Re: [ L

[Guest guest]

, As for me I would like to hear your reply to this question.. I

do think this is a good subject

for us to have. We are all in this boat and will come to this and I

have a good idea but would like to hear your experience. We were all

praying for you, worrying about you. I have talked to my Dr. also and

do not fear death. Don't want to dwell on it either but it is what it

is.

Love and Prayers, Peggy ipf Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

Jim,

I really thought I was going to die...everyone said so. I also

wondered how it would happen. I wanted to know exactly what to say

in my living will etc. I do not know if this is the place to talk

about it, so maybe you could email me or send me your email. I can

tell you exactly what my pulmonologists told me. We had quiet a

discussion. As you can see...I did not die right away as thought.

In fact...I dont plant on dieing soon but I once thought so, so I

found out everything. Write me if you want. NCtulip#cox.net

L.

(unknown)

Hello Folks,

I've just re-joined this group and first let me say, thank you for

sharing.

I have a weird question......actually you may think bizarre and

unbalanced are better words. I am " taking care of

business " ..........I've done my will and have pretty much everything

lined out. Maybe the only positive thing about this disease (IPF -

2005) is having time to get this stuff done. Of course, this so-

called benefit is not exclusive to IPF. I'm in the middle of

completing my Durable Power of Attorney for Health Care and I need to

be specific about some things. Things that I don't know about.

So.....here goes.....Can someone tell me what it looks like to die

from IPF? or point me in the right direction? Please don't dismiss me

as being a flake, I've been thinking about this for a few months.

I've been with several people that died from cancer and read a book

written by 2 hospice nurses ( " Final Gifts " ) so I have a good idea

what that would be like. (Lung cancer in remission - 3 years and

counting) My pulmonologist and I have discussed many end of life

issues and he's always been straight forward and candid. We've agreed

that there will be no time predictions. During my last visit I asked

him this very question and he danced around it saying that most older

men die from pneumonia instead. 2 weeks later I got a letter stating

that he has quit his practice and is moving. I've yet to find a

replacement. Shopping for a replacement means a 350 mile/ $400.00

flight into Anchorage. So.......I want to make informed decisions

regarding my living will. If this whole line of discussion is totally

out of line then please forgive me. AND....if I sound unbelievably

calm and detached........chalk it up to......it's Monday? I'ts

raining? I had soup for lunch? meaning what.....that at this moment I

am calm and detached......check with me in an hour. I just had

another thought.....perhaps this whole line of thought has no place

here in this support group. I've noticed that people here are, for

the most part, upbeat and positive. Hopefully, if I've stepped over

some line Leanne will bleep me.

Jim Wallman IPF 2005

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