Re: ILD

[Guest guest]

Joe,

Welcome to our board. We are all struggling with Interstitial Lung Disease in one form or another. Did the doctors tell you which type that you have? Have you had biopsy yet?

The ringing and arm/hand pain is not something I have dealt with, but someone here probably has. Many here are on CPAP. Watch for replies.

I hope we can help you with the initial shock of this diagnosis and help answer further questions. Then, you can help us by sharing information. I have been amazed at the information I have found here. I've also found wonderful people.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> Hi everyone,> > I just found out last week I have ILD. I have not slept well for over > a year blaming it on stress. Like last night I took Lunesta and still > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test, > Sleep Test and tonight another for a CPAP. My arms and hands hurt most > mornings and alot lately all day. I have this ringing in my ears now > for about six months that last a day or two then go away for a day then > come back again. It is really driving me nuts. The lung doctor said > last week to stop smoking and I have. He has me scdeduled for another > CT scan in four months. That's it. I have read just about everything > out on the net and most of it has not alot of hope. Is the CPAP going > to let me sleep and start to take the aches away. > > I have been married to the best woman ever for 34 years my high school > sweetheart that gave us three beautiful children and three > grandchildren with another on the way. I really need to talk to some > of you who went through this initially and can help me understand what > is going on and what to expect. Thank you for listening.> > Joe Jefferys>

[Guest guest]

Joe,

Welcome to our board. We are all struggling with Interstitial Lung Disease in one form or another. Did the doctors tell you which type that you have? Have you had biopsy yet?

The ringing and arm/hand pain is not something I have dealt with, but someone here probably has. Many here are on CPAP. Watch for replies.

I hope we can help you with the initial shock of this diagnosis and help answer further questions. Then, you can help us by sharing information. I have been amazed at the information I have found here. I've also found wonderful people.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> Hi everyone,> > I just found out last week I have ILD. I have not slept well for over > a year blaming it on stress. Like last night I took Lunesta and still > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test, > Sleep Test and tonight another for a CPAP. My arms and hands hurt most > mornings and alot lately all day. I have this ringing in my ears now > for about six months that last a day or two then go away for a day then > come back again. It is really driving me nuts. The lung doctor said > last week to stop smoking and I have. He has me scdeduled for another > CT scan in four months. That's it. I have read just about everything > out on the net and most of it has not alot of hope. Is the CPAP going > to let me sleep and start to take the aches away. > > I have been married to the best woman ever for 34 years my high school > sweetheart that gave us three beautiful children and three > grandchildren with another on the way. I really need to talk to some > of you who went through this initially and can help me understand what > is going on and what to expect. Thank you for listening.> > Joe Jefferys>

[Guest guest]

First, as to the CPAP. If your sleep test showed substantial

interruptions either through sleep apnea or paraapnea, then the CPAP

will definitely help. My ex wife had an average of 86 interruptions

per hour and it changed her sleep completely. As to many of the other

symptoms it may well help them. The impact of poor sleep on our

bodies is wider and more pervasive than most suspect.

ILD includes over 200 different forms of lung disease. You are

correct that the outlook for many of them is not good. However, you

still have some work to do so yours is diagnosed specifically.

Obviously, stopping smoking was the first thing to do and an absolute

imperative that you stay 100% quit. Smoking may or may not have had

anything to do with where you are. I've never smoked in my life. Most

of us have varieties of ILD's without known causes. With most ILD's

you will work hard to learn to enjoy life as much as possible as

opposed to worrying about the inevitability of death. Now, again,

lets not jump to too many conclusions before knowing which specific

disease.

I'm going to editorialize a second from the experiences of myself and

many friends and that is, against Lunesta. I don't know what others

you have tried, but I would not recommend Lunesta for someone already

with respiratory problems. In fact, i would have any medications I'm

on reevaluated based on the new information. What dosage are you on?

Is your problem falling to sleep or staying asleep or both? If its

staying asleep you may not require meds once on CPAP. If you do there

are many I consider less problematic than Lunesta. It suddenly became

the medication of choice. Of course all the advertising and the

constant barrage of doctors with calls and meals from ex-cheerleaders

would have nothing to do with that. The only one pushed heavily right

now that I find significantly worse is Zyprexa which has many times

more side effects. I personally take Ambien CR but for others many

even milder medications are effective. Again, the CPAP may eliminate

the need.

As to the recommendation of another CT in four months, I am too

impatient to wait that period of time myself. What is the extent of

your shortness of breath? In a six minute walk or under exertion what

do your oxygen levels drop to? Who made the diagnosis of ILD and is

handling it from here? A pulmonologist? If not, get to one NOW.

It sounds like you're in the early stages of ILD. If you, working

with the pulmonologist, do decide to try more to pinpoint the

specific disease, thats good news because your lungs are strong

enough to easily deal with testing such as a VATS (Video Assisted

Thoroscopic Surgery-A laparoscopically performed lung biopsy).

I'm not going to refer to best case and worst case as we're a forum

for truth but also positive outlook. Best case you'll find out you

have a treatable form. The treatment may be rough but may be

effective depending on the specific disease.

Second best case, you find out it isn't treatable except ultimately

through a possible lung transplant. Then you learn to make the most

of things, to live life to its fullest through each stage. You value

life more than you ever have. You struggle to breathe but refuse to

stop living. After all, everyone has a terminal illness-Life. We're

no different than others in that respect. We just know ours is likely

to be shorter than some. We know we'll have increasing difficulty

breathing and need more oxygen as time goes on.

So, as to your first problem, sleep, they wouldn't be bringing you

back for a sleep study to fit a CPAP if there wasn't clear indication

it would help. Consider that problem solved easily. You will love and

hate the CPAP. Every night you'll hate it as you look to put it on

and you'll love what it does for you. Your next trip, you'll say " oh

I can get by without it for a couple of nights " and leave it at home

even though its small and portable. You'll never do that again after

realizing how much you miss it.

