Re: Anyone get a bit down?

[Guest guest]

Bob, God Bless You, I was exactly where you are a few weeks ago. My

husband was nearly panicky. HOLD ON. It will change. I had a hard

time " Praying " I pray as easy as eating. I felt God probably didn't

want to hear from me. THEN I thought of our wonderful sweet group

that I pray for everyday and I have told them I will be praying. Well

once I started praying things got better, easier. I too have gone

back on my anxiety medication. I had been off of it for a year.

I am feeling like me again so all is right with my soul and the world.

Please don't give up. Don't stay in your chair... Go for a walk

through the house. Go out into the yard caring a small tank. Just go

slow and Go with God. He will give you strength.

Love and Prayers, Peggy

ipf 6/04 Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at

6lpm right now. I'm usually the one who tells people to wake up and

thank the Lord every day for the gifts we have. But this last week

I've been feeling, 'what's the use'. My wife does absolutely

everything possible for me. She holds down a job full time , comes

home and cooks, does the garden, bathes me and takes care of

everything else. I feel a bit useless. I've been painting quite a bit,

but this last week or so haven't felt like it. I can't get out to see

a doctor, it's too much of a hassle. I just wondered if anyone else

felt like this from time to time. It's new to me.

I guess I'll snap out of it just now, but at this moment I just feel

like doing nothing and wallowing in my self pity. Stupid eh? I know

that there are alot of people far worse off than me, but that doesn't

actually help me all that much right now. I just wish that there was a

pill that I could take.

Because I can't get around, I've put on so much weight. I can't even

look at myself in the mirror.

Sorry to rattle on, next time you hear from me I promise that you'll

see a different me; one that you may even like to talk to. It's just

this disease; your mind says that there's nothing wrong with you, then

you try to get up out of the chair and you realise that maybe you

haven't been out of doors for a week or so.

To all the normal people out there I appologise for this self pittying

garbage, but I guess it helps just to get it off my mind.

Thanks

Bob

[Guest guest]

Bob, God Bless You, I was exactly where you are a few weeks ago. My

husband was nearly panicky. HOLD ON. It will change. I had a hard

time " Praying " I pray as easy as eating. I felt God probably didn't

want to hear from me. THEN I thought of our wonderful sweet group

that I pray for everyday and I have told them I will be praying. Well

once I started praying things got better, easier. I too have gone

back on my anxiety medication. I had been off of it for a year.

I am feeling like me again so all is right with my soul and the world.

Please don't give up. Don't stay in your chair... Go for a walk

through the house. Go out into the yard caring a small tank. Just go

slow and Go with God. He will give you strength.

Love and Prayers, Peggy

ipf 6/04 Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at

6lpm right now. I'm usually the one who tells people to wake up and

thank the Lord every day for the gifts we have. But this last week

I've been feeling, 'what's the use'. My wife does absolutely

everything possible for me. She holds down a job full time , comes

home and cooks, does the garden, bathes me and takes care of

everything else. I feel a bit useless. I've been painting quite a bit,

but this last week or so haven't felt like it. I can't get out to see

a doctor, it's too much of a hassle. I just wondered if anyone else

felt like this from time to time. It's new to me.

I guess I'll snap out of it just now, but at this moment I just feel

like doing nothing and wallowing in my self pity. Stupid eh? I know

that there are alot of people far worse off than me, but that doesn't

actually help me all that much right now. I just wish that there was a

pill that I could take.

Because I can't get around, I've put on so much weight. I can't even

look at myself in the mirror.

Sorry to rattle on, next time you hear from me I promise that you'll

see a different me; one that you may even like to talk to. It's just

this disease; your mind says that there's nothing wrong with you, then

you try to get up out of the chair and you realise that maybe you

haven't been out of doors for a week or so.

To all the normal people out there I appologise for this self pittying

garbage, but I guess it helps just to get it off my mind.

Thanks

Bob

[Guest guest]

Bob, God Bless You, I was exactly where you are a few weeks ago. My

husband was nearly panicky. HOLD ON. It will change. I had a hard

time " Praying " I pray as easy as eating. I felt God probably didn't

want to hear from me. THEN I thought of our wonderful sweet group

that I pray for everyday and I have told them I will be praying. Well

once I started praying things got better, easier. I too have gone

back on my anxiety medication. I had been off of it for a year.

