Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Thanks Sher, I am so very Blessed. Right now I am so tired I am just waiting for bed time. I can't wait to lay down. LOL Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thanks for the picture Peggy. The roses are beautiful! Love ya. Sher; ipf 3-06; OR. Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Thanks Sher, I am so very Blessed. Right now I am so tired I am just waiting for bed time. I can't wait to lay down. LOL Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thanks for the picture Peggy. The roses are beautiful! Love ya. Sher; ipf 3-06; OR. Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 You are so sweet.. Great minds think alike. LOL I sent one too. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Bofus has sent you a Hallmark E-Card. If you recognize this name, click the link to see your E-Card. http://www.hallmark.com/ECardWeb/ECV.jsp? a=3186772614904M222634207Y & product_id= If this name is not familiar to you and you're concerned about online security, please use the following steps: Visit http://www.hallmark.com/getecard Enter your e-mail address in the Original Recipient’s E-Mail Address box. Enter EG3186772614904 in the Confirmation Number box. Click Display Greeting. Want to send an E-Card too ? Visit www.hallmark.com/ecards To view Hallmark’s privacy policy or for questions, visit www.hallmark.com, and click the links at the bottom of the page. Hallmark Cards, Inc., 2501 McGee, P.O. Box 419034, Kansas City, MO 64141 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Sher, I don't think I would do the vat thing. You have been doing so well. I think if you stay on top of the PFT's and close contact with your Pulm Dr. WHY put yourself through that????????? The only reason "I think" a Dr. would do a Vat on you is for THIER studies. "How will it help you?" So you may have UIP or IPF same as the other 240 or so fibrosis'Please don't, infections are not worth it. OK I know, I know. I'm done. Love ya and want you to stay with us.Love and Prayers, Peggy ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." Peggy...Rich is finally doing well with the left knee. As you know, the right knee was a remarkable recovery.I'm doing ok. I'm sure you read the posts on the new med I'm taking for pain.....still no O2...I'm thinking about the VATS procedure had...having a colonoscopy done in a week. OH, that's more than you needed to know. lol.Recovery is hard, isn't it.Thank you for asking.Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 You are so kind.lol You could tell me to mind my own business..I wouldn't do it anyhow.. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thanks for your " wee small voice " Peggy. I guess the only reason is the circle has come around full and it's simply because I still don't " know " what I have. Dr. said last visit he wasn't sure it is IPF. Well that jerked me out of my comfort zone. So will ask more questions end of this month as to what his thinking is, if it's not IPF. He said there is no doubt I have a ILD. Takes me back to when I first found this board. I was crazy with questions. I've really settled down pretty good lately. I know something is wrong with me; sob, breathing problems and so on and then my brain starts working over time. Thanks for your input Peggy. Sher; ipf 3-06; OR. Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 You are so kind.lol You could tell me to mind my own business..I wouldn't do it anyhow.. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thanks for your " wee small voice " Peggy. I guess the only reason is the circle has come around full and it's simply because I still don't " know " what I have. Dr. said last visit he wasn't sure it is IPF. Well that jerked me out of my comfort zone. So will ask more questions end of this month as to what his thinking is, if it's not IPF. He said there is no doubt I have a ILD. Takes me back to when I first found this board. I was crazy with questions. I've really settled down pretty good lately. I know something is wrong with me; sob, breathing problems and so on and then my brain starts working over time. Thanks for your input Peggy. Sher; ipf 3-06; OR. Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 You are so kind.lol You could tell me to mind my own business..I wouldn't do it anyhow.. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thanks for your " wee small voice " Peggy. I guess the only reason is the circle has come around full and it's simply because I still don't " know " what I have. Dr. said last visit he wasn't sure it is IPF. Well that jerked me out of my comfort zone. So will ask more questions end of this month as to what his thinking is, if it's not IPF. He said there is no doubt I have a ILD. Takes me back to when I first found this board. I was crazy with questions. I've really settled down pretty good lately. I know something is wrong with me; sob, breathing problems and so on and then my brain starts working over time. Thanks for your input Peggy. Sher; ipf 3-06; OR. Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 I respectfully offer a differing opinion as someone who had a VATS just under two weeks ago. Now, you should talk to your pulmonologist about decisions you would make based on it first. However, it could actually uncover something not so major and treatable though not likely. My main reason was to determine IPF versus the other Interstitial Lung Diseases so I could make a decision on medications. Prednisone, for instance, is proven to help most others, and is not proven to help IPF. I now will not take prednisone. Whether the knowledge is of value is an individual decision but I'm doing fine from the VATS and glad to know precisely what disease I have. I think stating that the only reason a doctor would do it is for their studies is quite insulting to a lot of good dedicated doctors. I made an informed decision. I will now proceed to take next steps with knowledge in hand. I also had my VATS while my lungs were still relatively strong rather than face such later in the process. In less that two weeks, I'm cleared completely by my surgeon with no limitations and now back to my pulmonologist to discuss all options from this point. > > > Peggy...Rich is finally doing well with the left knee. As you know, > the right knee was a remarkable recovery. > I'm doing ok. I'm sure you read the posts on the new med I'm taking > for pain.....still no O2...I'm thinking about the VATS procedure > had...having a colonoscopy done in a week. OH, that's more than > you needed to know. lol. > Recovery is hard, isn't it. > Thank you for asking. > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 , Differ if you will BUT the stats. for the survival of lung infection from invasive procedures is not worth the risk in my opinion. There are very few if any treatments that actually help fibrosis and none proven to help IPF. My thoughts were for Sher. Knowing how her disease has halted and she is doing well. It would be very worrisome for anyone to suggest she have that as a hope for a treatment. As far as some Dr's.. Some members on this board have had some of the most uncaring and wrong Dx that is just unbelievable. So yes SOME Dr's. do want biopsies for research.. I am really glad you are doing so well. Take care of you. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " I respectfully offer a differing opinion as someone who had a VATS just under two weeks ago. Now, you should talk to your pulmonologist about decisions you would make based on it first. However, it could actually uncover something not so major and treatable though not likely. My main reason was to determine IPF versus the other Interstitial Lung Diseases so I could make a decision on medications. Prednisone, for instance, is proven to help most others, and is not proven to help IPF. I now will not take prednisone. Whether the knowledge is of value is an individual decision but I'm doing fine from the VATS and glad to know precisely what disease I have. I think stating that the only reason a doctor would do it is for their studies is quite insulting to a lot of good dedicated doctors. I made an informed decision. I will now proceed to take next steps with knowledge in hand. I also had my VATS while my lungs were still relatively strong rather than face such later in the process. In less that two weeks, I'm cleared completely by my surgeon with no limitations and now back to my pulmonologist to discuss all options from this point. > > > Peggy...Rich is finally doing well with the left knee. As you know, > the right knee was a remarkable recovery. > I'm doing ok. I'm sure you read the posts on the new med I'm taking > for pain.....still no O2...I'm thinking about the VATS procedure > had...having a colonoscopy done in a week. OH, that's more than > you needed to know. lol. > Recovery is hard, isn't it. > Thank you for asking. > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 , Differ if you will BUT the stats. for the survival of lung infection from invasive procedures is not worth the risk in my opinion. There are very few if any treatments that actually help fibrosis and none proven to help IPF. My thoughts were for Sher. Knowing how her disease has halted and she is doing well. It would be very worrisome for anyone to suggest she have that as a hope for a treatment. As far as some Dr's.. Some members on this board have had some of the most uncaring and wrong Dx that is just unbelievable. So yes SOME Dr's. do want biopsies for research.. I am really glad you are doing so well. Take care of you. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " I respectfully offer a differing opinion as someone who had a VATS just under two weeks ago. Now, you should talk to your pulmonologist about decisions you would make based on it first. However, it could actually uncover something not so major and treatable though not likely. My main reason was to determine IPF versus the other Interstitial Lung Diseases so I could make a decision on medications. Prednisone, for instance, is proven to help most others, and is not proven to help IPF. I now will not take prednisone. Whether the knowledge is of value is an individual decision but I'm doing fine from the VATS and glad to know precisely what disease I have. I think stating that the only reason a doctor would do it is for their studies is quite insulting to a lot of good dedicated doctors. I made an informed decision. I will now proceed to take next steps with knowledge in hand. I also had my VATS while my lungs were still relatively strong rather than face such later in the process. In less that two weeks, I'm cleared completely by my surgeon with no limitations and now back to my pulmonologist to discuss all options from this point. > > > Peggy...Rich is finally doing well with the left knee. As you know, > the right knee was a remarkable recovery. > I'm doing ok. I'm sure you read the posts on the new med I'm taking > for pain.....still no O2...I'm thinking about the VATS procedure > had...having a colonoscopy done in a week. OH, that's more than > you needed to know. lol. > Recovery is hard, isn't it. > Thank you for asking. > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 , Differ if you will BUT the stats. for the survival of lung infection from invasive procedures is not worth the risk in my opinion. There are very few if any treatments that actually help fibrosis and none proven to help IPF. My thoughts were for Sher. Knowing how her disease has halted and she is doing well. It would be very worrisome for anyone to suggest she have that as a hope for a treatment. As far as some Dr's.. Some members on this board have had some of the most uncaring and wrong Dx that is just unbelievable. So yes SOME Dr's. do want biopsies for research.. I am really glad you are doing so well. Take care of you. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " I respectfully offer a differing opinion as someone who had a VATS just under two weeks ago. Now, you should talk to your pulmonologist about decisions you would make based on it first. However, it could actually uncover something not so major and treatable though not likely. My main reason was to determine IPF versus the other Interstitial Lung Diseases so I could make a decision on medications. Prednisone, for instance, is proven to help most others, and is not proven to help IPF. I now will not take prednisone. Whether the knowledge is of value is an individual decision but I'm doing fine from the VATS and glad to know precisely what disease I have. I think stating that the only reason a doctor would do it is for their studies is quite insulting to a lot of good dedicated doctors. I made an informed decision. I will now proceed to take next steps with knowledge in hand. I also had my VATS while my lungs were still relatively strong rather than face such later in the process. In less that two weeks, I'm cleared completely by my surgeon with no limitations and now back to my pulmonologist to discuss all options from this point. > > > Peggy...Rich is finally doing well with the left knee. As you know, > the right knee was a remarkable recovery. > I'm doing ok. I'm sure you read the posts on the new med I'm taking > for pain.....still no O2...I'm thinking about the VATS procedure > had...having a colonoscopy done in a week. OH, that's more than > you needed to know. lol. > Recovery is hard, isn't it. > Thank you for asking. > Sher; ipf 3-06; OR. > Don't fret about tomorrow, God is already there! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Many of those stats you refer to are from Open Lung Biopsies. There is a huge difference between those and laparascopic procedures. Similarly, I do encourage anyone to ask obtain stats relevant to their current condition, their surgeon and the facility being used. I happen to have used for this and my previous surgeries a hospital system which is a leader is laparascopic surgeries. I had my colon resection done similarly. They also have the best record in the nation on gastric bypasses as they were the laparscopic pioneers. Would I use them for a lung transplant? No. Their record there does not match up to the other facility offering such in town. I asked my surgeon very pointed questions. I have notes somewhere but out of the just over 100 VATS he has performed he has had one patient develop complications. He does now recommend against VATS for a patient as advanced as that one was. I know I could have become number two but fortunately I didn't. As to suggesting what Sher should do, I wouldn't. However, I would not summarily dismiss, without knowing more, VATS. Nor would I make sweeping statements about doctors such as yours and although you did use the " I think " you also said the " only reason " which I think simply isn't true. Doctors can have many reasons to recommend one consider it. I had my specific reasons after much consideration, listening to many others who recommended and recommended against, talking to those who had the procedure and getting three opinions. In your follow up comments you tempered it with " some doctors " which I have no argument with. I also know there are non-caring and poor doctors, but I do believe my doctors to be caring and knowledgeable. I also know the additional steps taken by my surgeon and in the facility where i had the surgery to protect against infection. I had the surgery in a Heart Hospital which does nothing but Heart and Lung Surgery. Let me assure you I don't consider the decision on having