Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 > > > > > > Hi everyone, > > > > > > I just found out last week I have ILD. I have not slept well for > > over > > > a year blaming it on stress. Like last night I took Lunesta and > > still > > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry > Test, > > > Sleep Test and tonight another for a CPAP. My arms and hands > hurt > > most > > > mornings and alot lately all day. I have this ringing in my ears > > now > > > for about six months that last a day or two then go away for a > day > > then > > > come back again. It is really driving me nuts. The lung doctor > > said > > > last week to stop smoking and I have. He has me scdeduled for > > another > > > CT scan in four months. That's it. I have read just about > > everything > > > out on the net and most of it has not alot of hope. Is the CPAP > > going > > > to let me sleep and start to take the aches away. > > > > > > I have been married to the best woman ever for 34 years my high > > school > > > sweetheart that gave us three beautiful children and three > > > grandchildren with another on the way. I really need to talk to > > some > > > of you who went through this initially and can help me understand > > what > > > is going on and what to expect. Thank you for listening. > > > > > > Joe Jefferys > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 > > > > > > Hi everyone, > > > > > > I just found out last week I have ILD. I have not slept well for > > over > > > a year blaming it on stress. Like last night I took Lunesta and > > still > > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry > Test, > > > Sleep Test and tonight another for a CPAP. My arms and hands > hurt > > most > > > mornings and alot lately all day. I have this ringing in my ears > > now > > > for about six months that last a day or two then go away for a > day > > then > > > come back again. It is really driving me nuts. The lung doctor > > said > > > last week to stop smoking and I have. He has me scdeduled for > > another > > > CT scan in four months. That's it. I have read just about > > everything > > > out on the net and most of it has not alot of hope. Is the CPAP > > going > > > to let me sleep and start to take the aches away. > > > > > > I have been married to the best woman ever for 34 years my high > > school > > > sweetheart that gave us three beautiful children and three > > > grandchildren with another on the way. I really need to talk to > > some > > > of you who went through this initially and can help me understand > > what > > > is going on and what to expect. Thank you for listening. > > > > > > Joe Jefferys > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Joe, The CPAP will help you to breathe while you sleep...the sleep apnea they are testing you for causes a person to stop breathing while asleep...you really stop!!!My husband has stopped snoring and gaspiing for air since starting on the CPAP.It take a while to get used to it but do yourself and your wife the favor and persist!!!! She'll sleep better not having to listen to snoring and not worrying if you are going to stop breathing during the night. As to the aches...they can be due to just about anything!!!! Please stop smoking!!!! What medications are you taking, what about oxygen? Where are you from, what ILD? Welcome to the group!!! Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA Potter, reader,carousel lover and MomMom to Darah “I’m gonna be iron like a lion in Zion” Bob Marley joejefferys wrote: Hi everyone, I just found out last week I have ILD. I have not slept well for over a year blaming it on stress. Like last night I took Lunesta and still only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test, Sleep Test and tonight another for a CPAP. My arms and hands hurt most mornings and alot lately all day. I have this ringing in my ears now for about six months that last a day or two then go away for a day then come back again. It is really driving me nuts. The lung doctor said last week to stop smoking and I have. He has me scdeduled for another CT scan in four months. That's it. I have read just about everything out on the net and most of it has not alot of hope. Is the CPAP going to let me sleep and start to take the aches away. I have been married to the best woman ever for 34 years my high school sweetheart that gave us three beautiful children and three grandchildren with another on the way. I really need to talk to some of you who went through this initially and can help me understand what is going on and what to expect. Thank you for listening. Joe Jefferys No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.6/1086 - Release Date: 10/22/2007 7:57 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 There are three types of sleep apnea: obstructive, central, and mixed. Obstructive sleep apnea (OSA) is the most common and