I am feeling like me again so all is right with my soul and the world.

Please don't give up. Don't stay in your chair... Go for a walk

through the house. Go out into the yard caring a small tank. Just go

slow and Go with God. He will give you strength.

Love and Prayers, Peggy

ipf 6/04 Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at

6lpm right now. I'm usually the one who tells people to wake up and

thank the Lord every day for the gifts we have. But this last week

I've been feeling, 'what's the use'. My wife does absolutely

everything possible for me. She holds down a job full time , comes

home and cooks, does the garden, bathes me and takes care of

everything else. I feel a bit useless. I've been painting quite a bit,

but this last week or so haven't felt like it. I can't get out to see

a doctor, it's too much of a hassle. I just wondered if anyone else

felt like this from time to time. It's new to me.

I guess I'll snap out of it just now, but at this moment I just feel

like doing nothing and wallowing in my self pity. Stupid eh? I know

that there are alot of people far worse off than me, but that doesn't

actually help me all that much right now. I just wish that there was a

pill that I could take.

Because I can't get around, I've put on so much weight. I can't even

look at myself in the mirror.

Sorry to rattle on, next time you hear from me I promise that you'll

see a different me; one that you may even like to talk to. It's just

this disease; your mind says that there's nothing wrong with you, then

you try to get up out of the chair and you realise that maybe you

haven't been out of doors for a week or so.

To all the normal people out there I appologise for this self pittying

garbage, but I guess it helps just to get it off my mind.

Thanks

Bob

[Guest guest]

I prayed to die after 6 months of being on supplemental 02 of 6 LPM and gaining about 60#s! I could see no value in my life. However, when I prayed (to die), I received the impression that death would come in its own time. It was up to me to determine the quality of my life until that moment. I was not pleased with this answer but realized its implications. I could let this disease destroy the quality of whatever life I had left or I could fight back. I chose to fight back but had virtually NO information or person to help me know what to do...except God! My journey has been long, tedious, and slow. I have met with much opposition from those who should have supported me (MDs). However, I accepted each tidbit of progress as a blessing and, after short pity-parties whenever I encountered a set-back...which was every other week in the

beginning....I re-determined not to let this disease destroy my chance for experiencing joy in living! Progress did not come easily, smoothly, or quickly. However, after 4 years, I finally have enough energy to homeschool my 6 year old niece and enjoy life. You might be tempted to say that this was because I was able to 'get off' supplemental 02. My victories were in being able to REDUCE my supplemental 02. First, from 6 to 5. Then from 5 to 4.5. Then from 4.5 to 4. Then from 4 to 3.5 and finally, from 3.5 to 3. At 3 LPM, I could move from an elevation of 4800' to an elevation of 900' (and get off 02). However, if I had not been willing to do all in my power to reduce my 02 from 6LPM to 3 LPM (something I was told was all but impossible because of the damage to my lungs), moving would have had no impact! Give

yourself permission to 'wallow in misery' for a specific period of time. Then begin researching and doing what you can do until what you can do is more than what you can do now! Good luck artinthebush wrote: I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at6lpm right now. I'm usually the one who tells people to wake up andthank the Lord every day for the gifts we have. But this last weekI've been feeling,

'what's the use'. My wife does absolutelyeverything possible for me. She holds down a job full time , comeshome and cooks, does the garden, bathes me and takes care ofeverything else. I feel a bit useless. I've been painting quite a bit,but this last week or so haven't felt like it. I can't get out to seea doctor, it's too much of a hassle. I just wondered if anyone elsefelt like this from time to time. It's new to me.I guess I'll snap out of it just now, but at this moment I just feellike doing nothing and wallowing in my self pity. Stupid eh? I knowthat there are alot of people far worse off than me, but that doesn'tactually help me all that much right now. I just wish that there was apill that I could take.Because I can't get around, I've put on so much weight. I can't evenlook at myself in the mirror.Sorry to rattle on, next time you hear from me I promise that you'llsee a different me; one that you may even

like to talk to. It's justthis disease; your mind says that there's nothing wrong with you, thenyou try to get up out of the chair and you realise that maybe youhaven't been out of doors for a week or so. To all the normal people out there I appologise for this self pittyinggarbage, but I guess it helps just to get it off my mind.ThanksBob __________________________________________________

[Guest guest]

> I've been diagnosed ipf for about 18 months. I'm tied 24/7

to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a bit,

> but this last week or so haven't felt like it. I can't get out to see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that doesn't

> actually help me all that much right now. I just wish that there was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you, then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Bob we have all walked in your shoes! To wallow is something that we

all must go through and we all do but we must pick ourselves up.

