometimes a turkey slice with a a little bit of mayo for flavor on bread, but then again, not the whole sandwhich due to the stomach thing again. 7.Seems like bowel habbits are the same. I go every other day, and it's pretty normal for me since the surgery. I haven't been constipated in awhile. 8. Tell me about your sleep patterns... when to bed, when to wake, sleep > sound, dreams, nightmares, sleep soundly, wake often... that kind of > stuff... Bedtime usually around 11:30, but sometimes I can't sleep right away. NO, don't remember dreams at all. Half the time I wake up in the morn and feel like I got no sleep at all. I get up early to get the kids ready and off to school around 7:am. Latley I have to get a nap in or I am a real cranky butt. Never used to be like that at all. Usually the nap is around 1:pm ish and lasts sometimes till just before i have to pick up kids, or of hubby is home, he won't wake me up till 4:30ish. I could sleep all day if someone would let me. Not is not me either. I am normally a going concern ( like a cat with a plastic bag tied to it's tail from the moment I wake till bedtime). 9. To cause the hallucinations and such, it's a chemical imbalance.. but > why? What is causing it? Is it an allergy to food or the pill's fillers? I would have the hallucinations only when I was not taking the synthyroid pill for a few weeks time. Then when I would go back on the pill, only after a few days time, they would go away. SO to answer your question is very hard for me since it seems that the thyroid pill itself took it the hallucinations away for me. Now the hallucinations had happened before, and this was before they found out I had thyroid problems. As soon as I was put on the pill, again, it only tooka few days, the hallucinations would stop. Once on the synthroid for almost two years, never not once even did I have any hallucinations. Not until I stopped the synthroid pill. That is why I feel it really isn't a " mental " sort of thing, that it is a thyroid thing. 10 .Could it have anything to do with some type of adrenal fluctuation that > is shadowing changes in thyroid med adjustments... You lost me at adrenal.......... 11.Could your body just be really sporadic in conversion? Huh???? Well, that is the best answers I could come up with . A few of them were a bit complex for me to understand. I will have tests results ( old ones though) real soon as for I am changing doctors so I will have them in front of me. I will not know at the time what to wirte down or even what to look for, so that will be another post when I get them. Bare with me on that. I thank you so much for being my " angel " again.. Liz > Hi Liz, > > I know that you're really frustrated with this, and rightly so... but > there has to be a reason. > > You may have said some of this already... bear with us as we ask another > round of questions and see what our communal sets of eyes, ears and > brains spot. > > Do you have copies of your labs... so we can see what they've tested and > what the results were - don't forget we need the lab's ranges too. > > I believe you meant mcg even though you were typing mil..... so the dose > that you are on... 25 mcg and 50 mcg can often be suppressive doses, > depending on what your body needs. > > So... things that are coming to my sleep deprived mind (I've been up for > 30 1/2 hours and still counting)if you are dealing with antibodies... the > antibodies are going to cause your own thyroid's production to vary.... A > suppressive dose of Synthroid will make you feel better at first.. then > as the thyroid production slows you'll feel worse. > > You may not be reacting to the T4 in the Synthroid... you may be reacting > to the fillers in the tablet... so with that thought in mind.... have you > been using the same bottle of meds, or have you used different bottles > (either another bottle of the same dose or bottles of different doses). > > Have they let you try other brands - Levoxyl or Levothroid? > > What do your basals look like as you go through these stages..? > > There has to be something here that we haven't seen yet... we just need > you to keep telling us what you are doing, no matter how silly.... > > Taking pill on empty stomach or full... > What time of day - always the same or different.... > How often do you eat and what types of foods - high fiber, high carb.... > all mixed up... any changes in patterns? > As you go through the stages do your bowel habits change - constipated to > diarrhea... or frequency of movements.... > > Tell me about your sleep patterns... when to bed, when to wake, sleep > sound, dreams, nightmares, sleep soundly, wake often... that kind of > stuff... > > To cause the hallucinations and such, it's a chemical imbalance.. but > why? What is causing it? Is it an allergy to food or the pill's fillers? > Could it have anything to do with some type of adrenal fluctuation that > is shadowing changes in thyroid med adjustments... > > Could your body just be really sporadic in conversion? > > I know Synthroid can cause quick reactions in some... when I first > started on it it made me ill... it took two years of messing around with > doses and different brands and splitting tabs and multi-dosing until I > could take it without wanting to barf my guts our or get headaches and > what not.... > > The pig pills. Natural Thyroid.... there are different fillers used.... > natural T4 without the extra sodium added to it.... and direct T3... also > the option of taking it sublingually making each dose MUCH MUCH more > consistent that what you can do with swallowing T4 only synthetics. > > You're working with a doctor.... so I'm not sure... but the Nutri- Meds > porcine thyroid are made from the same desiccated thyroid as the > prescription grade naturals, but are weaker per tab.... not as potent.... > I'm wondering if trying those, splitting the tabs to get really small > doses.. would be something worth trying.... maybe talk to your doc... > > Let's see what others in the group come up with... our heads, combined.. > usually do pretty good around here. > > Topper () > > On Thu, 11 Nov 2004 15:55:19 -0000 " liznick33 " <jlnick@v...> > writes: > > I am so tired of all of this. I hate doctors! Not all doctors, just > mine. lol.. They think " they " know my body better than I do. I am > getting tired of being passed off as a " mental case " . Right now, I am > on the synthyroid pill, only at 25mil. About a month ago, I was on > 200mil. Okay, many questions are running through your head right now, > and some of you angels have answered my posts and possible remember > my pleas from before. Going back two years ago, I turned into > a " mental case " kind of out of the blue. Social phobia, anxiety, > depression.. The doc put me on zoloft without checking blood stats to > see if I had a thyroid condition. After months of seeing things that > were only in my head, and depression so bad that I wouldn't even get > out of the bed , My husband switched doctors for me, and the new doc > took a look at me and said " it's your thyroid " ...... blood tests were > done and yep, that's what it was. I was almost 300 pounds. After > being on the synthyroid for just a matter of a couple of weeks, I saw > a difference. Ok, so a year later, I had stomach surgery. I had lost > 120 lbs.. Started with some weird symptoms of passing out and > seizures. Doc again had many many tests done and could not figure out > what was going on. Well, doing research on the puter, I finally > figured out that it has to be one of the many pills I was on. With > process of elimination of medication, I found that seizures were > being caused by the zoloft..Haven't been back on that pill for about > 3 months now. No seizures.....Only on one pill, the thyroid pill, I > was passing out all the time. 6 to 10 times a day. Ok, it must be the > synthroid pill. again, I was on the 200mil at a weight of 140 lbs > now. Remember I had the stomach surgery, so now I was at the point to > think that maybe I was getting to much thyroid. Doctors would dimiss > anything I would tell them, still doing tests at my requests, still, > they would