Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 Hi Sim, The one thing that I have found over time, this being the last 15+ years dealing with Hashi's, is that most Doctors really have not had the chance to do detail learning on the subject of an autoimmune disease such as you might have or as I have. With hind sight being what it is, I wish I had had the gall to print out everything that I have found and had " paid " the Doctor those 15 minutes of insurance office visit to read some of the information that I have found in the last year of what to look for and how to treat by how a patient feels....and use the Free T3 tests as a backup tool...sigh... Doctors need to be taught gently what their teachers did not know to teach. The fact that you have read Shomon's book as well as her web site tells me that you are ahead of the game already. Now, the one thing that I would say from my point of view, for my health, I was no longer willing to wait for them (Doctors and Nurse Practioners, etc.) to figure out that Synthyroid was no longer working for me....I finally took the reins of my treatment into my own hands and have been slowly getting better, on my own. I love how I feel so much better on Armour(generic) along with Adrenal support and tons of vitamin supplements. After all the body has used up its stores trying to keep this system going while the Doctors dragged their feet about my treatment. I could go on but that was another email. I know how I felt when I was 30, and it is close to that feeling of being alive that I am striving to acheive again. As far as other medical problems I still would go to a Doctor (specialist) if I have to. I can't tell you what to do, I can only say what I did and I feel soooo much better than I did a year ago... I would recommend that you keep a journal of your pre-rising basel temp, how you feel for the day, extra stress, easy day, car broke down, kids blew up the jack-o-lantern, etc... and see if there isn't a pattern that appears on a weekly basis or yearly or monthly or.... For me, right now it, my stressor is living without a furnace until the furnace people get in a new circuit board and get it installed....I'm just glad that we don't have any snow yet...but its cold enough pre dawn temps will be in the 20's tomorrow (today)...burrrrrr, chuckle, can you tell that my perpetual summer has found a respite?????chuckle, sigh, and so has my pocket book, sigh... Anyway, I digress...sorry about that..... Gossimer > Dear Gossimer; > > Hi, nice to " meet " you, and thanks for the tip,...and the > condolences.You know, I guess I would have at least expected the > doctor to know about checking into other things like adrenal > function, pituitary, etc. But these guys just don't listen. She > acted like she was doing me some great favor by prescriing synthroid. > > I have already looked thru Shomon's site and have read her > books, too. I have hesitated to tell my doctors about the new normal > ranges because of their attitude. I will definitely check out > thyroid 101 on this site, too. > > > Sim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 > You might try taking the antibodies testing again, at intervals because I > still suspect Hashimoto's Disease. It took me yrs to get a diagnosis, and I > never knew my antibodies because noone ever tested them til I tested them > myself this past March. They were in the thousands for both of them, > antithyroidperoxidase and the antithyroglobulin ones, but they may not have > been that high before sometime in the yr before that, who knows. I suspect > that they were there, but noone ever tested them but myself. Hashi's has > these ups and downs, and many people have both Grave's Disease AND Hashi's > together, which means they've probably got at least 3 thyroid antibodies, > the TSI and the two mentioned above, or at least one of the two mentioned > above. Armour Thyroid is a better product for almost anyone with thyroid > disease, I can guarantee it. I took synthetic T4 for yrs before making this > switch on my own, and I now order my own lab testing and my own thyroid. I > see where New York government is trying to make this illegal, the rats. > We've got to get on the stick for stopping this move. > > > Hey ! Thank you so much! I've had my suspicions about things like hahimotos; but they always tell me that I don't have it. How do you go about getting your own armour thyroid and testing? Are you in NY also? Yes, they are rats for getting invloved in our health and private business! Synthroid's makers must have too much to lose! Sim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 > You might try taking the antibodies testing again, at intervals because I > still suspect Hashimoto's Disease. It took me yrs to get a diagnosis, and I > never knew my antibodies because noone ever tested them til I tested them > myself this past March. They were in the thousands for both of them, > antithyroidperoxidase and the antithyroglobulin ones, but they may not have > been that high before sometime in the yr before that, who knows. I suspect > that they were there, but noone ever tested them but myself. Hashi's has > these ups and downs, and many people have both Grave's Disease AND Hashi's > together, which means they've probably got at least 3 thyroid antibodies, > the TSI and the two mentioned above, or at least one of the two mentioned > above. Armour Thyroid is a better product for almost anyone with thyroid > disease, I can guarantee it. I took synthetic T4 for yrs before making this > switch on my own, and I now order my own lab testing and my own thyroid. I > see where New York government is trying to make this illegal, the rats. > We've got to get on the stick for stopping this move. > > > Hey ! Thank you so much! I've had my suspicions about things like hahimotos; but they always tell me that I don't have it. How do you go about getting your own armour thyroid and testing? Are you in NY also? Yes, they are rats for getting invloved in our health and private business! Synthroid's makers must have too much to lose! Sim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 > > Dear Gossimer; > > > > Hi, nice to " meet " you, and thanks for the tip,...and the > > condolences.You know, I guess I would have at