As to your ILD, you must be proactive in managing your medical

treatment. This includes pushing for quicker follow up and steps to

make the diagnosis more specific. You'll need this proactive attitude

in the future. You will be the one to manage your life. You'll be the

one to find out how to make the most of it. Read the writings of some

of the remarkable people on this forum, who are far more advanced

than you or I. That will tell you life doesn't end with a bad

diagnosis, it ends when you let it. Prioritize those things you've

always wanted to do and stop putting them off like we all do. Before

any diagnosis you knew you were ultimately going to die. You still

know that. For many, as strange as it sounds, ILD becomes an impetus

for living more completely, not putting things off assuming you'll

get to them in a few years. For you, savoring every possible moment

with your grandchildren. Not just seeing them when it happens, but

making sure you do those things you dream of with them as soon as

possible.

Now, a brief story about life and living our dreams. My ex wife had

an uncle who was in the best of health for a man in his 70's. He had

some horses he kept an eye on. He was active. It was always his dream

to see Australia. His wife surprised him with the dream trip for

their 50th wedding anniversary. They took an incredible 3 week trip

and experienced the most wonderful time, not just in what they saw,

but the people they met and the time away with just the two of them.

This was in October. We were at his house on Christmas Day and he was

happy and doing great. The day after he got up early to go with a

neighbor to check on her horses. They rode the hour drive or so and

walked around looking. They walked back to the truck. While she was

doing something, he fell to the ground, dead from a heart attack. No

one would have suspected that year was his last chance for the trip.

If you have a terminal form of ILD, which you shouldn't yet assume,

you'll find yourself filling your life and not waiting for next year.

You may find yourself living more in 5 or 10 years than otherwise you

might have in 20 or 30. For so many it has served as that wake up

call.

I'm still waiting my final diagnosis, but while I've been dealing

with medical facts and likely negative findings, I've also been

thinking of those things I most want to do. One can either sit around

dying or live. I know, I've been dead before, not literally, but

working much too much and failing to enjoy life. Whatever time i do

have left may be the best I've ever had. I bought tickets the other

day to a February concert. Does anyone know they will be alive in

February? Of course not, but some with illnesses start to think the

negative. The day I die, I intend to have a long list of things

planned that have to then be cancelled. Yes, I've taken all the

practical steps with all the paperwork signed, witnessed, notarized

for all possibilities but that is filed away in the safe deposit box

and out of my mind. What is in my mind is for the doctors to hurry up

and finalize the diagnosis and then to decide where I want to travel

that I've never been. I'm leaning toward a train trip from Dallas to

Vancouver, British Columbia. I can assure you that if I wasn't

diagnosed with ILD (mine considered most likely to be IPF), I

wouldn't be planning any trips.

>

> Hi everyone,

>

> I just found out last week I have ILD. I have not slept well for

over

> a year blaming it on stress. Like last night I took Lunesta and

still

> only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test,

> Sleep Test and tonight another for a CPAP. My arms and hands hurt

most

> mornings and alot lately all day. I have this ringing in my ears

now

> for about six months that last a day or two then go away for a day

then

> come back again. It is really driving me nuts. The lung doctor

said

> last week to stop smoking and I have. He has me scdeduled for

another

> CT scan in four months. That's it. I have read just about

everything

> out on the net and most of it has not alot of hope. Is the CPAP

going

> to let me sleep and start to take the aches away.

>

> I have been married to the best woman ever for 34 years my high

school

> sweetheart that gave us three beautiful children and three

> grandchildren with another on the way. I really need to talk to

some

> of you who went through this initially and can help me understand

what

> is going on and what to expect. Thank you for listening.

>

> Joe Jefferys

>

[Guest guest]

First, as to the CPAP. If your sleep test showed substantial

interruptions either through sleep apnea or paraapnea, then the CPAP

will definitely help. My ex wife had an average of 86 interruptions

per hour and it changed her sleep completely. As to many of the other

symptoms it may well help them. The impact of poor sleep on our

bodies is wider and more pervasive than most suspect.

ILD includes over 200 different forms of lung disease. You are

correct that the outlook for many of them is not good. However, you

still have some work to do so yours is diagnosed specifically.

Obviously, stopping smoking was the first thing to do and an absolute

imperative that you stay 100% quit. Smoking may or may not have had

anything to do with where you are. I've never smoked in my life. Most

of us have varieties of ILD's without known causes. With most ILD's

you will work hard to learn to enjoy life as much as possible as

opposed to worrying about the inevitability of death. Now, again,

lets not jump to too many conclusions before knowing which specific

disease.

I'm going to editorialize a second from the experiences of myself and

many friends and that is, against Lunesta. I don't know what others

you have tried, but I would not recommend Lunesta for someone already

with respiratory problems. In fact, i would have any medications I'm

on reevaluated based on the new information. What dosage are you on?

Is your problem falling to sleep or staying asleep or both? If its

staying asleep you may not require meds once on CPAP. If you do there

are many I consider less problematic than Lunesta. It suddenly became

the medication of choice. Of course all the advertising and the

constant barrage of doctors with calls and meals from ex-cheerleaders

would have nothing to do with that. The only one pushed heavily right

now that I find significantly worse is Zyprexa which has many times

more side effects. I personally take Ambien CR but for others many

even milder medications are effective. Again, the CPAP may eliminate

the need.

As to the recommendation of another CT in four months, I am too

impatient to wait that period of time myself. What is the extent of

your shortness of breath? In a six minute walk or under exertion what

do your oxygen levels drop to? Who made the diagnosis of ILD and is

handling it from here? A pulmonologist? If not, get to one NOW.

It sounds like you're in the early stages of ILD. If you, working

with the pulmonologist, do decide to try more to pinpoint the

specific disease, thats good news because your lungs are strong

enough to easily deal with testing such as a VATS (Video Assisted

Thoroscopic Surgery-A laparoscopically performed lung biopsy).

I'm not going to refer to best case and worst case as we're a forum

for truth but also positive outlook. Best case you'll find out you

have a treatable form. The treatment may be rough but may be

effective depending on the specific disease.

