new here have many questions

[Guest guest]

hi there,

I am new here and have not read the archives nor have I lurked at all. Sorry if

my etiquette

is poor in any way.

My husband just took 150mCi of i131 for the ablation of a large chunk of thyroid

gland

left behind ten years ago from his thyroidectomy. This seems like a pretty big

dose and

his docs have just set him loose into the public with a few small warnings and

precautions.

My understanding is that folks with this large a dose are to be isolated. Is

this the case?

We have a 3 year old and I really don't want her exposed. He is staying with

his mom for a

week but then he'll be home. Should he be staying at his moms longer?

I'd appreciate any input I can get,

thanks in advance,

stephanie, 33 from northern CA.

[Guest guest]

Actually, he probably should have gone to a motel room, where he would be

totally alone for several days. His mother is exposed, if she's washing the

dishes he eats out of, etc.....You are right that he should not be at home,

however. The food he eats in the plates and utensils he eats out of have to

be disposed of, etc., etc.......If his mother chooses to do this, though,

knowing all that, then what can I say. I'm thinking that it's almost a week

or so, but no longer than that. Does his mother have this knowledge, for

her own sake?

new here have many questions

> hi there,

>

> I am new here and have not read the archives nor have I lurked at all.

Sorry if my etiquette

> is poor in any way.

>

> My husband just took 150mCi of i131 for the ablation of a large chunk of

thyroid gland

> left behind ten years ago from his thyroidectomy. This seems like a

pretty big dose and

> his docs have just set him loose into the public with a few small warnings

and precautions.

> My understanding is that folks with this large a dose are to be isolated.

Is this the case?

>

> We have a 3 year old and I really don't want her exposed. He is staying

with his mom for a

> week but then he'll be home. Should he be staying at his moms longer?

>

> I'd appreciate any input I can get,

>

> thanks in advance,

>

> stephanie, 33 from northern CA.

[Guest guest]

Actually, he probably should have gone to a motel room, where he would be

totally alone for several days. His mother is exposed, if she's washing the

dishes he eats out of, etc.....You are right that he should not be at home,

however. The food he eats in the plates and utensils he eats out of have to

be disposed of, etc., etc.......If his mother chooses to do this, though,

knowing all that, then what can I say. I'm thinking that it's almost a week

or so, but no longer than that. Does his mother have this knowledge, for

her own sake?

new here have many questions

> hi there,

>

> I am new here and have not read the archives nor have I lurked at all.

Sorry if my etiquette

> is poor in any way.

>

> My husband just took 150mCi of i131 for the ablation of a large chunk of

thyroid gland

> left behind ten years ago from his thyroidectomy. This seems like a

pretty big dose and

> his docs have just set him loose into the public with a few small warnings

and precautions.

> My understanding is that folks with this large a dose are to be isolated.

Is this the case?

>

> We have a 3 year old and I really don't want her exposed. He is staying

with his mom for a

> week but then he'll be home. Should he be staying at his moms longer?

>

> I'd appreciate any input I can get,

>

> thanks in advance,

>

> stephanie, 33 from northern CA.

[Guest guest]

Ideally he should stay away from adults for about 3 days... children and infants for 5 to 7 days.... did they explain to him how to decontaminate the things that he's using and the bathroom etc? He'll be exposing his mom if he's not taking care of that... when did they dose him?

Don't worry about your etiquette.. you had a specific question that needed to be answered ASAP.. you did just fine!!!

Topper () *15 years post RAI*

On Wed, 15 Sep 2004 05:24:15 -0000 "" writes:

hi there, I am new here and have not read the archives nor have I lurked at all. Sorry if my etiquette is poor in any way. My husband just took 150mCi of i131 for the ablation of a large chunk of thyroid gland left behind ten years ago from his thyroidectomy. This seems like a pretty big dose and his docs have just set him loose into the public with a few small warnings and precautions. My understanding is that folks with this large a dose are to be isolated. Is this the case?We have a 3 year old and I really don't want her exposed. He is staying with his mom for a week but then he'll be home. Should he be staying at his moms longer?I'd appreciate any input I can get, thanks in advance, stephanie, 33 from northern CA.