severe form. This type of apnea occurs when the airway closes and remains obstructed, resulting in blocked airflow. As pressure to breathe increases, the diaphragm and chest muscles work harder. Blood pressure rises and the heart can beat irregularly or even pause for several seconds. Every time breathing stops, the level of oxygen in the blood falls and the heart must pump harder. Every time there is an obstruction, the person must awaken momentarily to resume breathing. Sleep is temporarily interrupted, activating the throat muscles to open the airway. In central sleep apnea, the brain actually fails to signal the muscles to breathe. The airway is clear, but the diaphragm and chest muscles stop working. Eventually the decreased level of oxygen in the blood signals the brain to awaken the sleeper to restart breathing. This type of apnea becomes more common with age and is associated with heart disease or a neurological disorder. Mixed sleep apnea is a combination of central and obstructive sleep apnea. This disorder initially occurs as central sleep apnea, where there is no brain signal to breathe. When the diaphragm suddenly begins moving, the airway is blocked by an obstruction (obstructive sleep apnea). It is not uncommon for a sleep disorder specialist to see all three types of apnea occur in one night. Now there has been much learned over the years about levels of sleep apnea. At one time (when I had a sleep study in 1988 this was the case) generally you had to fail to breathe for ten seconds for it to be considered apnea. That still may apply for the greatest risk of dying during your sleep. However, most people with apnea now tend to just have many interruptions, although they might just be of one breath, within an hour. This destroys the quality of sleep and causes many of the effects described above. My ex-wife was experiencing 86 interruptions per hour. Last time I was tested i had 28 per hour, although I'm ready for another test and suspect its much higher now. CPAP addresses many causes of sleep apnea as opposed to just a shortage of oxygen which can cause apnea in addition to the other harm it causes. During a sleep study they also measure the number of times your oxygen falls. My last oxygen study, my oxygen was below 90% for 25% of the time. CPAP will be set like oxygen at a fixed flow or can be auto-titrating which automatically adjusts to your needs. Most users of CPAP also have warm humidification which further helps and reduces the drying effect. Some patients need extremely high inhalation pressure. CPAP provides the same inhalation and exhalation pressures. Those patients use BIPAP or other Bi-Level Machines to have more inhalation pressure than exhalation. Most who need a moderate level of oxygen while asleep will find that problem resolved by a CPAP. If oxygen is your only issue and not apnea or no other causes, then just oxygen may make the most sense. Then there are those who need a CPAP but need additional oxygen. In those cases, there are adapters to add the oxygen to the system. > > > Hi everyone, > > > > I just found out last week I have ILD. I have not slept well for over > > a year blaming it on stress. Like last night I took Lunesta and still > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test, > > Sleep Test and tonight another for a CPAP. My arms and hands hurt most > > mornings and alot lately all day. I have this ringing in my ears now > > for about six months that last a day or two then go away for a day then > > come back again. It is really driving me nuts. The lung doctor said > > last week to stop smoking and I have. He has me scdeduled for another > > CT scan in four months. That's it. I have read just about everything > > out on the net and most of it has not alot of hope. Is the CPAP going > > to let me sleep and start to take the aches away. > > > > I have been married to the best woman ever for 34 years my high school > > sweetheart that gave us three beautiful children and three > > grandchildren with another on the way. I really need to talk to some > > of you who went through this initially and can help me understand what > > is going on and what to expect. Thank you for listening. > > > > Joe Jefferys > > > > > > > >------------------------------------------------------------------- ----- > > > >No virus found in this incoming message. > >Checked by AVG Free Edition. > >Version: 7.5.488 / Virus Database: 269.15.6/1086 - Release Date: 10/22/2007 7:57 PM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 There are three types of sleep apnea: obstructive, central, and mixed. Obstructive sleep apnea (OSA) is the most common and severe form. This type of apnea occurs when the airway closes and remains obstructed, resulting in blocked airflow. As pressure to breathe increases, the diaphragm and chest muscles work harder. Blood pressure rises and the heart can