Start with what you would like to do, do you want to help your wife

out? Do you want to do something in the garden? Do you want to get

to your doctors? Do you want to lose some weight? You wont get

there over night, you wont get to that point in a day or few weeks

probably but you will get there a little every day. The first is to

realize that you want to change it and you want something out of it.

So even if you start by moving a little each day then you have

accomplished something. Eventually you will be able to go out to the

garden, maybe pull a few weeds, cook dinner??? or get out for a walk?

or lose weight. All good things come in time and in most time isnt

what we have a lot of but we cant look at it that way we have to look

at that what we have is here and now, so do what you can, talk to

your support group when your down, which this group is always here

even in your darkest days Chin up the sun will come out tomorrow!

Sandie

>

> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

[Guest guest]

Bob we have all walked in your shoes! To wallow is something that we

all must go through and we all do but we must pick ourselves up.

Start with what you would like to do, do you want to help your wife

out? Do you want to do something in the garden? Do you want to get

to your doctors? Do you want to lose some weight? You wont get

there over night, you wont get to that point in a day or few weeks

probably but you will get there a little every day. The first is to

realize that you want to change it and you want something out of it.

So even if you start by moving a little each day then you have

accomplished something. Eventually you will be able to go out to the

garden, maybe pull a few weeds, cook dinner??? or get out for a walk?

or lose weight. All good things come in time and in most time isnt

what we have a lot of but we cant look at it that way we have to look

at that what we have is here and now, so do what you can, talk to

your support group when your down, which this group is always here

even in your darkest days Chin up the sun will come out tomorrow!

Sandie

>

> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

[Guest guest]

Bob we have all walked in your shoes! To wallow is something that we

all must go through and we all do but we must pick ourselves up.

Start with what you would like to do, do you want to help your wife

out? Do you want to do something in the garden? Do you want to get

to your doctors? Do you want to lose some weight? You wont get

there over night, you wont get to that point in a day or few weeks

probably but you will get there a little every day. The first is to

realize that you want to change it and you want something out of it.

So even if you start by moving a little each day then you have

accomplished something. Eventually you will be able to go out to the

garden, maybe pull a few weeds, cook dinner??? or get out for a walk?

or lose weight. All good things come in time and in most time isnt

what we have a lot of but we cant look at it that way we have to look

at that what we have is here and now, so do what you can, talk to

your support group when your down, which this group is always here

even in your darkest days Chin up the sun will come out tomorrow!

Sandie

>

> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

[Guest guest]

Amen Peggy!

>

> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

[Guest guest]

Amen Peggy!

>

> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

[Guest guest]

Amen Peggy!

>

> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

[Guest guest]

mary well said, and write/speak so well I think we have

now have 2 writers for our group! What do you all think?

Sandie

> I've been diagnosed ipf for about 18 months. I'm tied

24/7 to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

mary well said, and write/speak so well I think we have

now have 2 writers for our group! What do you all think?

Sandie

> I've been diagnosed ipf for about 18 months. I'm tied

24/7 to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

mary well said, and write/speak so well I think we have

now have 2 writers for our group! What do you all think?

Sandie

> I've been diagnosed ipf for about 18 months. I'm tied

24/7 to o2 at

> 6lpm right now. I'm usually the one who tells people to wake up and

> thank the Lord every day for the gifts we have. But this last week

> I've been feeling, 'what's the use'. My wife does absolutely

> everything possible for me. She holds down a job full time , comes

> home and cooks, does the garden, bathes me and takes care of

> everything else. I feel a bit useless. I've been painting quite a

bit,

> but this last week or so haven't felt like it. I can't get out to

see

> a doctor, it's too much of a hassle. I just wondered if anyone else

> felt like this from time to time. It's new to me.

> I guess I'll snap out of it just now, but at this moment I just feel

> like doing nothing and wallowing in my self pity. Stupid eh? I know

> that there are alot of people far worse off than me, but that

doesn't

> actually help me all that much right now. I just wish that there

was a

> pill that I could take.

