Re: Epilepsy, thyroid and adrenal

[Guest guest]

Hi Sheila,

Please don't attack me.. I'm offering this as a topic for us all to discuss... I'm not real familiar with Epilepsy, so if my thinking is off please tell me, okay?

We know that thyroid balance being off affects all aspects of the glandular activity of the body. It can really mess stuff up and it doesn't seem to affect everyone in the same way.

Can you give us a Epilepsy for Dummies explanation of it and let us relate it to what we all know of the effects of thyroid imbalance?

I'm not saying that it is related. But it's new for us to have someone here with that condition in the mix so it might be better if we could get a basic understanding.

Sleep patterns... Again, with the Epilepsy in the mix this may not apply, but the symptoms that you have listed sound very much like adrenal fatigue...

I'm gonna be shooting a bunch of questions.. if I'm crossing the line, tell me to shush!

Do you have the same 'go to bed' and 'get up' times everyday? When you lay down to sleep, do you feel tire with a racing brain? Is your body tired but restless? Do you feel too 'wired' to relax?

Do you toss and turn when you sleep?

One of the things that are affected by adrenal fatigue is the inability to get into level four sleep. The deep restorative sleep that we all need to heal and grow. Yep adults grow too, you grow bone, cartilage, skin.. everything that is damaged or worn during our waking hours is repaired when we go into a normal deep, natural sleep.

Some of this will be affected by your sleep med.. but, do you dream or have nightmares? One of the biggest things for me when I got my adrenal situation under control is that my dreams returned. My absolute clue that I was finally getting into level four sleep. That's when our brains repair themselves to. Dreams are what our brains due when they are doing their own self checks.... that is why I'm curious about Epilepsy. That, I think, involves bad firing of electrical circuits??? and you mentioned that lack of sleep increases your likelihood of having a seizure...

So... communal minds... what thoughts do you have about how the three may affect each other (low thyroid, adrenal fatigue and Epilepsy)?

I'd like to explore your sleep a bit more, if that's okay... I tried a few different things over the years that made my sleep a bit better.... then the adrenal support and adjusting how I took my thyroid was the final trick to get it working right again. (When there isn't a TV blaring in the next room, that is! hehehehehe). It's absolutely unreal what a difference a good night's sleep makes!

I'm one of the strange folks, I think. When I picked up a prescription I opened the bottle while still at the counter to check the pills. To make sure that they were to correct brand and dose. If that was okay, then I'd go out to the care and read the inserts and any paperwork that came with them.... If I had a question then I'd go right back in and ask. It happened twice, I think that was all, when I was given the wrong dose of thyroid (Synthroid) and it happened quite a few times that prescriptions were messed up for meds that I picked up for either of the women that I was care giver for or my dad's meds. I learned to be very careful with that.

Now I get my meds by mail. When I got my first bottle of Natural thyroid from Mexico I got on the manufacturer's web site to match the pills in the bottle to the pictures on the web site. They matched for markings, size and color.... Now, when I open a new bottle I check the new pills against the last pill from the previous bottle. Making sure that they match for color, markings and size.

I'm a chicken shit that way... I have to make sure before I swallow it.

Don't worry about being long winded, we learn from each other here. I have a feeling that you will be throwing some knew concepts into this mix - thyroid and how it affects us. You'll have a bit of a different insight, too, with your experience with the Epilepsy and I'm thinking a bit more knowledge about brain chemistry and activity?

What is a Geographic tongue? I've never heard that term.

I learn so much by being here and talking to all of you guys... it's helped me a LOT!

Topper ()

On Wed, 18 Aug 2004 13:40:19 -0500 "Sheila McLaughlin" writes:

You ask....Tell us a bit about your sleep patterns.... Do you go to sleep right away? Sleep through the night? Wake feeling rested? or ??????

I have to take Ambien to force myself to sleep. I am so tired of laying in bed and hoping to fall asleep. I wake up feeling terrible. So I hate the bedroom....

Sleeping is important for me because lack of sleep is one of my triggers for a seizure. I have Epilepsy.

I have almost 100% seizure control with my Epilepsy medication. Of course, I have to avoid the things that trigger a seizure.

I suspect that the Lamictal I was on started the immune problem.

My first symptoms were so server I could care less if I dropped dead.

I decided to go back and check the warning on my Lamictal pharmacy brochure over the internet. Sure enough they had an update... "Lupus like symptoms" warning which said if you experience these symptoms stop taking and see Doctor right away.

They were the same symptoms I was complaining about to any doctor that would listen. Not a one checked the latest news on any of my medications.

I had been taking the Lamictal for over 4 years when I read my symptoms on the brochure. Blew my mind !! Once I told the Doctor I suspected the Lamictal is affecting my joints and pointed out to the doctor what the drug company said, he tested for Lupus. I don't have Lupus but the test showed Thyroid Peroxidase antibodies in my blood.

After I got off the Lamictal my joint swelling went down within 3 weeks. I could actually walk from the front of the house to the back without stopping on the sofa for a rest.

I am now taking Neurontin for seizure control, it does a good job, and so far, no side effects.

I always read the pharmacy brochure when I get put on a new Rx and that warning was not there when I started taking it. While I was in pain and looking for answers, I checked to see when they updated that info. In the year 2000 they updated the warning on the Rx, but I was never told by Eckerds (my pharmacy). If I had been informed, I would have saved myself 2 more years of hell and damage from Lamictal.

The doctors had no clue what was going wrong, they blew me off. Even though I was limping, could barely think and looked like I died and forgot to fall.

When I get more of my "brain power" back, I am going to do something about that.

Most people don't read the pharmacy drug brochure, but I do. I love Chemistry and realize I am not your average person... do they figure people don't read it so why inform people??

There is a part of me that knows the damage Lamictal did created the problem, but I am more upset that I was never told that the brochure was amended with a new symptom warning.

Sorry to have gone on about this but I have been curious if there are any others out there that has suffered autoimmune problems due to Lamictal.

I am also left with a Geographic tongue. Anyone else have that problem??

You guys deserve an award for waking up every day and wanting to help others.

The only time I felt this bad was right after a seizure and only if I hit my head so hard that I had a concussion. I knew it would pass so I never had pity parties.

This does not pass -- I am ssooo impressed with you guys.

sheila

[Guest guest]

Hi Sheila,

Please don't attack me.. I'm offering this as a topic for us all to discuss... I'm not real familiar with Epilepsy, so if my thinking is off please tell me, okay?

We know that thyroid balance being off affects all aspects of the glandular activity of the body. It can really mess stuff up and it doesn't seem to affect everyone in the same way.

Can you give us a Epilepsy for Dummies explanation of it and let us relate it to what we all know of the effects of thyroid imbalance?

I'm not saying that it is related. But it's new for us to have someone here with that condition in the mix so it might be better if we could get a basic understanding.

Sleep patterns... Again, with the Epilepsy in the mix this may not apply, but the symptoms that you have listed sound very much like adrenal fatigue...

I'm gonna be shooting a bunch of questions.. if I'm crossing the line, tell me to shush!

Do you have the same 'go to bed' and 'get up' times everyday? When you lay down to sleep, do you feel tire with a racing brain? Is your body tired but restless? Do you feel too 'wired' to relax?

Do you toss and turn when you sleep?

One of the things that are affected by adrenal fatigue is the inability to get into level four sleep. The deep restorative sleep that we all need to heal and grow. Yep adults grow too, you grow bone, cartilage, skin.. everything that is damaged or worn during our waking hours is repaired when we go into a normal deep, natural sleep.

Some of this will be affected by your sleep med.. but, do you dream or have nightmares? One of the biggest things for me when I got my adrenal situation under control is that my dreams returned. My absolute clue that I was finally getting into level four sleep. That's when our brains repair themselves to. Dreams are what our brains due when they are doing their own self checks.... that is why I'm curious about Epilepsy. That, I think, involves bad firing of electrical circuits??? and you mentioned that lack of sleep increases your likelihood of having a seizure...

So... communal minds... what thoughts do you have about how the three may affect each other (low thyroid, adrenal fatigue and Epilepsy)?

I'd like to explore your sleep a bit more, if that's okay... I tried a few different things over the years that made my sleep a bit better.... then the adrenal support and adjusting how I took my thyroid was the final trick to get it working right again. (When there isn't a TV blaring in the next room, that is! hehehehehe). It's absolutely unreal what a difference a good night's sleep makes!

I'm one of the strange folks, I think. When I picked up a prescription I opened the bottle while still at the counter to check the pills. To make sure that they were to correct brand and dose. If that was okay, then I'd go out to the care and read the inserts and any paperwork that came with them.... If I had a question then I'd go right back in and ask. It happened twice, I think that was all, when I was given the wrong dose of thyroid (Synthroid) and it happened quite a few times that prescriptions were messed up for meds that I picked up for either of the women that I was care giver for or my dad's meds. I learned to be very careful with that.