[Guest guest]

hi linda,

they didn't explain to him any decontamination procedure other than flush

the toilet a bunch. he is staying in one part of his mom's house that is

closed off from the rest, has his own food and is using separate dishes

etc. They dosed him tuesday afternoon at 3PM. Could oyu let me know

about the bathroom stuff? Thanks so much for the info and congrats on the

15 year mark!

-Steph

--- topper2@... wrote:

> Ideally he should stay away from adults for about 3 days... children and

> infants for 5 to 7 days.... did they explain to him how to decontaminate

> the things that he's using and the bathroom etc? He'll be exposing his

> mom if he's not taking care of that... when did they dose him?

>

> Don't worry about your etiquette.. you had a specific question that

> needed to be answered ASAP.. you did just fine!!!

>

> Topper () *15 years post RAI*

>

> On Wed, 15 Sep 2004 05:24:15 -0000 " "

> writes:

> hi there,

>

> I am new here and have not read the archives nor have I lurked at all.

> Sorry if my etiquette

> is poor in any way.

>

> My husband just took 150mCi of i131 for the ablation of a large chunk of

> thyroid gland

> left behind ten years ago from his thyroidectomy. This seems like a

> pretty big dose and

> his docs have just set him loose into the public with a few small

> warnings and precautions.

> My understanding is that folks with this large a dose are to be

> isolated.

> Is this the case?

>

> We have a 3 year old and I really don't want her exposed. He is staying

> with his mom for a

> week but then he'll be home. Should he be staying at his moms longer?

>

> I'd appreciate any input I can get,

>

> thanks in advance,

>

> stephanie, 33 from northern CA.

=====

Rossman

We can not have free government without elections; and if the rebellion could

force us to forego, or postpone a national election it might fairly claim to

have already conquered and ruined us. " -Abraham Lincoln

" Violent means will give violent freedom. " -Mohandas Karamchand Gandhi

" Non-cooperation with evil is a sacred duty. " -Mohandas Karamchand Gandhi

__________________________________________________

[Guest guest]

I am kind of lost

on this and new to a lot of this also. Can someone explain to me why her

husband has to be isolated is the meds he took poison or something?

cindy

[Guest guest]

In situations where 'you can't take it back' I think safer is wiser.... The things that I listed were the couple of things that I was told the day I got treated and the things my endo told me, after the fact, that I should have known but no one told me....

How's your hubby feeling?

Topper ()

On Wed, 15 Sep 2004 21:09:30 -0700 (PDT) Rossman writes:

hi topper, thanks again for all the info. it really seems that there are *many*different opinions with regard to what's safe exposure and what's not. Itend more toward the cautious side...your info has helped immensely. thanks a bunch!-

[Guest guest]

You guys may want to look into Natural thyroid (like Armour) rather than the synthetic, thyroxine....

Since he has no thyroid function, like me... getting the full spectrum of hormones instead of just the synthetic T4 really makes a difference...

IMHO, of course...

For his taste buds... this sounds really silly... but it's not gonna hurt anything to try... when he brushes his teeth.. have him brush the top and bottom of his tongue and the insides of his cheeks.. it worked for me, and a few other folks to make things taste better.. whether it's from getting natural film out of the way so that weaker taste buds can 'taste' or it's stimulating the taste buds, I have no idea... but I sure like the result.....

Topper ()

www.thyrophoenix.com/thyroid_101.htm

On Thu, 16 Sep 2004 08:14:00 -0700 (PDT) Rossman writes:

> > How's your hubby feeling?OK, i think. his taste buds a kaput and food tastes funny to him. he'sskinny as a rail and can't really afford to lose weight. (although henever seems to lose or gain regardless of his eating habits) his energy isstill pretty low and I assume it will get a little lower before he resumestaking his thyroxine. (since his thyroid is getting axed with the RAI) He's not sleeping well since he's drinking so much water and is up to peeever 4 seconds. Other than that he's doing pretty well. Tired of suckinghard candies, etc. thanks for asking. -stephanie

[Guest guest]

Lee

ICQ - 15118678

AOL - marajadetx

texasbluebonnet@...

thank you topper for explaining the radioactive

iodine to me.

