Re: Pulmonary Fibrosis Symposium

October 23, 2007

Do you have a link to a website on the symposium? I'd love to learn

more although can't make it there by Saturday and back by doctor's

appointment Monday. However, in the future may combine some travel

with such.

>

> Hi, & I read your posts frequently, however neither of us do

> well at responding..but we have learned a bunch, We have decided to

> attend the symposium at University of Minnesota next Sat. the 27th

> of Oct. We are anxious to hear and learn more. Are there other

> members of breath support going?

>

> continues to do good!! he continues his several mile brisk

walk

> daily and a couple of shorter ones every day. He has stayed quite

> stable.He had a VAT Jan of 2006 to confirm the diagnosis. Usual

> Interstitial pneumonia.He had the chest tube removed the next a.m.

> and home later in the day. He took pain medications for a few days,

> he still thinks they left a small camera in, as has an " odd "

feeling

> at that site, the dr. said this could last a long time, due to the

> nerves being insulted. His pft tests are staying quite stable, his

> FEV1 3.36 TLC 6.07 DLCO 11.39 to name a few. His medications remain

> the same, pulmicort 2 puffs twice a day, colchicine .3 mg twice a

> day.His cough has increased, questioning if it is allergies, he

> increased his NAC, and mucous relief to twice daily, and continues

> to take Clear Lungs.

> If anyone else is planning to attend let us know so we can meet

you.

> We are excited we have this opportunity.

>

> & Jan Ripon,Wi usual interstitial pneumonia..2006

>

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