6 wk now w/out my thyroid med help

[Guest guest]

I'm new...Half of my thyroid(rt side) was surgically removed about 5

yr ago...recently reg family dr found lump on my left thyroid

gland..sent me to get Ultrasound...it showed a lesion..then family dr

ordered a Radioactive thyroid uptake scan. They scheduled it for

6weekslater..I originally thought " no problem and planned on working

until day of test.I teach 2nd graders. But,last weekend(5th week no

Thyroid med); I " wigged out " ...trembling head and rt hand and

arm..dizzy,confused,crying,trouble talking(could barely make a

sentence..stuttered and couldn't find what word I was trying to

say,lower rt leg felt like I had after effects of a leg cramp...and I

was cold.Since my dr office closed hubby took me to after hours

clinic. That dr told me to camp out Mon. morning at my family dr

office and insist they move my test date up ASAP..reg dr office drew

blood and said I needed to wait till date of test...Now I'm waiting it

out at home...most symptoms diminished now that I'm more rested.But

each afternoon I become very antsy and feel like my abdomen is all

crawly on the inside...not to mention the whole room appeared tilted.

The tilt of rm only occured one afternoon.I have a buddy in Nuclear

med at the " other " hospital..he said they only have patients wait

about 2-4 weeks at the most. I need to stay at hospital I'm scheduled

with due to insurance.We are a pretty descent sized city...so I would

think that both hospitals would be up to speed as to current testing

procedures. I read at the American cancer ass. website that this same

test has a 1-2 week wait time to be off your med so that the

" hypothyroid patient doesn't have to suffer needlessly " .. I feel used

and abused...read this info to my family dr and they could only move

me up by 1 day..Big Whoop!! I'm also frustrated as I seldom miss

work..and now I'm just resting until time to go for this test. Any

advice???...I now feel when the Ultrasound came back with report of a

lesion that I should have had my family dr refer me straight on to my

Endocrinolist in Little Rock, AR. I foolishly trusted and had faith

that this was something we could handle locally and then if it showed

something bad on the radio uptake scan then I would take it to my

Little Rock thyroid dr. Has anyone gone through a similiar

situation??My two kids are taking turns missing 1 day at a time from

school in case I " wig out " again.I've waited too much now to turn back

as I will get my uptake scan on Oct 4th...this coming

Monday...Helpless in Searcy,AR. My hubby tells me to just enjoy my

time off but I'm too keyed up to enjoy it. I have faith in God and the

only consolation I have is that I feel this is all for a

reason..Please e mail me back if you can advise or console me...Thank

you...

[Guest guest]

Not to be flippant. but, welcome to the club...

Doctors can be soooo blasted lame when it comes to good thyroid care.

The 6 weeks no med rule has to do with the half life of T4 in the body, that has been revised, but not all hospitals are adhering to that, just like the labs *sigh*. But if you are already tapped out... you need the tests now so that you can get going with either the surgery or meds or whatever needs to be done after the results are in.... I was in full blown thyroid storm with all kinds of hyper and they still were able to do an accurate scan on me, that was 15 years ago. It was a great picture too, the tech didn't move the monitor so it was facing me and I got to watch the stuff get sucked up... a perfectly shaped and blemish free gland.... the tech got his butt chewed for his mistake, I wasn't supposed to be able to see it.

Shame on your doc for not understanding.

Okay.. that's out of my system, sorry....

For now.. there isn't a whole lot you can do.. taking anything now may just going to skew the reference the doc is basing this on.

What was your previous diagnosis, why did they remove the first lobe? For you to have bottomed out so quickly, hmmmm. What med were you on, what dose, and do you have copies of the labs to show us what they based your dosage on? I suspect that you were underdosed to have bottomed out so quickly.

The shaking and other symptoms you describe.. it sounds like it MIGHT be adrenal.. that your adrenals are freaking due to insufficient thyroid hormone... it could also be that your remaining gland has stormed and what you are experience is thyroid storm.

How is your appetite, weight (going up, down, steady)? Pulse, temperature?

