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Rant away Carol... even though it doesn't make the problem go away at least it relieves some of what gets backed up inside us.....

It bites when the folks closest to us treat us like lazy morons... I have two of them here... one, a nurse, knows so much more than I do about thyroid. That's why she's on 25 mcg of Synthroid and takes about 50 others pills and hormones patches to quiet all her symptoms... and whenever I try to bring stuff up.... I mostly get shushed...

It will be interesting to see her face when she sees me after being gone for five weeks and what my legs and such look like.... The bandages and massage are taking away a lot of what I, and everyone else, thought was fat... It wasn't fat... it was all lymphedema.... It's sad.... I'm working on just one side of my body.. to see the difference that the wrapping makes... My legs don't match anymore.... Now I'm working on my arms...

Thyroid malfunction affects so many parts of our bodies... and not all of us the same... How will we ever teach others????

EEEEEEeeeekkkkkkkkkkkkk...............

end of Topper rant.....

On Wed, 13 Oct 2004 18:55:00 -0700 "Carol M. s" writes:

Just feeling tired and fed up with stuff, and I hope it is ok if I rant a bit. I was in to see my hematologist again today to get some other bloodwork done and, he has taken a bit of an interest in my thyroid problems, and has been asking me how I’m doing on levothyroxine. I told me that it’s about the same, just had my dose increased to 50 mcg (up from 25 – yippee I’m rocking now!!) and I don’t know yet how it’s going to go since it’s too soon for the new magic pill to work it’s wonders on me. I asked him what caused my thyroid to stall and if I have ever been tested for the antibodies. He says no, and no, he doesn’t believe that I have Hashimoto’s (sp?) because if I did, I would be going from hypo to hyper and that is not my problem. I’m sorry but that doesn’t even sound close to correct with everything I have been reading here. I know this is not his specialty but come on. With everything I have spouted at him so far, he knows I am leagues above the average bear on thyroid knowledge. So that is depressing. And then I was complaining about my weight to my sister who is a nurse and usually quite progressive thinking. She said, “only you know what to do to fix your weight.” And I lost it – I said, “My eating habits are phenomenal (almost!) probably much better than yours!! – it just sucks that my thyroid problem has not been very conducive to weight loss!” and she says “well, maybe you should get your dosage looked at” “I did, maybe it’s just the !@#$%^ synthroid!!” and she says “Carol, millions and millions of people have been treated successfully with synthroid” and I said “and millions and millions of people have not!”

A stupid and pointless argument of course, no one gets it (except you guysJ) And if all that was not enough, I now have to give myself Lovenox shots for a week to thin my blood. I have never given myself a shot and I am not pleased. *** ending the Carol-Rant***

Carol

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Rant away Carol... even though it doesn't make the problem go away at least it relieves some of what gets backed up inside us.....

It bites when the folks closest to us treat us like lazy morons... I have two of them here... one, a nurse, knows so much more than I do about thyroid. That's why she's on 25 mcg of Synthroid and takes about 50 others pills and hormones patches to quiet all her symptoms... and whenever I try to bring stuff up.... I mostly get shushed...

It will be interesting to see her face when she sees me after being gone for five weeks and what my legs and such look like.... The bandages and massage are taking away a lot of what I, and everyone else, thought was fat... It wasn't fat... it was all lymphedema.... It's sad.... I'm working on just one side of my body.. to see the difference that the wrapping makes... My legs don't match anymore.... Now I'm working on my arms...

Thyroid malfunction affects so many parts of our bodies... and not all of us the same... How will we ever teach others????

EEEEEEeeeekkkkkkkkkkkkk...............

end of Topper rant.....

