Re: Anyone get a bit down?

November 3, 2007

Bob, If you are really serious about wanting to reduce your 02, you will need to do two things... 1. Deep breathing (the best kind is that used either to do Taiji/Qigong or the Ujjayi breathing done in yoga) 2. Find a source of free-ranging cattle that ONLY EAT GRASS. Then be willing to eat this meat and the dairy RAW for several months. The best book to understand this is WE WANT TO LIVE by Aajonus Vonderplanitz. Nothing I tried made any difference until I combined these two things. Then even the MDs were astounded at the results. My first pulmonologist encouraged the Taiji but wasn't sure about the raw grass fed animal flesh and their products UNTIL he saw the results. Then he asked for the name of the book! , thanks for your reply and inspiration. I rarely get to thisstate. I also stay at about 5000' up here in Johannesburg SouthAfrica. There are no support groups here and most of the doctors arenot here for their patients, but for their bank accounts. Or that ishow is seems. How does one beat one's body back into shape and at thesame time become less dependent on O2.I thought that maybe I was getting too much O2 into my system andturned the meter down to 4lpm, but I don't think that I am ready quiteyet.I do get up occasionaly. But I find it just so exhausting. I like toget out and see the flowers. It is now our summertime or coming up toit. All the Jacaranda trees are

in flower and its so beautiful.My daughter is about to give birth and will bring my first grandchildout to see us from London in February.Please help get a little bit better so that I can bless my grandchlid.Bob (artin the bush) __________________________________________________

November 3, 2007

Bob,

Your letter could have been written by me...many many times. My husband does everything! Sometimes I feel so guilty. He works all day at a stressful job and then comes home and makes dinner, does the yardwork, goes shopping and always monitoring me. He has hired a caregiver for me and sometimes I feel so guilty because I know it is so expensive and I no longer contribute to our income. He always tells me not to worry and that it is not a problem to take care of me but he considers it a privelege. I think he considers it his DUTY. He reminds me that our wedding vows siad "in sickness and health" and for now, there is sickness. It is very difficult to accept being "taken care of". I hate it! I am a person who takes care of other people and it is so hard to be the patient instead of the social worker I used to be. I try very hard not to wallow in self pity, usually I can do it but there are times that I am just plain tired of all of it. It is good that you can paint. I used to paint. I love to paint but cant now because of the smell. My lungs cannot tolerate the smell of paints or turpentine or cleaning supplies or perfume or candles etc. So, now, I play games on the computer. Sometimes I play the piano...try to do something productive each day even if it is just making grocery lists or writing a note to someone.

More than likely, your wife is like my husband, she WANTS to help you.

No matter how tiring or burdensome it may be. Bob..what can I say or do to help you? Lets think of something together..when we both get so down in the dumps. There has to be something....thanks for being real and honest. It takes courage to admit how we feel. You are important no matter what...you have worth!

L

NIPF 02 PH 06

Anyone get a bit down?

I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at6lpm right now. I'm usually the one who tells people to wake up andthank the Lord every day for the gifts we have. But this last weekI've been feeling, 'what's the use'. My wife does absolutelyeverything possible for me. She holds down a job full time , comeshome and cooks, does the garden, bathes me and takes care ofeverything else. I feel a bit useless. I've been painting quite a bit,but this last week or so haven't felt like it. I can't get out to seea doctor, it's too much of a hassle. I just wondered if anyone elsefelt like this from time to time. It's new to me.I guess I'll snap out of it just now, but at this moment I just feellike doing nothing and wallowing in my self pity. Stupid eh? I knowthat there are alot of people far worse off than me, but that doesn'tactually help me all that much right now. I just wish that there was apill that I could take.Because I can't get around, I've put on so much weight. I can't evenlook at myself in the mirror.Sorry to rattle on, next time you hear from me I promise that you'llsee a different me; one that you may even like to talk to. It's justthis disease; your mind says that there's nothing wrong with you, thenyou try to get up out of the chair and you realise that maybe youhaven't been out of doors for a week or so. To all the normal people out there I appologise for this self pittyinggarbage, but I guess it helps just to get it off my mind.ThanksBob

November 3, 2007

Bob,

Your letter could have been written by me...many many times. My husband does everything! Sometimes I feel so guilty. He works all day at a stressful job and then comes home and makes dinner, does the yardwork, goes shopping and always monitoring me. He has hired a caregiver for me and sometimes I feel so guilty because I know it is so expensive and I no longer contribute to our income. He always tells me not to worry and that it is not a problem to take care of me but he considers it a privelege. I think he considers it his DUTY. He reminds me that our wedding vows siad "in sickness and health" and for now, there is sickness. It is very difficult to accept being "taken care of". I hate it! I am a person who takes care of other people and it is so hard to be the patient instead of the social worker I used to be. I try very hard not to wallow in self pity, usually I can do it but there are times that I am just plain tired of all of it. It is good that you can paint. I used to paint. I love to paint but cant now because of the smell. My lungs cannot tolerate the smell of paints or turpentine or cleaning supplies or perfume or candles etc. So, now, I play games on the computer. Sometimes I play the piano...try to do something productive each day even if it is just making grocery lists or writing a note to someone.