Now I get my meds by mail. When I got my first bottle of Natural thyroid from Mexico I got on the manufacturer's web site to match the pills in the bottle to the pictures on the web site. They matched for markings, size and color.... Now, when I open a new bottle I check the new pills against the last pill from the previous bottle. Making sure that they match for color, markings and size.

I'm a chicken shit that way... I have to make sure before I swallow it.

Don't worry about being long winded, we learn from each other here. I have a feeling that you will be throwing some knew concepts into this mix - thyroid and how it affects us. You'll have a bit of a different insight, too, with your experience with the Epilepsy and I'm thinking a bit more knowledge about brain chemistry and activity?

What is a Geographic tongue? I've never heard that term.

I learn so much by being here and talking to all of you guys... it's helped me a LOT!

Topper ()

On Wed, 18 Aug 2004 13:40:19 -0500 "Sheila McLaughlin" writes:

You ask....Tell us a bit about your sleep patterns.... Do you go to sleep right away? Sleep through the night? Wake feeling rested? or ??????

I have to take Ambien to force myself to sleep. I am so tired of laying in bed and hoping to fall asleep. I wake up feeling terrible. So I hate the bedroom....

Sleeping is important for me because lack of sleep is one of my triggers for a seizure. I have Epilepsy.

I have almost 100% seizure control with my Epilepsy medication. Of course, I have to avoid the things that trigger a seizure.

I suspect that the Lamictal I was on started the immune problem.

My first symptoms were so server I could care less if I dropped dead.

I decided to go back and check the warning on my Lamictal pharmacy brochure over the internet. Sure enough they had an update... "Lupus like symptoms" warning which said if you experience these symptoms stop taking and see Doctor right away.

They were the same symptoms I was complaining about to any doctor that would listen. Not a one checked the latest news on any of my medications.

I had been taking the Lamictal for over 4 years when I read my symptoms on the brochure. Blew my mind !! Once I told the Doctor I suspected the Lamictal is affecting my joints and pointed out to the doctor what the drug company said, he tested for Lupus. I don't have Lupus but the test showed Thyroid Peroxidase antibodies in my blood.

After I got off the Lamictal my joint swelling went down within 3 weeks. I could actually walk from the front of the house to the back without stopping on the sofa for a rest.

I am now taking Neurontin for seizure control, it does a good job, and so far, no side effects.

I always read the pharmacy brochure when I get put on a new Rx and that warning was not there when I started taking it. While I was in pain and looking for answers, I checked to see when they updated that info. In the year 2000 they updated the warning on the Rx, but I was never told by Eckerds (my pharmacy). If I had been informed, I would have saved myself 2 more years of hell and damage from Lamictal.

The doctors had no clue what was going wrong, they blew me off. Even though I was limping, could barely think and looked like I died and forgot to fall.

When I get more of my "brain power" back, I am going to do something about that.

Most people don't read the pharmacy drug brochure, but I do. I love Chemistry and realize I am not your average person... do they figure people don't read it so why inform people??

There is a part of me that knows the damage Lamictal did created the problem, but I am more upset that I was never told that the brochure was amended with a new symptom warning.

Sorry to have gone on about this but I have been curious if there are any others out there that has suffered autoimmune problems due to Lamictal.

I am also left with a Geographic tongue. Anyone else have that problem??

You guys deserve an award for waking up every day and wanting to help others.

The only time I felt this bad was right after a seizure and only if I hit my head so hard that I had a concussion. I knew it would pass so I never had pity parties.

This does not pass -- I am ssooo impressed with you guys.

sheila

[Guest guest]

Hi Sheila,

Please don't attack me.. I'm offering this as a topic for us all to discuss... I'm not real familiar with Epilepsy, so if my thinking is off please tell me, okay?

We know that thyroid balance being off affects all aspects of the glandular activity of the body. It can really mess stuff up and it doesn't seem to affect everyone in the same way.

Can you give us a Epilepsy for Dummies explanation of it and let us relate it to what we all know of the effects of thyroid imbalance?

I'm not saying that it is related. But it's new for us to have someone here with that condition in the mix so it might be better if we could get a basic understanding.

Sleep patterns... Again, with the Epilepsy in the mix this may not apply, but the symptoms that you have listed sound very much like adrenal fatigue...

I'm gonna be shooting a bunch of questions.. if I'm crossing the line, tell me to shush!

Do you have the same 'go to bed' and 'get up' times everyday? When you lay down to sleep, do you feel tire with a racing brain? Is your body tired but restless? Do you feel too 'wired' to relax?

Do you toss and turn when you sleep?

One of the things that are affected by adrenal fatigue is the inability to get into level four sleep. The deep restorative sleep that we all need to heal and grow. Yep adults grow too, you grow bone, cartilage, skin.. everything that is damaged or worn during our waking hours is repaired when we go into a normal deep, natural sleep.

Some of this will be affected by your sleep med.. but, do you dream or have nightmares? One of the biggest things for me when I got my adrenal situation under control is that my dreams returned. My absolute clue that I was finally getting into level four sleep. That's when our brains repair themselves to. Dreams are what our brains due when they are doing their own self checks.... that is why I'm curious about Epilepsy. That, I think, involves bad firing of electrical circuits??? and you mentioned that lack of sleep increases your likelihood of having a seizure...

So... communal minds... what thoughts do you have about how the three may affect each other (low thyroid, adrenal fatigue and Epilepsy)?

I'd like to explore your sleep a bit more, if that's okay... I tried a few different things over the years that made my sleep a bit better.... then the adrenal support and adjusting how I took my thyroid was the final trick to get it working right again. (When there isn't a TV blaring in the next room, that is! hehehehehe). It's absolutely unreal what a difference a good night's sleep makes!

I'm one of the strange folks, I think. When I picked up a prescription I opened the bottle while still at the counter to check the pills. To make sure that they were to correct brand and dose. If that was okay, then I'd go out to the care and read the inserts and any paperwork that came with them.... If I had a question then I'd go right back in and ask. It happened twice, I think that was all, when I was given the wrong dose of thyroid (Synthroid) and it happened quite a few times that prescriptions were messed up for meds that I picked up for either of the women that I was care giver for or my dad's meds. I learned to be very careful with that.

Now I get my meds by mail. When I got my first bottle of Natural thyroid from Mexico I got on the manufacturer's web site to match the pills in the bottle to the pictures on the web site. They matched for markings, size and color.... Now, when I open a new bottle I check the new pills against the last pill from the previous bottle. Making sure that they match for color, markings and size.

I'm a chicken shit that way... I have to make sure before I swallow it.

Don't worry about being long winded, we learn from each other here. I have a feeling that you will be throwing some knew concepts into this mix - thyroid and how it affects us. You'll have a bit of a different insight, too, with your experience with the Epilepsy and I'm thinking a bit more knowledge about brain chemistry and activity?

What is a Geographic tongue? I've never heard that term.

I learn so much by being here and talking to all of you guys... it's helped me a LOT!

Topper ()

On Wed, 18 Aug 2004 13:40:19 -0500 "Sheila McLaughlin" writes:

You ask....Tell us a bit about your sleep patterns.... Do you go to sleep right away? Sleep through the night? Wake feeling rested? or ??????

I have to take Ambien to force myself to sleep. I am so tired of laying in bed and hoping to fall asleep. I wake up feeling terrible. So I hate the bedroom....

Sleeping is important for me because lack of sleep is one of my triggers for a seizure. I have Epilepsy.

I have almost 100% seizure control with my Epilepsy medication. Of course, I have to avoid the things that trigger a seizure.

I suspect that the Lamictal I was on started the immune problem.

My first symptoms were so server I could care less if I dropped dead.

I decided to go back and check the warning on my Lamictal pharmacy brochure over the internet. Sure enough they had an update... "Lupus like symptoms" warning which said if you experience these symptoms stop taking and see Doctor right away.

They were the same symptoms I was complaining about to any doctor that would listen. Not a one checked the latest news on any of my medications.

I had been taking the Lamictal for over 4 years when I read my symptoms on the brochure. Blew my mind !! Once I told the Doctor I suspected the Lamictal is affecting my joints and pointed out to the doctor what the drug company said, he tested for Lupus. I don't have Lupus but the test showed Thyroid Peroxidase antibodies in my blood.

After I got off the Lamictal my joint swelling went down within 3 weeks. I could actually walk from the front of the house to the back without stopping on the sofa for a rest.

I am now taking Neurontin for seizure control, it does a good job, and so far, no side effects.

I always read the pharmacy brochure when I get put on a new Rx and that warning was not there when I started taking it. While I was in pain and looking for answers, I checked to see when they updated that info. In the year 2000 they updated the warning on the Rx, but I was never told by Eckerds (my pharmacy). If I had been informed, I would have saved myself 2 more years of hell and damage from Lamictal.