> Because I can't get around, I've put on so much weight. I can't even

> look at myself in the mirror.

> Sorry to rattle on, next time you hear from me I promise that you'll

> see a different me; one that you may even like to talk to. It's just

> this disease; your mind says that there's nothing wrong with you,

then

> you try to get up out of the chair and you realise that maybe you

> haven't been out of doors for a week or so.

> To all the normal people out there I appologise for this self

pittying

> garbage, but I guess it helps just to get it off my mind.

> Thanks

> Bob

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Bob...I want you to know you are not alone in how you feel. I seldom leave our apt. because it's too big of a hassle for me too. If it weren't for Dr. appts. no doubt I would be a complete recluse. I've had the weight gain too.

Please don't apologize for expressing yourself here...I know many of us write about depression. I am on Cymbalta and am feeling much better, although I still isolate.

However, I'm 69 and admit I'm tired of keepin' on keepin' on.

My personal health problems besides ipf have really taken a toll.

I do try and accept what I can't change...it's changing the things I can that now make me falter. I haven't given up, just given out.

Hang in there Bob and post anytime about anything. If you don't post you won't know how much company you really have!

Hugs to you....

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Bob...I want you to know you are not alone in how you feel. I seldom leave our apt. because it's too big of a hassle for me too. If it weren't for Dr. appts. no doubt I would be a complete recluse. I've had the weight gain too.

Please don't apologize for expressing yourself here...I know many of us write about depression. I am on Cymbalta and am feeling much better, although I still isolate.

However, I'm 69 and admit I'm tired of keepin' on keepin' on.

My personal health problems besides ipf have really taken a toll.

I do try and accept what I can't change...it's changing the things I can that now make me falter. I haven't given up, just given out.

Hang in there Bob and post anytime about anything. If you don't post you won't know how much company you really have!

Hugs to you....

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Bob...I want you to know you are not alone in how you feel. I seldom leave our apt. because it's too big of a hassle for me too. If it weren't for Dr. appts. no doubt I would be a complete recluse. I've had the weight gain too.

Please don't apologize for expressing yourself here...I know many of us write about depression. I am on Cymbalta and am feeling much better, although I still isolate.

However, I'm 69 and admit I'm tired of keepin' on keepin' on.

My personal health problems besides ipf have really taken a toll.

I do try and accept what I can't change...it's changing the things I can that now make me falter. I haven't given up, just given out.

Hang in there Bob and post anytime about anything. If you don't post you won't know how much company you really have!

Hugs to you....

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Bob, I went through bouts of depression long before this illness. I

know more serious ones lie ahead. Without conseling I don't know where

I'd be today, but I know I'd never be able to accept this. Why do you

think the first thing I do in the mornings and last thing at night is

check in here? Is it just to help others? Oh, I'm not all that good.

First, I get a great satisfaction on those rare occasions I do feel I

help someone, but its to be among friends who understand. Those ahead

of me in the process. Those just where I am.

I need the support. We all do. You do. And, its a support you can't

find even from your wife, because she can't know what its really like

as some here do nor can you be completely honest with her. We all still

hold back and protect those we love a little.

Now, talk like this to your doctor too. I don't know what meds you're

on, but I quite imagine they are making your emotional state and weight

even worse. Maybe its time for a change. What is your current

saturation level? Maybe 6 isn't quite enough oxygen now.

Find the smallest things to do. Coming here needs to be one. Maybe

listen to music. Watch one movie or tv show you like. Force yourself to

find one thing (even if only fifteen minutes each day) pleasurable. I

know its hard as hell. Maybe its a computer game you thought you'd

never like. Maybe its surfing looking at are, since you like to paint.

Maybe its painting far different than before just for yourself to

express this mood or writing just for yourself.

Its also force through the barriers just to make yourself go to the

doctor even if you feel he doesn't help. Maybe you're at a point that a

change in approach is appropriate.

I'm seeing some guilt at your wife carrying such a load too. Thats

natural. Talk to your doctor about home health care which most

insurances do cover. Maybe if a nurse took care of just a couple of

things a week (and if a nurse is authorized some days may be an aide).

If that helped relieve her of two things per week it would be worth it.