or not having VATS easy nor the answer the same for any two people. Nothing about this disease is that simple or straight-forward. I see persons on medications for IPF that the doctors I've talked to absolutely disagree with. I don't know who is right. I know their is conflict upon physicians at one of the best lung transplant centers as to advisability of the procedure for specific patients. There is no right or wrong when it comes to something about which we know so little. My only advice to anyone is get to physicians in whom you have confidence. Gather all the information and knowledge you can. Get second and even third opinions to be comfortable. Then make what you feel is the best decision for yourself. If anything I go overboard in completeness. For instance, I had the pathology from my biopsy reviewed locally, but also their work reviewd by the Mayo Clinic. I certainly would never advise anyone else what to do. All I can do is share my experience and always with a caveat. My goodness we can't even figure out acid reflux. Today on this forum we've had five different medications widely discussed. However, the benefit I got was knowledge I didn't have of a new one that if it's found my Nexium isn't getting the job done would be another alternative. I also got a reminder its time to schedule back with my gastrointologist as that has sort of slipped out of my mind in dealing with my lungs which followed dealing with swollen lymph nodes while trying to get second neurological opinions. One could end up with a life of a doctor a day. (Would that keep the apples away?) i've even thought, and not all that facetiously, of just going to some island with no doctors, sipping drinks with umbrellas in them, and letting what happens happen. Now for me the most important thing at this point is living best as I can with my disease. I do face more decisions and I already have thoughts on those. However, I will listen with an open mind before finalizing " yes " or " no " . Again, something like clinical trials is different for each person. I'm not likely to participate in any. As a single man with no children, also, I have very different and less complex factors influencing my decision making than if I had a family to think about. I know if I had children I wanted to see grow that I would take chances on treatments with low likelihood for success that in my situation I will not. I think one last thing I would say. None of us here are " experts " . In fact, we have a disease for which I'm not sure anyone is an " expert " . However there are certainly those more knowledgeable than ourselves. Therefore, I would hope no one makes a medical decision based on what any of us say. I do think they can learn tips for living from us, they can get advice as to getting to physicians and questions to ask, and they can hear our real life experiences. I discussed with my pulmonologist and surgeon every negative i'd heard posted on lung biopsies and VATS. I ordered my mattress Genie today. I've got to order my LL Bean back pack for my oxygen. Most of all I've learned there are some incredible people much further along than I am who are making the most of things and they are more than friends, they are role models I need. When I see what they are doing then it does motivate me. > > > > > > Peggy...Rich is finally doing well with the left knee. As you > know, > > the right knee was a remarkable recovery. > > I'm doing ok. I'm sure you read the posts on the new med I'm > taking > > for pain.....still no O2...I'm thinking about the VATS procedure > > had...having a colonoscopy done in a week. OH, that's more > than > > you needed to know. lol. > > Recovery is hard, isn't it. > > Thank you for asking. > > Sher; ipf 3-06; OR. > > Don't fret about tomorrow, God is already there! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Video Assisted Thoracoscopic Surgery As you will see it used here it is generally referring to a lung biopsy done laparoscopically. Three holes are cut and camera used to both see and to help them guide their instruments. As with any laparoscopic surgery the incisions are smaller than traditional surgery and the surgery is less invasive although they are still removing a piece of your lung. After the surgery a drainage tube is left in one of the openings typically for anywhere from two to three days. That opening is then closed as well. When compared to older Open Lung Biopsies in which one long cut was made between the ribs the pain is less, the recovery time and hospital stay less and the morbidity is lower. As I'm sure you have read there are many opinions on this surgery as it relates to Pulmonary Fibrosis. Those range from those who say they would never have it under any conditions as they don't gain anything from it and it is painful and risky to those who say they would absolutely have it as it is the only way of being certain of the specific fibrosis and treatment choices and they feel the information is worth the minimal pain and risk. > > > > > > Peggy...Rich is finally doing well with the left knee. As you > know, > > the right knee was a remarkable recovery. > > I'm doing ok. I'm sure you read the posts on the new med