Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Chicago and Suburbs, IL The Breakfast Club, Pulmonary Fibrosis Support Group Meetings: 4th Saturday of the month - 10:00 AM Location: Different Restaurants Contact: Leanne Storch (office) or (home) RSVP, please This meeting is open to Pulmonary Fibrosis patients and their families and friends. Side note: Leanne is with the Pulmonary Fibrosis Foundation, located in Chicago and is an incredible person. I'd definitely give her a call. For others looking for support groups, here are a couple of sources: http://www.pulmonaryfibrosis.org/groups.htm http://www.coalitionforpf.org/Patients/support/default.asp > > > Okay, I'm turning to the brain trust - I'm sure someone on this list > will have some ideas for me. Grin! We have a person with HPS being > evaluated for lung transplant in Chicago. I'm just wondering if anyone > lives there and might have some suggestions about local places she could > plug into for support/resources etc. I know there's a lot of PF research > going on in Chicago etc. > > Thanks! > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > www.heatherkirkwood.blogspot.com > <http://www.heatherkirkwood.blogspot.com> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 , LEANNE. LOL Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Okay, I'm turning to the brain trust - I'm sure someone on this list will have some ideas for me. Grin! We have a person with HPS being evaluated for lung transplant in Chicago. I'm just wondering if anyone lives there and might have some suggestions about local places she could plug into for support/resources etc. I know there's a lot of PF research going on in Chicago etc. Thanks! Hermansky-Pudlak Syndrome albinism/PF 06 www.heatherkirkwood.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 , LEANNE. LOL Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Okay, I'm turning to the brain trust - I'm sure someone on this list will have some ideas for me. Grin! We have a person with HPS being evaluated for lung transplant in Chicago. I'm just wondering if anyone lives there and might have some suggestions about local places she could plug into for support/resources etc. I know there's a lot of PF research going on in Chicago etc. Thanks! Hermansky-Pudlak Syndrome albinism/PF 06 www.heatherkirkwood.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Oh I'm sorry , maybe you didn't know thats where she is. I am such a smarty sometimes. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " , LEANNE. LOL Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Okay, I'm turning to the brain trust - I'm sure someone on this list will have some ideas for me. Grin! We have a person with HPS being evaluated for lung transplant in Chicago. I'm just wondering if anyone lives there and might have some suggestions about local places she could plug into for support/resources etc. I know there's a lot of PF research going on in Chicago etc. Thanks! Hermansky-Pudlak Syndrome albinism/PF 06 www.heatherkirkwood.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 leanne has a group she meets with once a month kicking it up. it's a blast and so interesting to talk to them. keeeep on talking .............. jaime > > > Okay, I'm turning to the brain trust - I'm sure someone on this list > will have some ideas for me. Grin! We have a person with HPS being > evaluated for lung transplant in Chicago. I'm just wondering if anyone > lives there and might have some suggestions about local places she could > plug into for support/resources etc. I know there's a lot of PF research > going on in Chicago etc. > > Thanks! > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > www.heatherkirkwood.blogspot.com > <http://www.heatherkirkwood.blogspot.com> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 The thought of a group led by Leanne is enough to make sure that if I ever plan a trip to Chicago it will be scheduled to make her group. (And no, not on the Harley) > > > > > > Okay, I'm turning to the brain trust - I'm sure someone on this list > > will have some ideas for me. Grin! We have a person with HPS being > > evaluated for lung transplant in Chicago. I'm just wondering if > anyone > > lives there and might have some suggestions about local places she > could > > plug into for support/resources etc. I know there's a lot of PF > research > > going on in Chicago etc. > > > > Thanks! > > > > > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > > > www.heatherkirkwood.blogspot.com > > <http://www.heatherkirkwood.blogspot.com> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 The thought of a group led by Leanne is enough to make sure that if I ever plan a trip to Chicago it will be scheduled to make her group. (And no, not on the Harley) > > > > > > Okay, I'm turning to the brain trust - I'm sure someone on this list > > will have some ideas for me. Grin! We have a person with HPS being > > evaluated for lung transplant in Chicago. I'm just wondering if > anyone > > lives there and might have some suggestions about local places she > could > > plug into for support/resources etc. I know there's a lot of PF > research > > going on in Chicago etc. > > > > Thanks! > > > > > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > > > www.heatherkirkwood.blogspot.com > > <http://www.heatherkirkwood.blogspot.com> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 Okay, having a brain fart...grin....I did know Leanne was in Chicago....it just slipped my mind. Duh! GRIN!!!!!! Hermansky-Pudlak Syndrome albinism/PF 06 www.heatherkirkwood.blogspot.com > > > Okay, I'm turning to the brain trust - I'm sure someone on this list > will have some ideas for me. Grin! We have a person with HPS being > evaluated for lung transplant in Chicago. I'm just wondering if > anyone lives there and might have some suggestions about local places > she could plug into for support/resources etc. I know there's a lot > of PF research going on in Chicago etc. > > Thanks! > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > www.heatherkirkwood.blogspot.