What do you have to help with your mobility. When I reach the point

that walking is too much I'm planning on being hell on wheels on some

form of scooter. I've been run over by enough ladies in Walmart, its

revenge time. (Oh, I wouldn't really run over anyone...maybe scare a

few kids misbehaving though). Maybe its walkers with wheels that you

can at least go sit in the garden occasionally.

Don't set up such goals as to doom yourself to failing to meet them,

but set some simple ones for the next few days. Maybe its tomorrow

listen to music for an hour. Maybe twice during the week make sure you

get out of the house. Maybe its nothing more than ride along when your

wife goes shopping, even if you don't go in.

Everything you are feeling is natural. We all go through it. You have a

right to feel this way and shouldn't feel guilty one bit, although I

know we all do. What is important is setting some means of recovering

so that instead of going to the depths for a week or more you can come

back up in a day or so. Coming here is a start. People talk about me

being upbeat. Well, first, I'm not to the truly bad stages. So, its

much easier. However, knowing I will always be able to come here and be

among friends who understand is a huge huge part of it. I know I'll

never be emotionally alone. I know more than I can express I wouldn't

have such radical acceptance of my disease as I have today if not for

online forums of friends.

>

> Bob...I want you to know you are not alone in how you feel. I seldom

leave our apt. because it's too big of a hassle for me too. If it

weren't for Dr. appts. no doubt I would be a complete recluse. I've had

the weight gain too.

> Please don't apologize for expressing yourself here...I know many of

us write about depression. I am on Cymbalta and am feeling much better,

although I still isolate.

> However, I'm 69 and admit I'm tired of keepin' on keepin' on.

> My personal health problems besides ipf have really taken a toll.

> I do try and accept what I can't change...it's changing the things I

can that now make me falter. I haven't given up, just given out.

> Hang in there Bob and post anytime about anything. If you don't post

you won't know how much company you really have!

> Hugs to you....

> Sher; ipf 3-06; OR.

> Don't fret about tomorrow, God is already there!

>

[Guest guest]

Bob, I went through bouts of depression long before this illness. I

know more serious ones lie ahead. Without conseling I don't know where

I'd be today, but I know I'd never be able to accept this. Why do you

think the first thing I do in the mornings and last thing at night is

check in here? Is it just to help others? Oh, I'm not all that good.

First, I get a great satisfaction on those rare occasions I do feel I

help someone, but its to be among friends who understand. Those ahead

of me in the process. Those just where I am.

I need the support. We all do. You do. And, its a support you can't

find even from your wife, because she can't know what its really like

as some here do nor can you be completely honest with her. We all still

hold back and protect those we love a little.

Now, talk like this to your doctor too. I don't know what meds you're

on, but I quite imagine they are making your emotional state and weight

even worse. Maybe its time for a change. What is your current

saturation level? Maybe 6 isn't quite enough oxygen now.

Find the smallest things to do. Coming here needs to be one. Maybe

listen to music. Watch one movie or tv show you like. Force yourself to

find one thing (even if only fifteen minutes each day) pleasurable. I

know its hard as hell. Maybe its a computer game you thought you'd

never like. Maybe its surfing looking at are, since you like to paint.

Maybe its painting far different than before just for yourself to

express this mood or writing just for yourself.

Its also force through the barriers just to make yourself go to the

doctor even if you feel he doesn't help. Maybe you're at a point that a

change in approach is appropriate.

I'm seeing some guilt at your wife carrying such a load too. Thats

natural. Talk to your doctor about home health care which most

insurances do cover. Maybe if a nurse took care of just a couple of

things a week (and if a nurse is authorized some days may be an aide).

If that helped relieve her of two things per week it would be worth it.

What do you have to help with your mobility. When I reach the point

that walking is too much I'm planning on being hell on wheels on some

form of scooter. I've been run over by enough ladies in Walmart, its

revenge time. (Oh, I wouldn't really run over anyone...maybe scare a

few kids misbehaving though). Maybe its walkers with wheels that you

can at least go sit in the garden occasionally.

Don't set up such goals as to doom yourself to failing to meet them,

but set some simple ones for the next few days. Maybe its tomorrow

listen to music for an hour. Maybe twice during the week make sure you

get out of the house. Maybe its nothing more than ride along when your

wife goes shopping, even if you don't go in.