I'm > taking > > for pain.....still no O2...I'm thinking about the VATS procedure > > had...having a colonoscopy done in a week. OH, that's more > than > > you needed to know. lol. > > Recovery is hard, isn't it. > > Thank you for asking. > > Sher; ipf 3-06; OR. > > Don't fret about tomorrow, God is already there! > > > > > > > > ______________________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment †" with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Video Assisted Thoracoscopic Surgery As you will see it used here it is generally referring to a lung biopsy done laparoscopically. Three holes are cut and camera used to both see and to help them guide their instruments. As with any laparoscopic surgery the incisions are smaller than traditional surgery and the surgery is less invasive although they are still removing a piece of your lung. After the surgery a drainage tube is left in one of the openings typically for anywhere from two to three days. That opening is then closed as well. When compared to older Open Lung Biopsies in which one long cut was made between the ribs the pain is less, the recovery time and hospital stay less and the morbidity is lower. As I'm sure you have read there are many opinions on this surgery as it relates to Pulmonary Fibrosis. Those range from those who say they would never have it under any conditions as they don't gain anything from it and it is painful and risky to those who say they would absolutely have it as it is the only way of being certain of the specific fibrosis and treatment choices and they feel the information is worth the minimal pain and risk. > > > > > > Peggy...Rich is finally doing well with the left knee. As you > know, > > the right knee was a remarkable recovery. > > I'm doing ok. I'm sure you read the posts on the new med I'm > taking > > for pain.....still no O2...I'm thinking about the VATS procedure > > had...having a colonoscopy done in a week. OH, that's more > than > > you needed to know. lol. > > Recovery is hard, isn't it. > > Thank you for asking. > > Sher; ipf 3-06; OR. > > Don't fret about tomorrow, God is already there! > > > > > > > > ______________________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment †" with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 , Thanks for the information! There's a test my lung dr wants to do, if the coughing continued from the last time I saw him in July, but he hasn't mentionned it...and it wasn't the PFT's he had in mind. I just Wished I could remember the name I guess I will find out this afternoon since he wants to see me ASAP because of Bronchitis isn't going away and I don't want to start a 4th week on antibiotics.... Back in July again, I had Bronchitis, I was on on antibiotics for a week. Irene Raynaud's Disease 09/07 PF 03/07 Canada ---- Original Message ---- To: Breathe-Support Sent: Thu, 1 Nov 2007 10:34 am Subject: Re: Sher Video Assisted Thoracoscopic Surgery As you will see it used here it is generally referring to a lung biopsy done laparoscopically. Three holes are cut and camera used to both see and to help them guide their instruments. As with any laparoscopic surgery the incisions are smaller than traditional surgery and the surgery is less invasive although they are still removing a piece of your lung. After the surgery a drainage tube is left in one of the openings typically for anywhere from two to three days. That opening is then closed as well. When compared to older Open Lung Biopsies in which one long cut was made between the ribs the pain is less, the recovery time and hospital stay less and the morbidity is lower. As I'm sure you have read there are many opinions on this surgery as it relates to Pulmonary Fibrosis. Those range from those who say they would never have it under any conditions as they don't gain anything from it and it is painful and risky to those who say they would absolutely have it as it is the only way of being certain of the specific fibrosis and treatment choices and they feel the information is worth the minimal pain and risk. > > > > > > Peggy...Rich is finally doing well with the left knee. As you > know, > > the right knee was a remarkable recovery. > > I'm doing ok. I'm sure you read the posts on the new med I'm > taking > > for pain.....still no O2...I'm thinking about the VATS procedure > > had...having a colonoscopy done in a week. OH, that's more > than > > you needed to know. lol. > > Recovery is hard, isn't it. > > Thank you for asking. > > Sher; ipf 3-06; OR. > > Don't fret about tomorrow, God is already there! > > > > > > > > __________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment â€" with a Canadian perspective. > Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 , Thanks for the information! There's a test my lung dr wants to do, if the coughing continued from the last time I saw him in July, but he hasn't mentionned it...and it wasn't the PFT's he had in mind. I just Wished I could remember the name I guess I will find out this afternoon since he wants to see me ASAP because of Bronchitis isn't going away and I don't want to start a 4th week on antibiotics.... Back in July again, I had Bronchitis, I was on on