least expected the > > doctor to know about checking into other things like adrenal > > function, pituitary, etc. But these guys just don't listen. She > > acted like she was doing me some great favor by prescriing > synthroid. > > > > I have already looked thru Shomon's site and have read her > > books, too. I have hesitated to tell my doctors about the new > normal > > ranges because of their attitude. I will definitely check out > > thyroid 101 on this site, too. > > > > > > Sim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hi, The frustration that you speak of is why quite a few of us are now self-medicating and self-testing. Unless we let the politicians chance how we are able to trouble- shoot our own lives and medical conditions, you probably can order blood workups directly from www.healthcheckusa.com It if from these tests that some of us find out what our FREE T3's are. Most Doctors probably do not realize that there is a difference between the Total T3 and the Free T3 results…again from the lack of training in this area of tests and what they may signify… There are times that I wish my Grandmother was still alive. She had her Thyroid removed and lived on Armour for over 40 years, being treated based on how she felt… I wish I could ask her how things were… sigh. I live in N. Nevada, in the foothills east of Lake Tahoe. Gossimer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hi, The frustration that you speak of is why quite a few of us are now self-medicating and self-testing. Unless we let the politicians chance how we are able to trouble- shoot our own lives and medical conditions, you probably can order blood workups directly from www.healthcheckusa.com It if from these tests that some of us find out what our FREE T3's are. Most Doctors probably do not realize that there is a difference between the Total T3 and the Free T3 results…again from the lack of training in this area of tests and what they may signify… There are times that I wish my Grandmother was still alive. She had her Thyroid removed and lived on Armour for over 40 years, being treated based on how she felt… I wish I could ask her how things were… sigh. I live in N. Nevada, in the foothills east of Lake Tahoe. Gossimer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hi, The frustration that you speak of is why quite a few of us are now self-medicating and self-testing. Unless we let the politicians chance how we are able to trouble- shoot our own lives and medical conditions, you probably can order blood workups directly from www.healthcheckusa.com It if from these tests that some of us find out what our FREE T3's are. Most Doctors probably do not realize that there is a difference between the Total T3 and the Free T3 results…again from the lack of training in this area of tests and what they may signify… There are times that I wish my Grandmother was still alive. She had her Thyroid removed and lived on Armour for over 40 years, being treated based on how she felt… I wish I could ask her how things were… sigh. I live in N. Nevada, in the foothills east of Lake Tahoe. Gossimer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 > > Hi, > The frustration that you speak of is why quite a few of us are now > self-medicating and self-testing. > Unless we let the politicians chance how we are able to trouble- > shoot our own lives and medical conditions, you probably can order > blood workups directly from > > www.healthcheckusa.com > > It if from these tests that some of us find out what our FREE T3's > are. Most Doctors probably do not realize that there is a > difference between the Total T3 and the Free T3 results…again from > the lack of training in this area of tests and what they may signify… > > There are times that I wish my Grandmother was still alive. She had > her Thyroid removed and lived on Armour for over 40 years, being > treated based on how she felt… I wish I could ask her how things > were… sigh. > > I live in N. Nevada, in the foothills east of Lake Tahoe. > > Gossimer Hi Gossimer; Thanks for the info, I'll definitely look into it. Yes, I believe that my doctor was either confused or just didn't want to test my free t3 for some reason. My grandmother is still alive, and presently living with me. She had her thyroid removed 60 years ago due to hyperthyroidism. In August she called me in to her home in NYC because she was very ill, but terrified of hospitals. Her legs had blown up like balloons , and she had terrible anxiety. By the time she gave me the go ahead to call the doctor, they were all out of town because of the repulican convention. So, we carried her out (literally) and brought her to LI. It was there that a doctor took one look at her and said< " even a med student could have dxed this woman with bilateral edema brought on by beginning heart failure " her organs were filled w/ fluid and her mind became demented. Further blood tests showed hypothyroidism. W Well, we spent two months watching her get worse. I had to take care of all of her needs, she couldn't even use the bathrookm anymore. Just when we had given up all hope (we actually had her funeral service planned; we were going to scatter her ashes in Rome); she all of a sudden made a complete about face! To make a long story short, she is now going out with us every day, once or twice a day, is completely lucid (just a month ago, I could barely leave the house because she fancied that the neighbors were trying to kill her). She had been on thyroid replacement for about two months. During that time, she had also been seen by an incompetent cardiologist who prescribed digoxin, despite the fact that she was on synthroid. It was after I questioned the meds and they changed them that she made the turn for the better. I also prayed a lot, either that she get better or that God take her home. Never give up on prayer, because what we have all witnessed was a complete miracle. A month ago, my grandmother was a demented bedridden mess, now she is well enough to insist on accompanying me to my endo because she wants to give him a piece of her mind about his indifferent treatment of my case, lol. Sim Quote Link to comment Share on other sites More sharing options...
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