Another question about this, how is it dangerous to other

people? I have been thinking about this, and wondering, is it that the

radioactive iodine can reach others by way of saliva or pass via skin tissue

such as touching, and thus begin to kill a normal active thyroid? Is this the

concern?

cindy

[Guest guest]

hi topper,

the half life of i131 in excretion is 4.2 days (or something like that)

meaning it's taken into the body and excreted. and washed away, diluted,

etc. So the radioactivity is less in excreted i131. However, it's half

life in the thyroid is, I think, about 8 days. Meaning, it's taken up by

the thyroid, and held there in the tissue. So, for example, my husband

has quite a lot of tissue left and big dose (150 mCi) so there's LOTS of

i 131 still there regardless of the fact that he was dosed on tuesday. A

geiger counter placed anywhere near him and it ticks off like crazy. Does

this make sense?

-

--- topper2@... wrote:

> It can be transferred to people and objects by touching and transfer of

> fluids (saliva, sweat, body oil, any fluid leaving the body, including

> the moisture in the air that is exhaled).. but I don't know how much

> damage it can do to another person. It's more dangerous to children

> because of their small body sizes... and with reproductive systems for

> the same reason.. the embryo would be at risk for defects...

>

> But I've not read just exactly what exposure to others can do....

>

> I would guess.. and this is just a guess... that the radioactive iodine

> is filtered out by the patients thyroid. It kills the thyroid tissue...

> and then passes into the blood where the body excretes it as it would

> normal iodine and waste... if the radiation has no place to concentrate

> (as in the thyroid gland which is designed to filter and hold iodine) it

> would then be free to affect other tissues in the body... But what would

> it do to other tissues? That is what I don't know.

>

> I think it's still wisest to limit re exposure to the patient (so

> showering, plenty of fluids, fresh clothing and bedding) and to prevent

> exposure to others....

>

> I would like to understand this better... I survived it 15 years ago...

> but understanding it better would allow us to explain it better to

> others

> that are facing this particular treatment.

>

> Topper ()

>

> On Thu, 16 Sep 2004 19:50:39 -0500 " Lee "

> writes:

>

>

> Lee

> ICQ - 15118678

> AOL - marajadetx

> texasbluebonnet@...

> thank you topper for explaining the radioactive iodine to me.

> Another question about this, how is it dangerous to other people? I

> have

> been thinking about this, and wondering, is it that the radioactive

> iodine can reach others by way of saliva or pass via skin tissue such as

> touching, and thus begin to kill a normal active thyroid? Is this the

> concern?

> cindy

=====

Rossman

We can not have free government without elections; and if the rebellion could

force us to forego, or postpone a national election it might fairly claim to

have already conquered and ruined us. " -Abraham Lincoln

" Violent means will give violent freedom. " -Mohandas Karamchand Gandhi

" Non-cooperation with evil is a sacred duty. " -Mohandas Karamchand Gandhi

__________________________________________________

[Guest guest]

I've seen that data.... it turns out that the antibodies increased when the thyroid supplement amounts were too low... that is what triggered the increase in antibodies. Bring the hormone levels up high enough to suppress the TSH left the antibodies lower.....

I need to find that again.....

Topper ()

On Sun, 19 Sep 2004 21:11:24 -0700 (PDT) Rossman writes:

hi mary, > I have searched for links to this, before I ever began to take Armour,> as I> knew that I had Hashi's, but could never find anything saying that> someone> with Hashi's shouldn't take Armour. i don't believe that the studies stated that folks with Hashi'sthyroiditits should not take any of the dessication preparations - ratherthe results of the research showed that some people developed antibodies. enough evidence for my husband to not take it particularly when he doesfine with T4. > I wouldn't be up walking and talking at this point, had I> not> made the change to the Armour.> that's great. i'm glad you've found something that works for you.stephanie