give me the feeling that I was making this stuff up. So, I > stopped the tyroid pill all together. Hey.. no passing out! It was > the pill after all.. WEll, this was not a good idea, for then other > things were starting to happen.. I started having " small stokes " . Ok, > this is where my left side of my body would go completly numb for > awhile, my face would even be droopy. Called the doc, more tests were > done on my head and heart. All came back normal...Ok, went to see a > thyroid expect, wanted me to stil stay off the thyrois pill for > another few weeks so he could do a chemical scan on thyroid. Well, > after a week more of not taking the synthyoid pill, I was starting to > see things and hear things again. I would be hitting myself in the > head and would ramble on,even suicide thoughts... hubby decided to > call doctor on his own and demand to be put on low dose of thyroid > meds. Against their judgement and telling him that that is not signs > of thyroid and being really nasty towards him, they put me back on > it. Well guess > what........... after just 10 days of being back on, the seeing thigs > and > thoughts went away, as well as the depression.. Cool right? I would > think. At 14 days taking the med, Anxiety was stating back up, but > only in the evening ( would take the pill on an empty stomach in the > am).. maybe not taking enough to carry me thoughout the day.. Easy > enought to think that anyways.. so I called the doctor only to get a > nasty receptionist telling > me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body > seems to think that maybe it works a bit faster for me.. how about > some blood tests.. easy enough? right? nope, they refuse. So, again, > back on my own here.. I decided to up my own dose to 50 ( this was > just yesterday). Just to see what happens.. Well within two hours of > taking the extra dose, the passing out started again.. Who ever says > this med doesn't work right away hasn't met me, that is for sure. > Althought I was passing out, I had no signs of depression or anxiety. > okay, today I am just on the 25 mil again. Thinking of cutting pill > in half and trying the 25 plus cutting the pill (25 mil) in half and > see where that takes me. Although very scared to try this pigs pill > you guys have told me about because I am afraid of seeing things on > the wall again telling me to kill myself, I am just about ready > to " Go for it " ... Anyhoo, getting back to my ligitimate bitch here > about my doctors, they think I am nuts. I just wish they would just > take a min to hear me out and look into my situation. I feel totally > alone here in this city. My brother had told me our chiropractor, who > I just love to death and admire, said that our " specialist " here in > Erie, PA, are not really specialists.. that I should go to > Pittsburgh, a bigger city and a 2 hour drive away to find help. He > even offered some names of who he would recommend. WEll, what do you > guys think? Am I nuts?? Should I use my chropractors advice and find > a doc in PIttsburgh? or /should I stop taking the synthyroid pill for > awhile then start on the pig pill? I do not have the money to have > own blood test done, but I can't afford to be without any meds for > this thyroid. Doctors won't let me have the blood work done. Should I > just lean back for awhile and take the time into it and if I feel the > anxiety or depression just take a valum and call it a day till they > feel I have had it in my systom long enough for them to finally give > me the blood work I need done? AHHHHHHHHH.... I need some angels here > again... I know you all are not doctors, but neither am I and I seem > to be working on my own here.. Any advice even if it is " get a grip > Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 > > Hi Liz, > > > > I know that you're really frustrated with this, and rightly so... > but > > there has to be a reason. > > > > You may have said some of this already... bear with us as we ask > another > > round of questions and see what our communal sets of eyes, ears and > > brains spot. > > > > Do you have copies of your labs... so we can see what they've > tested and > > what the results were - don't forget we need the lab's ranges too. > > > > I believe you meant mcg even though you were typing mil..... so the > dose > > that you are on... 25 mcg and 50 mcg can often be suppressive doses, > > depending on what your body needs. > > > > So... things that are coming to my sleep deprived mind (I've been > up for > > 30 1/2 hours and still counting)if you are dealing with > antibodies... the > > antibodies are going to cause your own thyroid's production to > vary.... A > > suppressive dose of Synthroid will make you feel better at first.. > then > > as the thyroid production slows you'll feel worse. > > > > You may not be reacting to the T4 in the Synthroid... you may be > reacting > > to the fillers in the tablet... so with that thought in mind.... > have you > > been using the same bottle of meds, or have you used different > bottles > > (either another bottle of the same dose or bottles of different > doses). > > > > Have they let you try other brands - Levoxyl or Levothroid? > > > > What do your basals look like as you go through these stages..? > > > > There has to be something here that we haven't seen yet... we just > need > > you to keep telling us what you are doing, no matter how silly.... > > > > Taking pill on empty stomach or full... > > What time of day - always the same or different.... > > How often do you eat and what types of foods - high fiber, high > carb.... > > all mixed up... any changes in patterns? > > As you go through the stages do your bowel habits change - > constipated to > > diarrhea... or frequency of movements.... > > > > Tell me about your sleep patterns... when to bed, when to wake, > sleep > > sound, dreams, nightmares, sleep soundly, wake often... that kind of > > stuff... > > > > To cause the hallucinations and such, it's a chemical imbalance.. > but > > why? What is causing it? Is it an allergy to food or the pill's > fillers? > > Could it have anything to do with some type of adrenal fluctuation > that > > is shadowing changes in thyroid med adjustments... > > > > Could your body just be really sporadic in conversion? > > > > I know Synthroid can cause quick reactions in some... when I first > > started on it it made me ill... it took two years of messing around > with > > doses and different brands and splitting tabs and multi-dosing > until I > > could take it without wanting to barf my guts our or get headaches > and > > what not.... > > > > The pig pills. Natural Thyroid.... there are different fillers > used.... > > natural T4 without the extra sodium added to it.... and direct > T3... also > > the option of taking it sublingually making each dose MUCH MUCH more > > consistent that what you can do with swallowing T4 only synthetics. > > > > You're working with a doctor.... so I'm not sure... but the Nutri- > Meds > > porcine thyroid are made from the same desiccated thyroid as the > > prescription grade naturals, but are weaker per tab.... not as > potent.... > > I'm wondering if trying those, splitting the tabs to get really > small > > doses.. would be something worth trying.... maybe talk to your > doc... > > > > Let's see what others in the group come up with... our heads, > combined.. > > usually do pretty good around here. > > > > Topper () > > > > On Thu, 11 Nov 2004 15:55:19 -0000 " liznick33 " <jlnick@v...