It's not easy to go through this stuff.. you want to be able to put all your faith in your doc and not worry about anything. But many of us have found that we get farther, faster, by being out own advocates, being aware of what is going on and letting the doc know that we are in this too, that we're not just going to sit back.....

Oh geez...... You've got us... we're here to help with questions and to help you to understand, you're not alone, you've got the whole mob of us behind you... We're pretty good listeners, too... and if you just need a shoulder... there are plenty here.... or you can write to me or if you don't want to get everybody's shirts all soggy... Pick me if you're going to be doing a lot of yelling and screaming, my ears are still plugged up!!! *wink*

Topper ()

topper2@...

On Thu, 30 Sep 2004 16:19:43 -0000 "sport6pool" writes:

I'm new...Half of my thyroid(rt side) was surgically removed about 5yr ago...recently reg family dr found lump on my left thyroidgland..sent me to get Ultrasound...it showed a lesion..then family drordered a Radioactive thyroid uptake scan. They scheduled it for6weekslater..I originally thought "no problem and planned on workinguntil day of test.I teach 2nd graders. But,last weekend(5th week noThyroid med); I "wigged out"...trembling head and rt hand andarm..dizzy,confused,crying,trouble talking(could barely make asentence..stuttered and couldn't find what word I was trying tosay,lower rt leg felt like I had after effects of a leg cramp...and Iwas cold.Since my dr office closed hubby took me to after hoursclinic. That dr told me to camp out Mon. morning at my family droffice and insist they move my test date up ASAP..reg dr office drewblood and said I needed to wait till date of test...Now I'm waiting itout at home...most symptoms diminished now that I'm more rested.Buteach afternoon I become very antsy and feel like my abdomen is allcrawly on the inside...not to mention the whole room appeared tilted.The tilt of rm only occured one afternoon.I have a buddy in Nuclearmed at the "other" hospital..he said they only have patients waitabout 2-4 weeks at the most. I need to stay at hospital I'm scheduledwith due to insurance.We are a pretty descent sized city...so I wouldthink that both hospitals would be up to speed as to current testingprocedures. I read at the American cancer ass. website that this sametest has a 1-2 week wait time to be off your med so that the"hypothyroid patient doesn't have to suffer needlessly".. I feel usedand abused...read this info to my family dr and they could only moveme up by 1 day..Big Whoop!! I'm also frustrated as I seldom misswork..and now I'm just resting until time to go for this test. Anyadvice???...I now feel when the Ultrasound came back with report of alesion that I should have had my family dr refer me straight on to myEndocrinolist in Little Rock, AR. I foolishly trusted and had faiththat this was something we could handle locally and then if it showedsomething bad on the radio uptake scan then I would take it to myLittle Rock thyroid dr. Has anyone gone through a similiarsituation??My two kids are taking turns missing 1 day at a time fromschool in case I "wig out" again.I've waited too much now to turn backas I will get my uptake scan on Oct 4th...this comingMonday...Helpless in Searcy,AR. My hubby tells me to just enjoy mytime off but I'm too keyed up to enjoy it. I have faith in God and theonly consolation I have is that I feel this is all for areason..Please e mail me back if you can advise or console me...Thankyou...

[Guest guest]

Not to be flippant. but, welcome to the club...

Doctors can be soooo blasted lame when it comes to good thyroid care.

The 6 weeks no med rule has to do with the half life of T4 in the body, that has been revised, but not all hospitals are adhering to that, just like the labs *sigh*. But if you are already tapped out... you need the tests now so that you can get going with either the surgery or meds or whatever needs to be done after the results are in.... I was in full blown thyroid storm with all kinds of hyper and they still were able to do an accurate scan on me, that was 15 years ago. It was a great picture too, the tech didn't move the monitor so it was facing me and I got to watch the stuff get sucked up... a perfectly shaped and blemish free gland.... the tech got his butt chewed for his mistake, I wasn't supposed to be able to see it.

Shame on your doc for not understanding.

Okay.. that's out of my system, sorry....

For now.. there isn't a whole lot you can do.. taking anything now may just going to skew the reference the doc is basing this on.

