Hi Gang

[Guest guest]

,

I'm " not at liberty to say " what I think of the characters

you've had to deal with in your monumental insurance fiasco!!

It makes smoke come out of my ears. Gosh I hope your

justified anger and determination get some results SOON

from the pinhead brigade. Makes you wonder who ties

those folks' shoelaces for them!

Peggy,

Puh-leeze, I hope your situation gets resolved long before

you find yourself entangled in a nightmare like 's.

Judy,

I am SO encouraged and uplifted by the news of your

homecoming. Jeff did a great job of keeping us posted

after your surgery. I pray that every day finds you a little

bit stronger and happier, and that maintaining your new

" normal " gets easier all the time. I'm so happy for you,

and pray that I will get a chance to share the same

experience one of these days. I could never have guessed

that so much would be riding on one telephone call!

To all the newbies - just wanted to say again what a

super contribution you are making to the site. It's always

good to hear from you, and I've learned a lot from you.

Irene,

So sorry about the Reynaud's. Like you need something

else to add to the list. I hope some of the board's

suggestions will bring you some relief. Hang in there!

RR,

Thank you so much - the video was definitely worth viewing!

Choosing life can be a seemingly simple choice but often

such a heroic act as well. This man is doing more than

surviving - he's a productive citizen... amazing!! I hope you

are having one of your better days.

Kerry,

Just wanted to say I hope you having a good day, that

the kids are off to a good start in school, and that you have

something fun planned for the weekend.

Joy,

I'm on 10 mg of Pred a day, and presumably after transplant,

God willing, I'll always be on it. I gained about 15 pounds

and have about 5 of that still to lose. But I had 15 additional

ones to lose already! I'm trying to psych my recumbent bike

into doing more than it's intended to. I can dream, right?

I've been researching power chairs (electric wheelchairs),

because it's probably going to be the next step for me.

I DETEST the thought, but I'm going to have to do

something to solve the problem of my sats dropping

multiple times a day by walking from a chair or

another room to where my tanks are (so I can turn up my

liter flow for exertion - duh). I would have thought my

biggest problem would be out in public, but so far the Helios

Companions and my Container Store cart have pretty well

solved that problem.

Janine, is yours a scooter or a power chair? What brand?

Tomorrow I'm having my second upper Endoscopy in 6

weeks, this one hopefully an uneventful follow-up to

make sure the ablation he did before on the weird condition

he found was a big success.

I've become a US Open tennis junkie. I watched one match

and got totally hooked. I don't know when I've watched so

much t.v. but I'm really enjoying it. THOSE guys have some

superhuman lungs!!!!

Leanne,

Sorry I missed the chat last week. I actually forgot even

though I had written it on my calendar. I'll cheer on my

brain cells for next week... they need all the help I can give

them.

TTFN (ta ta for now),

Gwynne IPF 7/04 listed for transplant 3/07 Texas