> > > writes: > > > > I am so tired of all of this. I hate doctors! Not all doctors, just > > mine. lol.. They think " they " know my body better than I do. I am > > getting tired of being passed off as a " mental case " . Right now, I > am > > on the synthyroid pill, only at 25mil. About a month ago, I was on > > 200mil. Okay, many questions are running through your head right > now, > > and some of you angels have answered my posts and possible remember > > my pleas from before. Going back two years ago, I turned into > > a " mental case " kind of out of the blue. Social phobia, anxiety, > > depression.. The doc put me on zoloft without checking blood stats > to > > see if I had a thyroid condition. After months of seeing things > that > > were only in my head, and depression so bad that I wouldn't even > get > > out of the bed , My husband switched doctors for me, and the new > doc > > took a look at me and said " it's your thyroid " ...... blood tests > were > > done and yep, that's what it was. I was almost 300 pounds. After > > being on the synthyroid for just a matter of a couple of weeks, I > saw > > a difference. Ok, so a year later, I had stomach surgery. I had > lost > > 120 lbs.. Started with some weird symptoms of passing out and > > seizures. Doc again had many many tests done and could not figure > out > > what was going on. Well, doing research on the puter, I finally > > figured out that it has to be one of the many pills I was on. With > > process of elimination of medication, I found that seizures were > > being caused by the zoloft..Haven't been back on that pill for > about > > 3 months now. No seizures.....Only on one pill, the thyroid pill, I > > was passing out all the time. 6 to 10 times a day. Ok, it must be > the > > synthroid pill. again, I was on the 200mil at a weight of 140 lbs > > now. Remember I had the stomach surgery, so now I was at the point > to > > think that maybe I was getting to much thyroid. Doctors would > dimiss > > anything I would tell them, still doing tests at my requests, > still, > > they would give me the feeling that I was making this stuff up. So, > I > > stopped the tyroid pill all together. Hey.. no passing out! It was > > the pill after all.. WEll, this was not a good idea, for then other > > things were starting to happen.. I started having " small stokes " . > Ok, > > this is where my left side of my body would go completly numb for > > awhile, my face would even be droopy. Called the doc, more tests > were > > done on my head and heart. All came back normal...Ok, went to see a > > thyroid expect, wanted me to stil stay off the thyrois pill for > > another few weeks so he could do a chemical scan on thyroid. Well, > > after a week more of not taking the synthyoid pill, I was starting > to > > see things and hear things again. I would be hitting myself in the > > head and would ramble on,even suicide thoughts... hubby decided to > > call doctor on his own and demand to be put on low dose of thyroid > > meds. Against their judgement and telling him that that is not > signs > > of thyroid and being really nasty towards him, they put me back on > > it. Well guess > > what........... after just 10 days of being back on, the seeing > thigs > > and > > thoughts went away, as well as the depression.. Cool right? I would > > think. At 14 days taking the med, Anxiety was stating back up, but > > only in the evening ( would take the pill on an empty stomach in > the > > am).. maybe not taking enough to carry me thoughout the day.. Easy > > enought to think that anyways.. so I called the doctor only to get > a > > nasty receptionist telling > > me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body > > seems to think that maybe it works a bit faster for me.. how about > > some blood tests.. easy enough? right? nope, they refuse. So, > again, > > back on my own here.. I decided to up my own dose to 50 ( this was > > just yesterday). Just to see what happens.. Well within two hours > of > > taking the extra dose, the passing out started again.. Who ever > says > > this med doesn't work right away hasn't met me, that is for sure. > > Althought I was passing out, I had no signs of depression or > anxiety. > > okay, today I am just on the 25 mil again. Thinking of cutting pill > > in half and trying the 25 plus cutting the pill (25 mil) in half > and > > see where that takes me. Although very scared to try this pigs pill > > you guys have told me about because I am afraid of seeing things on > > the wall again telling me to kill myself, I am just about ready > > to " Go for it " ... Anyhoo, getting back to my ligitimate bitch here > > about my doctors, they think I am nuts. I just wish they would just > > take a min to hear me out and look into my situation. I feel > totally > > alone here in this city. My brother had told me our chiropractor, > who > > I just love to death and admire, said that our " specialist " here in > > Erie, PA, are not really specialists.. that I should go to > > Pittsburgh, a bigger city and a 2 hour drive away to find help. He > > even offered some names of who he would recommend. WEll, what do > you > > guys think? Am I nuts?? Should I use my chropractors advice and > find > > a doc in PIttsburgh? or /should I stop taking the synthyroid pill > for > > awhile then start on the pig pill? I do not have the money to have > > own blood test done, but I can't afford to be without any meds for > > this thyroid. Doctors won't let me have the blood work done. Should > I > > just lean back for awhile and take the time into it and if I feel > the > > anxiety or depression just take a valum and call it a day till they > > feel I have had it in my systom long enough for them to finally > give > > me the blood work I need done? AHHHHHHHHH.... I need some angels > here > > again... I know you all are not doctors, but neither am I and I > seem > > to be working on my own here.. Any advice even if it is " get a grip > > Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hi Liz, For me, myself, I would first be a very loud Squeeky wheel...and Second, Why waste your time with a Doctor that is not listening to you and your symptoms????? FIRE the man/woman!!!! If it ain't worth the salt, why waste it? (In this case the money and time) For my specialist, I am willing to drive 9 hours or fly for 5 hours to see him. Well worth it.. I live in N. Nevada and have found that I know as much or more than these Doctors do about my autoimmune disease, Hashi's and its complications. As for surgery, I'll drive or fly before any of these surgeons put a knife to me...I have seen some horrendous surgeries here. (This opinion comes from my experience working in the emergancy room, both here and down south.) Gossimer > > I am so tired of all of this. I hate doctors! Not all doctors, just > mine. lol.. They think " they " know my body better than I do. I am > getting tired of being passed off as a " mental case " . Right now, I am > on the synthyroid pill, only at 25mil. About a month ago, I was on > 200mil. Okay, many questions are running through your head right now, > and some of you angels have answered my posts and possible remember > my pleas from before. <snip> Any advice even if it is " get a grip > Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hi, How much protein are you taking in a day? From my training and reading, and from what you just wrote, it sounds like you are not taking in at least 65 grams of protein a day. Didn't your doctors lay this down as the very least amount of protein to consume every day? For me to consume this volume of protein I have to drink a protein drink at the start of the day and then again as a snack in the afternoon. How much water are you drinking a day? Again via training and reading you need to be drinking at least 75 ounces of water to hydrate your body. A lot of my friends make sure that they drink at least 100 oz a day, that way they never have to worry about dehydration or its complications. Gossimer > <snip> > 6. How often do you eat and what types of foods - high fiber, high > carb....Honestly, I am not a morning eater, I do start to eat around > 10 or 11:am. Ususally a lunch of some sort, since I have a small > stomach now since surgery, I don't eat very much. Sometimes a cin and > raisin bagel ( maybe 4 small bites of one) with no fat cream cheese. > Sometimes a turkey slice with a a little bit of mayo for flavor on > bread, but then again, not the whole sandwhich due to the stomach > thing again. > 7.Seems like bowel habbits are the same. I go every other day, and > it's pretty normal for me since the surgery. I haven't been > constipated in awhile. <snip> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hey Goss, ....I knew I would get a Holla back from you ( and Troper ) Angels.....Protein. Funny you should ask. I do what I can, water makes me ill, so I eat alot and I mean ALOT of ice chips. I don't know why the difference, but I guess my tummy doesn't realize that it is still water.. I dunno... I try to eat the protein first in my meals, and trust me when I say it's not alot of protein. I hear ya on the fire them, that's pretty much what hubby did today. I just feel like he, the doctor really tried at first and had my back for so long that I felt bad about letting him go, but he let me go first. Yes, I do plan on making whatever trip that I must take to get things in order, but money is a tight thing since Hubby goes to school full time ( computer networking.. any jobs where you are at? We want to move anywhere where the jobs are.. Here in PA, there isn't much to offer) and works full time.. I can't work, and I wish I could. I haven't worked now for 7 years. We are on Welfare ( thanks to everybody who helps pay into that, for I am not one to take advantage of it) and we live with my mother. She is in her 70's, and we pay her enough to help her get by.. ...plus two kids. A 14 year old boy who wears a size mans 15 shoe and yes he is into basketball, so you know the shoes are expensize to start with ..and a little girl who knows she is cute and she is 5. So money and the drive would be hard, but at this time, I would do just about anything to get my life back so I can help my husband. I went to Cosmetology school, and I don't mean to pat myself on the back, but I was on the Deans list, I helped charities, I did cut a thons for cancer, I was one one of the top in my class, I have the awards and certificates to prove it. And look at me now. Wa.( baby sound). Here I sit thinking about what I could be doing if I could only get a grip on things. My big plan is to open my own spa, but not like this I can't. I do have to take better care of myself, I am on all the vitamins that I can take protein drinks make me so ill it's not funny, but I do try to get in what I can. Not enough though. I dance all the time, and recently been trying to get over my "social phobia" and going to the dance club down the street to get my excersise in. I am not much of a drinker, so I don't do much of that. I am there for the excersise. I am the first on the floor and the last to leave it. .. I was asked last month by some young girl ( in her 20's, I am in my 30's) if I was a professional dancer.... No, but I try to get the best workout I can on that floor. So I am trying. But I know I am burning off more protein and stuff than I am getting into my mouth... To be honest with you, I am scared to death to leave my house sometimts, and I was ( still find it there in me sometimes) out going and CRAZY ( not insane crazy, the fun crazy).... I had friends everywhere, but when I got sick, they all walked me right by. So hubby, Mom, the kids and you guys are all this girl has.. Man, I guess I just need to figure this out and get my life back in order. No body is holding me back but myself, and these damn doctors. I'm sorry to cuss, but it makes me so mad. My surgeon who did the surgery is a wonderful man, and has tried to help out where he can, but he is limited to what he can do for me. I know where you are going with the water and protein, that that maybe part of the problem, but doc had checked all my levels of protein, iron, calcium..etc.. .. all of it very closely, and feels I am doing pretty good. He had even thought it might be a lack of nutrition, but feels safe with the findings on the blood work. He is a strict no bullshit kind of guy, so I trust him when he says that. He can't however test for my thyroid since I now go to this bleepin specialist who is not special in my thoughts at all. lol.. Anyhoo, any more ideas???lol.. Thanks Goss, I knew you all out here would tell me like it is.. I will work on the protein though, and get in more ice chips..lol... I will call around tomar and find out what Pittsburgh has to offer, I also live close to Buffalo, NY and Clevland OH.. all of them in a two hour drive from me, so it's not too far.. But Goss, realize that winter is coming, and we get alot of snow this way.. I wish I could live where snow didn't make a drive harder..... I will work on this just in case it is the "case".. Thanks....Liz Hi Liz,For me, myself, I would first be a very loud Squeeky wheel...and Second, Why waste your time with a Doctor that is not listening to you and your symptoms????? FIRE the man/woman!!!! If it ain't worth the salt, why waste it? (In this case the money and time)For my specialist, I am willing to drive 9 hours or fly for 5 hours to see him. Well worth it..I live in N. Nevada and have found that I know as much or more than these Doctors do about my autoimmune disease, Hashi's and its complications. As for surgery, I'll drive or fly before any of these surgeons put a knife to me...I have seen some horrendous surgeries here. (This opinion comes from my experience working in the emergancy room, both here and down south.)Gossimer> > I am so tired of all of this. I hate doctors! Not all doctors, just > mine. lol.. They think "they" know my body better than I do. I am > getting tired of being passed off as a "mental case". Right now, I am > on the synthyroid pill, only at 25mil. About a month ago, I was on > 200mil. Okay, many questions are running through your head right now, > and some of you angels have answered my posts and possible remember > my pleas from before.<snip>Any advice even if it is "get a grip > Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hi Liz, The best that I could suggest in regards to the protein issue is find a distributor that sells sample packets of various flavors and manufacturers and see which one goes down and stays down the best. Don't expect the flavor and taste appreciation to be the same as it was before the surgery. The supplier, vitacost.com comes to mind...In some cities, most of the health food and supply stores carry single serving packets of many different protein sources. As for the water, well, if ice works have an ice cube in your mouth all the time... Maybe try various flavors added to the water, ie. a drop or two of lemon juice, vanilla flavoring, orange flavoring, peppermint flavoring, etc... Drop the bread and get the protein in you...most breads have very little nutritional value per slice... Gossimer > > Hey Goss, ....I knew I would get a Holla back from you ( and Troper ) Angels.....Protein. Funny you should ask. I do what I can, water makes me ill, so I eat alot and I mean ALOT of ice chips. I don't know why the difference, but I guess my tummy doesn't realize that it is still water.. I dunno... I try to eat the protein first in my meals, and trust me when I say it's not alot of protein. I hear ya on the fire them, that's pretty much what hubby did today. I just feel like he, the doctor really tried at first and had my back for so long that I felt bad about letting him go, but he let me go first. Yes, I do plan on making whatever trip that I must take to get things in order, but money is a tight thing since Hubby goes to school full time ( computer networking.. any jobs where you are at? We want to move anywhere where the jobs are.. Here in PA, there isn't much to offer) and works full time.. I can't work, and I wish I could. I haven't worked now for 7 years. We are on Welfare ( thanks to everybody who helps pay into that, for I am not one to take advantage of it) and we live with my mother. She is in her 70's, and we pay her enough to help her get by.. ...plus two kids. A 14 year old boy who wears a size mans 15 shoe and yes he is into basketball, so you know the shoes are expensize to start with ..and a little girl who knows she is cute and she is 5. So money and the drive would be hard, but at this time, I would do just about anything to get my life back so I can help my husband. I went to Cosmetology school, and I don't mean to pat myself on the back, but I was on the Deans list, I helped charities, I did cut a thons for cancer, I was one one of the top in my class, I have the awards and certificates to prove it. And look at me now. Wa.