What was your previous diagnosis, why did they remove the first lobe? For you to have bottomed out so quickly, hmmmm. What med were you on, what dose, and do you have copies of the labs to show us what they based your dosage on? I suspect that you were underdosed to have bottomed out so quickly.

The shaking and other symptoms you describe.. it sounds like it MIGHT be adrenal.. that your adrenals are freaking due to insufficient thyroid hormone... it could also be that your remaining gland has stormed and what you are experience is thyroid storm.

How is your appetite, weight (going up, down, steady)? Pulse, temperature?

It's not easy to go through this stuff.. you want to be able to put all your faith in your doc and not worry about anything. But many of us have found that we get farther, faster, by being out own advocates, being aware of what is going on and letting the doc know that we are in this too, that we're not just going to sit back.....

Oh geez...... You've got us... we're here to help with questions and to help you to understand, you're not alone, you've got the whole mob of us behind you... We're pretty good listeners, too... and if you just need a shoulder... there are plenty here.... or you can write to me or if you don't want to get everybody's shirts all soggy... Pick me if you're going to be doing a lot of yelling and screaming, my ears are still plugged up!!! *wink*

Topper ()

topper2@...

On Thu, 30 Sep 2004 16:19:43 -0000 "sport6pool" writes:

I'm new...Half of my thyroid(rt side) was surgically removed about 5yr ago...recently reg family dr found lump on my left thyroidgland..sent me to get Ultrasound...it showed a lesion..then family drordered a Radioactive thyroid uptake scan. They scheduled it for6weekslater..I originally thought "no problem and planned on workinguntil day of test.I teach 2nd graders. But,last weekend(5th week noThyroid med); I "wigged out"...trembling head and rt hand andarm..dizzy,confused,crying,trouble talking(could barely make asentence..stuttered and couldn't find what word I was trying tosay,lower rt leg felt like I had after effects of a leg cramp...and Iwas cold.Since my dr office closed hubby took me to after hoursclinic. That dr told me to camp out Mon. morning at my family droffice and insist they move my test date up ASAP..reg dr office drewblood and said I needed to wait till date of test...Now I'm waiting itout at home...most symptoms diminished now that I'm more rested.Buteach afternoon I become very antsy and feel like my abdomen is allcrawly on the inside...not to mention the whole room appeared tilted.The tilt of rm only occured one afternoon.I have a buddy in Nuclearmed at the "other" hospital..he said they only have patients waitabout 2-4 weeks at the most. I need to stay at hospital I'm scheduledwith due to insurance.We are a pretty descent sized city...so I wouldthink that both hospitals would be up to speed as to current testingprocedures. I read at the American cancer ass. website that this sametest has a 1-2 week wait time to be off your med so that the"hypothyroid patient doesn't have to suffer needlessly".. I feel usedand abused...read this info to my family dr and they could only moveme up by 1 day..Big Whoop!! I'm also frustrated as I seldom misswork..and now I'm just resting until time to go for this test. Anyadvice???...I now feel when the Ultrasound came back with report of alesion that I should have had my family dr refer me straight on to myEndocrinolist in Little Rock, AR. I foolishly trusted and had faiththat this was something we could handle locally and then if it showedsomething bad on the radio uptake scan then I would take it to myLittle Rock thyroid dr. Has anyone gone through a similiarsituation??My two kids are taking turns missing 1 day at a time fromschool in case I "wig out" again.I've waited too much now to turn backas I will get my uptake scan on Oct 4th...this comingMonday...Helpless in Searcy,AR. My hubby tells me to just enjoy mytime off but I'm too keyed up to enjoy it. I have faith in God and theonly consolation I have is that I feel this is all for areason..Please e mail me back if you can advise or console me...Thankyou...

[Guest guest]

Not to be flippant. but, welcome to the club...

Doctors can be soooo blasted lame when it comes to good thyroid care.

The 6 weeks no med rule has to do with the half life of T4 in the body, that has been revised, but not all hospitals are adhering to that, just like the labs *sigh*. But if you are already tapped out... you need the tests now so that you can get going with either the surgery or meds or whatever needs to be done after the results are in.... I was in full blown thyroid storm with all kinds of hyper and they still were able to do an accurate scan on me, that was 15 years ago. It was a great picture too, the tech didn't move the monitor so it was facing me and I got to watch the stuff get sucked up... a perfectly shaped and blemish free gland.... the tech got his butt chewed for his mistake, I wasn't supposed to be able to see it.