The doctors had no clue what was going wrong, they blew me off. Even though I was limping, could barely think and looked like I died and forgot to fall.

When I get more of my "brain power" back, I am going to do something about that.

Most people don't read the pharmacy drug brochure, but I do. I love Chemistry and realize I am not your average person... do they figure people don't read it so why inform people??

There is a part of me that knows the damage Lamictal did created the problem, but I am more upset that I was never told that the brochure was amended with a new symptom warning.

Sorry to have gone on about this but I have been curious if there are any others out there that has suffered autoimmune problems due to Lamictal.

I am also left with a Geographic tongue. Anyone else have that problem??

You guys deserve an award for waking up every day and wanting to help others.

The only time I felt this bad was right after a seizure and only if I hit my head so hard that I had a concussion. I knew it would pass so I never had pity parties.

This does not pass -- I am ssooo impressed with you guys.

sheila

[Guest guest]

Oh Topper..... your as curious as me.

Don't worry about the questions, its OK.

Hope everyone forgives the off topic for a bit.

I had my first seizure when I was 23. The Neurologist said the right combination of triggers "happening" that day bought the Grand Mal out. Lack of sleep, had a baby 3 months earlier, hunger from dieting and the heat in gym was soooo bad that day (working a Fish Booth for my kids school). On top of that I was nursing (not while working the booth <smile>). I bad a full blown Grand Mal and was told later I really freaked the Principal out because he could not get a heart beat or pulse on me.

I hit my head so hard I was unconscious for 3 hours and woke up with partial amnesia. (Knew what my house looked like but did not know where it was. Knew I had 3 kids but could not remember their names)

After a ride to the hospital in an ambulance I don't remember, I underwent a weeks worth of testing, awful testing.... Angiogram from hell, I was told I had Epilepsy. He said some people with Epilepsy go all their life with no real diagnosis, but in my case he said too many trigger conditions going on at the same time is what brought on the intense seizure.

Since I was a child I passed out periodically. Doctors would say..."well you are a little anemic" but they were puzzled. My teachers often complained to my mom that I was an incessant day dreamer. I tried like hell as a kid to stop day dreaming but could not control it.

But that day I was working the "Fish Booth" I got all my answers.

The thyroid problem (low thyroid) did not pop up until I was 35 and since my mom was Hypo it didn't surprise me.

I never took it seriously but always took my meds and felt fine. The worst thing I had to deal with was trying to be "normal". You see I looked really healthy and since my meds controlled the grand mals, I didn't have to tell anyone that I had Epilepsy unless I chose to.

I learned never to go over 3 hours without eating. I never drove if I didn't get a good nights sleep. I would just say my husband needed the car so he dropped me off. I always had built in excuses to protect the Epilepsy. People are uncomfortable when they find out, so life is easier if I keep it to myself.

Now I'd give anything for a good nights sleep but I think it was easy back then because Phenobarbital was in the Dilantin that I was taking. It was a combination of Dilantin and Phenobarbital.... heck I fell asleep reading, eating -- back then I had a hard time staying awake.

Now...

My brain does race at night. I rarely experience good sleep.

I've tried going to bed at the same time but that is torture to just lay there and panic over bills, etc. Amazing where the mind goes at night. I drink Sleepy Time Tea, I meditate, I take Ambien....

Geographic Tongue...

About 2 years ago my tongue started burning, then I started noticing blisters on my tongue.

I was told by a Doctor that no one know what Geographic tongue really is but it gets its name from the fact that the blisters leave your tongue looking like a map of the continents. Boy is that Scientific or what??

I keep my tongue from looking too terrible by taking B-Complex, certain amino acids, Willard Water and Vitamin O (oxygen saturated water). Most Doctors who see it say mine looks better than most who have it. My regimen also helps with the pain and burning.

I eat better than most people with Epilepsy and attribute that to my great seizure control. Before I started eating "right" I use to have grand mals and could rarely go 9 months without one. After I started trying to feed my kids better, I noticed that I was doing better. I went to the Library and started learning all I could about nutrition and in the process gained a lot more control over the Epilepsy. So much of what we eat (and don't eat) affects our brain chemistry.

sheila

Re: Epilepsy, thyroid and adrenal

Hi Sheila,

Please don't attack me.. I'm offering this as a topic for us all to discuss... I'm not real familiar with Epilepsy, so if my thinking is off please tell me, okay?

We know that thyroid balance being off affects all aspects of the glandular activity of the body. It can really mess stuff up and it doesn't seem to affect everyone in the same way.

Can you give us a Epilepsy for Dummies explanation of it and let us relate it to what we all know of the effects of thyroid imbalance?

I'm not saying that it is related. But it's new for us to have someone here with that condition in the mix so it might be better if we could get a basic understanding.

Sleep patterns... Again, with the Epilepsy in the mix this may not apply, but the symptoms that you have listed sound very much like adrenal fatigue...

I'm gonna be shooting a bunch of questions.. if I'm crossing the line, tell me to shush!

Do you have the same 'go to bed' and 'get up' times everyday? When you lay down to sleep, do you feel tire with a racing brain? Is your body tired but restless? Do you feel too 'wired' to relax?

Do you toss and turn when you sleep?

One of the things that are affected by adrenal fatigue is the inability to get into level four sleep. The deep restorative sleep that we all need to heal and grow. Yep adults grow too, you grow bone, cartilage, skin.. everything that is damaged or worn during our waking hours is repaired when we go into a normal deep, natural sleep.

Some of this will be affected by your sleep med.. but, do you dream or have nightmares? One of the biggest things for me when I got my adrenal situation under control is that my dreams returned. My absolute clue that I was finally getting into level four sleep. That's when our brains repair themselves to. Dreams are what our brains due when they are doing their own self checks.... that is why I'm curious about Epilepsy. That, I think, involves bad firing of electrical circuits??? and you mentioned that lack of sleep increases your likelihood of having a seizure...

So... communal minds... what thoughts do you have about how the three may affect each other (low thyroid, adrenal fatigue and Epilepsy)?

I'd like to explore your sleep a bit more, if that's okay... I tried a few different things over the years that made my sleep a bit better.... then the adrenal support and adjusting how I took my thyroid was the final trick to get it working right again. (When there isn't a TV blaring in the next room, that is! hehehehehe). It's absolutely unreal what a difference a good night's sleep makes!

I'm one of the strange folks, I think. When I picked up a prescription I opened the bottle while still at the counter to check the pills. To make sure that they were to correct brand and dose. If that was okay, then I'd go out to the care and read the inserts and any paperwork that came with them.... If I had a question then I'd go right back in and ask. It happened twice, I think that was all, when I was given the wrong dose of thyroid (Synthroid) and it happened quite a few times that prescriptions were messed up for meds that I picked up for either of the women that I was care giver for or my dad's meds. I learned to be very careful with that.

Now I get my meds by mail. When I got my first bottle of Natural thyroid from Mexico I got on the manufacturer's web site to match the pills in the bottle to the pictures on the web site. They matched for markings, size and color.... Now, when I open a new bottle I check the new pills against the last pill from the previous bottle. Making sure that they match for color, markings and size.

I'm a chicken shit that way... I have to make sure before I swallow it.

Don't worry about being long winded, we learn from each other here. I have a feeling that you will be throwing some knew concepts into this mix - thyroid and how it affects us. You'll have a bit of a different insight, too, with your experience with the Epilepsy and I'm thinking a bit more knowledge about brain chemistry and activity?

What is a Geographic tongue? I've never heard that term.

I learn so much by being here and talking to all of you guys... it's helped me a LOT!

Topper ()

On Wed, 18 Aug 2004 13:40:19 -0500 "Sheila McLaughlin" writes:

You ask....Tell us a bit about your sleep patterns.... Do you go to sleep right away? Sleep through the night? Wake feeling rested? or ??????

I have to take Ambien to force myself to sleep. I am so tired of laying in bed and hoping to fall asleep. I wake up feeling terrible. So I hate the bedroom....

Sleeping is important for me because lack of sleep is one of my triggers for a seizure. I have Epilepsy.

I have almost 100% seizure control with my Epilepsy medication. Of course, I have to avoid the things that trigger a seizure.

I suspect that the Lamictal I was on started the immune problem.

My first symptoms were so server I could care less if I dropped dead.

I decided to go back and check the warning on my Lamictal pharmacy brochure over the internet. Sure enough they had an update... "Lupus like symptoms" warning which said if you experience these symptoms stop taking and see Doctor right away.

They were the same symptoms I was complaining about to any doctor that would listen. Not a one checked the latest news on any of my medications.

I had been taking the Lamictal for over 4 years when I read my symptoms on the brochure. Blew my mind !! Once I told the Doctor I suspected the Lamictal is affecting my joints and pointed out to the doctor what the drug company said, he tested for Lupus. I don't have Lupus but the test showed Thyroid Peroxidase antibodies in my blood.