Second best case, you find out it isn't treatable except ultimately

through a possible lung transplant. Then you learn to make the most

of things, to live life to its fullest through each stage. You value

life more than you ever have. You struggle to breathe but refuse to

stop living. After all, everyone has a terminal illness-Life. We're

no different than others in that respect. We just know ours is likely

to be shorter than some. We know we'll have increasing difficulty

breathing and need more oxygen as time goes on.

So, as to your first problem, sleep, they wouldn't be bringing you

back for a sleep study to fit a CPAP if there wasn't clear indication

it would help. Consider that problem solved easily. You will love and

hate the CPAP. Every night you'll hate it as you look to put it on

and you'll love what it does for you. Your next trip, you'll say " oh

I can get by without it for a couple of nights " and leave it at home

even though its small and portable. You'll never do that again after

realizing how much you miss it.

As to your ILD, you must be proactive in managing your medical

treatment. This includes pushing for quicker follow up and steps to

make the diagnosis more specific. You'll need this proactive attitude

in the future. You will be the one to manage your life. You'll be the

one to find out how to make the most of it. Read the writings of some

of the remarkable people on this forum, who are far more advanced

than you or I. That will tell you life doesn't end with a bad

diagnosis, it ends when you let it. Prioritize those things you've

always wanted to do and stop putting them off like we all do. Before

any diagnosis you knew you were ultimately going to die. You still

know that. For many, as strange as it sounds, ILD becomes an impetus

for living more completely, not putting things off assuming you'll

get to them in a few years. For you, savoring every possible moment

with your grandchildren. Not just seeing them when it happens, but

making sure you do those things you dream of with them as soon as

possible.

Now, a brief story about life and living our dreams. My ex wife had

an uncle who was in the best of health for a man in his 70's. He had

some horses he kept an eye on. He was active. It was always his dream

to see Australia. His wife surprised him with the dream trip for

their 50th wedding anniversary. They took an incredible 3 week trip

and experienced the most wonderful time, not just in what they saw,

but the people they met and the time away with just the two of them.

This was in October. We were at his house on Christmas Day and he was

happy and doing great. The day after he got up early to go with a

neighbor to check on her horses. They rode the hour drive or so and

walked around looking. They walked back to the truck. While she was

doing something, he fell to the ground, dead from a heart attack. No

one would have suspected that year was his last chance for the trip.

If you have a terminal form of ILD, which you shouldn't yet assume,

you'll find yourself filling your life and not waiting for next year.

You may find yourself living more in 5 or 10 years than otherwise you

might have in 20 or 30. For so many it has served as that wake up

call.

I'm still waiting my final diagnosis, but while I've been dealing

with medical facts and likely negative findings, I've also been

thinking of those things I most want to do. One can either sit around

dying or live. I know, I've been dead before, not literally, but

working much too much and failing to enjoy life. Whatever time i do

have left may be the best I've ever had. I bought tickets the other

day to a February concert. Does anyone know they will be alive in

February? Of course not, but some with illnesses start to think the

negative. The day I die, I intend to have a long list of things

planned that have to then be cancelled. Yes, I've taken all the

practical steps with all the paperwork signed, witnessed, notarized

for all possibilities but that is filed away in the safe deposit box

and out of my mind. What is in my mind is for the doctors to hurry up

and finalize the diagnosis and then to decide where I want to travel

that I've never been. I'm leaning toward a train trip from Dallas to

Vancouver, British Columbia. I can assure you that if I wasn't

diagnosed with ILD (mine considered most likely to be IPF), I

wouldn't be planning any trips.

>

> Hi everyone,

>

> I just found out last week I have ILD. I have not slept well for

over

> a year blaming it on stress. Like last night I took Lunesta and

still

> only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test,

> Sleep Test and tonight another for a CPAP. My arms and hands hurt

most

> mornings and alot lately all day. I have this ringing in my ears

now

> for about six months that last a day or two then go away for a day

then

> come back again. It is really driving me nuts. The lung doctor

said

> last week to stop smoking and I have. He has me scdeduled for

another

> CT scan in four months. That's it. I have read just about

everything

> out on the net and most of it has not alot of hope. Is the CPAP

going

> to let me sleep and start to take the aches away.

>

> I have been married to the best woman ever for 34 years my high

school

> sweetheart that gave us three beautiful children and three

> grandchildren with another on the way. I really need to talk to

some

> of you who went through this initially and can help me understand

what

> is going on and what to expect. Thank you for listening.

>

> Joe Jefferys

>

[Guest guest]

First, as to the CPAP. If your sleep test showed substantial

interruptions either through sleep apnea or paraapnea, then the CPAP

will definitely help. My ex wife had an average of 86 interruptions

per hour and it changed her sleep completely. As to many of the other

symptoms it may well help them. The impact of poor sleep on our

bodies is wider and more pervasive than most suspect.

ILD includes over 200 different forms of lung disease. You are

correct that the outlook for many of them is not good. However, you

still have some work to do so yours is diagnosed specifically.

Obviously, stopping smoking was the first thing to do and an absolute

imperative that you stay 100% quit. Smoking may or may not have had

anything to do with where you are. I've never smoked in my life. Most

of us have varieties of ILD's without known causes. With most ILD's

you will work hard to learn to enjoy life as much as possible as

opposed to worrying about the inevitability of death. Now, again,

lets not jump to too many conclusions before knowing which specific

disease.

I'm going to editorialize a second from the experiences of myself and

many friends and that is, against Lunesta. I don't know what others

you have tried, but I would not recommend Lunesta for someone already

with respiratory problems. In fact, i would have any medications I'm

on reevaluated based on the new information. What dosage are you on?

Is your problem falling to sleep or staying asleep or both? If its

staying asleep you may not require meds once on CPAP. If you do there

are many I consider less problematic than Lunesta. It suddenly became

the medication of choice. Of course all the advertising and the

constant barrage of doctors with calls and meals from ex-cheerleaders

would have nothing to do with that. The only one pushed heavily right

now that I find significantly worse is Zyprexa which has many times

more side effects. I personally take Ambien CR but for others many

even milder medications are effective. Again, the CPAP may eliminate

the need.