On Wed, 13 Oct 2004 18:55:00 -0700 "Carol M. s" writes:

Just feeling tired and fed up with stuff, and I hope it is ok if I rant a bit. I was in to see my hematologist again today to get some other bloodwork done and, he has taken a bit of an interest in my thyroid problems, and has been asking me how I’m doing on levothyroxine. I told me that it’s about the same, just had my dose increased to 50 mcg (up from 25 – yippee I’m rocking now!!) and I don’t know yet how it’s going to go since it’s too soon for the new magic pill to work it’s wonders on me. I asked him what caused my thyroid to stall and if I have ever been tested for the antibodies. He says no, and no, he doesn’t believe that I have Hashimoto’s (sp?) because if I did, I would be going from hypo to hyper and that is not my problem. I’m sorry but that doesn’t even sound close to correct with everything I have been reading here. I know this is not his specialty but come on. With everything I have spouted at him so far, he knows I am leagues above the average bear on thyroid knowledge. So that is depressing. And then I was complaining about my weight to my sister who is a nurse and usually quite progressive thinking. She said, “only you know what to do to fix your weight.” And I lost it – I said, “My eating habits are phenomenal (almost!) probably much better than yours!! – it just sucks that my thyroid problem has not been very conducive to weight loss!” and she says “well, maybe you should get your dosage looked at” “I did, maybe it’s just the !@#$%^ synthroid!!” and she says “Carol, millions and millions of people have been treated successfully with synthroid” and I said “and millions and millions of people have not!”

A stupid and pointless argument of course, no one gets it (except you guysJ) And if all that was not enough, I now have to give myself Lovenox shots for a week to thin my blood. I have never given myself a shot and I am not pleased. *** ending the Carol-Rant***

Carol

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Yes it does hurt when those closest to us don't understand. I work

from the time I was 14 until I was 40 ... and always made to feel that

my worth depended on my earning capabilities. I also raised 4

children in that time period. When I was with my mom a couple of

months ago ( the time period when I was going to the gym) and I'd been

really working at dropping the extra weight. And she said ...

my brother didn't have weight problems because he worked. I've been

on disability for 2 years ... because of the panic and anxiety plus

arthritis. I asked her if she thought I was playing tidily winks at

the

gym for all that time ... and her reply was ... I don't know why your

upset with me. And she really doesn't get it ... she and my family

relate over weight with lazy ... and stupid. I used to try and hide my

tiredness ... now I don't care ... if they call and I'm sleeping well

.... to bad ... I'm sleeping. wow ... rant of my own there.

topper2@... wrote:

Having a crappy day

Rant away Carol... even though it doesn't make the problem go

away at least it relieves some of what gets backed up inside us.....

It bites when the folks closest to us treat us like lazy

morons... I have two of them here... one, a nurse, knows so much more

than I do about thyroid. That's why she's on 25 mcg of Synthroid and

takes about 50 others pills and hormones patches to quiet all her

symptoms... and whenever I try to bring stuff up.... I mostly get

shushed...

It will be interesting to see her face when she sees me after

being gone for five weeks and what my legs and such look like.... The

bandages and massage are taking away a lot of what I, and everyone

else, thought was fat... It wasn't fat... it was all lymphedema....

It's sad.... I'm working on just one side of my body.. to see the

difference that the wrapping makes... My legs don't match anymore....

Now I'm working on my arms...

Thyroid malfunction affects so many parts of our bodies... and

not all of us the same... How will we ever teach others????

EEEEEEeeeekkkkkkkkkkkkk...............

end of Topper rant.....