Shame on your doc for not understanding.

Okay.. that's out of my system, sorry....

For now.. there isn't a whole lot you can do.. taking anything now may just going to skew the reference the doc is basing this on.

What was your previous diagnosis, why did they remove the first lobe? For you to have bottomed out so quickly, hmmmm. What med were you on, what dose, and do you have copies of the labs to show us what they based your dosage on? I suspect that you were underdosed to have bottomed out so quickly.

The shaking and other symptoms you describe.. it sounds like it MIGHT be adrenal.. that your adrenals are freaking due to insufficient thyroid hormone... it could also be that your remaining gland has stormed and what you are experience is thyroid storm.

How is your appetite, weight (going up, down, steady)? Pulse, temperature?

It's not easy to go through this stuff.. you want to be able to put all your faith in your doc and not worry about anything. But many of us have found that we get farther, faster, by being out own advocates, being aware of what is going on and letting the doc know that we are in this too, that we're not just going to sit back.....

Oh geez...... You've got us... we're here to help with questions and to help you to understand, you're not alone, you've got the whole mob of us behind you... We're pretty good listeners, too... and if you just need a shoulder... there are plenty here.... or you can write to me or if you don't want to get everybody's shirts all soggy... Pick me if you're going to be doing a lot of yelling and screaming, my ears are still plugged up!!! *wink*

Topper ()

topper2@...

On Thu, 30 Sep 2004 16:19:43 -0000 "sport6pool" writes:

I'm new...Half of my thyroid(rt side) was surgically removed about 5yr ago...recently reg family dr found lump on my left thyroidgland..sent me to get Ultrasound...it showed a lesion..then family drordered a Radioactive thyroid uptake scan. They scheduled it for6weekslater..I originally thought "no problem and planned on workinguntil day of test.I teach 2nd graders. But,last weekend(5th week noThyroid med); I "wigged out"...trembling head and rt hand andarm..dizzy,confused,crying,trouble talking(could barely make asentence..stuttered and couldn't find what word I was trying tosay,lower rt leg felt like I had after effects of a leg cramp...and Iwas cold.Since my dr office closed hubby took me to after hoursclinic. That dr told me to camp out Mon. morning at my family droffice and insist they move my test date up ASAP..reg dr office drewblood and said I needed to wait till date of test...Now I'm waiting itout at home...most symptoms diminished now that I'm more rested.Buteach afternoon I become very antsy and feel like my abdomen is allcrawly on the inside...not to mention the whole room appeared tilted.The tilt of rm only occured one afternoon.I have a buddy in Nuclearmed at the "other" hospital..he said they only have patients waitabout 2-4 weeks at the most. I need to stay at hospital I'm scheduledwith due to insurance.We are a pretty descent sized city...so I wouldthink that both hospitals would be up to speed as to current testingprocedures. I read at the American cancer ass. website that this sametest has a 1-2 week wait time to be off your med so that the"hypothyroid patient doesn't have to suffer needlessly".. I feel usedand abused...read this info to my family dr and they could only moveme up by 1 day..Big Whoop!! I'm also frustrated as I seldom misswork..and now I'm just resting until time to go for this test. Anyadvice???...I now feel when the Ultrasound came back with report of alesion that I should have had my family dr refer me straight on to myEndocrinolist in Little Rock, AR. I foolishly trusted and had faiththat this was something we could handle locally and then if it showedsomething bad on the radio uptake scan then I would take it to myLittle Rock thyroid dr. Has anyone gone through a similiarsituation??My two kids are taking turns missing 1 day at a time fromschool in case I "wig out" again.I've waited too much now to turn backas I will get my uptake scan on Oct 4th...this comingMonday...Helpless in Searcy,AR. My hubby tells me to just enjoy mytime off but I'm too keyed up to enjoy it. I have faith in God and theonly consolation I have is that I feel this is all for areason..Please e mail me back if you can advise or console me...Thankyou...