As to the recommendation of another CT in four months, I am too

impatient to wait that period of time myself. What is the extent of

your shortness of breath? In a six minute walk or under exertion what

do your oxygen levels drop to? Who made the diagnosis of ILD and is

handling it from here? A pulmonologist? If not, get to one NOW.

It sounds like you're in the early stages of ILD. If you, working

with the pulmonologist, do decide to try more to pinpoint the

specific disease, thats good news because your lungs are strong

enough to easily deal with testing such as a VATS (Video Assisted

Thoroscopic Surgery-A laparoscopically performed lung biopsy).

I'm not going to refer to best case and worst case as we're a forum

for truth but also positive outlook. Best case you'll find out you

have a treatable form. The treatment may be rough but may be

effective depending on the specific disease.

Second best case, you find out it isn't treatable except ultimately

through a possible lung transplant. Then you learn to make the most

of things, to live life to its fullest through each stage. You value

life more than you ever have. You struggle to breathe but refuse to

stop living. After all, everyone has a terminal illness-Life. We're

no different than others in that respect. We just know ours is likely

to be shorter than some. We know we'll have increasing difficulty

breathing and need more oxygen as time goes on.

So, as to your first problem, sleep, they wouldn't be bringing you

back for a sleep study to fit a CPAP if there wasn't clear indication

it would help. Consider that problem solved easily. You will love and

hate the CPAP. Every night you'll hate it as you look to put it on

and you'll love what it does for you. Your next trip, you'll say " oh

I can get by without it for a couple of nights " and leave it at home

even though its small and portable. You'll never do that again after

realizing how much you miss it.

As to your ILD, you must be proactive in managing your medical

treatment. This includes pushing for quicker follow up and steps to

make the diagnosis more specific. You'll need this proactive attitude

in the future. You will be the one to manage your life. You'll be the

one to find out how to make the most of it. Read the writings of some

of the remarkable people on this forum, who are far more advanced

than you or I. That will tell you life doesn't end with a bad

diagnosis, it ends when you let it. Prioritize those things you've

always wanted to do and stop putting them off like we all do. Before

any diagnosis you knew you were ultimately going to die. You still

know that. For many, as strange as it sounds, ILD becomes an impetus

for living more completely, not putting things off assuming you'll

get to them in a few years. For you, savoring every possible moment

with your grandchildren. Not just seeing them when it happens, but

making sure you do those things you dream of with them as soon as

possible.

Now, a brief story about life and living our dreams. My ex wife had

an uncle who was in the best of health for a man in his 70's. He had

some horses he kept an eye on. He was active. It was always his dream

to see Australia. His wife surprised him with the dream trip for

their 50th wedding anniversary. They took an incredible 3 week trip

and experienced the most wonderful time, not just in what they saw,

but the people they met and the time away with just the two of them.

This was in October. We were at his house on Christmas Day and he was

happy and doing great. The day after he got up early to go with a

neighbor to check on her horses. They rode the hour drive or so and

walked around looking. They walked back to the truck. While she was

doing something, he fell to the ground, dead from a heart attack. No

one would have suspected that year was his last chance for the trip.

If you have a terminal form of ILD, which you shouldn't yet assume,

you'll find yourself filling your life and not waiting for next year.

You may find yourself living more in 5 or 10 years than otherwise you

might have in 20 or 30. For so many it has served as that wake up

call.

I'm still waiting my final diagnosis, but while I've been dealing

with medical facts and likely negative findings, I've also been

thinking of those things I most want to do. One can either sit around

dying or live. I know, I've been dead before, not literally, but

working much too much and failing to enjoy life. Whatever time i do

have left may be the best I've ever had. I bought tickets the other

day to a February concert. Does anyone know they will be alive in

February? Of course not, but some with illnesses start to think the

negative. The day I die, I intend to have a long list of things

planned that have to then be cancelled. Yes, I've taken all the

practical steps with all the paperwork signed, witnessed, notarized

for all possibilities but that is filed away in the safe deposit box

and out of my mind. What is in my mind is for the doctors to hurry up

and finalize the diagnosis and then to decide where I want to travel

that I've never been. I'm leaning toward a train trip from Dallas to

Vancouver, British Columbia. I can assure you that if I wasn't

diagnosed with ILD (mine considered most likely to be IPF), I

wouldn't be planning any trips.

>

> Hi everyone,

>

> I just found out last week I have ILD. I have not slept well for

over

> a year blaming it on stress. Like last night I took Lunesta and

still

> only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test,

> Sleep Test and tonight another for a CPAP. My arms and hands hurt

most

> mornings and alot lately all day. I have this ringing in my ears

now

> for about six months that last a day or two then go away for a day

then

> come back again. It is really driving me nuts. The lung doctor

said

> last week to stop smoking and I have. He has me scdeduled for

another

> CT scan in four months. That's it. I have read just about

everything

> out on the net and most of it has not alot of hope. Is the CPAP

going

> to let me sleep and start to take the aches away.

>

> I have been married to the best woman ever for 34 years my high

school

> sweetheart that gave us three beautiful children and three

> grandchildren with another on the way. I really need to talk to

some

> of you who went through this initially and can help me understand

what

> is going on and what to expect. Thank you for listening.

>

> Joe Jefferys

>

[Guest guest]

beautifully said and what a resourceful person you are and I

know not only myself but others enjoy hearing your words of support

and wisdom and your outlook on life! Thanks for that!

Joe,

I like you just found out a few weeks ago as well. And as you, I

am in the stage of trying to understand what I can and yep even

wallow in the deepest darkest places we don't want to be in.

Yet by the support of this group, my friends and the grace of god I

am pulling myself out of that hole. I can't say my family as they

don't really fully understand the disease and I think are in denial

about what it is I have. With that said I just want to re-iterate

everything as said above as he is so very correct in his

statements. Also I use Ambien CR too and it works very well for me

and allows me to function the next day as well without the drag time

that a lot of them have.

I wont say welcome in the normal sense under these conditions I am

glad that you are here Joe and you will find this is one of the

greatest groups of people and one of the best resources for you!

Sandie

Ps. I quit smoking over 4 months ago way before I found out I had

this and I and my husband are still smoke free so I have every bit of

faith in you that you can do this!