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 Okay, having a brain fart...grin....I did know Leanne was in Chicago....it just slipped my mind. Duh! GRIN!!!!!! Hermansky-Pudlak Syndrome albinism/PF 06 www.heatherkirkwood.blogspot.com > > > Okay, I'm turning to the brain trust - I'm sure someone on this list > will have some ideas for me. Grin! We have a person with HPS being > evaluated for lung transplant in Chicago. I'm just wondering if > anyone lives there and might have some suggestions about local places > she could plug into for support/resources etc. I know there's a lot > of PF research going on in Chicago etc. > > Thanks! > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > www.heatherkirkwood.blogspot.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 Okay, having a brain fart...grin....I did know Leanne was in Chicago....it just slipped my mind. Duh! GRIN!!!!!! Hermansky-Pudlak Syndrome albinism/PF 06 www.heatherkirkwood.blogspot.com > > > Okay, I'm turning to the brain trust - I'm sure someone on this list > will have some ideas for me. Grin! We have a person with HPS being > evaluated for lung transplant in Chicago. I'm just wondering if > anyone lives there and might have some suggestions about local places > she could plug into for support/resources etc. I know there's a lot > of PF research going on in Chicago etc. > > Thanks! > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > www.heatherkirkwood.blogspot.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 We all have them. I just blame them all on oxygen deprivation now. In fact, anything dumb I do, too. Someone tries to talk you into some event you have no interest, just give in, don't show....oxygen deprivation. > > > > > > Okay, I'm turning to the brain trust - I'm sure someone on this > list > > will have some ideas for me. Grin! We have a person with HPS being > > evaluated for lung transplant in Chicago. I'm just wondering if > > anyone lives there and might have some suggestions about local > places > > she could plug into for support/resources etc. I know there's a > lot > > of PF research going on in Chicago etc. > > > > Thanks! > > > > > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > > > www.heatherkirkwood.blogspot.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 People know so little about Raynaud's or PF just say it occasionally hits that part of the brain too. There are ways. My former mother-in- law couldn't get to the mail box 30 feet from her house because of the asthma but then would spend 6 hours in 105 degree code red quality air working with her flowers. Of course I find myself doing sort of the opposite. Someone says I look good or sound good, its because I'm hitting the juice (oxygen). I had a friend in South Florida who was in NY for two weeks of chemo (lymphoma). He then flew down and entered a Marlin tournament. Caught the biggest ever in that part of the Bahamas. Gave credit to the extra strength battling it to the chemo. > > > > > > > > > Okay, I'm turning to the brain trust - I'm sure someone on this > > list > > > will have some ideas for me. Grin! We have a person with HPS > being > > > evaluated for lung transplant in Chicago. I'm just wondering if > > > anyone lives there and might have some suggestions about local > > places > > > she could plug into for support/resources etc. I know there's a > > lot > > > of PF research going on in Chicago etc. > > > > > > Thanks! > > > > > > > > > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > > > > > www.heatherkirkwood.blogspot.com > > > > > > > > > > > ______________________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment ? with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 People know so little about Raynaud's or PF just say it occasionally hits that part of the brain too. There are ways. My former mother-in- law couldn't get to the mail box 30 feet from her house because of the asthma but then would spend 6 hours in 105 degree code red quality air working with her flowers. Of course I find myself doing sort of the opposite. Someone says I look good or sound good, its because I'm hitting the juice (oxygen). I had a friend in South Florida who was in NY for two weeks of chemo (lymphoma). He then flew down and entered a Marlin tournament. Caught the biggest ever in that part of the Bahamas. Gave credit to the extra strength battling it to the chemo. > > > > > > > > > Okay, I'm turning to the brain trust - I'm sure someone on this > > list > > > will have some ideas for me. Grin! We have a person with HPS > being > > > evaluated for lung transplant in Chicago. I'm just wondering if > > > anyone lives there and might have some suggestions about local > > places > > > she could plug into for support/resources etc. I know there's a > > lot > > > of PF research going on in Chicago etc. > > > > > > Thanks! > > > > > > > > > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > > > > > www.heatherkirkwood.blogspot.com > > > > > > > > > > > ______________________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment ? with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 No in betweens? Anyone got a coin to flip? Can it be one on Odd Days and the other on Even Days? lol > > > > > > > > > > > > Okay, I'm turning to the brain trust - I'm sure someone on this > > > list > > > > will have some ideas for me. Grin! We have a person with HPS > > being > > > > evaluated for lung transplant in Chicago. I'm just wondering if > > > > anyone lives there and might have some suggestions about local > > > places > > > > she could plug into for support/resources etc. I know there's a > > > lot > > > > of PF research going on in Chicago etc. > > > > > > > > Thanks! > > > > > > > > > > > > > > > > Hermansky-Pudlak Syndrome albinism/PF 06 > > > > > > > > www.heatherkirkwood.blogspot.com > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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