( baby sound). Here I sit thinking about what I could be doing if I could only get a grip on things. My big plan is to open my own spa, but not like this I can't. I do have to take better care of myself, I am on all the vitamins that I can take protein drinks make me so ill it's not funny, but I do try to get in what I can. Not enough though. I dance all the time, and recently been trying to get over my " social phobia " and going to the dance club down the street to get my excersise in. I am not much of a drinker, so I don't do much of that. I am there for the excersise. I am the first on the floor and the last to leave it. .. I was asked last month by some young girl ( in her 20's, I am in my 30's) if I was a professional dancer.... No, but I try to get the best workout I can on that floor. So I am trying. But I know I am burning off more protein and stuff than I am getting into my mouth... To be honest with you, I am scared to death to leave my house sometimts, and I was ( still find it there in me sometimes) out going and CRAZY ( not insane crazy, the fun crazy).... I had friends everywhere, but when I got sick, they all walked me right by. So hubby, Mom, the kids and you guys are all this girl has.. Man, I guess I just need to figure this out and get my life back in order. No body is holding me back but myself, and these damn doctors. I'm sorry to cuss, but it makes me so mad. My surgeon who did the surgery is a wonderful man, and has tried to help out where he can, but he is limited to what he can do for me. I know where you are going with the water and protein, that that maybe part of the problem, but doc had checked all my levels of protein, iron, calcium..etc.. .. all of it very closely, and feels I am doing pretty good. He had even thought it might be a lack of nutrition, but feels safe with the findings on the blood work. He is a strict no bullshit kind of guy, so I trust him when he says that. He can't however test for my thyroid since I now go to this bleepin specialist who is not special in my thoughts at all. lol.. Anyhoo, any more ideas???lol.. Thanks Goss, I knew you all out here would tell me like it is.. I will work on the protein though, and get in more ice chips..lol... > I will call around tomar and find out what Pittsburgh has to offer, I also live close to Buffalo, NY and Clevland OH.. all of them in a two hour drive from me, so it's not too far.. But Goss, realize that winter is coming, and we get alot of snow this way.. I wish I could live where snow didn't make a drive harder..... I will work on this just in case it is the " case " .. Thanks....Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Jim and Liz wrote: > .Protein. Funny you should ask. I do what I can, water makes me > ill, so I eat alot and I mean ALOT of ice chips. > i've been on nomail since i'cve been away seing my Dr but this caught my eye - a desire to eat ice can be a sign of iron deficiency. have you had a CBC/FBC plus ferritin done recently? -- Alison http://www.alisonashwell.com new work uploaded http://www.artwanted/alisonashwell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 I wasn't the normal case either, during the long hyper thing, which was also diagnosed as bipolar disorder. I started seeing my former mother in law (who was already deceased) walking t'wd me, while I was in my bed, and all I could see, though, was the bottom half of her legs, with one of those house dresses on that she always wore. That's how I knew it was her. I too, would hear noises noone else heard. Then came the fun part, when the full blown hyper came in, and I started running 2 or 3 miles, day and night, which later turned into 5 miles, sometimes day and night. I was trying to run off this weird nervous energy, inbetween some of the strange episodes I was having. I'm 5'6 " tall, and I dropped down to 113 lbs and looked like a bag of bones. Yes, I was eating everything I could shovel in, except when I was so depressed on and off, for a month or so at a time, that I only ate a little to live. Then I would cycle right back up. From about the third month of this onward, for the next 6 yrs, I didn't cycle down to the depressed state, at least not the melancholic type, where you curl up in bed. I was anxious and nervous all the time, plus I could eat anything I wanted to and still lost weight, though I had had trouble all my former life keeping around 5 to 10 lbs off without having to do a little on and off dieting. I was not at rest anywhere I went, and it was a nightmare. The hypo nightmare happened, I swear, in ONE day, when it crashed, and I began to shake like a leaf, about every 4 hrs or so. It was my pituitary throwing out a lot of TSH, trying to get the thyroid to make something that it just couldn't make. I had no problem, from then on, sitting still, and I won't go into the other details. Re: Tired of being..... > > > Okay, I think 4 months is a long time to wait to see the doctor.. > God, you sound like me a few years ago. Not to say that you do not > have bipolor, but I would really look into this further. I was a mess > until the the thyroid meds kicked in. Again, I would see things on > the walls, a burning cross, men wearing black capes comming after > me. Hearing things that no one else would hear.. I would scream and > cry alot. I wouldn't get out of bed, and the blankets would be over > my head ... all the time.. now for the normal me, I can't stand > anything confinding especially anything covering my head.... so it > was a serious drawback for me.I would sleep ALL THE TIME>>> Thyroid > can seriously mess you up in a big way. And I have found that with my > own research ( not a doctor here) that anyone who is having problems > with depression, anything in the " mental " way should really look into > their thyroid. Alot of " mental " things that have happened to me was > dismissed as a " mental condition " when in fact it wasn't that at all, > it was the thyroid. I have found that I am not a normal book case > thyroid person. thanks for the reply and keep me posted on you.. I > would like to hear how things are with you and what your and their ( > doctors) findings are. I think for myself, I am going to try > splitting my pill, and calling some places in Pittsburgh. Chat with > you soon.. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 I believe that thyroid disease is the main cause of bipolar disorder. The episodes that I had for six yrs never happened again, once the thyroid completely failed and went to hypo side. I've felt pretty awful and problems with chronically undertreated hypo, but I've never cycled again since the thyroid crash. It was one long bout of hyper, with smidgens of hypo thrown in, but the end of the cycling was almost 12 yrs ago. There is hope. Yea, Armour!! Whoo Hoo!! Re: Re: Tired of being..... > > I just read that hypothyroidism can cause increased cycling in bipolar > disorder. So, that could be why I was a rapid cycler ........ > Interesting. > > hugs, peg > " Life is like a beautiful melody, only the lyrics are messed up. " ~ > Anonymous Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 It's only $85 plus a $12 shipping charge with HealthCheckUSA to get your own Free T3 and Free T4, plus TSH done. I don't make much money and have no insurance and that is dirt cheap, considering the doctors all charge around $300 to $400 every time these tests are run, office visit included. You need the correct testing, even if you have to get it done yourself. You know the old saying, If You Want Something Done Right,................ Tired of being..... > > > I am so tired of all of this. I hate doctors! Not all doctors, just > mine. lol.. They think " they " know my body better than I do. I am > getting tired of being passed off as a " mental case " . Right now, I am > on the synthyroid pill, only at 25mil. About a month ago, I was on > 200mil. Okay, many questions are running through your head right now, > and some of you angels have answered my posts and possible remember > my pleas from before. Going back two years ago, I turned into > a " mental case " kind of out of the blue. Social phobia, anxiety, > depression.. The doc put me on zoloft without checking blood stats to > see if I had a thyroid condition. After months of seeing things that > were only in my head, and depression so bad that I wouldn't even get > out of the bed , My husband switched doctors for me, and the new doc > took a look at me and said " it's your thyroid " ...... blood tests were > done and yep, that's what it was. I was almost 300 pounds. After > being on the synthyroid for just a matter of a couple of weeks, I saw > a difference. Ok, so a year later, I had stomach surgery. I had lost > 120 lbs.. Started with some weird symptoms of passing out and > seizures. Doc again had many many tests done and could not figure out > what was going on. Well, doing research on the puter, I finally > figured out that it has to be one of the many pills I was on. With > process of elimination of medication, I found that seizures were > being caused by the zoloft..Haven't been back on that pill for about > 3 months now. No seizures.....Only on one pill, the thyroid pill, I > was passing out all the time. 6 to 10 times a day. Ok, it must be the > synthroid pill. again, I was on the 200mil at a weight of 140 lbs > now. Remember I had the stomach surgery, so now I was at the point to > think that maybe I was getting to much thyroid. Doctors would dimiss > anything I would tell them, still doing tests at my requests, still, > they would give me the feeling that I was making this stuff up. So, I > stopped the tyroid pill all together. Hey.. no passing out! It was > the pill after all.. WEll, this was not a good idea, for then other > things were starting to happen.. I started having " small stokes " . Ok, > this is where my left side of my body would go completly numb for > awhile, my face would even be droopy. Called the doc, more tests were > done on my head and heart. All came back normal...Ok, went to see a > thyroid expect, wanted me to stil stay off the thyrois pill for > another few weeks so he could do a chemical scan on thyroid. Well, > after a week more of not taking the synthyoid pill, I was starting to > see things and hear things again. I would be hitting myself in the > head and would ramble on,even suicide thoughts... hubby decided to > call doctor on his own and demand to be put on low dose of thyroid > meds. Against their judgement and telling him that that is not signs > of thyroid and being really nasty towards him, they put me back on > it. Well guess > what........... after just 10 days of being back on, the seeing thigs > and > thoughts went away, as well as the depression.. Cool right? I would > think. At 14 days taking the med, Anxiety was stating back up, but > only in the evening ( would take the pill on an empty stomach in the > am).. maybe not taking enough to carry me thoughout the day.. Easy > enought to think that anyways.. so I called the doctor only to get a > nasty receptionist telling > me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body > seems to think that maybe it works a bit faster for me.. how about > some blood tests.. easy enough? right? nope, they refuse. So, again, > back on my own here.. I decided to up my own dose to 50 ( this was > just yesterday). Just to see what happens.. Well within two hours of > taking the extra dose, the passing out started again.. Who ever says > this med doesn't work right away hasn't met me, that is for sure. > Althought I was passing out, I had no signs of depression or anxiety. > okay, today I am just on the 25 mil again. Thinking of cutting pill > in half and trying the 25 plus cutting the pill (25 mil) in half and > see where that takes me. Although very scared to try this pigs pill > you guys have told me about because I am afraid of seeing things on > the wall again telling me to kill myself, I am just about ready > to " Go for it " ... Anyhoo, getting back to my ligitimate bitch here > about my doctors, they think I am nuts. I just wish they would just > take a min to hear me out and look into my situation. I feel totally > alone here in this city. My brother had told me our chiropractor, who > I just love to death and admire, said that our " specialist " here in > Erie, PA, are not really specialists.. that I should go to > Pittsburgh, a bigger city and a 2 hour drive away to find help. He > even offered some names of who he would recommend. WEll, what do you > guys think? Am I nuts?? Should I use my chropractors advice and find > a doc in PIttsburgh? or /should I stop taking the synthyroid pill for > awhile then start on the pig pill? I do not have the money to have > own blood test done, but I can't afford to be without any meds for > this thyroid. Doctors won't let me have the blood work done. Should I > just lean back for awhile and take the time into it and if I feel the > anxiety or depression just take a valum and call it a day till they > feel I have had it in my systom long enough for them to finally give > me the blood work I need done? AHHHHHHHHH.... I need some angels here > again... I know you all are not doctors, but neither am I and I seem > to be working on my own here.. Any advice even if it is " get a grip > Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 She talked about passing out, right? There is a reaction to substances that some people have, rarely, that is called---and I don't know if I have the name of the condition completely right----Vasovagal episodes. It causes a person to pass out out of nowhere. I'm thinking that allergic reactions can be involved here, but I really can't remember everything that I read about it. The vascular system and the vagal nerve(s?) is involved with this. IMHO, I think it's an allergic reaction to one of the fillers in the $ynthroid. I don't have any doubt that she is hypothyroid, at this point, but I think she needs the Armour, of course, which doesn't have that many fillers in it. Of course, different people are allergic to different things. What in the world are you doing awake for 30 something hrs Topper???????????? Re: Tired of being..... Hi Liz, I know that you're really frustrated with this, and rightly so... but there has to be a reason. You may have said some of this already... bear with us as we ask another round of questions and see what our communal sets of eyes, ears and brains spot. Do you have copies of your labs... so we can see what they've tested and what the results were - don't forget we need the lab's ranges too. I believe you meant mcg even though you were typing mil..... so the dose that you are on... 25 mcg and 50 mcg can often be suppressive doses, depending on what your body needs. So... things that are coming to my sleep deprived mind (I've been up for 30 1/2 hours and still counting)if you are dealing with antibodies... the antibodies are going to cause your own thyroid's production to vary.... A suppressive dose of Synthroid will make you feel better at first.. then as the thyroid production slows you'll feel worse. You may not be reacting to the T4 in the Synthroid... you may be reacting to the fillers in the tablet... so with that thought in mind.... have you been using the same bottle of meds, or have you used different bottles (either another bottle of the same dose or bottles of different doses). Have they let you try other brands - Levoxyl or Levothroid? What do your basals look like as you go through these stages..? There has to be something here that we haven't seen yet... we just need you to keep telling us what you are doing, no matter how silly.... Taking pill on empty stomach or full... What time of day - always the same or different.... How often do you eat and what types of foods - high fiber, high carb.... all mixed up... any changes in patterns? As you go through the stages do your bowel habits change - constipated to diarrhea... or frequency of movements.... Tell me about your sleep patterns... when to bed, when to wake, sleep sound, dreams, nightmares, sleep soundly, wake often... that kind of stuff... To cause the hallucinations and such, it's a chemical imbalance.. but why? What is causing it? Is it an allergy to food or the pill's fillers? Could it have anything to do with some type