beat irregularly or even pause for several seconds. Every time breathing stops, the level of oxygen in the blood falls and the heart must pump harder. Every time there is an obstruction, the person must awaken momentarily to resume breathing. Sleep is temporarily interrupted, activating the throat muscles to open the airway. In central sleep apnea, the brain actually fails to signal the muscles to breathe. The airway is clear, but the diaphragm and chest muscles stop working. Eventually the decreased level of oxygen in the blood signals the brain to awaken the sleeper to restart breathing. This type of apnea becomes more common with age and is associated with heart disease or a neurological disorder. Mixed sleep apnea is a combination of central and obstructive sleep apnea. This disorder initially occurs as central sleep apnea, where there is no brain signal to breathe. When the diaphragm suddenly begins moving, the airway is blocked by an obstruction (obstructive sleep apnea). It is not uncommon for a sleep disorder specialist to see all three types of apnea occur in one night. Now there has been much learned over the years about levels of sleep apnea. At one time (when I had a sleep study in 1988 this was the case) generally you had to fail to breathe for ten seconds for it to be considered apnea. That still may apply for the greatest risk of dying during your sleep. However, most people with apnea now tend to just have many interruptions, although they might just be of one breath, within an hour. This destroys the quality of sleep and causes many of the effects described above. My ex-wife was experiencing 86 interruptions per hour. Last time I was tested i had 28 per hour, although I'm ready for another test and suspect its much higher now. CPAP addresses many causes of sleep apnea as opposed to just a shortage of oxygen which can cause apnea in addition to the other harm it causes. During a sleep study they also measure the number of times your oxygen falls. My last oxygen study, my oxygen was below 90% for 25% of the time. CPAP will be set like oxygen at a fixed flow or can be auto-titrating which automatically adjusts to your needs. Most users of CPAP also have warm humidification which further helps and reduces the drying effect. Some patients need extremely high inhalation pressure. CPAP provides the same inhalation and exhalation pressures. Those patients use BIPAP or other Bi-Level Machines to have more inhalation pressure than exhalation. Most who need a moderate level of oxygen while asleep will find that problem resolved by a CPAP. If oxygen is your only issue and not apnea or no other causes, then just oxygen may make the most sense. Then there are those who need a CPAP but need additional oxygen. In those cases, there are adapters to add the oxygen to the system. > > > Hi everyone, > > > > I just found out last week I have ILD. I have not slept well for over > > a year blaming it on stress. Like last night I took Lunesta and still > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test, > > Sleep Test and tonight another for a CPAP. My arms and hands hurt most > > mornings and alot lately all day. I have this ringing in my ears now > > for about six months that last a day or two then go away for a day then > > come back again. It is really driving me nuts. The lung doctor said > > last week to stop smoking and I have. He has me scdeduled for another > > CT scan in four months. That's it. I have read just about everything > > out on the net and most of it has not alot of hope. Is the CPAP going > > to let me sleep and start to take the aches away. > > > > I have been married to the best woman ever for 34 years my high school > > sweetheart that gave us three beautiful children and three > > grandchildren with another on the way. I really need to talk to some > > of you who went through this initially and can help me understand what > > is going on and what to expect. Thank you for listening. > > > > Joe Jefferys > > > > > > > >------------------------------------------------------------------- ----- > > > >No virus found in this incoming message. > >Checked by AVG Free Edition. > >Version: 7.5.488 / Virus Database: 269.15.6/1086 - Release Date: 10/22/2007 7:57 PM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 There are three types of sleep apnea: obstructive, central, and mixed. Obstructive sleep apnea (OSA) is the most common and severe form. This type of apnea occurs when the airway closes and remains obstructed, resulting in blocked airflow. As pressure to breathe increases, the diaphragm and chest muscles work harder. Blood pressure rises and the heart can beat irregularly or even pause for several seconds. Every time breathing stops, the level of oxygen in the blood falls and the heart must pump harder. Every time there is an obstruction, the person must awaken momentarily to resume