Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 ... off the top of my head... Have you checked your Ferritn (iron storage NOT serum level)? How about your Bs? Have you tested for antibodies? Are you dealing with fluctuations that are messing you up? Do you have the money to have your own labs done? Check out www.healthcheckusa.com and see if there is a Lab One clinic in your area... you'd be able to get Free T3 checked that way and see if you are converting okay? Is your doc willing to give you Armour, perhaps you are a really bad converter, I know I am, and you need the direct T3 that Armour offers. It's also possible that you are not able to use the synthetic form of T4 and so your body is showing high levels of it in your system... it pushes the TSH down... and you're back around to not knowing if you have suffiecient T3 or not.... Have you checked your basals to see how your metabolic rate is doing? We have some info on how to do that on our web site... www.thyrophoenix.com/self_monitor.htm How are your adrenals? If they are fatigued, many of the symptoms that you are still having are also on the list of symptoms for adrenal fatigue.... Can I come kick your doc/lab techs??? you need to know that whys here!!! Can any body think of anything else? Oh... are is your eating schedule... small frequent meals help to increase T4 to T3 conversion.... Topper () On Mon, 20 Sep 2004 10:37:59 -0700 (PDT) writes: > A brief recap…..My doctor diagnosed Post Viral Fatigue > Syndrome and ‘subclinical hypothyroidism’ last > December. At that time my TSH was 8. I had been > admitted to hospital in October with severe gastric > and oesophageal inflammation (my digestion had almost > completely shut down). I had swollen hands and feet, > severe pain in my knees and leg muscles, very low > blood pressure, very slow pulse, phlebitis in both > legs, my hair was falling out, my nails peeling and I > had had constant sinus problems and hearing loss for > some time. By Christmas I could hardly climb my stairs > and could not walk further than about 100yards. Prior > to that I had been feeling progressively more tired > over a period of several years; the tiredness being > most severe in the winter months which had led to > diagnoses of Seasonal Affective Disorder. In December > my GP prescribed 25mcg of Thyroxine (synthetic T 4); I > did not recover at all so he raised it to 50mcg, then > in June to 100mcg. > In August my doctor agreed to test for free T3. The > lab refused to do the test! At that time my TSH was > .06 and free T4 was 18 (I can’t remember ranges but I > know it was in the top half of the range). He says > that as a matter of policy the lab will not test for > T3 if the TSH and T4 look OK. I still feel tired and > although my doc has tried to help he has resorted to > saying that my continuing fatigue must be due to PVFS. > > I have managed to return to work (part time teaching, > 5 mornings and 2 afternoons) but am so wiped out at > the end of these sessions that it seems this is all I > can do. I earn just enough to pay the bills but not > enough for private doctor’s consultations and > prescriptions > I’ve learned a lot from this group. I take selenium, > magnesium and Omega 3 supplements. My physical > strength has returned to a level where I can cope with > my job and all of the above unpleasant symptoms have > disappeared but I want some oomph back in my life! > Any suggestions please? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 ... off the top of my head... Have you checked your Ferritn (iron storage NOT serum level)? How about your Bs? Have you tested for antibodies? Are you dealing with fluctuations that are messing you up? Do you have the money to have your own labs done? Check out www.healthcheckusa.com and see if there is a Lab One clinic in your area... you'd be able to get Free T3 checked that way and see if you are converting okay? Is your doc willing to give you Armour, perhaps you are a really bad converter, I know I am, and you need the direct T3 that Armour offers. It's also possible that you are not able to use the synthetic form of T4 and so your body is showing high levels of it in your system... it pushes the TSH down... and you're back around to not knowing if you have suffiecient T3 or not.... Have you checked your basals to see how your metabolic rate is doing? We have some info on how to do that on our web site... www.thyrophoenix.com/self_monitor.htm How are your adrenals? If they are fatigued, many of the symptoms that you are still having are also on the list of symptoms for adrenal fatigue.... Can I come kick your doc/lab techs??? you need to know that whys here!!! Can any body think of anything else? Oh... are is your eating schedule... small frequent meals help to increase T4 to T3 conversion.... Topper () On Mon, 20 Sep 2004 10:37:59 -0700 (PDT) writes: > A brief recap…..My doctor