antibiotics for a week. Irene Raynaud's Disease 09/07 PF 03/07 Canada ---- Original Message ---- To: Breathe-Support Sent: Thu, 1 Nov 2007 10:34 am Subject: Re: Sher Video Assisted Thoracoscopic Surgery As you will see it used here it is generally referring to a lung biopsy done laparoscopically. Three holes are cut and camera used to both see and to help them guide their instruments. As with any laparoscopic surgery the incisions are smaller than traditional surgery and the surgery is less invasive although they are still removing a piece of your lung. After the surgery a drainage tube is left in one of the openings typically for anywhere from two to three days. That opening is then closed as well. When compared to older Open Lung Biopsies in which one long cut was made between the ribs the pain is less, the recovery time and hospital stay less and the morbidity is lower. As I'm sure you have read there are many opinions on this surgery as it relates to Pulmonary Fibrosis. Those range from those who say they would never have it under any conditions as they don't gain anything from it and it is painful and risky to those who say they would absolutely have it as it is the only way of being certain of the specific fibrosis and treatment choices and they feel the information is worth the minimal pain and risk. > > > > > > Peggy...Rich is finally doing well with the left knee. As you > know, > > the right knee was a remarkable recovery. > > I'm doing ok. I'm sure you read the posts on the new med I'm > taking > > for pain.....still no O2...I'm thinking about the VATS procedure > > had...having a colonoscopy done in a week. OH, that's more > than > > you needed to know. lol. > > Recovery is hard, isn't it. > > Thank you for asking. > > Sher; ipf 3-06; OR. > > Don't fret about tomorrow, God is already there! > > > > > > > > __________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment â€" with a Canadian perspective. > Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 , Thanks for the information! There's a test my lung dr wants to do, if the coughing continued from the last time I saw him in July, but he hasn't mentionned it...and it wasn't the PFT's he had in mind. I just Wished I could remember the name I guess I will find out this afternoon since he wants to see me ASAP because of Bronchitis isn't going away and I don't want to start a 4th week on antibiotics.... Back in July again, I had Bronchitis, I was on on antibiotics for a week. Irene Raynaud's Disease 09/07 PF 03/07 Canada ---- Original Message ---- To: Breathe-Support Sent: Thu, 1 Nov 2007 10:34 am Subject: Re: Sher Video Assisted Thoracoscopic Surgery As you will see it used here it is generally referring to a lung biopsy done laparoscopically. Three holes are cut and camera used to both see and to help them guide their instruments. As with any laparoscopic surgery the incisions are smaller than traditional surgery and the surgery is less invasive although they are still removing a piece of your lung. After the surgery a drainage tube is left in one of the openings typically for anywhere from two to three days. That opening is then closed as well. When compared to older Open Lung Biopsies in which one long cut was made between the ribs the pain is less, the recovery time and hospital stay less and the morbidity is lower. As I'm sure you have read there are many opinions on this surgery as it relates to Pulmonary Fibrosis. Those range from those who say they would never have it under any conditions as they don't gain anything from it and it is painful and risky to those who say they would absolutely have it as it is the only way of being certain of the specific fibrosis and treatment choices and they feel the information is worth the minimal pain and risk. > > > > > > Peggy...Rich is finally doing well with the left knee. As you > know, > > the right knee was a remarkable recovery. > > I'm doing ok. I'm sure you read the posts on the new med I'm > taking > > for pain.....still no O2...I'm thinking about the VATS procedure > > had...having a colonoscopy done in a week. OH, that's more > than > > you needed to know. lol. > > Recovery is hard, isn't it. > > Thank you for asking. > > Sher; ipf 3-06; OR. > > Don't fret about tomorrow, God is already there! > > > > > > > > __________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment â€" with a Canadian perspective. > Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Remind him of the test. Also, if the antibiotics are called for there is really little choice. I would imagine he might switch antibiotics. Good luck with your appointment. Let us know what he says. We all start to develop strong dislikes for going to doctors and having tests and certainly I'm weeding out those that appear less relevant now that I have IPF such as some neurological work that was planned. I don't want to spend my life like I did August in which I had 19 medical appointments either for doctors or tests. However, when it comes to anything related to our lungs we must surrender and go as soon as possible and as often as possible to keep it from worsening our condition in a way or at a pace worse than that we already face. A cold was