After I got off the Lamictal my joint swelling went down within 3 weeks. I could actually walk from the front of the house to the back without stopping on the sofa for a rest.

I am now taking Neurontin for seizure control, it does a good job, and so far, no side effects.

I always read the pharmacy brochure when I get put on a new Rx and that warning was not there when I started taking it. While I was in pain and looking for answers, I checked to see when they updated that info. In the year 2000 they updated the warning on the Rx, but I was never told by Eckerds (my pharmacy). If I had been informed, I would have saved myself 2 more years of hell and damage from Lamictal.

The doctors had no clue what was going wrong, they blew me off. Even though I was limping, could barely think and looked like I died and forgot to fall.

When I get more of my "brain power" back, I am going to do something about that.

Most people don't read the pharmacy drug brochure, but I do. I love Chemistry and realize I am not your average person... do they figure people don't read it so why inform people??

There is a part of me that knows the damage Lamictal did created the problem, but I am more upset that I was never told that the brochure was amended with a new symptom warning.

Sorry to have gone on about this but I have been curious if there are any others out there that has suffered autoimmune problems due to Lamictal.

I am also left with a Geographic tongue. Anyone else have that problem??

You guys deserve an award for waking up every day and wanting to help others.

The only time I felt this bad was right after a seizure and only if I hit my head so hard that I had a concussion. I knew it would pass so I never had pity parties.

This does not pass -- I am ssooo impressed with you guys.

sheila

[Guest guest]

Oh Topper..... your as curious as me.

Don't worry about the questions, its OK.

Hope everyone forgives the off topic for a bit.

I had my first seizure when I was 23. The Neurologist said the right combination of triggers "happening" that day bought the Grand Mal out. Lack of sleep, had a baby 3 months earlier, hunger from dieting and the heat in gym was soooo bad that day (working a Fish Booth for my kids school). On top of that I was nursing (not while working the booth <smile>). I bad a full blown Grand Mal and was told later I really freaked the Principal out because he could not get a heart beat or pulse on me.

I hit my head so hard I was unconscious for 3 hours and woke up with partial amnesia. (Knew what my house looked like but did not know where it was. Knew I had 3 kids but could not remember their names)

After a ride to the hospital in an ambulance I don't remember, I underwent a weeks worth of testing, awful testing.... Angiogram from hell, I was told I had Epilepsy. He said some people with Epilepsy go all their life with no real diagnosis, but in my case he said too many trigger conditions going on at the same time is what brought on the intense seizure.

Since I was a child I passed out periodically. Doctors would say..."well you are a little anemic" but they were puzzled. My teachers often complained to my mom that I was an incessant day dreamer. I tried like hell as a kid to stop day dreaming but could not control it.

But that day I was working the "Fish Booth" I got all my answers.

The thyroid problem (low thyroid) did not pop up until I was 35 and since my mom was Hypo it didn't surprise me.

I never took it seriously but always took my meds and felt fine. The worst thing I had to deal with was trying to be "normal". You see I looked really healthy and since my meds controlled the grand mals, I didn't have to tell anyone that I had Epilepsy unless I chose to.

I learned never to go over 3 hours without eating. I never drove if I didn't get a good nights sleep. I would just say my husband needed the car so he dropped me off. I always had built in excuses to protect the Epilepsy. People are uncomfortable when they find out, so life is easier if I keep it to myself.

Now I'd give anything for a good nights sleep but I think it was easy back then because Phenobarbital was in the Dilantin that I was taking. It was a combination of Dilantin and Phenobarbital.... heck I fell asleep reading, eating -- back then I had a hard time staying awake.

Now...

My brain does race at night. I rarely experience good sleep.

I've tried going to bed at the same time but that is torture to just lay there and panic over bills, etc. Amazing where the mind goes at night. I drink Sleepy Time Tea, I meditate, I take Ambien....

Geographic Tongue...

About 2 years ago my tongue started burning, then I started noticing blisters on my tongue.

I was told by a Doctor that no one know what Geographic tongue really is but it gets its name from the fact that the blisters leave your tongue looking like a map of the continents. Boy is that Scientific or what??

I keep my tongue from looking too terrible by taking B-Complex, certain amino acids, Willard Water and Vitamin O (oxygen saturated water). Most Doctors who see it say mine looks better than most who have it. My regimen also helps with the pain and burning.

I eat better than most people with Epilepsy and attribute that to my great seizure control. Before I started eating "right" I use to have grand mals and could rarely go 9 months without one. After I started trying to feed my kids better, I noticed that I was doing better. I went to the Library and started learning all I could about nutrition and in the process gained a lot more control over the Epilepsy. So much of what we eat (and don't eat) affects our brain chemistry.

sheila

Re: Epilepsy, thyroid and adrenal

Hi Sheila,

Please don't attack me.. I'm offering this as a topic for us all to discuss... I'm not real familiar with Epilepsy, so if my thinking is off please tell me, okay?

We know that thyroid balance being off affects all aspects of the glandular activity of the body. It can really mess stuff up and it doesn't seem to affect everyone in the same way.

Can you give us a Epilepsy for Dummies explanation of it and let us relate it to what we all know of the effects of thyroid imbalance?

I'm not saying that it is related. But it's new for us to have someone here with that condition in the mix so it might be better if we could get a basic understanding.

Sleep patterns... Again, with the Epilepsy in the mix this may not apply, but the symptoms that you have listed sound very much like adrenal fatigue...

I'm gonna be shooting a bunch of questions.. if I'm crossing the line, tell me to shush!

Do you have the same 'go to bed' and 'get up' times everyday? When you lay down to sleep, do you feel tire with a racing brain? Is your body tired but restless? Do you feel too 'wired' to relax?

Do you toss and turn when you sleep?

One of the things that are affected by adrenal fatigue is the inability to get into level four sleep. The deep restorative sleep that we all need to heal and grow. Yep adults grow too, you grow bone, cartilage, skin.. everything that is damaged or worn during our waking hours is repaired when we go into a normal deep, natural sleep.

Some of this will be affected by your sleep med.. but, do you dream or have nightmares? One of the biggest things for me when I got my adrenal situation under control is that my dreams returned. My absolute clue that I was finally getting into level four sleep. That's when our brains repair themselves to. Dreams are what our brains due when they are doing their own self checks.... that is why I'm curious about Epilepsy. That, I think, involves bad firing of electrical circuits??? and you mentioned that lack of sleep increases your likelihood of having a seizure...

So... communal minds... what thoughts do you have about how the three may affect each other (low thyroid, adrenal fatigue and Epilepsy)?

I'd like to explore your sleep a bit more, if that's okay... I tried a few different things over the years that made my sleep a bit better.... then the adrenal support and adjusting how I took my thyroid was the final trick to get it working right again. (When there isn't a TV blaring in the next room, that is! hehehehehe). It's absolutely unreal what a difference a good night's sleep makes!

I'm one of the strange folks, I think. When I picked up a prescription I opened the bottle while still at the counter to check the pills. To make sure that they were to correct brand and dose. If that was okay, then I'd go out to the care and read the inserts and any paperwork that came with them.... If I had a question then I'd go right back in and ask. It happened twice, I think that was all, when I was given the wrong dose of thyroid (Synthroid) and it happened quite a few times that prescriptions were messed up for meds that I picked up for either of the women that I was care giver for or my dad's meds. I learned to be very careful with that.

Now I get my meds by mail. When I got my first bottle of Natural thyroid from Mexico I got on the manufacturer's web site to match the pills in the bottle to the pictures on the web site. They matched for markings, size and color.... Now, when I open a new bottle I check the new pills against the last pill from the previous bottle. Making sure that they match for color, markings and size.

I'm a chicken shit that way... I have to make sure before I swallow it.

Don't worry about being long winded, we learn from each other here. I have a feeling that you will be throwing some knew concepts into this mix - thyroid and how it affects us. You'll have a bit of a different insight, too, with your experience with the Epilepsy and I'm thinking a bit more knowledge about brain chemistry and activity?

What is a Geographic tongue? I've never heard that term.

I learn so much by being here and talking to all of you guys... it's helped me a LOT!

Topper ()

On Wed, 18 Aug 2004 13:40:19 -0500 "Sheila McLaughlin" writes:

You ask....Tell us a bit about your sleep patterns.... Do you go to sleep right away? Sleep through the night? Wake feeling rested? or ??????

I have to take Ambien to force myself to sleep. I am so tired of laying in bed and hoping to fall asleep. I wake up feeling terrible. So I hate the bedroom....

Sleeping is important for me because lack of sleep is one of my triggers for a seizure. I have Epilepsy.

I have almost 100% seizure control with my Epilepsy medication. Of course, I have to avoid the things that trigger a seizure.

I suspect that the Lamictal I was on started the immune problem.

My first symptoms were so server I could care less if I dropped dead.

