Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 Hi , I was wracking my brain trying to think of help for your family. However, the resources I have are for folks that have pulmonary fibrosis. If anyone is looking at a tranplant and money is a problem, there is a new foundation that was started to help. The link is: http://www.willettfoundation.org/ What about getting local news people involved with the story? You never know who would read it and want to help. This would certainly bring attention to our lovely health care system. Hope all is well with you and you are feeling less stressed. You are in my prayers. Leannehkdawn wrote: Thanks for the info on transplant funding. I'll pass along the fundraiser ideas. It's tough because I can't really organize fundraisers for the family. I can only give suggestions and advice. I, of course, want to fix everything for everyone, so that's tough for me. www.heatherkirkwood.blogspot.com Hermansky-Pudlak Syndrome albinism/PF 06 Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
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