minor before, now its material. Flu was moderate, now major. Bronchitis was something of concern, now its of the utmost concern. > > > > > > > > > Peggy...Rich is finally doing well with the left knee. As you > > know, > > > the right knee was a remarkable recovery. > > > I'm doing ok. I'm sure you read the posts on the new med I'm > > taking > > > for pain.....still no O2...I'm thinking about the VATS procedure > > > had...having a colonoscopy done in a week. OH, that's more > > than > > > you needed to know. lol. > > > Recovery is hard, isn't it. > > > Thank you for asking. > > > Sher; ipf 3-06; OR. > > > Don't fret about tomorrow, God is already there! > > > > > > > > > > > > > > > > __________________________________________________________ > __ > > Meet the new AOL.ca. Free radio, music, videos, news & > entertainment †" with a Canadian perspective. > > > > > > > > ______________________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment †" with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Good Peggy, don't ever mind your own business! Love ya Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Good Peggy, don't ever mind your own business! Love ya Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Good Peggy, don't ever mind your own business! Love ya Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 It is just so much more fun to mind everyone else's business.. We all know I have an opinion on everything. I am right a few times a week too.. so there. hee hee Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Good Peggy, don't ever mind your own business! Love ya Sher; ipf 3-06; OR. Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 It is just so much more fun to mind everyone else's business.. We all know I have an opinion on everything. I am right a few times a week too.. so there. hee hee Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Good Peggy, don't ever mind your own business! Love ya Sher; ipf 3-06; OR. Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 re: VATS...yes, I waited for your first post re: the procedure you had and what you wrote below is my thinking exactly. However, we know there is no med. for IPF and it's unlikely something else would be uncovered. >>> However, it could actually uncover something not so major and treatable though not likely. My main reason was to determine IPF versus the other Interstitial Lung Diseases so I could make a decision on medications. Peggy already knows my determination not to take prednisone and she has learned a lot about my general health and preferences in nearly 2 years. In all respect , you are fairly new to the board (or maybe it's me coming back!) and you don't know the "personalities" of some of the names. One sentence does not tell what's behind the thought or how it came to be. Peggy is one among many who have been here for a long time and I'm grateful for her input because it's based on her knowing me. I'm grateful for your input too because it's based on your personal facts. Both of you give me good info. to consider.>>>> I also had my VATS while my lungs were still relatively strong rather than face such later in the process. My thinking too but do I really want to go through that tough procedure at my age and general health. It's a tough decision! >>> and now back to my pulmonologist to discuss all options from this point. What "options" do you have if you now know it's IPF? You seem very knowledgeable, do you know what I do not know about IPF? Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 re: VATS...yes, I waited for your first post re: the procedure you had and what you wrote below is my thinking exactly. However, we know there is no med. for IPF and it's unlikely something else would be uncovered. >>> However, it could actually uncover something not so major and treatable though not likely. My main reason was to determine IPF versus the other Interstitial Lung Diseases so I could make a decision on medications. Peggy already knows my determination not to take prednisone and she has learned a lot about my general health and preferences in nearly 2 years. In all respect , you are fairly new to the board (or maybe it's me coming back!) and you don't know the "personalities" of some of the names. One sentence does not tell what's behind the thought or how it came to be. Peggy is one among many who have been here for a long time and I'm grateful for her input because it's based on her knowing me. I'm grateful for your input too because it's based on your personal facts. Both of you give me good info. to consider.>>>> I also had my VATS while my lungs were still relatively strong rather than face such later in the process. My thinking too but do I really want to go through that tough procedure at my age and general health. It's a tough decision! >>> and now back to my pulmonologist to discuss all options from this point. What "options" do you have if you now know it's IPF? You seem very knowledgeable, do you know what I do not know about IPF? Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there! Quote Link to comment Share on other sites More sharing options...
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