diagnosed Post Viral Fatigue > Syndrome and ‘subclinical hypothyroidism’ last > December. At that time my TSH was 8. I had been > admitted to hospital in October with severe gastric > and oesophageal inflammation (my digestion had almost > completely shut down). I had swollen hands and feet, > severe pain in my knees and leg muscles, very low > blood pressure, very slow pulse, phlebitis in both > legs, my hair was falling out, my nails peeling and I > had had constant sinus problems and hearing loss for > some time. By Christmas I could hardly climb my stairs > and could not walk further than about 100yards. Prior > to that I had been feeling progressively more tired > over a period of several years; the tiredness being > most severe in the winter months which had led to > diagnoses of Seasonal Affective Disorder. In December > my GP prescribed 25mcg of Thyroxine (synthetic T 4); I > did not recover at all so he raised it to 50mcg, then > in June to 100mcg. > In August my doctor agreed to test for free T3. The > lab refused to do the test! At that time my TSH was > .06 and free T4 was 18 (I can’t remember ranges but I > know it was in the top half of the range). He says > that as a matter of policy the lab will not test for > T3 if the TSH and T4 look OK. I still feel tired and > although my doc has tried to help he has resorted to > saying that my continuing fatigue must be due to PVFS. > > I have managed to return to work (part time teaching, > 5 mornings and 2 afternoons) but am so wiped out at > the end of these sessions that it seems this is all I > can do. I earn just enough to pay the bills but not > enough for private doctor’s consultations and > prescriptions > I’ve learned a lot from this group. I take selenium, > magnesium and Omega 3 supplements. My physical > strength has returned to a level where I can cope with > my job and all of the above unpleasant symptoms have > disappeared but I want some oomph back in my life! > Any suggestions please? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 I saw that had the info for you on a lab and ordering your own tests... and sources for Glandulars there, too.... We've had a few people show up with low storage iron (ferritin) and needing to supplement that.. and quite a few that have been showing up with low Bs... another anemia that seems to be common with those battling with underdosing or lack of diagnosis/treatment. In includes: B1, B2, B12, Oh gosh.. help me here gang... what are all the Bs? I know B12 is a biggy. Here in the states they can be obtained without a prescription... I'm not sure about how it's handled for you guys over there. Adrenal insufficiency can be tested for, said that the lab she suggested will test there. There are a lot of symptoms though, too... many you actually listed, but those symptoms are also common with thyroid disorder. One thing about adrenal insufficiency/fatigue .... is your sleep patterns. Folks often have difficulty waking, trouble falling asleep and staying asleep...and the constant feeling of not having enough sleep even though they seem to be getting enough. One thing I noticed in myself... I used to be a dreamer... Often going to sleep at night with an 'idea' and dreaming about that during the night... great entertainment.. I would ask friends all the time to give me a dream... and off I'd go.... then for years and years after going hypo, I stopped dreaming... if I did anything at all it was nightmares... After getting on adrenal glandular and getting my thyroid levels up with the naturals... I started dreaming again... I can go to bed with an idea and dream about it.... Dreaming only happens during deep sleep. REM sleep. Folks with adrenal and thyroid problems often have trouble getting into that deep level of sleep, the sleep that we need for full, recuperative rest, healing etc..... Are you able to fall asleep at night, sleep well, have dreams, sleep through the night and wake feeling as though you've rested? Or Do you have trouble falling asleep, wake frequently, have difficulty falling back to sleep, have no dreams or BAD dreams and wake in the morning with the feeling that you want to know which way the truck that hit you went.... in pain, exhausted, feeling as though you've not slept yet? SAD is also a symptom of hormonal imbalance. Common in both low thyroid, low adrenal, pituitary and hypothalamus problems.. Oh, and brain trauma. That's where I learned about it... my mom had it BAD after her brain surgery, we had to put special lights in the house to stimulate that area of her brain in the winter time to prevent the depression. Over the years since then I've found that I have problems with it too. I've found a way to fend it off, though. I situate myself in the longer night months of late fall through early winter so that I have a window that the sun can stream through for an hour or so to hit me in the face. That