Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 Rosemary When I first met Alison Colley, she asked if she could do the blood tests. She told me then of the cost, but that I would have any cost to pay, Central Coast Area Health would pick up the recharge. and have seen North and she told them there is one other family that had been mapped. It's such early days in NF2 research I suppose. It was done last April and no charge has come through. Rosemary, am I being too nosy if I ask your location. I always place you somewhere near the Music Festival, am I right? Just ignore if you want. Who is the oncologist for? Not more health problems elsewhere in the family, I hope. Regards, ine Hi ine > > > > > >> Welcome back, > >> > >> I am curious about what you mean when you say they have never seen this > >> defect(mutation?) before ? But enough similarities to confirm. > >> > >> These tests are expensive and our insurance doesn't cover it(aus), so I > > hope > >> they give you a bit more info than that.... > >> > >> Do they tell you what sort of mutation? > >> go on iine, hit me with the lingo. > >> > >> As for son, hey I have three out of control ratbags here, Kids Rule, ok? > >> > >> You can only guide him, Who knows he may actually be doing exactly the > > right > >> thing. What about passing on crew stories(authors permitting). So it is > > not > >> just coming from you but other concerned folks as well. Just a thought. > >> rosemary > >> > >> > >> > >> > >> > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Hey ine, it's good seeing your name backup on my screen. They are making me pay....They(genetics) say is not necessary for a proband, and it is less conclusive. Either Louis will develop more tumours and be confirmed or he won't...that is their position. I don't mind, I know they have a tight budget to work under. I have spoken to both those ladies at length a long time ago.(North and Colley) Music Festival??? I am in Bowral, we have a beautiful old rambling house on the side of Gibraltar(extinct volcano). We also have a property , it is on most maps, called " High Range " ( our property is only about a 1/5 of original High Range station). As the name implies, it is high country, actually the range was formed from an eruption from Gibraltar long ago. So they say...For me it is the plains of heaven. One day and I will build there. For now it is easier living in town with the kids. With a pop. of 9000 it is an idyllic rural small country town experience. We only made the move from Sydney 2 years ago. It has been a very big 2years. Oncology was about Louis' last tumor which was invasive of brain. glad to see you are making good progress, rosemary. on 29/1/01 11:55 AM, ine Stanton at pstanton@... wrote: > Rosemary > When I first met Alison Colley, she asked if she could do the blood tests. > She told me then of the cost, but that I would have any cost to pay, Central > Coast Area Health would pick up the recharge. and have seen > North and she told them there is one other family that had been > mapped. It's such early days in NF2 research I suppose. It was done last > April and no charge has come through. > Rosemary, am I being too nosy if I ask your location. I always place you > somewhere near the Music Festival, am I right? Just ignore if you want. > Who is the oncologist for? Not more health problems elsewhere in the > family, I hope. > Regards, > ine > > Hi ine >>> >>> >>>> Welcome back, >>>> >>>> I am curious about what you mean when you say they have never seen this >>>> defect(mutation?) before ? But enough similarities to confirm. >>>> >>>> These tests are expensive and our insurance doesn't cover it(aus), so I >>> hope >>>> they give you a bit more info than that.... >>>> >>>> Do they tell you what sort of mutation? >>>> go on iine, hit me with the lingo. >>>> >>>> As for son, hey I have three out of control ratbags here, Kids Rule, > ok? >>>> >>>> You can only guide him, Who knows he may actually be doing exactly the >>> right >>>> thing. What about passing on crew stories(authors permitting). So it is >>> not >>>> just coming from you but other concerned folks as well. Just a thought. >>>> rosemary >>>> >>>> >>>> >>>> >>>> >>> >>> >>> >>> >> >> >> >> >> > > > > Quote Link to comment Share on other sites More sharing options...
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