I decided to go back and check the warning on my Lamictal pharmacy brochure over the internet. Sure enough they had an update... "Lupus like symptoms" warning which said if you experience these symptoms stop taking and see Doctor right away.

They were the same symptoms I was complaining about to any doctor that would listen. Not a one checked the latest news on any of my medications.

I had been taking the Lamictal for over 4 years when I read my symptoms on the brochure. Blew my mind !! Once I told the Doctor I suspected the Lamictal is affecting my joints and pointed out to the doctor what the drug company said, he tested for Lupus. I don't have Lupus but the test showed Thyroid Peroxidase antibodies in my blood.

After I got off the Lamictal my joint swelling went down within 3 weeks. I could actually walk from the front of the house to the back without stopping on the sofa for a rest.

I am now taking Neurontin for seizure control, it does a good job, and so far, no side effects.

I always read the pharmacy brochure when I get put on a new Rx and that warning was not there when I started taking it. While I was in pain and looking for answers, I checked to see when they updated that info. In the year 2000 they updated the warning on the Rx, but I was never told by Eckerds (my pharmacy). If I had been informed, I would have saved myself 2 more years of hell and damage from Lamictal.

The doctors had no clue what was going wrong, they blew me off. Even though I was limping, could barely think and looked like I died and forgot to fall.

When I get more of my "brain power" back, I am going to do something about that.

Most people don't read the pharmacy drug brochure, but I do. I love Chemistry and realize I am not your average person... do they figure people don't read it so why inform people??

There is a part of me that knows the damage Lamictal did created the problem, but I am more upset that I was never told that the brochure was amended with a new symptom warning.

Sorry to have gone on about this but I have been curious if there are any others out there that has suffered autoimmune problems due to Lamictal.

I am also left with a Geographic tongue. Anyone else have that problem??

You guys deserve an award for waking up every day and wanting to help others.

The only time I felt this bad was right after a seizure and only if I hit my head so hard that I had a concussion. I knew it would pass so I never had pity parties.

This does not pass -- I am ssooo impressed with you guys.

sheila

[Guest guest]

You've triggered some memories in me. I was care giver for my mom. She had a gran mall seizure that was triggered by a brain aneurysm. Then had brain surgery to put a clip on the aneurysm so that it wouldn't blow, it had been leaking for at least two weeks.

She was on Dilantin, Phenobarbital, and took something that I think is the same as what you are also taking but it was called heavy water, H2O2... it was to increase the oxygen level of the blood to help relieve pain.

I also suspect that she had thyroid problems most of her life. But was never diagnosed.

So, back to you. What tests have they run on you so far for the thyroid stuff? Can you post the lab results and ranges?

I have a fascination on how the brain works, beside caring for my mom until her death (9 years after the brain surgery she died of a heart attack) I also cared for a family friend a few years after that that had brain cancer. Happenstantially in the same area of the brain as my mom's aneurysm. So her starting symptoms were the same as some of my mom's.. that's how we got her to the hospital for tests so early that the cancer didn't even show in the scans for weeks. She was also on Dilantin and Phenobarbital.

With how much affect the thyroid hormones have on so many functions in our body.. I really wonder about how it affects our brains. Most of us seem to have a higher than average IQ. Most of us seem to be artistic or creative in some way. And we are all seeking to increase our knowledge.... What makes us so curious and despite all our issues with brain fog and fatigue and pain that we are still willing to seek information and sit for hours at the computer and at libraries researching?

If there are no objections from the group, I hope that we can explore this a bit... otherwise, Sheila.. you and I can go off list and continue.

Topper ()

On Wed, 18 Aug 2004 19:02:20 -0500 "Sheila McLaughlin" writes:

Oh Topper..... your as curious as me.

Don't worry about the questions, its OK.

Hope everyone forgives the off topic for a bit.

I had my first seizure when I was 23. The Neurologist said the right combination of triggers "happening" that day bought the Grand Mal out. Lack of sleep, had a baby 3 months earlier, hunger from dieting and the heat in gym was soooo bad that day (working a Fish Booth for my kids school). On top of that I was nursing (not while working the booth <smile>). I bad a full blown Grand Mal and was told later I really freaked the Principal out because he could not get a heart beat or pulse on me.

I hit my head so hard I was unconscious for 3 hours and woke up with partial amnesia. (Knew what my house looked like but did not know where it was. Knew I had 3 kids but could not remember their names)

After a ride to the hospital in an ambulance I don't remember, I underwent a weeks worth of testing, awful testing.... Angiogram from hell, I was told I had Epilepsy. He said some people with Epilepsy go all their life with no real diagnosis, but in my case he said too many trigger conditions going on at the same time is what brought on the intense seizure.

Since I was a child I passed out periodically. Doctors would say..."well you are a little anemic" but they were puzzled. My teachers often complained to my mom that I was an incessant day dreamer. I tried like hell as a kid to stop day dreaming but could not control it.

But that day I was working the "Fish Booth" I got all my answers.

The thyroid problem (low thyroid) did not pop up until I was 35 and since my mom was Hypo it didn't surprise me.

I never took it seriously but always took my meds and felt fine. The worst thing I had to deal with was trying to be "normal". You see I looked really healthy and since my meds controlled the grand mals, I didn't have to tell anyone that I had Epilepsy unless I chose to.

I learned never to go over 3 hours without eating. I never drove if I didn't get a good nights sleep. I would just say my husband needed the car so he dropped me off. I always had built in excuses to protect the Epilepsy. People are uncomfortable when they find out, so life is easier if I keep it to myself.

Now I'd give anything for a good nights sleep but I think it was easy back then because Phenobarbital was in the Dilantin that I was taking. It was a combination of Dilantin and Phenobarbital.... heck I fell asleep reading, eating -- back then I had a hard time staying awake.

Now...

My brain does race at night. I rarely experience good sleep.

I've tried going to bed at the same time but that is torture to just lay there and panic over bills, etc. Amazing where the mind goes at night. I drink Sleepy Time Tea, I meditate, I take Ambien....

Geographic Tongue...

About 2 years ago my tongue started burning, then I started noticing blisters on my tongue.

I was told by a Doctor that no one know what Geographic tongue really is but it gets its name from the fact that the blisters leave your tongue looking like a map of the continents. Boy is that Scientific or what??

I keep my tongue from looking too terrible by taking B-Complex, certain amino acids, Willard Water and Vitamin O (oxygen saturated water). Most Doctors who see it say mine looks better than most who have it. My regimen also helps with the pain and burning.

I eat better than most people with Epilepsy and attribute that to my great seizure control. Before I started eating "right" I use to have grand mals and could rarely go 9 months without one. After I started trying to feed my kids better, I noticed that I was doing better. I went to the Library and started learning all I could about nutrition and in the process gained a lot more control over the Epilepsy. So much of what we eat (and don't eat) affects our brain chemistry.

sheila

[Guest guest]

You've triggered some memories in me. I was care giver for my mom. She had a gran mall seizure that was triggered by a brain aneurysm. Then had brain surgery to put a clip on the aneurysm so that it wouldn't blow, it had been leaking for at least two weeks.

She was on Dilantin, Phenobarbital, and took something that I think is the same as what you are also taking but it was called heavy water, H2O2... it was to increase the oxygen level of the blood to help relieve pain.

I also suspect that she had thyroid problems most of her life. But was never diagnosed.

So, back to you. What tests have they run on you so far for the thyroid stuff? Can you post the lab results and ranges?

I have a fascination on how the brain works, beside caring for my mom until her death (9 years after the brain surgery she died of a heart attack) I also cared for a family friend a few years after that that had brain cancer. Happenstantially in the same area of the brain as my mom's aneurysm. So her starting symptoms were the same as some of my mom's.. that's how we got her to the hospital for tests so early that the cancer didn't even show in the scans for weeks. She was also on Dilantin and Phenobarbital.

With how much affect the thyroid hormones have on so many functions in our body.. I really wonder about how it affects our brains. Most of us seem to have a higher than average IQ. Most of us seem to be artistic or creative in some way. And we are all seeking to increase our knowledge.... What makes us so curious and despite all our issues with brain fog and fatigue and pain that we are still willing to seek information and sit for hours at the computer and at libraries researching?

If there are no objections from the group, I hope that we can explore this a bit... otherwise, Sheila.. you and I can go off list and continue.

Topper ()

On Wed, 18 Aug 2004 19:02:20 -0500 "Sheila McLaughlin" writes:

Oh Topper..... your as curious as me.

Don't worry about the questions, its OK.

Hope everyone forgives the off topic for a bit.

I had my first seizure when I was 23. The Neurologist said the right combination of triggers "happening" that day bought the Grand Mal out. Lack of sleep, had a baby 3 months earlier, hunger from dieting and the heat in gym was soooo bad that day (working a Fish Booth for my kids school). On top of that I was nursing (not while working the booth <smile>). I bad a full blown Grand Mal and was told later I really freaked the Principal out because he could not get a heart beat or pulse on me.