of adrenal fluctuation that is shadowing changes in thyroid med adjustments... Could your body just be really sporadic in conversion? I know Synthroid can cause quick reactions in some... when I first started on it it made me ill... it took two years of messing around with doses and different brands and splitting tabs and multi-dosing until I could take it without wanting to barf my guts our or get headaches and what not.... The pig pills. Natural Thyroid.... there are different fillers used.... natural T4 without the extra sodium added to it.... and direct T3... also the option of taking it sublingually making each dose MUCH MUCH more consistent that what you can do with swallowing T4 only synthetics. You're working with a doctor.... so I'm not sure... but the Nutri-Meds porcine thyroid are made from the same desiccated thyroid as the prescription grade naturals, but are weaker per tab.... not as potent.... I'm wondering if trying those, splitting the tabs to get really small doses.. would be something worth trying.... maybe talk to your doc... Let's see what others in the group come up with... our heads, combined.. usually do pretty good around here. Topper () On Thu, 11 Nov 2004 15:55:19 -0000 "liznick33" writes: I am so tired of all of this. I hate doctors! Not all doctors, just mine. lol.. They think "they" know my body better than I do. I am getting tired of being passed off as a "mental case". Right now, I am on the synthyroid pill, only at 25mil. About a month ago, I was on 200mil. Okay, many questions are running through your head right now, and some of you angels have answered my posts and possible remember my pleas from before. Going back two years ago, I turned into a "mental case" kind of out of the blue. Social phobia, anxiety, depression.. The doc put me on zoloft without checking blood stats to see if I had a thyroid condition. After months of seeing things that were only in my head, and depression so bad that I wouldn't even get out of the bed , My husband switched doctors for me, and the new doc took a look at me and said "it's your thyroid"...... blood tests were done and yep, that's what it was. I was almost 300 pounds. After being on the synthyroid for just a matter of a couple of weeks, I saw a difference. Ok, so a year later, I had stomach surgery. I had lost 120 lbs.. Started with some weird symptoms of passing out and seizures. Doc again had many many tests done and could not figure out what was going on. Well, doing research on the puter, I finally figured out that it has to be one of the many pills I was on. With process of elimination of medication, I found that seizures were being caused by the zoloft..Haven't been back on that pill for about 3 months now. No seizures.....Only on one pill, the thyroid pill, I was passing out all the time. 6 to 10 times a day. Ok, it must be the synthroid pill. again, I was on the 200mil at a weight of 140 lbs now. Remember I had the stomach surgery, so now I was at the point to think that maybe I was getting to much thyroid. Doctors would dimiss anything I would tell them, still doing tests at my requests, still, they would give me the feeling that I was making this stuff up. So, I stopped the tyroid pill all together. Hey.. no passing out! It was the pill after all.. WEll, this was not a good idea, for then other things were starting to happen.. I started having "small stokes". Ok, this is where my left side of my body would go completly numb for awhile, my face would even be droopy. Called the doc, more tests were done on my head and heart. All came back normal...Ok, went to see a thyroid expect, wanted me to stil stay off the thyrois pill for another few weeks so he could do a chemical scan on thyroid. Well, after a week more of not taking the synthyoid pill, I was starting to see things and hear things again. I would be hitting myself in the head and would ramble on,even suicide thoughts... hubby decided to call doctor on his own and demand to be put on low dose of thyroid meds. Against their judgement and telling him that that is not signs of thyroid and being really nasty towards him, they put me back on it. Well guess what........... after just 10 days of being back on, the seeing thigs and thoughts went away, as well as the depression.. Cool right? I would think. At 14 days taking the med, Anxiety was stating back up, but only in the evening ( would take the pill on an empty stomach in the am).. maybe not taking enough to carry me thoughout the day.. Easy enought to think that anyways.. so I called the doctor only to get a nasty receptionist telling me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body seems to think that maybe it works a bit faster for me.. how about some blood tests.. easy enough? right? nope, they refuse. So, again, back on my own here.. I decided to up my own dose to 50 ( this was just yesterday). Just to see what happens.. Well within two hours of taking the extra dose, the passing out started again.. Who ever says this med doesn't work right away hasn't met me, that is for sure. Althought I was passing out, I had no signs of depression or anxiety. okay, today I am just on the 25 mil again. Thinking of cutting pill in half and trying the 25 plus cutting the pill (25 mil) in half and see where that takes me. Although very scared to try this pigs pill you guys have told me about because I am afraid of seeing things on the wall again telling me to kill myself, I am just about ready to "Go for it"... Anyhoo, getting back to my ligitimate bitch here about my doctors, they think I am nuts. I just wish they would just take a min to hear me out and look into my situation. I feel totally alone here in this city. My brother had told me our chiropractor, who I just love to death and admire, said that our "specialist" here in Erie, PA, are not really specialists.. that I should go to Pittsburgh, a bigger city and a 2 hour drive away to find help. He even offered some names of who he would recommend. WEll, what do you guys think? Am I nuts?? Should I use my chropractors advice and find a doc in PIttsburgh? or /should I stop taking the synthyroid pill for awhile then start on the pig pill? I do not have the money to have own blood test done, but I can't afford to be without any meds for this thyroid. Doctors won't let me have the blood work done. Should I just lean back for awhile and take the time into it and if I feel the anxiety or depression just take a valum and call it a day till they feel I have had it in my systom long enough for them to finally give me the blood work I need done? AHHHHHHHHH.... I need some angels here again... I know you all are not doctors, but neither am I and I seem to be working on my own here.. Any advice even if it is "get a grip Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Yes, I take iron.. Matter of fact, Ferrous Sulfate ( iron pill) 325 mg.. 1 a day.....Ironchel 18 .. Plus iron in my vitamin pill. When I told doc about ice chips, that's what he thought too, but tests came back looking good on the iron.. Thanks for thinking about me and bringing that up... Re: Re: Tired of being..... Jim and Liz wrote:> .Protein. Funny you should ask. I do what I can, water makes me> ill, so I eat alot and I mean ALOT of ice chips.>i've been on nomail since i'cve been away seing my Dr but this caught my eye - a desire to eat ice can be a sign of iron deficiency. have you had a CBC/FBC plus ferritin done recently?-- Alisonhttp://www.alisonashwell.com new work uploadedhttp://www.artwanted/alisonashwell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Wow , I was hoping I wasn't the only one with Hallucinations. OMG, I think I would have freaked if it was a person who passed on that was coming for me. I would of thought my time was ending. right now, I can't sit still either. I thought that was just me being nervous. I always feel like I'm ready to do the "River Dance" all over the place. lol.. Or as I tell my kids, " It's just me like a cat with a bag tied on my tail again.." I t's too cold around here for me to go running. I'm used to having asthma ( which I don't have any symtoms anymore since I had the tummy bipass, but still nervous the same to have an attack ( I don't take the meds for that anymore). Well, I went to the lazy, in bed, seeing things on the wall, depression state to now, the hyper OMG I wish I could just sit down and relax, and mean streaks.. What is up with those? I snap if some one breathes wrong.. I have to hold my tongue and leave the room so no one gets killed by me.. I hate that. I was never a grumpy person ever.. Oh, I can't wait till all of this subsides. I guess it is going to take awhile, but I'm glad I have you guys ( & GALS) on here to keep me real. Thanks . Re: Tired of being.....