On Wed, 13 Oct 2004 18:55:00 -0700 "Carol M. s"

writes:

Just feeling tired and fed up with stuff, and I hope it is ok

if I rant a bit. I was in to see my hematologist again today to get some other

bloodwork done and, he has taken a bit of an interest in my thyroid

problems, and has been asking me how I’m doing on

levothyroxine. I told me that it’s about the same, just had my dose

increased to 50 mcg (up from 25 – yippee I’m rocking now!!) and I don’t know yet how it’s going to go since it’s too soon for the new

magic pill to work it’s wonders on me. I asked him what

caused my thyroid to stall and if I have ever been tested for the

antibodies. He says no, and no, he doesn’t believe that I have Hashimoto’s (sp?) because if I

did, I would be going from hypo to hyper and that is not my problem. I’m sorry but that doesn’t even sound close to

correct with everything I have been reading here. I know this is not

his specialty but come on. With everything I have spouted at him

so far, he knows I am leagues above the average bear on thyroid knowledge. So that is

depressing. And then I was complaining about my weight to my sister who

is a nurse and usually quite progressive thinking. She said, “only you know what to

do to fix your weight.” And I lost it – I said, “My eating habits are

phenomenal (almost!) probably much better than yours!! – it just sucks that my thyroid problem has not been very conducive to

weight loss!” and she says “well, maybe you should get your dosage

looked at” “I did, maybe it’s just the !@#$%^

synthroid!!” and she says “Carol, millions and millions of people have been treated successfully

with synthroid” and I said “and millions and millions of people have not!”

A stupid and pointless argument of course, no one

gets it (except you guysJ) And if all that was not enough, I now have to give myself

Lovenox shots for a week to thin my blood. I have never given myself a shot and I am not

pleased. *** ending the Carol-Rant***

Carol

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I had my own home.. car... designed and built a solar greenhouse that supplemented the heat in my home and SAVED me money... I had a welfare organization come to me to help them set up kits for needy families so that they could build solar greenhouses to supplement their heat and grow vegies....

Does anyone remember that? No... they look at me with no home, no car, living with my dad and say 'what a shame'. And the whispers that I'm too lazy to work... Whole long story there... but with no transportation to get to the nearest bus stop.... and not being allowed to have folks come to the house (I used to make pretty decent money doing computer repair, building custom machines and tutoring) I'm just the old maid daughter mooching off her widower dad.

Oh, well... I know I'm a good person. And for how busy I am... I'm sure not sitting on my butt doing nothing all day!!!

Topper ()

On Thu, 14 Oct 2004 11:48:42 -0400 writes:

Yes it does hurt when those closest to us don't understand. I work from the time I was 14 until I was 40 ... and always made to feel that my worth depended on my earning capabilities. I also raised 4children in that time period. When I was with my mom a couple of months ago ( the time period when I was going to the gym) and I'd been really working at dropping the extra weight. And she said ...my brother didn't have weight problems because he worked. I've been on disability for 2 years ... because of the panic and anxiety plus arthritis. I asked her if she thought I was playing tidily winks at the gym for all that time ... and her reply was ... I don't know why your upset with me. And she really doesn't get it ... she and my family relate over weight with lazy ... and stupid. I used to try and hide mytiredness ... now I don't care ... if they call and I'm sleeping well ... to bad ... I'm sleeping. wow ... rant of my own there.

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Not to pry, but why won't your dad let you have customers come over

to your house? If you can work more at home, won't that mean

less " mooching " off him (as he puts it)? It sounds like on the one

hand, he acts like he resents your current health difficulties, but

on the other, he won't let you do things to help yourself get better!

blithe

> I had my own home.. car... designed and built a solar greenhouse

that

> supplemented the heat in my home and SAVED me money... I had a

welfare

> organization come to me to help them set up kits for needy families

so

> that they could build solar greenhouses to supplement their heat

and grow

> vegies....

>

> Does anyone remember that? No... they look at me with no home, no

car,

> living with my dad and say 'what a shame'. And the whispers that

I'm too

> lazy to work... Whole long story there... but with no

transportation to

> get to the nearest bus stop.... and not being allowed to have folks

come

> to the house (I used to make pretty decent money doing computer

repair,

> building custom machines and tutoring) I'm just the old maid

daughter

> mooching off her widower dad.

>

> Oh, well... I know I'm a good person. And for how busy I am... I'm

sure

> not sitting on my butt doing nothing all day!!!

>

> Topper ()

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