Re: Re: Imuran

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Hello joyce this is marilyns daughter angel. I was sending you note to let you know that my mother past away on aug.25 of 2007.Joyce wrote: Kathie, God gave me time enough to have 4 more grandchildren and energy enough to crochet each of them a pretty baby blankie. Each of them had thier first picture made with thiers. My husband and I are going to get rid of all that yarn, patterns,

fabric, buttons, etc. etc. that is taking up an entire corner of a room. It's just that when I begin, I see so many memories in those peices of fabric, ribbon and lace. I have made so many pretty hair barrettes for my little grandaughters. I remember how they were so happy to wear the dresses that I made. I made the boys and the girls flannel pajamas one year and little sleep hats to wear with them. They thought that was so cool. I keep putting it off. Guess I'm just not ready yet. You just keep on trying as long as you have the desire. I just really don't have the zeal for it anymore. Plus my prednisone shakes keeps me away from needles. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997

BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> , never too much tmi! It sounds like what you are doing is > working just fine. In the last year my sob has increased, sats > dropped a bit and I developed the cough, but I have felt pretty good > for the last two years. I will never be happy with the amount of > energy I have. I have started so many projects and finished so few. > I try and explain to my husband why I save the yarn or the broken > glass and why I don't finish. I think it is hope, hope that I will > feel good enough and live long enough to get everything I want done. > On the other side I may be afraid to finish because there would be

> nothing for me to do...fat chance!> Blessings, > Kathie, NSIP '95, PH> Tacoma, WA> > Re: Re: Kathie in Tacoma > > > Kathie, I'm very interested in your response. I've always been on > both the Prednisone and Imuran at the same time...I also take Mepron( > that's an anti-bacterial> medication to help ward off the infections that might show up due to > both of the the immuno-suppressants). I have had more UTI's than > usual ( that's before being> dx'd)I've had IBS for 20 years...it's usually under cntrol with fiber > and activity but it has acted up more since this mess began. I have > the white/red blood cell issue to some degree but the doc's aren't > concerned at this time. I wonder if the Imuran has caused the > increased incidents of UTI's and IBS.> I've been stable since dx...8/05...the PFT's are the

same, the HRCT > are too. I'm stronger and have felt better than 2 years ago. > Exhaustion is just part of my life . We've decided that I'm maybe > 50% better than back in 2005. I'm on O2 24/7..., I've retired from > teaching, I can do far less and am very aware of my lower energy > level. However...the NSIP is still stable...there has been no more > fibrosis or honeycombing...the velcro noise is gone and I'm SOB less > often and the cough is only really bothersome when I've over-done or > over-talked!!!!> So, I'll keep the medications as they are...the Prednisone has gone > from 40mg to 12.5mg and hopefully it will be lowered again in > November. The imuran dose is supposed to be lowered too.I do hate > taking all the medications...the water alone to get all the pills > down in the morning...keeps me home for hours!!!!! Sorry...that was > TMI!> >

> Z fibriotic NSIP/o5/PA > Potter, reader,carousel lover and MomMom to Darah > "I'm gonna be iron like a lion in Zion" Bob Marley> __________________________________________________