More than likely, your wife is like my husband, she WANTS to help you.

No matter how tiring or burdensome it may be. Bob..what can I say or do to help you? Lets think of something together..when we both get so down in the dumps. There has to be something....thanks for being real and honest. It takes courage to admit how we feel. You are important no matter what...you have worth!

L

NIPF 02 PH 06

Anyone get a bit down?

I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at6lpm right now. I'm usually the one who tells people to wake up andthank the Lord every day for the gifts we have. But this last weekI've been feeling, 'what's the use'. My wife does absolutelyeverything possible for me. She holds down a job full time , comeshome and cooks, does the garden, bathes me and takes care ofeverything else. I feel a bit useless. I've been painting quite a bit,but this last week or so haven't felt like it. I can't get out to seea doctor, it's too much of a hassle. I just wondered if anyone elsefelt like this from time to time. It's new to me.I guess I'll snap out of it just now, but at this moment I just feellike doing nothing and wallowing in my self pity. Stupid eh? I knowthat there are alot of people far worse off than me, but that doesn'tactually help me all that much right now. I just wish that there was apill that I could take.Because I can't get around, I've put on so much weight. I can't evenlook at myself in the mirror.Sorry to rattle on, next time you hear from me I promise that you'llsee a different me; one that you may even like to talk to. It's justthis disease; your mind says that there's nothing wrong with you, thenyou try to get up out of the chair and you realise that maybe youhaven't been out of doors for a week or so. To all the normal people out there I appologise for this self pittyinggarbage, but I guess it helps just to get it off my mind.ThanksBob

November 3, 2007

Bob,

Your letter could have been written by me...many many times. My husband does everything! Sometimes I feel so guilty. He works all day at a stressful job and then comes home and makes dinner, does the yardwork, goes shopping and always monitoring me. He has hired a caregiver for me and sometimes I feel so guilty because I know it is so expensive and I no longer contribute to our income. He always tells me not to worry and that it is not a problem to take care of me but he considers it a privelege. I think he considers it his DUTY. He reminds me that our wedding vows siad "in sickness and health" and for now, there is sickness. It is very difficult to accept being "taken care of". I hate it! I am a person who takes care of other people and it is so hard to be the patient instead of the social worker I used to be. I try very hard not to wallow in self pity, usually I can do it but there are times that I am just plain tired of all of it. It is good that you can paint. I used to paint. I love to paint but cant now because of the smell. My lungs cannot tolerate the smell of paints or turpentine or cleaning supplies or perfume or candles etc. So, now, I play games on the computer. Sometimes I play the piano...try to do something productive each day even if it is just making grocery lists or writing a note to someone.

More than likely, your wife is like my husband, she WANTS to help you.

No matter how tiring or burdensome it may be. Bob..what can I say or do to help you? Lets think of something together..when we both get so down in the dumps. There has to be something....thanks for being real and honest. It takes courage to admit how we feel. You are important no matter what...you have worth!

L

NIPF 02 PH 06

Anyone get a bit down?

I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at6lpm right now. I'm usually the one who tells people to wake up andthank the Lord every day for the gifts we have. But this last weekI've been feeling, 'what's the use'. My wife does absolutelyeverything possible for me. She holds down a job full time , comeshome and cooks, does the garden, bathes me and takes care ofeverything else. I feel a bit useless. I've been painting quite a bit,but this last week or so haven't felt like it. I can't get out to seea doctor, it's too much of a hassle. I just wondered if anyone elsefelt like this from time to time. It's new to me.I guess I'll snap out of it just now, but at this moment I just feellike doing nothing and wallowing in my self pity. Stupid eh? I knowthat there are alot of people far worse off than me, but that doesn'tactually help me all that much right now. I just wish that there was apill that I could take.Because I can't get around, I've put on so much weight. I can't evenlook at myself in the mirror.Sorry to rattle on, next time you hear from me I promise that you'llsee a different me; one that you may even like to talk to. It's justthis disease; your mind says that there's nothing wrong with you, thenyou try to get up out of the chair and you realise that maybe youhaven't been out of doors for a week or so. To all the normal people out there I appologise for this self pittyinggarbage, but I guess it helps just to get it off my mind.ThanksBob

November 3, 2007

Sort of a trade off too is that while I can't do as many things as i

did, takes me longer to do them so they fill my time quicker. So do I

get today's record for convuluted logic? But pursuing some form or

computer art work or design is also a possibility. I had a friend who

found a site and would take and combine designs and colors into some

beautiful, some really strange things, but i think it filled her need

to express herself through a form of art.