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

> over

> > a year blaming it on stress. Like last night I took Lunesta and

> still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands

hurt

> most

> > mornings and alot lately all day. I have this ringing in my ears

> now

> > for about six months that last a day or two then go away for a

day

> then

> > come back again. It is really driving me nuts. The lung doctor

> said

> > last week to stop smoking and I have. He has me scdeduled for

> another

> > CT scan in four months. That's it. I have read just about

> everything

> > out on the net and most of it has not alot of hope. Is the CPAP

> going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

> school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

> some

> > of you who went through this initially and can help me understand

> what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

> >

>

[Guest guest]

beautifully said and what a resourceful person you are and I

know not only myself but others enjoy hearing your words of support

and wisdom and your outlook on life! Thanks for that!

Joe,

I like you just found out a few weeks ago as well. And as you, I

am in the stage of trying to understand what I can and yep even

wallow in the deepest darkest places we don't want to be in.

Yet by the support of this group, my friends and the grace of god I

am pulling myself out of that hole. I can't say my family as they

don't really fully understand the disease and I think are in denial

about what it is I have. With that said I just want to re-iterate

everything as said above as he is so very correct in his

statements. Also I use Ambien CR too and it works very well for me

and allows me to function the next day as well without the drag time

that a lot of them have.

I wont say welcome in the normal sense under these conditions I am

glad that you are here Joe and you will find this is one of the

greatest groups of people and one of the best resources for you!

Sandie

Ps. I quit smoking over 4 months ago way before I found out I had

this and I and my husband are still smoke free so I have every bit of

faith in you that you can do this!

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

> over

> > a year blaming it on stress. Like last night I took Lunesta and

> still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands

hurt

> most

> > mornings and alot lately all day. I have this ringing in my ears

> now

> > for about six months that last a day or two then go away for a

day

> then

> > come back again. It is really driving me nuts. The lung doctor

> said

> > last week to stop smoking and I have. He has me scdeduled for

> another

> > CT scan in four months. That's it. I have read just about

> everything

> > out on the net and most of it has not alot of hope. Is the CPAP

> going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

> school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

> some

> > of you who went through this initially and can help me understand

> what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

> >

>

[Guest guest]

beautifully said and what a resourceful person you are and I

know not only myself but others enjoy hearing your words of support

and wisdom and your outlook on life! Thanks for that!

Joe,

I like you just found out a few weeks ago as well. And as you, I

am in the stage of trying to understand what I can and yep even

wallow in the deepest darkest places we don't want to be in.

Yet by the support of this group, my friends and the grace of god I

am pulling myself out of that hole. I can't say my family as they

don't really fully understand the disease and I think are in denial

about what it is I have. With that said I just want to re-iterate

everything as said above as he is so very correct in his

statements. Also I use Ambien CR too and it works very well for me

and allows me to function the next day as well without the drag time

that a lot of them have.

I wont say welcome in the normal sense under these conditions I am

glad that you are here Joe and you will find this is one of the

greatest groups of people and one of the best resources for you!

Sandie

Ps. I quit smoking over 4 months ago way before I found out I had

this and I and my husband are still smoke free so I have every bit of

faith in you that you can do this!

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

> over

> > a year blaming it on stress. Like last night I took Lunesta and

> still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands

hurt

> most

> > mornings and alot lately all day. I have this ringing in my ears

> now

> > for about six months that last a day or two then go away for a

day

> then

> > come back again. It is really driving me nuts. The lung doctor

> said

> > last week to stop smoking and I have. He has me scdeduled for

> another

> > CT scan in four months. That's it. I have read just about

> everything

> > out on the net and most of it has not alot of hope. Is the CPAP

> going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

> school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

> some

> > of you who went through this initially and can help me understand

> what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

> >

>

[Guest guest]

Thank you for the kind words. Sometimes what I write here is as much

for me as for others. If I keep saying it, I keep reminding myself.

Repeating, writing, the best ways to learn.

Not going to launch into a tobacco industry diatribe but just an odd

observation on smoking and human nature. When we find out it might

kill us quickly, its so much easier to stop than knowing 40 years

earlier that it might kill us. If it was only more like allergies. My

worst allergy is oranges. Were I to take one bite, within 20 minutes

I would run a 103 to 104 degree fever and have a sore throat.

Therefore, I've had none in 40 years. Its easy. Isn't that the way

life is.....easy to deal with things that have immediate impact and

yet we all do things out entire lives such as our eating or exercise

habits or leading too stressful lives that are harmful but we just

continue. Bought a treadmill after my diagnosis. For years had talked

about getting into shape. Now, here I am, just home from the VATS,

and using my treadmill four times a day. Within a month after my

VATS, I will most certainly use a treadmill more than in the 58 years

before. In an odd way, I see myself ending up with a terminal illness

and in the best shape of my life.

> > >

> > > Hi everyone,

> > >

> > > I just found out last week I have ILD. I have not slept well

for

> > over

> > > a year blaming it on stress. Like last night I took Lunesta

and

> > still

> > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

> Test,

> > > Sleep Test and tonight another for a CPAP. My arms and hands

> hurt

> > most

> > > mornings and alot lately all day. I have this ringing in my

ears

> > now

> > > for about six months that last a day or two then go away for a

> day

> > then

> > > come back again. It is really driving me nuts. The lung

doctor

> > said

> > > last week to stop smoking and I have. He has me scdeduled for

> > another

> > > CT scan in four months. That's it. I have read just about

> > everything

> > > out on the net and most of it has not alot of hope. Is the

CPAP

> > going

> > > to let me sleep and start to take the aches away.

> > >

> > > I have been married to the best woman ever for 34 years my high

> > school

> > > sweetheart that gave us three beautiful children and three

> > > grandchildren with another on the way. I really need to talk

to

> > some

> > > of you who went through this initially and can help me

understand

> > what

> > > is going on and what to expect. Thank you for listening.

> > >

> > > Joe Jefferys

> > >

> >

>

[Guest guest]

, Isn't that the truth! Although I did quit before I found out

only because I had been sick in the hospital and just said I am not

getting any healthier and not any younger therefore then was as good

as anytime to quit so that's what I did.

