Doctors, arghhh

[Guest guest]

Hello All,

I am in a much better place today so thank you all for your

compassion and kindness through these last few days!

Onward…..

Two weeks ago I got a letter from the Mayo Clinic that said

basically " thanks for putting your trust in us and blah blah and that

we can see you in January of 2008 " . I know that's what the Mayo

originally told the referral specialist at the clinic when she called

two weeks ago but she said no that was too long and that I need to be

seen before that. I received this letter just 2 days after seeing

the internist in which he told me they would be calling me in a week

or so to setup the appointment. I called the referral person at the

clinic when I received the letter and left her a message about the

letter I got from the Mayo and about what the doctor at the clinic

told me 2 days earlier. If she could just check out with the doctor

and let me know am I to expect a call in the next few weeks from the

Mayo or am I waiting for January????

As of today I hadn't heard from anyone. So reading 's email to

Joe I thought well no sense sitting her waiting anymore (not

literally but it has been very hard to work or accomplish any actual

work in the last few weeks) this is my life not theirs so they need

to get with the program here. Since my faith in doctors has

literally been thrown out the window these last 2 years I didn't have

much faith in this internist who told me the " KEY " word is " minimal

honeycombing " because everything I read said that part of the lung

is already gone! Me the nice person I am tried to give them the

benefit of the doubt so I waited.

Well today I called this internists office spoke to one of the nurses

about the mixed messages I was getting from them and the Mayo clinic

and what am I supposed to be doing/waiting for because I haven't

received a call from her office or the Mayo. She read through the

notes and stated well " I don't know what is going on; the Dr's notes

say he spoke to the RA doc on the 9th of October and the Mayo would

be calling you so I will have to go talk to the doctor and find out

what is going on and call you back because I really don't know what

is going on now! "

Just exactly what I thought these last 2 years has been nothing but

HELL for me with doctors ever since I switched and I knew better

because my health history has been so complicated and gets more and

more complicated as each month goes on. They just don't care! I

have an appointment with my original family doctor that I had for the

last 10-20 years (it was her chief medical director who was my doctor

before her) so she knew my history before she finished her residency

and took me on when my doctor left the clinic.

But she switched clinics because the clinic where she was at and

where I went to became a federal clinic and not sure what all that

was about besides teaching but apparently she didn't like it and

left. This left me hanging. Well I had enough of this crap and these

doctors sitting around thinking it's a sinus infection, it's a virus,

this or that and NOT referring me. I went out on my own to get the

internist appointment for Petes sake my own RA doc didn't even refer

me or find that I have PF!

So PF is IPF and just because I have it doesn't tell what kind I have

or what it's caused from right? And when this doctors office calls

back and says its in January for the Mayo clinic even though they

didn't give me a date, do I wait or say no way I want to be referred

to a lung doc? Which I don't need a referral for my insurance its

open access. So do I just say I am finding my own or what do you all

recommend?

So I will give them until this afternoon if they don't call me back

they will be hearing from me!

Sandie