I hit my head so hard I was unconscious for 3 hours and woke up with partial amnesia. (Knew what my house looked like but did not know where it was. Knew I had 3 kids but could not remember their names)

After a ride to the hospital in an ambulance I don't remember, I underwent a weeks worth of testing, awful testing.... Angiogram from hell, I was told I had Epilepsy. He said some people with Epilepsy go all their life with no real diagnosis, but in my case he said too many trigger conditions going on at the same time is what brought on the intense seizure.

Since I was a child I passed out periodically. Doctors would say..."well you are a little anemic" but they were puzzled. My teachers often complained to my mom that I was an incessant day dreamer. I tried like hell as a kid to stop day dreaming but could not control it.

But that day I was working the "Fish Booth" I got all my answers.

The thyroid problem (low thyroid) did not pop up until I was 35 and since my mom was Hypo it didn't surprise me.

I never took it seriously but always took my meds and felt fine. The worst thing I had to deal with was trying to be "normal". You see I looked really healthy and since my meds controlled the grand mals, I didn't have to tell anyone that I had Epilepsy unless I chose to.

I learned never to go over 3 hours without eating. I never drove if I didn't get a good nights sleep. I would just say my husband needed the car so he dropped me off. I always had built in excuses to protect the Epilepsy. People are uncomfortable when they find out, so life is easier if I keep it to myself.

Now I'd give anything for a good nights sleep but I think it was easy back then because Phenobarbital was in the Dilantin that I was taking. It was a combination of Dilantin and Phenobarbital.... heck I fell asleep reading, eating -- back then I had a hard time staying awake.

Now...

My brain does race at night. I rarely experience good sleep.

I've tried going to bed at the same time but that is torture to just lay there and panic over bills, etc. Amazing where the mind goes at night. I drink Sleepy Time Tea, I meditate, I take Ambien....

Geographic Tongue...

About 2 years ago my tongue started burning, then I started noticing blisters on my tongue.

I was told by a Doctor that no one know what Geographic tongue really is but it gets its name from the fact that the blisters leave your tongue looking like a map of the continents. Boy is that Scientific or what??

I keep my tongue from looking too terrible by taking B-Complex, certain amino acids, Willard Water and Vitamin O (oxygen saturated water). Most Doctors who see it say mine looks better than most who have it. My regimen also helps with the pain and burning.

I eat better than most people with Epilepsy and attribute that to my great seizure control. Before I started eating "right" I use to have grand mals and could rarely go 9 months without one. After I started trying to feed my kids better, I noticed that I was doing better. I went to the Library and started learning all I could about nutrition and in the process gained a lot more control over the Epilepsy. So much of what we eat (and don't eat) affects our brain chemistry.

sheila

[Guest guest]

You've triggered some memories in me. I was care giver for my mom. She had a gran mall seizure that was triggered by a brain aneurysm. Then had brain surgery to put a clip on the aneurysm so that it wouldn't blow, it had been leaking for at least two weeks.

She was on Dilantin, Phenobarbital, and took something that I think is the same as what you are also taking but it was called heavy water, H2O2... it was to increase the oxygen level of the blood to help relieve pain.

I also suspect that she had thyroid problems most of her life. But was never diagnosed.

So, back to you. What tests have they run on you so far for the thyroid stuff? Can you post the lab results and ranges?

I have a fascination on how the brain works, beside caring for my mom until her death (9 years after the brain surgery she died of a heart attack) I also cared for a family friend a few years after that that had brain cancer. Happenstantially in the same area of the brain as my mom's aneurysm. So her starting symptoms were the same as some of my mom's.. that's how we got her to the hospital for tests so early that the cancer didn't even show in the scans for weeks. She was also on Dilantin and Phenobarbital.

With how much affect the thyroid hormones have on so many functions in our body.. I really wonder about how it affects our brains. Most of us seem to have a higher than average IQ. Most of us seem to be artistic or creative in some way. And we are all seeking to increase our knowledge.... What makes us so curious and despite all our issues with brain fog and fatigue and pain that we are still willing to seek information and sit for hours at the computer and at libraries researching?

If there are no objections from the group, I hope that we can explore this a bit... otherwise, Sheila.. you and I can go off list and continue.

Topper ()

On Wed, 18 Aug 2004 19:02:20 -0500 "Sheila McLaughlin" writes:

Oh Topper..... your as curious as me.

Don't worry about the questions, its OK.

Hope everyone forgives the off topic for a bit.

I had my first seizure when I was 23. The Neurologist said the right combination of triggers "happening" that day bought the Grand Mal out. Lack of sleep, had a baby 3 months earlier, hunger from dieting and the heat in gym was soooo bad that day (working a Fish Booth for my kids school). On top of that I was nursing (not while working the booth <smile>). I bad a full blown Grand Mal and was told later I really freaked the Principal out because he could not get a heart beat or pulse on me.

I hit my head so hard I was unconscious for 3 hours and woke up with partial amnesia. (Knew what my house looked like but did not know where it was. Knew I had 3 kids but could not remember their names)

After a ride to the hospital in an ambulance I don't remember, I underwent a weeks worth of testing, awful testing.... Angiogram from hell, I was told I had Epilepsy. He said some people with Epilepsy go all their life with no real diagnosis, but in my case he said too many trigger conditions going on at the same time is what brought on the intense seizure.

Since I was a child I passed out periodically. Doctors would say..."well you are a little anemic" but they were puzzled. My teachers often complained to my mom that I was an incessant day dreamer. I tried like hell as a kid to stop day dreaming but could not control it.

But that day I was working the "Fish Booth" I got all my answers.

The thyroid problem (low thyroid) did not pop up until I was 35 and since my mom was Hypo it didn't surprise me.

I never took it seriously but always took my meds and felt fine. The worst thing I had to deal with was trying to be "normal". You see I looked really healthy and since my meds controlled the grand mals, I didn't have to tell anyone that I had Epilepsy unless I chose to.

I learned never to go over 3 hours without eating. I never drove if I didn't get a good nights sleep. I would just say my husband needed the car so he dropped me off. I always had built in excuses to protect the Epilepsy. People are uncomfortable when they find out, so life is easier if I keep it to myself.

Now I'd give anything for a good nights sleep but I think it was easy back then because Phenobarbital was in the Dilantin that I was taking. It was a combination of Dilantin and Phenobarbital.... heck I fell asleep reading, eating -- back then I had a hard time staying awake.

Now...

My brain does race at night. I rarely experience good sleep.

I've tried going to bed at the same time but that is torture to just lay there and panic over bills, etc. Amazing where the mind goes at night. I drink Sleepy Time Tea, I meditate, I take Ambien....

Geographic Tongue...

About 2 years ago my tongue started burning, then I started noticing blisters on my tongue.

I was told by a Doctor that no one know what Geographic tongue really is but it gets its name from the fact that the blisters leave your tongue looking like a map of the continents. Boy is that Scientific or what??

I keep my tongue from looking too terrible by taking B-Complex, certain amino acids, Willard Water and Vitamin O (oxygen saturated water). Most Doctors who see it say mine looks better than most who have it. My regimen also helps with the pain and burning.

I eat better than most people with Epilepsy and attribute that to my great seizure control. Before I started eating "right" I use to have grand mals and could rarely go 9 months without one. After I started trying to feed my kids better, I noticed that I was doing better. I went to the Library and started learning all I could about nutrition and in the process gained a lot more control over the Epilepsy. So much of what we eat (and don't eat) affects our brain chemistry.

sheila

[Guest guest]

Hi !

I was tested for Lupus and that came out negative. I have not actually been told what I have only that I have a Thyroid Autoimmune problem. I did have more blood work done and an ultra sound this week. I am waiting for Endo to call me with results. I did request getting on something other than Synthroid, so we shall see what he suggest. The Doctor that tested me for Lupus told me that my autoimmune problem involved the Thyroid gland and for me to go straight to the Endo.

The blisters are on the tongue. It started out as just a sore tongue, then as time went on it burned. Then... I thought I had burned it, but realized that it was starting to blister on its own. My tongue is the only place that has blisters (thank God!). It gets better than all of a sudden it flares up again.

Well, its late. I will try to sleep.

sheila

Re: Epilepsy, thyroid and adrenal

Hi Sheila,

Please don't attack me.. I'm offering this as a topic for us all to discuss... I'm not real familiar with Epilepsy, so if my thinking is off please tell me, okay?

We know that thyroid balance being off affects all aspects of the glandular activity of the body. It can really mess stuff up and it doesn't seem to affect everyone in the same way.

Can you give us a Epilepsy for Dummies explanation of it and let us relate it to what we all know of the effects of thyroid imbalance?

I'm not saying that it is related. But it's new for us to have someone here with that condition in the mix so it might be better if we could get a basic understanding.

Sleep patterns... Again, with the Epilepsy in the mix this may not apply, but the symptoms that you have listed sound very much like adrenal fatigue...