is the dose that I need to keep me doing good through the short days of the year. In my home I had a reading chair that was moved in front of a sunny window... I sat there on Saturday and Sunday mornings and read while the sun smacked me good.... After I built my solar greenhouse.. I spend a LOT of my time out there working with the plants, so got plenty of sunlight that way all through the winter. Now, I live with my dad, I have arranged the office that I work in so that the window that faces southeast is to the front and right of the desk.. the sun hits me from that angle every morning the sun shines through the winter.. keeping me from crawling into a cave... as I used to during the winter.... If you can't set up for sun to hit you... full spectrum florescent lighting will do the trick.. you want to mount the fixture in front of you, over something that you look at a lot... Here we set up the lights over the televisions in three rooms, for my mom. So when she looked at the TVs the light would be entering her yes and stimulating the hypothalamus. It wasn't intrusive or obnoxious, having the light there. It didn't bother any of us. Since mom died dad has taken down the lights.. You're supposed to get 6 to 8 hours of the artificial light a day to provide the correct stimulation. It's a lot like sunlight and vitamin D.. if you get enough sun your body will make everything that you need... but if you don't, you have to take a vitamin supplement.... For some of us, for whatever the reason, we need more of that particular light spectrum to stimulate that area of the brain.. without it we feel very depressed. It might be worth your checking out to see if it might help you. Topper () On Mon, 20 Sep 2004 12:27:46 -0700 (PDT) writes: > As far as I know none of these things have been > tested, although I have been tested for Iron > deficiency and diabetes regularly (because of family > history). I have been told that I have pancreatic > sensitivity so have been eating mini meals for some > months. I have found this immensely helpful and no > longer have cravings, migraine or unexpected energy > dips during the day. Yes I have been thinking I should > test basals, thanks for that. > I am in the UK so can't get lab tests done without > going through my own doc, or consulting a private > doctor at great expense. It makes me so mad that the > guy in charge of the lab can decide the test is not > necessary without ever seeing me. Actually my doctor > said the reason was more probably to do with the cost. > No he won't prescribe Armour. > I mentioned Adrenal Fatigue to my doc; since joining > this group and following up the posts with reading of > my own I feel this might have been a factor in my > illness. However my doctor is totally unfamiliar with > anything other than full blown 's disease. > Could you explain Ferritin and Bs for me please? > Thanks for your help > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 I saw that had the info for you on a lab and ordering your own tests... and sources for Glandulars there, too.... We've had a few people show up with low storage iron (ferritin) and needing to supplement that.. and quite a few that have been showing up with low Bs... another anemia that seems to be common with those battling with underdosing or lack of diagnosis/treatment. In includes: B1, B2, B12, Oh gosh.. help me here gang... what are all the Bs? I know B12 is a biggy. Here in the states they can be obtained without a prescription... I'm not sure about how it's handled for you guys over there. Adrenal insufficiency can be tested for, said that the lab she suggested will test there. There are a lot of symptoms though, too... many you actually listed, but those symptoms are also common with thyroid disorder. One thing about adrenal insufficiency/fatigue .... is your sleep patterns. Folks often have difficulty waking, trouble falling asleep and staying asleep...and the constant feeling of not having enough sleep even though they seem to be getting enough. One thing I noticed in myself... I used to be a dreamer... Often going to sleep at night with an 'idea' and dreaming about that during the night... great entertainment.. I would ask friends all the time to give me a dream... and off I'd go.... then for years and years after going hypo, I stopped dreaming... if I did anything at all it was nightmares... After getting on adrenal glandular and getting my thyroid levels up with the naturals... I started dreaming again... I can go to bed with an idea and dream about it.... Dreaming only happens during deep sleep. REM sleep. Folks with adrenal and thyroid problems often have trouble getting into that deep level of sleep, the sleep that we need for full, recuperative rest, healing etc..... Are you able to fall asleep at night, sleep well, have dreams, sleep through the night and wake feeling as though you've rested? Or Do