>>> Okay, I think 4 months is a long time to wait to see the doctor..> God, you sound like me a few years ago. Not to say that you do not> have bipolor, but I would really look into this further. I was a mess> until the the thyroid meds kicked in. Again, I would see things on> the walls, a burning cross, men wearing black capes comming after> me. Hearing things that no one else would hear.. I would scream and> cry alot. I wouldn't get out of bed, and the blankets would be over> my head ... all the time.. now for the normal me, I can't stand> anything confinding especially anything covering my head.... so it> was a serious drawback for me.I would sleep ALL THE TIME>>> Thyroid> can seriously mess you up in a big way. And I have found that with my> own research ( not a doctor here) that anyone who is having problems> with depression, anything in the "mental" way should really look into> their thyroid. Alot of "mental" things that have happened to me was> dismissed as a "mental condition" when in fact it wasn't that at all,> it was the thyroid. I have found that I am not a normal book case> thyroid person. thanks for the reply and keep me posted on you.. I> would like to hear how things are with you and what your and their (> doctors) findings are. I think for myself, I am going to try> splitting my pill, and calling some places in Pittsburgh. Chat with> you soon.. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 WEll, I am going to a new doctor starting Dec 6th. My husband fired my regular PCP and the Specialist. So, I will tell him what "I WANT" tested and also tell him I wasnt all copies of tests so I can post them on here since you all are so informative on this. Thanks you so much , if things don't go my way on this test coming up, then I will HAVE to have my own testing done. Thanks again.... Tired of being.....>>> I am so tired of all of this. I hate doctors! Not all doctors, just> mine. lol.. They think "they" know my body better than I do. I am> getting tired of being passed off as a "mental case". Right now, I am> on the synthyroid pill, only at 25mil. About a month ago, I was on> 200mil. Okay, many questions are running through your head right now,> and some of you angels have answered my posts and possible remember> my pleas from before. Going back two years ago, I turned into> a "mental case" kind of out of the blue. Social phobia, anxiety,> depression.. The doc put me on zoloft without checking blood stats to> see if I had a thyroid condition. After months of seeing things that> were only in my head, and depression so bad that I wouldn't even get> out of the bed , My husband switched doctors for me, and the new doc> took a look at me and said "it's your thyroid"...... blood tests were> done and yep, that's what it was. I was almost 300 pounds. After> being on the synthyroid for just a matter of a couple of weeks, I saw> a difference. Ok, so a year later, I had stomach surgery. I had lost> 120 lbs.. Started with some weird symptoms of passing out and> seizures. Doc again had many many tests done and could not figure out> what was going on. Well, doing research on the puter, I finally> figured out that it has to be one of the many pills I was on. With> process of elimination of medication, I found that seizures were> being caused by the zoloft..Haven't been back on that pill for about> 3 months now. No seizures.....Only on one pill, the thyroid pill, I> was passing out all the time. 6 to 10 times a day. Ok, it must be the> synthroid pill. again, I was on the 200mil at a weight of 140 lbs> now. Remember I had the stomach surgery, so now I was at the point to> think that maybe I was getting to much thyroid. Doctors would dimiss> anything I would tell them, still doing tests at my requests, still,> they would give me the feeling that I was making this stuff up. So, I> stopped the tyroid pill all together. Hey.. no passing out! It was> the pill after all.. WEll, this was not a good idea, for then other> things were starting to happen.. I started having "small stokes". Ok,> this is where my left side of my body would go completly numb for> awhile, my face would even be droopy. Called the doc, more tests were> done on my head and heart. All came back normal...Ok, went to see a> thyroid expect, wanted me to stil stay off the thyrois pill for> another few weeks so he could do a chemical scan on thyroid. Well,> after a week more of not taking the synthyoid pill, I was starting to> see things and hear things again. I would be hitting myself in the> head and would ramble on,even suicide thoughts... hubby decided to> call doctor on his own and demand to be put on low dose of thyroid> meds. Against their judgement and telling him that that is not signs> of thyroid and being really nasty towards him, they put me back on> it. Well guess> what........... after just 10 days of being back on, the seeing thigs> and> thoughts went away, as well as the depression.. Cool right? I would> think. At 14 days taking the med, Anxiety was stating back up, but> only in the evening ( would take the pill on an empty stomach in the> am).. maybe not taking enough to carry me thoughout the day.. Easy> enought to think that anyways.. so I called the doctor only to get a> nasty receptionist telling> me it takes 6 weeks to see a diffeerence. Yes, I agree, but my body> seems to think that maybe it works a bit faster for me.. how about> some blood tests.. easy enough? right? nope, they refuse. So, again,> back on my own here.. I decided to up my own dose to 50 ( this was> just yesterday). Just to see what happens.. Well within two hours of> taking the extra dose, the passing out started again.. Who ever says> this med doesn't work right away hasn't met me, that is for sure.> Althought I was passing out, I had no signs of depression or anxiety.> okay, today I am just on the 25 mil again. Thinking of cutting pill> in half and trying the 25 plus cutting the pill (25 mil) in half and> see where that takes me. Although very scared to try this pigs pill> you guys have told me about because I am afraid of seeing things on> the wall again telling me to kill myself, I am just about ready> to "Go for it"... Anyhoo, getting back to my ligitimate bitch here> about my doctors, they think I am nuts. I just wish they would just> take a min to hear me out and look into my situation. I feel totally> alone here in this city. My brother had told me our chiropractor, who> I just love to death and admire, said that our "specialist" here in> Erie, PA, are not really specialists.. that I should go to> Pittsburgh, a bigger city and a 2 hour drive away to find help. He> even offered some names of who he would recommend. WEll, what do you> guys think? Am I nuts?? Should I use my chropractors advice and find> a doc in PIttsburgh? or /should I stop taking the synthyroid pill for> awhile then start on the pig pill? I do not have the money to have> own blood test done, but I can't afford to be without any meds for> this thyroid. Doctors won't let me have the blood work done. Should I> just lean back for awhile and take the time into it and if I feel the> anxiety or depression just take a valum and call it a day till they> feel I have had it in my systom long enough for them to finally give> me the blood work I need done? AHHHHHHHHH.... I need some angels here> again... I know you all are not doctors, but neither am I and I seem> to be working on my own here.. Any advice even if it is "get a grip> Liz " advice would be gladly appeciated .. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.