>

> Bob,

> Your letter could have been written by me...many many times. My

husband does everything! Sometimes I feel so guilty. He works all

day at a stressful job and then comes home and makes dinner, does the

yardwork, goes shopping and always monitoring me. He has hired a

caregiver for me and sometimes I feel so guilty because I know it is

so expensive and I no longer contribute to our income. He always

tells me not to worry and that it is not a problem to take care of me

but he considers it a privelege. I think he considers it his DUTY.

He reminds me that our wedding vows siad " in sickness and health " and

for now, there is sickness. It is very difficult to accept

being " taken care of " . I hate it! I am a person who takes care of

other people and it is so hard to be the patient instead of the

social worker I used to be. I try very hard not to wallow in self

pity, usually I can do it but there are times that I am just plain

tired of all of it. It is good that you can paint. I used to

paint. I love to paint but cant now because of the smell. My lungs

cannot tolerate the smell of paints or turpentine or cleaning

supplies or perfume or candles etc. So, now, I play games on the

computer. Sometimes I play the piano...try to do something

productive each day even if it is just making grocery lists or

writing a note to someone.

> More than likely, your wife is like my husband, she WANTS to help

you.

> No matter how tiring or burdensome it may be. Bob..what can I say

or do to help you? Lets think of something together..when we both

get so down in the dumps. There has to be something....thanks for

being real and honest. It takes courage to admit how we feel. You

are important no matter what...you have worth!

> L

> NIPF 02 PH 06

> Anyone get a bit down?

>

> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2

at

> 6lpm right now. I'm usually the one who tells people to wake up

and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone

else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just

feel

> like doing nothing and wallowing in my self pity. Stupid eh? I

know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't

even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that

you'll

> see a different me; one that you may even like to talk to. It's

just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

November 4, 2007

> >

> > Bob,

> > Your letter could have been written by me...many many times. My

> husband does everything! Sometimes I feel so guilty. He works all

> day at a stressful job and then comes home and makes dinner, does the

> yardwork, goes shopping and always monitoring me. He has hired a

> caregiver for me and sometimes I feel so guilty because I know it is

> so expensive and I no longer contribute to our income. He always

> tells me not to worry and that it is not a problem to take care of me

> but he considers it a privelege. I think he considers it his DUTY.

> He reminds me that our wedding vows siad " in sickness and health " and

> for now, there is sickness. It is very difficult to accept

> being " taken care of " . I hate it! I am a person who takes care of

> other people and it is so hard to be the patient instead of the

> social worker I used to be. I try very hard not to wallow in self

> pity, usually I can do it but there are times that I am just plain

> tired of all of it. It is good that you can paint. I used to

> paint. I love to paint but cant now because of the smell. My lungs

> cannot tolerate the smell of paints or turpentine or cleaning

> supplies or perfume or candles etc. So, now, I play games on the

> computer. Sometimes I play the piano...try to do something

> productive each day even if it is just making grocery lists or

> writing a note to someone.

> > More than likely, your wife is like my husband, she WANTS to help

> you.

> > No matter how tiring or burdensome it may be. Bob..what can I say

> or do to help you? Lets think of something together..when we both

> get so down in the dumps. There has to be something....thanks for

> being real and honest. It takes courage to admit how we feel. You

> are important no matter what...you have worth!

> > L

> > NIPF 02 PH 06

> > Anyone get a bit down?

> >

> > I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2

> at

> > 6lpm right now. I'm usually the one who tells people to wake up

> and

> > thank the Lord every day for the gifts we have. But this last week

> > I've been feeling, 'what's the use'. My wife does absolutely

> > everything possible for me. She holds down a job full time , comes

> > home and cooks, does the garden, bathes me and takes care of

> > everything else. I feel a bit useless. I've been painting quite a

> bit,

> > but this last week or so haven't felt like it. I can't get out to

> see

> > a doctor, it's too much of a hassle. I just wondered if anyone

> else

> > felt like this from time to time. It's new to me.

> > I guess I'll snap out of it just now, but at this moment I just

> feel

> > like doing nothing and wallowing in my self pity. Stupid eh? I

> know

> > that there are alot of people far worse off than me, but that

> doesn't

> > actually help me all that much right now. I just wish that there

> was a

> > pill that I could take.

> > Because I can't get around, I've put on so much weight. I can't

> even

> > look at myself in the mirror.

> > Sorry to rattle on, next time you hear from me I promise that

> you'll

> > see a different me; one that you may even like to talk to. It's

> just

> > this disease; your mind says that there's nothing wrong with you,

> then

> > you try to get up out of the chair and you realise that maybe you

> > haven't been out of doors for a week or so.

> > To all the normal people out there I appologise for this self

> pittying

> > garbage, but I guess it helps just to get it off my mind.

> > Thanks

> > Bob

> >

> , You can paint with tapistry wool. You can design yourself a

beautiful work of art on a tapistry canvas and paint it with wool. How

about that? No smells ,no oily cloths, no dirty paint brushes, and

something of yours that will last forever.

Computers are great for talking to people like you but they tend to be

a big waste of our valuable time.

Bob

November 4, 2007