The exercise portion I started doing that several years ago because

of my RA, but would get out of whack every now and then. Like

recovering from the hospital or something or because my RA wouldn't

allow me to that day; but I continue to work and try my best to get

exercise. Ha I have a treadmill and don't use it because I like to

walk yet live in the country and don't do it very often because I

think the bears might get me! So not sure what I am going to do I

have 4 large dogs and the baby Huey of the group who needs the

walking has had double hip replacement (yeah I spent that kind of

money on my dog) gets real sore after the 2 mile walk and then he

cant walk for a week! So I don't know what I will do.

Life has a funny way of giving us all these rungs on a ladder to

climb and sometimes we fall down one or several just need to pull

ourselves back up and continue to climb I guess!

Sandie

> > > >

> > > > Hi everyone,

> > > >

> > > > I just found out last week I have ILD. I have not slept well

> for

> > > over

> > > > a year blaming it on stress. Like last night I took Lunesta

> and

> > > still

> > > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

> > Test,

> > > > Sleep Test and tonight another for a CPAP. My arms and hands

> > hurt

> > > most

> > > > mornings and alot lately all day. I have this ringing in my

> ears

> > > now

> > > > for about six months that last a day or two then go away for

a

> > day

> > > then

> > > > come back again. It is really driving me nuts. The lung

> doctor

> > > said

> > > > last week to stop smoking and I have. He has me scdeduled

for

> > > another

> > > > CT scan in four months. That's it. I have read just about

> > > everything

> > > > out on the net and most of it has not alot of hope. Is the

> CPAP

> > > going

> > > > to let me sleep and start to take the aches away.

> > > >

> > > > I have been married to the best woman ever for 34 years my

high

> > > school

> > > > sweetheart that gave us three beautiful children and three

> > > > grandchildren with another on the way. I really need to talk

> to

> > > some

> > > > of you who went through this initially and can help me

> understand

> > > what

> > > > is going on and what to expect. Thank you for listening.

> > > >

> > > > Joe Jefferys

> > > >

> > >

> >

>

[Guest guest]

, Isn't that the truth! Although I did quit before I found out

only because I had been sick in the hospital and just said I am not

getting any healthier and not any younger therefore then was as good

as anytime to quit so that's what I did.

The exercise portion I started doing that several years ago because

of my RA, but would get out of whack every now and then. Like

recovering from the hospital or something or because my RA wouldn't

allow me to that day; but I continue to work and try my best to get

exercise. Ha I have a treadmill and don't use it because I like to

walk yet live in the country and don't do it very often because I

think the bears might get me! So not sure what I am going to do I

have 4 large dogs and the baby Huey of the group who needs the

walking has had double hip replacement (yeah I spent that kind of

money on my dog) gets real sore after the 2 mile walk and then he

cant walk for a week! So I don't know what I will do.

Life has a funny way of giving us all these rungs on a ladder to

climb and sometimes we fall down one or several just need to pull

ourselves back up and continue to climb I guess!

Sandie

> > > >

> > > > Hi everyone,

> > > >

> > > > I just found out last week I have ILD. I have not slept well

> for

> > > over

> > > > a year blaming it on stress. Like last night I took Lunesta

> and

> > > still

> > > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

> > Test,

> > > > Sleep Test and tonight another for a CPAP. My arms and hands

> > hurt

> > > most

> > > > mornings and alot lately all day. I have this ringing in my

> ears

> > > now

> > > > for about six months that last a day or two then go away for

a

> > day

> > > then

> > > > come back again. It is really driving me nuts. The lung

> doctor

> > > said

> > > > last week to stop smoking and I have. He has me scdeduled

for

> > > another

> > > > CT scan in four months. That's it. I have read just about

> > > everything

> > > > out on the net and most of it has not alot of hope. Is the

> CPAP

> > > going

> > > > to let me sleep and start to take the aches away.

> > > >

> > > > I have been married to the best woman ever for 34 years my

high

> > > school

> > > > sweetheart that gave us three beautiful children and three

> > > > grandchildren with another on the way. I really need to talk

> to

> > > some

> > > > of you who went through this initially and can help me

> understand

> > > what

> > > > is going on and what to expect. Thank you for listening.

> > > >

> > > > Joe Jefferys

> > > >

> > >

> >

>

[Guest guest]

, Isn't that the truth! Although I did quit before I found out

only because I had been sick in the hospital and just said I am not

getting any healthier and not any younger therefore then was as good

as anytime to quit so that's what I did.

The exercise portion I started doing that several years ago because

of my RA, but would get out of whack every now and then. Like

recovering from the hospital or something or because my RA wouldn't

allow me to that day; but I continue to work and try my best to get

exercise. Ha I have a treadmill and don't use it because I like to

walk yet live in the country and don't do it very often because I

think the bears might get me! So not sure what I am going to do I

have 4 large dogs and the baby Huey of the group who needs the

walking has had double hip replacement (yeah I spent that kind of

money on my dog) gets real sore after the 2 mile walk and then he

cant walk for a week! So I don't know what I will do.

Life has a funny way of giving us all these rungs on a ladder to

climb and sometimes we fall down one or several just need to pull

ourselves back up and continue to climb I guess!

Sandie

> > > >

> > > > Hi everyone,

> > > >

> > > > I just found out last week I have ILD. I have not slept well

> for

> > > over

> > > > a year blaming it on stress. Like last night I took Lunesta

> and

> > > still

> > > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

> > Test,

> > > > Sleep Test and tonight another for a CPAP. My arms and hands

> > hurt

> > > most

> > > > mornings and alot lately all day. I have this ringing in my

> ears

> > > now

> > > > for about six months that last a day or two then go away for

a

> > day

> > > then

> > > > come back again. It is really driving me nuts. The lung

> doctor

> > > said

> > > > last week to stop smoking and I have. He has me scdeduled

for

> > > another

> > > > CT scan in four months. That's it. I have read just about

> > > everything

> > > > out on the net and most of it has not alot of hope. Is the

> CPAP

> > > going

> > > > to let me sleep and start to take the aches away.