I'm gonna be shooting a bunch of questions.. if I'm crossing the line, tell me to shush!

Do you have the same 'go to bed' and 'get up' times everyday? When you lay down to sleep, do you feel tire with a racing brain? Is your body tired but restless? Do you feel too 'wired' to relax?

Do you toss and turn when you sleep?

One of the things that are affected by adrenal fatigue is the inability to get into level four sleep. The deep restorative sleep that we all need to heal and grow. Yep adults grow too, you grow bone, cartilage, skin.. everything that is damaged or worn during our waking hours is repaired when we go into a normal deep, natural sleep.

Some of this will be affected by your sleep med.. but, do you dream or have nightmares? One of the biggest things for me when I got my adrenal situation under control is that my dreams returned. My absolute clue that I was finally getting into level four sleep. That's when our brains repair themselves to. Dreams are what our brains due when they are doing their own self checks.... that is why I'm curious about Epilepsy. That, I think, involves bad firing of electrical circuits??? and you mentioned that lack of sleep increases your likelihood of having a seizure...

So... communal minds... what thoughts do you have about how the three may affect each other (low thyroid, adrenal fatigue and Epilepsy)?

I'd like to explore your sleep a bit more, if that's okay... I tried a few different things over the years that made my sleep a bit better.... then the adrenal support and adjusting how I took my thyroid was the final trick to get it working right again. (When there isn't a TV blaring in the next room, that is! hehehehehe). It's absolutely unreal what a difference a good night's sleep makes!

I'm one of the strange folks, I think. When I picked up a prescription I opened the bottle while still at the counter to check the pills. To make sure that they were to correct brand and dose. If that was okay, then I'd go out to the care and read the inserts and any paperwork that came with them.... If I had a question then I'd go right back in and ask. It happened twice, I think that was all, when I was given the wrong dose of thyroid (Synthroid) and it happened quite a few times that prescriptions were messed up for meds that I picked up for either of the women that I was care giver for or my dad's meds. I learned to be very careful with that.

Now I get my meds by mail. When I got my first bottle of Natural thyroid from Mexico I got on the manufacturer's web site to match the pills in the bottle to the pictures on the web site. They matched for markings, size and color.... Now, when I open a new bottle I check the new pills against the last pill from the previous bottle. Making sure that they match for color, markings and size.

I'm a chicken shit that way... I have to make sure before I swallow it.

Don't worry about being long winded, we learn from each other here. I have a feeling that you will be throwing some knew concepts into this mix - thyroid and how it affects us. You'll have a bit of a different insight, too, with your experience with the Epilepsy and I'm thinking a bit more knowledge about brain chemistry and activity?

What is a Geographic tongue? I've never heard that term.

I learn so much by being here and talking to all of you guys... it's helped me a LOT!

Topper ()

On Wed, 18 Aug 2004 13:40:19 -0500 "Sheila McLaughlin" writes:

You ask....Tell us a bit about your sleep patterns.... Do you go to sleep right away? Sleep through the night? Wake feeling rested? or ??????

I have to take Ambien to force myself to sleep. I am so tired of laying in bed and hoping to fall asleep. I wake up feeling terrible. So I hate the bedroom....

Sleeping is important for me because lack of sleep is one of my triggers for a seizure. I have Epilepsy.

I have almost 100% seizure control with my Epilepsy medication. Of course, I have to avoid the things that trigger a seizure.

I suspect that the Lamictal I was on started the immune problem.

My first symptoms were so server I could care less if I dropped dead.

I decided to go back and check the warning on my Lamictal pharmacy brochure over the internet. Sure enough they had an update... "Lupus like symptoms" warning which said if you experience these symptoms stop taking and see Doctor right away.

They were the same symptoms I was complaining about to any doctor that would listen. Not a one checked the latest news on any of my medications.

I had been taking the Lamictal for over 4 years when I read my symptoms on the brochure. Blew my mind !! Once I told the Doctor I suspected the Lamictal is affecting my joints and pointed out to the doctor what the drug company said, he tested for Lupus. I don't have Lupus but the test showed Thyroid Peroxidase antibodies in my blood.

After I got off the Lamictal my joint swelling went down within 3 weeks. I could actually walk from the front of the house to the back without stopping on the sofa for a rest.

I am now taking Neurontin for seizure control, it does a good job, and so far, no side effects.

I always read the pharmacy brochure when I get put on a new Rx and that warning was not there when I started taking it. While I was in pain and looking for answers, I checked to see when they updated that info. In the year 2000 they updated the warning on the Rx, but I was never told by Eckerds (my pharmacy). If I had been informed, I would have saved myself 2 more years of hell and damage from Lamictal.

The doctors had no clue what was going wrong, they blew me off. Even though I was limping, could barely think and looked like I died and forgot to fall.

When I get more of my "brain power" back, I am going to do something about that.

Most people don't read the pharmacy drug brochure, but I do. I love Chemistry and realize I am not your average person... do they figure people don't read it so why inform people??

There is a part of me that knows the damage Lamictal did created the problem, but I am more upset that I was never told that the brochure was amended with a new symptom warning.

Sorry to have gone on about this but I have been curious if there are any others out there that has suffered autoimmune problems due to Lamictal.

I am also left with a Geographic tongue. Anyone else have that problem??

You guys deserve an award for waking up every day and wanting to help others.

The only time I felt this bad was right after a seizure and only if I hit my head so hard that I had a concussion. I knew it would pass so I never had pity parties.

This does not pass -- I am ssooo impressed with you guys.

sheila

[Guest guest]

Hi !

I was tested for Lupus and that came out negative. I have not actually been told what I have only that I have a Thyroid Autoimmune problem. I did have more blood work done and an ultra sound this week. I am waiting for Endo to call me with results. I did request getting on something other than Synthroid, so we shall see what he suggest. The Doctor that tested me for Lupus told me that my autoimmune problem involved the Thyroid gland and for me to go straight to the Endo.

The blisters are on the tongue. It started out as just a sore tongue, then as time went on it burned. Then... I thought I had burned it, but realized that it was starting to blister on its own. My tongue is the only place that has blisters (thank God!). It gets better than all of a sudden it flares up again.

Well, its late. I will try to sleep.

sheila

Re: Epilepsy, thyroid and adrenal

Hi Sheila,

Please don't attack me.. I'm offering this as a topic for us all to discuss... I'm not real familiar with Epilepsy, so if my thinking is off please tell me, okay?

We know that thyroid balance being off affects all aspects of the glandular activity of the body. It can really mess stuff up and it doesn't seem to affect everyone in the same way.

Can you give us a Epilepsy for Dummies explanation of it and let us relate it to what we all know of the effects of thyroid imbalance?

I'm not saying that it is related. But it's new for us to have someone here with that condition in the mix so it might be better if we could get a basic understanding.

Sleep patterns... Again, with the Epilepsy in the mix this may not apply, but the symptoms that you have listed sound very much like adrenal fatigue...

I'm gonna be shooting a bunch of questions.. if I'm crossing the line, tell me to shush!

Do you have the same 'go to bed' and 'get up' times everyday? When you lay down to sleep, do you feel tire with a racing brain? Is your body tired but restless? Do you feel too 'wired' to relax?

Do you toss and turn when you sleep?

One of the things that are affected by adrenal fatigue is the inability to get into level four sleep. The deep restorative sleep that we all need to heal and grow. Yep adults grow too, you grow bone, cartilage, skin.. everything that is damaged or worn during our waking hours is repaired when we go into a normal deep, natural sleep.

Some of this will be affected by your sleep med.. but, do you dream or have nightmares? One of the biggest things for me when I got my adrenal situation under control is that my dreams returned. My absolute clue that I was finally getting into level four sleep. That's when our brains repair themselves to. Dreams are what our brains due when they are doing their own self checks.... that is why I'm curious about Epilepsy. That, I think, involves bad firing of electrical circuits??? and you mentioned that lack of sleep increases your likelihood of having a seizure...

So... communal minds... what thoughts do you have about how the three may affect each other (low thyroid, adrenal fatigue and Epilepsy)?

I'd like to explore your sleep a bit more, if that's okay... I tried a few different things over the years that made my sleep a bit better.... then the adrenal support and adjusting how I took my thyroid was the final trick to get it working right again. (When there isn't a TV blaring in the next room, that is! hehehehehe). It's absolutely unreal what a difference a good night's sleep makes!

I'm one of the strange folks, I think. When I picked up a prescription I opened the bottle while still at the counter to check the pills. To make sure that they were to correct brand and dose. If that was okay, then I'd go out to the care and read the inserts and any paperwork that came with them.... If I had a question then I'd go right back in and ask. It happened twice, I think that was all, when I was given the wrong dose of thyroid (Synthroid) and it happened quite a few times that prescriptions were messed up for meds that I picked up for either of the women that I was care giver for or my dad's meds. I learned to be very careful with that.