breathing. Sleep is temporarily interrupted, activating the throat muscles to open the airway. In central sleep apnea, the brain actually fails to signal the muscles to breathe. The airway is clear, but the diaphragm and chest muscles stop working. Eventually the decreased level of oxygen in the blood signals the brain to awaken the sleeper to restart breathing. This type of apnea becomes more common with age and is associated with heart disease or a neurological disorder. Mixed sleep apnea is a combination of central and obstructive sleep apnea. This disorder initially occurs as central sleep apnea, where there is no brain signal to breathe. When the diaphragm suddenly begins moving, the airway is blocked by an obstruction (obstructive sleep apnea). It is not uncommon for a sleep disorder specialist to see all three types of apnea occur in one night. Now there has been much learned over the years about levels of sleep apnea. At one time (when I had a sleep study in 1988 this was the case) generally you had to fail to breathe for ten seconds for it to be considered apnea. That still may apply for the greatest risk of dying during your sleep. However, most people with apnea now tend to just have many interruptions, although they might just be of one breath, within an hour. This destroys the quality of sleep and causes many of the effects described above. My ex-wife was experiencing 86 interruptions per hour. Last time I was tested i had 28 per hour, although I'm ready for another test and suspect its much higher now. CPAP addresses many causes of sleep apnea as opposed to just a shortage of oxygen which can cause apnea in addition to the other harm it causes. During a sleep study they also measure the number of times your oxygen falls. My last oxygen study, my oxygen was below 90% for 25% of the time. CPAP will be set like oxygen at a fixed flow or can be auto-titrating which automatically adjusts to your needs. Most users of CPAP also have warm humidification which further helps and reduces the drying effect. Some patients need extremely high inhalation pressure. CPAP provides the same inhalation and exhalation pressures. Those patients use BIPAP or other Bi-Level Machines to have more inhalation pressure than exhalation. Most who need a moderate level of oxygen while asleep will find that problem resolved by a CPAP. If oxygen is your only issue and not apnea or no other causes, then just oxygen may make the most sense. Then there are those who need a CPAP but need additional oxygen. In those cases, there are adapters to add the oxygen to the system. > > > Hi everyone, > > > > I just found out last week I have ILD. I have not slept well for over > > a year blaming it on stress. Like last night I took Lunesta and still > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test, > > Sleep Test and tonight another for a CPAP. My arms and hands hurt most > > mornings and alot lately all day. I have this ringing in my ears now > > for about six months that last a day or two then go away for a day then > > come back again. It is really driving me nuts. The lung doctor said > > last week to stop smoking and I have. He has me scdeduled for another > > CT scan in four months. That's it. I have read just about everything > > out on the net and most of it has not alot of hope. Is the CPAP going > > to let me sleep and start to take the aches away. > > > > I have been married to the best woman ever for 34 years my high school > > sweetheart that gave us three beautiful children and three > > grandchildren with another on the way. I really need to talk to some > > of you who went through this initially and can help me understand what > > is going on and what to expect. Thank you for listening. > > > > Joe Jefferys > > > > > > > >------------------------------------------------------------------- ----- > > > >No virus found in this incoming message. > >Checked by AVG Free Edition. > >Version: 7.5.488 / Virus Database: 269.15.6/1086 - Release Date: 10/22/2007 7:57 PM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 HI GUYS I NOT SURE HOW TO DO THIS MY MOTHER WAS PART OF THIS SITE AND SHE PASSED AWAY ON AUG 25 SHE HAD MANY FRIENDS HERE AND I CANT FIND THEM ALL HER NAME WAS MARYLIN HILL SHE HAD F.B.O AND CANSOR AND DIABETS IM HER 2 ND OLDEST DAUGHTER CONNIE TY FOR BEING SO KIND TO HERstokh24761 wrote: beautifully said and what a resourceful person you are and I know not only myself but others enjoy hearing your words of support and wisdom and your outlook on life! Thanks for that!Joe,I like you just found out a few weeks ago as well. And as you, I am in the stage of trying to understand what I can and yep even wallow in the deepest darkest places we don't want to be in. Yet by the support of this group, my friends and the grace of god I am pulling myself out of that hole. I can't say my family as they don't really fully understand