> > > >

> > > > I have been married to the best woman ever for 34 years my

high

> > > school

> > > > sweetheart that gave us three beautiful children and three

> > > > grandchildren with another on the way. I really need to talk

> to

> > > some

> > > > of you who went through this initially and can help me

> understand

> > > what

> > > > is going on and what to expect. Thank you for listening.

> > > >

> > > > Joe Jefferys

> > > >

> > >

> >

>

[Guest guest]

Welcome Joe, from Sher...

I'm sorry you are feeling pretty crummy right now. I was Dx (diagnosed) with IPF 3-06 but I still don't know what strain of ILD I have because I'm chicken to have a lung-bio or a VATS, which is similar.

I use a CPAP every night and I sleep all through the night except for potty-calls and then go right back to sleep. After I adjusted to mine, I love it. Carry it with me wherever I go. I snored like a moose and do not snore now. If you need the CPAP there are different kinds of masks. Some cover nose and mouth. I have a small one that covers only my nose. I couldn't tolerate the other one. Felt like I was being smothered. My insurance paid for the CPAP.

Do you have arthritis in your hands or do you not know why they hurt? I have arthritis and fibromyalgia so I deal w/ pain 24-7. However, a good nights sleep helps with anything.

Do you have a good pulmonologist and PPP? The ringing in the ears can be easily checked out.

Glad to have you with us. There are quite a few men here.

God bless.

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Welcome Joe, from Sher...

I'm sorry you are feeling pretty crummy right now. I was Dx (diagnosed) with IPF 3-06 but I still don't know what strain of ILD I have because I'm chicken to have a lung-bio or a VATS, which is similar.

I use a CPAP every night and I sleep all through the night except for potty-calls and then go right back to sleep. After I adjusted to mine, I love it. Carry it with me wherever I go. I snored like a moose and do not snore now. If you need the CPAP there are different kinds of masks. Some cover nose and mouth. I have a small one that covers only my nose. I couldn't tolerate the other one. Felt like I was being smothered. My insurance paid for the CPAP.

Do you have arthritis in your hands or do you not know why they hurt? I have arthritis and fibromyalgia so I deal w/ pain 24-7. However, a good nights sleep helps with anything.

Do you have a good pulmonologist and PPP? The ringing in the ears can be easily checked out.

Glad to have you with us. There are quite a few men here.

God bless.

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Welcome Joe, from Sher...

I'm sorry you are feeling pretty crummy right now. I was Dx (diagnosed) with IPF 3-06 but I still don't know what strain of ILD I have because I'm chicken to have a lung-bio or a VATS, which is similar.

I use a CPAP every night and I sleep all through the night except for potty-calls and then go right back to sleep. After I adjusted to mine, I love it. Carry it with me wherever I go. I snored like a moose and do not snore now. If you need the CPAP there are different kinds of masks. Some cover nose and mouth. I have a small one that covers only my nose. I couldn't tolerate the other one. Felt like I was being smothered. My insurance paid for the CPAP.

Do you have arthritis in your hands or do you not know why they hurt? I have arthritis and fibromyalgia so I deal w/ pain 24-7. However, a good nights sleep helps with anything.

Do you have a good pulmonologist and PPP? The ringing in the ears can be easily checked out.

Glad to have you with us. There are quite a few men here.

God bless.

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

>

> Welcome Joe, from Sher...

> I'm sorry you are feeling pretty crummy right now. I was Dx

(diagnosed) with IPF 3-06 but I still don't know what strain of ILD I

have because I'm chicken to have a lung-bio or a VATS, which is

similar.

> I use a CPAP every night and I sleep all through the night except

for potty-calls and then go right back to sleep. After I adjusted to

mine, I love it. Carry it with me wherever I go. I snored like a

moose and do not snore now. If you need the CPAP there are different

kinds of masks. Some cover nose and mouth. I have a small one that

covers only my nose. I couldn't tolerate the other one. Felt like I

was being smothered. My insurance paid for the CPAP.

> Do you have arthritis in your hands or do you not know why they

hurt? I have arthritis and fibromyalgia so I deal w/ pain 24-7.

However, a good nights sleep helps with anything.

> Do you have a good pulmonologist and PPP? The ringing in the ears

can be easily checked out.

> Glad to have you with us. There are quite a few men here.

> God bless.

>

> Sher; ipf 3-06; OR.

> Don't fret about tomorrow, God is already there!

>

Sher,

Thank you so much for the info. Everyone out here is good for the

mind and soul. Again Thank you!

Joe J.

[Guest guest]

>

> Welcome Joe, from Sher...

> I'm sorry you are feeling pretty crummy right now. I was Dx

(diagnosed) with IPF 3-06 but I still don't know what strain of ILD I

have because I'm chicken to have a lung-bio or a VATS, which is

similar.

> I use a CPAP every night and I sleep all through the night except

for potty-calls and then go right back to sleep. After I adjusted to

mine, I love it. Carry it with me wherever I go. I snored like a

moose and do not snore now. If you need the CPAP there are different

kinds of masks. Some cover nose and mouth. I have a small one that

covers only my nose. I couldn't tolerate the other one. Felt like I

was being smothered. My insurance paid for the CPAP.

> Do you have arthritis in your hands or do you not know why they

hurt? I have arthritis and fibromyalgia so I deal w/ pain 24-7.

However, a good nights sleep helps with anything.

> Do you have a good pulmonologist and PPP? The ringing in the ears

can be easily checked out.

> Glad to have you with us. There are quite a few men here.

> God bless.

>

> Sher; ipf 3-06; OR.

> Don't fret about tomorrow, God is already there!

>

Sher,

Thank you so much for the info. Everyone out here is good for the

mind and soul. Again Thank you!

Joe J.

[Guest guest]

Joyce,

Thank you for writing. I value all of you and your thoughts.

Joe J.