you have trouble falling asleep, wake frequently, have difficulty falling back to sleep, have no dreams or BAD dreams and wake in the morning with the feeling that you want to know which way the truck that hit you went.... in pain, exhausted, feeling as though you've not slept yet? SAD is also a symptom of hormonal imbalance. Common in both low thyroid, low adrenal, pituitary and hypothalamus problems.. Oh, and brain trauma. That's where I learned about it... my mom had it BAD after her brain surgery, we had to put special lights in the house to stimulate that area of her brain in the winter time to prevent the depression. Over the years since then I've found that I have problems with it too. I've found a way to fend it off, though. I situate myself in the longer night months of late fall through early winter so that I have a window that the sun can stream through for an hour or so to hit me in the face. That is the dose that I need to keep me doing good through the short days of the year. In my home I had a reading chair that was moved in front of a sunny window... I sat there on Saturday and Sunday mornings and read while the sun smacked me good.... After I built my solar greenhouse.. I spend a LOT of my time out there working with the plants, so got plenty of sunlight that way all through the winter. Now, I live with my dad, I have arranged the office that I work in so that the window that faces southeast is to the front and right of the desk.. the sun hits me from that angle every morning the sun shines through the winter.. keeping me from crawling into a cave... as I used to during the winter.... If you can't set up for sun to hit you... full spectrum florescent lighting will do the trick.. you want to mount the fixture in front of you, over something that you look at a lot... Here we set up the lights over the televisions in three rooms, for my mom. So when she looked at the TVs the light would be entering her yes and stimulating the hypothalamus. It wasn't intrusive or obnoxious, having the light there. It didn't bother any of us. Since mom died dad has taken down the lights.. You're supposed to get 6 to 8 hours of the artificial light a day to provide the correct stimulation. It's a lot like sunlight and vitamin D.. if you get enough sun your body will make everything that you need... but if you don't, you have to take a vitamin supplement.... For some of us, for whatever the reason, we need more of that particular light spectrum to stimulate that area of the brain.. without it we feel very depressed. It might be worth your checking out to see if it might help you. Topper () On Mon, 20 Sep 2004 12:27:46 -0700 (PDT) writes: > As far as I know none of these things have been > tested, although I have been tested for Iron > deficiency and diabetes regularly (because of family > history). I have been told that I have pancreatic > sensitivity so have been eating mini meals for some > months. I have found this immensely helpful and no > longer have cravings, migraine or unexpected energy > dips during the day. Yes I have been thinking I should > test basals, thanks for that. > I am in the UK so can't get lab tests done without > going through my own doc, or consulting a private > doctor at great expense. It makes me so mad that the > guy in charge of the lab can decide the test is not > necessary without ever seeing me. Actually my doctor > said the reason was more probably to do with the cost. > No he won't prescribe Armour. > I mentioned Adrenal Fatigue to my doc; since joining > this group and following up the posts with reading of > my own I feel this might have been a factor in my > illness. However my doctor is totally unfamiliar with > anything other than full blown 's disease. > Could you explain Ferritin and Bs for me please? > Thanks for your help > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2004 Report Share Posted September 20, 2004 I saw that had the info for you on a lab and ordering your own tests... and sources for Glandulars there, too.... We've had a few people show up with low storage iron (ferritin) and needing to supplement that.. and quite a few that have been showing up with low Bs... another anemia that seems to be common with those battling with underdosing or lack of diagnosis/treatment. In includes: B1, B2, B12, Oh gosh.. help me here gang... what are all the Bs? I know B12 is a biggy. Here in the states they can be obtained without a prescription... I'm not sure about how it's handled for you guys over there. Adrenal insufficiency can be tested for, said that the lab she suggested will test there. There are a lot of symptoms though, too... many you actually listed, but those symptoms are also common with thyroid disorder. One thing about adrenal insufficiency/fatigue .... is your sleep patterns. Folks often have difficulty waking, trouble falling asleep and staying asleep...and the