the disease and I think are in denial about what it is I have. With that said I just want to re-iterate everything as said above as he is so very correct in his statements. Also I use Ambien CR too and it works very well for me and allows me to function the next day as well without the drag time that a lot of them have.I wont say welcome in the normal sense under these conditions I am glad that you are here Joe and you will find this is one of the greatest groups of people and one of the best resources for you!Sandie Ps. I quit smoking over 4 months ago way before I found out I had this and I and my husband are still smoke free so I have every bit of faith in you that you can do this! > >> > Hi everyone,> > > > I just found out last week I have ILD. I have not slept well for > over > > a year blaming it on stress. Like last night I took Lunesta and > still > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test, > > Sleep Test and tonight another for a CPAP. My arms and hands hurt > most > > mornings and alot lately all day. I have this ringing in my ears > now > > for about six months that last a day or two then go away for a day > then > > come back again. It is really driving me nuts. The lung doctor > said > > last week to stop smoking and I have. He has me scdeduled for > another > > CT scan in four months. That's it. I have read just about > everything > > out on the net and most of it has not alot of hope. Is the CPAP > going > > to let me sleep and start to take the aches away. > > > > I have been married to the best woman ever for 34 years my high > school > > sweetheart that gave us three beautiful children and three > > grandchildren with another on the way. I really need to talk to > some > > of you who went through this initially and can help me understand > what > > is going on and what to expect. Thank you for listening.> > > > Joe Jefferys> >> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 Connie, I just sent you a private e-mail. Our sympathies to your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > >> > > Hi everyone,> > > > > > I just found out last week I have ILD. I have not slept well for > > over > > > a year blaming it on stress. Like last night I took Lunesta and > > still > > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry > Test, > > > Sleep Test and tonight another for a CPAP. My arms and hands > hurt > > most > > > mornings and alot lately all day. I have this ringing in my ears > > now > > > for about six months that last a day or two then go away for a > day > > then > > > come back again. It is really driving me nuts. The lung doctor > > said > > > last week to stop smoking and I have. He has me scdeduled for > > another > > > CT scan in four months. That's it. I have read just about > > everything > > > out on the net and most of it has not alot of hope. Is the CPAP > > going > > > to let me sleep and start to take the aches away. > > > > > > I have been married to the best woman ever for 34 years my high > > school > > > sweetheart that gave us three beautiful children and three > > > grandchildren with another on the way. I really need to talk to > > some > > > of you who went through this initially and can help me understand > > what > > > is going on and what to expect. Thank you for listening.> > > > > > Joe Jefferys> > >> >> > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 Connie, I just sent you a private e-mail. Our sympathies to your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > >> > > Hi everyone,> > > > > > I just found out last week I have ILD. I have not slept well for > > over > > > a year blaming it on stress. Like last night I took Lunesta and > > still > > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry > Test, > > > Sleep Test and tonight another for a CPAP. My arms and hands > hurt > > most > > > mornings and alot lately all day. I have this ringing in my ears > > now > > > for about six months that last a day or two then go away for a > day > > then > > > come back again. It is really driving me nuts. The lung doctor > > said > > > last week to stop smoking and I have. He has me scdeduled for > > another > > > CT scan in four months. That's it. I have read just about > > everything > > > out on the net and most of it has not alot of hope. Is the CPAP > > going > > > to let me sleep and start to take the aches away. > > > > > > I have been married to the best woman ever for 34 years my high > > school > > > sweetheart that gave us three beautiful children and three > > > grandchildren with another on the way. I really need to talk to > > some > > > of you who went through this initially and can help me understand > > what > > > is going on and what to expect. Thank you for listening.> > > > > > Joe Jefferys> > >> >> > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
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