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

over

> > a year blaming it on stress. Like last night I took Lunesta and

still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands hurt

most

> > mornings and alot lately all day. I have this ringing in my ears

now

> > for about six months that last a day or two then go away for a day

> then

> > come back again. It is really driving me nuts. The lung doctor

said

> > last week to stop smoking and I have. He has me scdeduled for

another

> > CT scan in four months. That's it. I have read just about

everything

> > out on the net and most of it has not alot of hope. Is the CPAP

going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

some

> > of you who went through this initially and can help me understand

what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

> >

>

[Guest guest]

Joyce,

Thank you for writing. I value all of you and your thoughts.

Joe J.

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

over

> > a year blaming it on stress. Like last night I took Lunesta and

still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands hurt

most

> > mornings and alot lately all day. I have this ringing in my ears

now

> > for about six months that last a day or two then go away for a day

> then

> > come back again. It is really driving me nuts. The lung doctor

said

> > last week to stop smoking and I have. He has me scdeduled for

another

> > CT scan in four months. That's it. I have read just about

everything

> > out on the net and most of it has not alot of hope. Is the CPAP

going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

some

> > of you who went through this initially and can help me understand

what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

> >

>

[Guest guest]

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

over

> > a year blaming it on stress. Like last night I took Lunesta and

still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands hurt

most

> > mornings and alot lately all day. I have this ringing in my ears

now

> > for about six months that last a day or two then go away for a day

> then

> > come back again. It is really driving me nuts. The lung doctor

said

> > last week to stop smoking and I have. He has me scdeduled for

another

> > CT scan in four months. That's it. I have read just about

everything

> > out on the net and most of it has not alot of hope. Is the CPAP

going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

some

> > of you who went through this initially and can help me understand

what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

Joyce,

Thank you so much for writing. I am learning.

Joe J.

> >

>

[Guest guest]

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

over

> > a year blaming it on stress. Like last night I took Lunesta and

still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands hurt

most

> > mornings and alot lately all day. I have this ringing in my ears

now

> > for about six months that last a day or two then go away for a day

> then

> > come back again. It is really driving me nuts. The lung doctor

said

> > last week to stop smoking and I have. He has me scdeduled for

another

> > CT scan in four months. That's it. I have read just about

everything

> > out on the net and most of it has not alot of hope. Is the CPAP

going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

some

> > of you who went through this initially and can help me understand

what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

Joyce,

Thank you so much for writing. I am learning.

Joe J.

> >

>

[Guest guest]

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

> over

> > a year blaming it on stress. Like last night I took Lunesta and

> still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands

hurt

> most

> > mornings and alot lately all day. I have this ringing in my ears

> now

> > for about six months that last a day or two then go away for a

day

> then

> > come back again. It is really driving me nuts. The lung doctor

> said

> > last week to stop smoking and I have. He has me scdeduled for

> another

> > CT scan in four months. That's it. I have read just about

> everything

> > out on the net and most of it has not alot of hope. Is the CPAP

> going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

> school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

> some

> > of you who went through this initially and can help me understand

> what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

> >

Thank you for your time and input. You spent alot of time writing to

me and wow do I appreciate it. All of you out here are fantastic.

Joe. J

>

[Guest guest]

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

> over

> > a year blaming it on stress. Like last night I took Lunesta and

> still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands

hurt

> most

> > mornings and alot lately all day. I have this ringing in my ears

> now

> > for about six months that last a day or two then go away for a

day

> then

> > come back again. It is really driving me nuts. The lung doctor

> said

> > last week to stop smoking and I have. He has me scdeduled for

> another

> > CT scan in four months. That's it. I have read just about

> everything

> > out on the net and most of it has not alot of hope. Is the CPAP

> going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

> school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

> some

> > of you who went through this initially and can help me understand

> what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

> >

Thank you for your time and input. You spent alot of time writing to

me and wow do I appreciate it. All of you out here are fantastic.

Joe. J

>

[Guest guest]

> >

> > Hi everyone,

> >

> > I just found out last week I have ILD. I have not slept well for

> over

> > a year blaming it on stress. Like last night I took Lunesta and

> still

> > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

Test,

> > Sleep Test and tonight another for a CPAP. My arms and hands

hurt

> most

> > mornings and alot lately all day. I have this ringing in my ears

> now

> > for about six months that last a day or two then go away for a

day

> then

> > come back again. It is really driving me nuts. The lung doctor

> said

> > last week to stop smoking and I have. He has me scdeduled for

> another

> > CT scan in four months. That's it. I have read just about

> everything

> > out on the net and most of it has not alot of hope. Is the CPAP

> going

> > to let me sleep and start to take the aches away.

> >

> > I have been married to the best woman ever for 34 years my high

> school

> > sweetheart that gave us three beautiful children and three

> > grandchildren with another on the way. I really need to talk to

> some

> > of you who went through this initially and can help me understand

> what

> > is going on and what to expect. Thank you for listening.

> >

> > Joe Jefferys

> >

Thank you for your time and input. You spent alot of time writing to

me and wow do I appreciate it. All of you out here are fantastic.

Joe. J

>

[Guest guest]

> > >

> > > Hi everyone,

> > >

> > > I just found out last week I have ILD. I have not slept well

for

> > over

> > > a year blaming it on stress. Like last night I took Lunesta

and

> > still

> > > only got 2 to 3 hours. I have had CT scans, Xrays, Pulmanry

> Test,

> > > Sleep Test and tonight another for a CPAP. My arms and hands

> hurt

> > most

> > > mornings and alot lately all day. I have this ringing in my

ears

> > now

> > > for about six months that last a day or two then go away for a

> day

> > then

> > > come back again. It is really driving me nuts. The lung

doctor

> > said

> > > last week to stop smoking and I have. He has me scdeduled for

> > another

> > > CT scan in four months. That's it. I have read just about

> > everything

> > > out on the net and most of it has not alot of hope. Is the

CPAP

> > going

> > > to let me sleep and start to take the aches away.

> > >

> > > I have been married to the best woman ever for 34 years my high

> > school

> > > sweetheart that gave us three beautiful children and three

> > > grandchildren with another on the way. I really need to talk

to

> > some

> > > of you who went through this initially and can help me

understand

> > what

> > > is going on and what to expect. Thank you for listening.

> > >

> > > Joe Jefferys

> > >

> >

>