Everything you are feeling is natural. We all go through it. You have a

right to feel this way and shouldn't feel guilty one bit, although I

know we all do. What is important is setting some means of recovering

so that instead of going to the depths for a week or more you can come

back up in a day or so. Coming here is a start. People talk about me

being upbeat. Well, first, I'm not to the truly bad stages. So, its

much easier. However, knowing I will always be able to come here and be

among friends who understand is a huge huge part of it. I know I'll

never be emotionally alone. I know more than I can express I wouldn't

have such radical acceptance of my disease as I have today if not for

online forums of friends.

>

> Bob...I want you to know you are not alone in how you feel. I seldom

leave our apt. because it's too big of a hassle for me too. If it

weren't for Dr. appts. no doubt I would be a complete recluse. I've had

the weight gain too.

> Please don't apologize for expressing yourself here...I know many of

us write about depression. I am on Cymbalta and am feeling much better,

although I still isolate.

> However, I'm 69 and admit I'm tired of keepin' on keepin' on.

> My personal health problems besides ipf have really taken a toll.

> I do try and accept what I can't change...it's changing the things I

can that now make me falter. I haven't given up, just given out.

> Hang in there Bob and post anytime about anything. If you don't post

you won't know how much company you really have!

> Hugs to you....

> Sher; ipf 3-06; OR.

> Don't fret about tomorrow, God is already there!

>

[Guest guest]

Bob, I went through bouts of depression long before this illness. I

know more serious ones lie ahead. Without conseling I don't know where

I'd be today, but I know I'd never be able to accept this. Why do you

think the first thing I do in the mornings and last thing at night is

check in here? Is it just to help others? Oh, I'm not all that good.

First, I get a great satisfaction on those rare occasions I do feel I

help someone, but its to be among friends who understand. Those ahead

of me in the process. Those just where I am.

I need the support. We all do. You do. And, its a support you can't

find even from your wife, because she can't know what its really like

as some here do nor can you be completely honest with her. We all still

hold back and protect those we love a little.

Now, talk like this to your doctor too. I don't know what meds you're

on, but I quite imagine they are making your emotional state and weight

even worse. Maybe its time for a change. What is your current

saturation level? Maybe 6 isn't quite enough oxygen now.

Find the smallest things to do. Coming here needs to be one. Maybe

listen to music. Watch one movie or tv show you like. Force yourself to

find one thing (even if only fifteen minutes each day) pleasurable. I

know its hard as hell. Maybe its a computer game you thought you'd

never like. Maybe its surfing looking at are, since you like to paint.

Maybe its painting far different than before just for yourself to

express this mood or writing just for yourself.

Its also force through the barriers just to make yourself go to the

doctor even if you feel he doesn't help. Maybe you're at a point that a

change in approach is appropriate.

I'm seeing some guilt at your wife carrying such a load too. Thats

natural. Talk to your doctor about home health care which most

insurances do cover. Maybe if a nurse took care of just a couple of

things a week (and if a nurse is authorized some days may be an aide).

If that helped relieve her of two things per week it would be worth it.

What do you have to help with your mobility. When I reach the point

that walking is too much I'm planning on being hell on wheels on some

form of scooter. I've been run over by enough ladies in Walmart, its

revenge time. (Oh, I wouldn't really run over anyone...maybe scare a

few kids misbehaving though). Maybe its walkers with wheels that you

can at least go sit in the garden occasionally.

Don't set up such goals as to doom yourself to failing to meet them,

but set some simple ones for the next few days. Maybe its tomorrow

listen to music for an hour. Maybe twice during the week make sure you

get out of the house. Maybe its nothing more than ride along when your

wife goes shopping, even if you don't go in.

Everything you are feeling is natural. We all go through it. You have a

right to feel this way and shouldn't feel guilty one bit, although I

know we all do. What is important is setting some means of recovering

so that instead of going to the depths for a week or more you can come

back up in a day or so. Coming here is a start. People talk about me

being upbeat. Well, first, I'm not to the truly bad stages. So, its

much easier. However, knowing I will always be able to come here and be

among friends who understand is a huge huge part of it. I know I'll

never be emotionally alone. I know more than I can express I wouldn't

have such radical acceptance of my disease as I have today if not for

online forums of friends.