constant feeling of not having enough sleep even though they seem to be getting enough. One thing I noticed in myself... I used to be a dreamer... Often going to sleep at night with an 'idea' and dreaming about that during the night... great entertainment.. I would ask friends all the time to give me a dream... and off I'd go.... then for years and years after going hypo, I stopped dreaming... if I did anything at all it was nightmares... After getting on adrenal glandular and getting my thyroid levels up with the naturals... I started dreaming again... I can go to bed with an idea and dream about it.... Dreaming only happens during deep sleep. REM sleep. Folks with adrenal and thyroid problems often have trouble getting into that deep level of sleep, the sleep that we need for full, recuperative rest, healing etc..... Are you able to fall asleep at night, sleep well, have dreams, sleep through the night and wake feeling as though you've rested? Or Do you have trouble falling asleep, wake frequently, have difficulty falling back to sleep, have no dreams or BAD dreams and wake in the morning with the feeling that you want to know which way the truck that hit you went.... in pain, exhausted, feeling as though you've not slept yet? SAD is also a symptom of hormonal imbalance. Common in both low thyroid, low adrenal, pituitary and hypothalamus problems.. Oh, and brain trauma. That's where I learned about it... my mom had it BAD after her brain surgery, we had to put special lights in the house to stimulate that area of her brain in the winter time to prevent the depression. Over the years since then I've found that I have problems with it too. I've found a way to fend it off, though. I situate myself in the longer night months of late fall through early winter so that I have a window that the sun can stream through for an hour or so to hit me in the face. That is the dose that I need to keep me doing good through the short days of the year. In my home I had a reading chair that was moved in front of a sunny window... I sat there on Saturday and Sunday mornings and read while the sun smacked me good.... After I built my solar greenhouse.. I spend a LOT of my time out there working with the plants, so got plenty of sunlight that way all through the winter. Now, I live with my dad, I have arranged the office that I work in so that the window that faces southeast is to the front and right of the desk.. the sun hits me from that angle every morning the sun shines through the winter.. keeping me from crawling into a cave... as I used to during the winter.... If you can't set up for sun to hit you... full spectrum florescent lighting will do the trick.. you want to mount the fixture in front of you, over something that you look at a lot... Here we set up the lights over the televisions in three rooms, for my mom. So when she looked at the TVs the light would be entering her yes and stimulating the hypothalamus. It wasn't intrusive or obnoxious, having the light there. It didn't bother any of us. Since mom died dad has taken down the lights.. You're supposed to get 6 to 8 hours of the artificial light a day to provide the correct stimulation. It's a lot like sunlight and vitamin D.. if you get enough sun your body will make everything that you need... but if you don't, you have to take a vitamin supplement.... For some of us, for whatever the reason, we need more of that particular light spectrum to stimulate that area of the brain.. without it we feel very depressed. It might be worth your checking out to see if it might help you. Topper () On Mon, 20 Sep 2004 12:27:46 -0700 (PDT) writes: > As far as I know none of these things have been > tested, although I have been tested for Iron > deficiency and diabetes regularly (because of family > history). I have been told that I have pancreatic > sensitivity so have been eating mini meals for some > months. I have found this immensely helpful and no > longer have cravings, migraine or unexpected energy > dips during the day. Yes I have been thinking I should > test basals, thanks for that. > I am in the UK so can't get lab tests done without > going through my own doc, or consulting a private > doctor at great expense. It makes me so mad that the > guy in charge of the lab can decide the test is not > necessary without ever seeing me. Actually my doctor > said the reason was more probably to do with the cost. > No he won't prescribe Armour. > I mentioned Adrenal Fatigue to my doc; since joining > this group and following up the posts with reading of > my own I feel this might have been a factor in my > illness. However my doctor is totally unfamiliar with > anything other than full blown 's disease. > Could you explain Ferritin and Bs for me please? > Thanks for your help > Quote Link to comment Share on other sites More sharing options...
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