[NF2 Crew] Texas NF Foundation

[Guest guest]

Crew: I got this message today from the Texas NF

Foundation. Would you want her to include info. about

the NF2 Crew in her brochure? If so, what info.?

" Right now, I need to ask you a favor. I am in the

process of developing a handout to include in

information packets, etc. with different resources

from the Web. Since many of you have spent much time

on the Web, you probably have some ideas of what I

should (and should NOT) include in this list. I am

asking that you send me your suggestions of websites

that I should and shouldn't include on this handout.

Topics could include: general info about NF, support

networks, doctor/clinic information, social services,

insurance information, etc!

I'll put them all together and then have a great

information source for families newly diagnosed with

NF. Also when I get the handout together I will send

it to all of ya'll so you can gain from each others'

research.

Thanks for your help!

Patient Outreach Director

Texas Neurofibromatosis Foundation

P.S. By the way, when you are out there on the web or

in the world, if you ever meet someone with NF, ask

them if they are on the mailing list of the Texas NF

Foundation. If they aren't, please give them my email

or our website or my phone number so I can get them

plugged in to our camp, symposium, and newsletters!!

Thanks!

krichardson@...

www.texasnf.org

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