>

> Bob...I want you to know you are not alone in how you feel. I seldom

leave our apt. because it's too big of a hassle for me too. If it

weren't for Dr. appts. no doubt I would be a complete recluse. I've had

the weight gain too.

> Please don't apologize for expressing yourself here...I know many of

us write about depression. I am on Cymbalta and am feeling much better,

although I still isolate.

> However, I'm 69 and admit I'm tired of keepin' on keepin' on.

> My personal health problems besides ipf have really taken a toll.

> I do try and accept what I can't change...it's changing the things I

can that now make me falter. I haven't given up, just given out.

> Hang in there Bob and post anytime about anything. If you don't post

you won't know how much company you really have!

> Hugs to you....

> Sher; ipf 3-06; OR.

> Don't fret about tomorrow, God is already there!

>

[Guest guest]

Bob,

We have all been there. You sometimes just drop into a hole and have to dig out of it. Dealing with a terminal illness is not without depression and dread. We understand, we get it, and I for one will remember you in my prayers.

A good friend gave me a CD with a song on it that says, "The God on the mountain is still God in the valley."

Have you talked to your doctor about anti depressants? Anxiety and depression go hand in hand with this illness.

Blessings to you.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at> 6lpm right now. I'm usually the one who tells people to wake up and> thank the Lord every day for the gifts we have. But this last week> I've been feeling, 'what's the use'. My wife does absolutely> everything possible for me. She holds down a job full time , comes> home and cooks, does the garden, bathes me and takes care of> everything else. I feel a bit useless. I've been painting quite a bit,> but this last week or so haven't felt like it. I can't get out to see> a doctor, it's too much of a hassle. I just wondered if anyone else> felt like this from time to time. It's new to me.> I guess I'll snap out of it just now, but at this moment I just feel> like doing nothing and wallowing in my self pity. Stupid eh? I know> that there are alot of people far worse off than me, but that doesn't> actually help me all that much right now. I just wish that there was a> pill that I could take.> Because I can't get around, I've put on so much weight. I can't even> look at myself in the mirror.> Sorry to rattle on, next time you hear from me I promise that you'll> see a different me; one that you may even like to talk to. It's just> this disease; your mind says that there's nothing wrong with you, then> you try to get up out of the chair and you realise that maybe you> haven't been out of doors for a week or so. > To all the normal people out there I appologise for this self pittying> garbage, but I guess it helps just to get it off my mind.> Thanks> Bob>

[Guest guest]

Bob,

We have all been there. You sometimes just drop into a hole and have to dig out of it. Dealing with a terminal illness is not without depression and dread. We understand, we get it, and I for one will remember you in my prayers.

A good friend gave me a CD with a song on it that says, "The God on the mountain is still God in the valley."

Have you talked to your doctor about anti depressants? Anxiety and depression go hand in hand with this illness.

Blessings to you.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at> 6lpm right now. I'm usually the one who tells people to wake up and> thank the Lord every day for the gifts we have. But this last week> I've been feeling, 'what's the use'. My wife does absolutely> everything possible for me. She holds down a job full time , comes> home and cooks, does the garden, bathes me and takes care of> everything else. I feel a bit useless. I've been painting quite a bit,> but this last week or so haven't felt like it. I can't get out to see> a doctor, it's too much of a hassle. I just wondered if anyone else> felt like this from time to time. It's new to me.> I guess I'll snap out of it just now, but at this moment I just feel> like doing nothing and wallowing in my self pity. Stupid eh? I know> that there are alot of people far worse off than me, but that doesn't> actually help me all that much right now. I just wish that there was a> pill that I could take.> Because I can't get around, I've put on so much weight. I can't even> look at myself in the mirror.> Sorry to rattle on, next time you hear from me I promise that you'll> see a different me; one that you may even like to talk to. It's just> this disease; your mind says that there's nothing wrong with you, then> you try to get up out of the chair and you realise that maybe you> haven't been out of doors for a week or so. > To all the normal people out there I appologise for this self pittying> garbage, but I guess it helps just to get it off my mind.> Thanks> Bob>

[Guest guest]

Bob,

We have all been there. You sometimes just drop into a hole and have to dig out of it. Dealing with a terminal illness is not without depression and dread. We understand, we get it, and I for one will remember you in my prayers.

A good friend gave me a CD with a song on it that says, "The God on the mountain is still God in the valley."

Have you talked to your doctor about anti depressants? Anxiety and depression go hand in hand with this illness.

Blessings to you.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> I've been diagnosed ipf for about 18 months. I'm tied 24/7 to o2 at> 6lpm right now. I'm usually the one who tells people to wake up and> thank the Lord every day for the gifts we have. But this last week> I've been feeling, 'what's the use'. My wife does absolutely> everything possible for me. She holds down a job full time , comes> home and cooks, does the garden, bathes me and takes care of> everything else. I feel a bit useless. I've been painting quite a bit,> but this last week or so haven't felt like it. I can't get out to see> a doctor, it's too much of a hassle. I just wondered if anyone else> felt like this from time to time. It's new to me.> I guess I'll snap out of it just now, but at this moment I just feel> like doing nothing and wallowing in my self pity. Stupid eh? I know> that there are alot of people far worse off than me, but that doesn't> actually help me all that much right now. I just wish that there was a> pill that I could take.> Because I can't get around, I've put on so much weight. I can't even> look at myself in the mirror.> Sorry to rattle on, next time you hear from me I promise that you'll> see a different me; one that you may even like to talk to. It's just> this disease; your mind says that there's nothing wrong with you, then> you try to get up out of the chair and you realise that maybe you> haven't been out of doors for a week or so. > To all the normal people out there I appologise for this self pittying> garbage, but I guess it helps just to get it off my mind.> Thanks> Bob>

[Guest guest]

Bob, If you are really serious about wanting to reduce your 02, you will need to do two things... 1. Deep breathing (the best kind is that used either to do Taiji/Qigong or the Ujjayi breathing done in yoga) 2. Find a source of free-ranging cattle that ONLY EAT GRASS. Then be willing to eat this meat and the dairy RAW for several months. The best book to understand this is WE WANT TO LIVE by Aajonus Vonderplanitz. Nothing I tried made any difference until I combined these two things. Then even the MDs were astounded at the results. My first pulmonologist encouraged the Taiji but wasn't sure about the raw grass fed animal flesh and their products UNTIL he saw the results. Then he asked for the name of the book! , thanks for your reply and inspiration. I rarely get to thisstate. I also stay at about 5000' up here in Johannesburg SouthAfrica. There are no support groups here and most of the doctors arenot here for their patients, but for their bank accounts. Or that ishow is seems. How does one beat one's body back into shape and at thesame time become less dependent on O2.I thought that maybe I was getting too much O2 into my system andturned the meter down to 4lpm, but I don't think that I am ready quiteyet.I do get up occasionaly. But I find it just so exhausting. I like toget out and see the flowers. It is now our summertime or coming up toit. All the Jacaranda trees are

in flower and its so beautiful.My daughter is about to give birth and will bring my first grandchildout to see us from London in February.Please help get a little bit better so that I can bless my grandchlid.Bob (artin the bush) __________________________________________________

[Guest guest]

Bob, If you are really serious about wanting to reduce your 02, you will need to do two things... 1. Deep breathing (the best kind is that used either to do Taiji/Qigong or the Ujjayi breathing done in yoga) 2. Find a source of free-ranging cattle that ONLY EAT GRASS. Then be willing to eat this meat and the dairy RAW for several months. The best book to understand this is WE WANT TO LIVE by Aajonus Vonderplanitz. Nothing I tried made any difference until I combined these two things. Then even the MDs were astounded at the results. My first pulmonologist encouraged the Taiji but wasn't sure about the raw grass fed animal flesh and their products UNTIL he saw the results. Then he asked for the name of the book! , thanks for your reply and inspiration. I rarely get to thisstate. I also stay at about 5000' up here in Johannesburg SouthAfrica. There are no support groups here and most of the doctors arenot here for their patients, but for their bank accounts. Or that ishow is seems. How does one beat one's body back into shape and at thesame time become less dependent on O2.I thought that maybe I was getting too much O2 into my system andturned the meter down to 4lpm, but I don't think that I am ready quiteyet.I do get up occasionaly. But I find it just so exhausting. I like toget out and see the flowers. It is now our summertime or coming up toit. All the Jacaranda trees are

in flower and its so beautiful.My daughter is about to give birth and will bring my first grandchildout to see us from London in February.Please help get a little bit better so that I can bless my grandchlid.Bob (artin the bush) __________________________________________________