Now I get my meds by mail. When I got my first bottle of Natural thyroid from Mexico I got on the manufacturer's web site to match the pills in the bottle to the pictures on the web site. They matched for markings, size and color.... Now, when I open a new bottle I check the new pills against the last pill from the previous bottle. Making sure that they match for color, markings and size.

I'm a chicken shit that way... I have to make sure before I swallow it.

Don't worry about being long winded, we learn from each other here. I have a feeling that you will be throwing some knew concepts into this mix - thyroid and how it affects us. You'll have a bit of a different insight, too, with your experience with the Epilepsy and I'm thinking a bit more knowledge about brain chemistry and activity?

What is a Geographic tongue? I've never heard that term.

I learn so much by being here and talking to all of you guys... it's helped me a LOT!

Topper ()

On Wed, 18 Aug 2004 13:40:19 -0500 "Sheila McLaughlin" writes:

You ask....Tell us a bit about your sleep patterns.... Do you go to sleep right away? Sleep through the night? Wake feeling rested? or ??????

I have to take Ambien to force myself to sleep. I am so tired of laying in bed and hoping to fall asleep. I wake up feeling terrible. So I hate the bedroom....

Sleeping is important for me because lack of sleep is one of my triggers for a seizure. I have Epilepsy.

I have almost 100% seizure control with my Epilepsy medication. Of course, I have to avoid the things that trigger a seizure.

I suspect that the Lamictal I was on started the immune problem.

My first symptoms were so server I could care less if I dropped dead.

I decided to go back and check the warning on my Lamictal pharmacy brochure over the internet. Sure enough they had an update... "Lupus like symptoms" warning which said if you experience these symptoms stop taking and see Doctor right away.

They were the same symptoms I was complaining about to any doctor that would listen. Not a one checked the latest news on any of my medications.

I had been taking the Lamictal for over 4 years when I read my symptoms on the brochure. Blew my mind !! Once I told the Doctor I suspected the Lamictal is affecting my joints and pointed out to the doctor what the drug company said, he tested for Lupus. I don't have Lupus but the test showed Thyroid Peroxidase antibodies in my blood.

After I got off the Lamictal my joint swelling went down within 3 weeks. I could actually walk from the front of the house to the back without stopping on the sofa for a rest.

I am now taking Neurontin for seizure control, it does a good job, and so far, no side effects.

I always read the pharmacy brochure when I get put on a new Rx and that warning was not there when I started taking it. While I was in pain and looking for answers, I checked to see when they updated that info. In the year 2000 they updated the warning on the Rx, but I was never told by Eckerds (my pharmacy). If I had been informed, I would have saved myself 2 more years of hell and damage from Lamictal.

The doctors had no clue what was going wrong, they blew me off. Even though I was limping, could barely think and looked like I died and forgot to fall.

When I get more of my "brain power" back, I am going to do something about that.

Most people don't read the pharmacy drug brochure, but I do. I love Chemistry and realize I am not your average person... do they figure people don't read it so why inform people??

There is a part of me that knows the damage Lamictal did created the problem, but I am more upset that I was never told that the brochure was amended with a new symptom warning.

Sorry to have gone on about this but I have been curious if there are any others out there that has suffered autoimmune problems due to Lamictal.

I am also left with a Geographic tongue. Anyone else have that problem??

You guys deserve an award for waking up every day and wanting to help others.

The only time I felt this bad was right after a seizure and only if I hit my head so hard that I had a concussion. I knew it would pass so I never had pity parties.

This does not pass -- I am ssooo impressed with you guys.

sheila

[Guest guest]

Hi !

I was tested for Lupus and that came out negative. I have not actually been told what I have only that I have a Thyroid Autoimmune problem. I did have more blood work done and an ultra sound this week. I am waiting for Endo to call me with results. I did request getting on something other than Synthroid, so we shall see what he suggest. The Doctor that tested me for Lupus told me that my autoimmune problem involved the Thyroid gland and for me to go straight to the Endo.

The blisters are on the tongue. It started out as just a sore tongue, then as time went on it burned. Then... I thought I had burned it, but realized that it was starting to blister on its own. My tongue is the only place that has blisters (thank God!). It gets better than all of a sudden it flares up again.

Well, its late. I will try to sleep.

sheila

Re: Epilepsy, thyroid and adrenal

Hi Sheila,

Please don't attack me.. I'm offering this as a topic for us all to discuss... I'm not real familiar with Epilepsy, so if my thinking is off please tell me, okay?

We know that thyroid balance being off affects all aspects of the glandular activity of the body. It can really mess stuff up and it doesn't seem to affect everyone in the same way.

Can you give us a Epilepsy for Dummies explanation of it and let us relate it to what we all know of the effects of thyroid imbalance?

I'm not saying that it is related. But it's new for us to have someone here with that condition in the mix so it might be better if we could get a basic understanding.

Sleep patterns... Again, with the Epilepsy in the mix this may not apply, but the symptoms that you have listed sound very much like adrenal fatigue...

I'm gonna be shooting a bunch of questions.. if I'm crossing the line, tell me to shush!

Do you have the same 'go to bed' and 'get up' times everyday? When you lay down to sleep, do you feel tire with a racing brain? Is your body tired but restless? Do you feel too 'wired' to relax?

Do you toss and turn when you sleep?

One of the things that are affected by adrenal fatigue is the inability to get into level four sleep. The deep restorative sleep that we all need to heal and grow. Yep adults grow too, you grow bone, cartilage, skin.. everything that is damaged or worn during our waking hours is repaired when we go into a normal deep, natural sleep.

Some of this will be affected by your sleep med.. but, do you dream or have nightmares? One of the biggest things for me when I got my adrenal situation under control is that my dreams returned. My absolute clue that I was finally getting into level four sleep. That's when our brains repair themselves to. Dreams are what our brains due when they are doing their own self checks.... that is why I'm curious about Epilepsy. That, I think, involves bad firing of electrical circuits??? and you mentioned that lack of sleep increases your likelihood of having a seizure...

So... communal minds... what thoughts do you have about how the three may affect each other (low thyroid, adrenal fatigue and Epilepsy)?

I'd like to explore your sleep a bit more, if that's okay... I tried a few different things over the years that made my sleep a bit better.... then the adrenal support and adjusting how I took my thyroid was the final trick to get it working right again. (When there isn't a TV blaring in the next room, that is! hehehehehe). It's absolutely unreal what a difference a good night's sleep makes!

I'm one of the strange folks, I think. When I picked up a prescription I opened the bottle while still at the counter to check the pills. To make sure that they were to correct brand and dose. If that was okay, then I'd go out to the care and read the inserts and any paperwork that came with them.... If I had a question then I'd go right back in and ask. It happened twice, I think that was all, when I was given the wrong dose of thyroid (Synthroid) and it happened quite a few times that prescriptions were messed up for meds that I picked up for either of the women that I was care giver for or my dad's meds. I learned to be very careful with that.

Now I get my meds by mail. When I got my first bottle of Natural thyroid from Mexico I got on the manufacturer's web site to match the pills in the bottle to the pictures on the web site. They matched for markings, size and color.... Now, when I open a new bottle I check the new pills against the last pill from the previous bottle. Making sure that they match for color, markings and size.

I'm a chicken shit that way... I have to make sure before I swallow it.

Don't worry about being long winded, we learn from each other here. I have a feeling that you will be throwing some knew concepts into this mix - thyroid and how it affects us. You'll have a bit of a different insight, too, with your experience with the Epilepsy and I'm thinking a bit more knowledge about brain chemistry and activity?

What is a Geographic tongue? I've never heard that term.

I learn so much by being here and talking to all of you guys... it's helped me a LOT!

Topper ()

On Wed, 18 Aug 2004 13:40:19 -0500 "Sheila McLaughlin" writes:

You ask....Tell us a bit about your sleep patterns.... Do you go to sleep right away? Sleep through the night? Wake feeling rested? or ??????

I have to take Ambien to force myself to sleep. I am so tired of laying in bed and hoping to fall asleep. I wake up feeling terrible. So I hate the bedroom....

Sleeping is important for me because lack of sleep is one of my triggers for a seizure. I have Epilepsy.

I have almost 100% seizure control with my Epilepsy medication. Of course, I have to avoid the things that trigger a seizure.

I suspect that the Lamictal I was on started the immune problem.

My first symptoms were so server I could care less if I dropped dead.

I decided to go back and check the warning on my Lamictal pharmacy brochure over the internet. Sure enough they had an update... "Lupus like symptoms" warning which said if you experience these symptoms stop taking and see Doctor right away.

They were the same symptoms I was complaining about to any doctor that would listen. Not a one checked the latest news on any of my medications.

I had been taking the Lamictal for over 4 years when I read my symptoms on the brochure. Blew my mind !! Once I told the Doctor I suspected the Lamictal is affecting my joints and pointed out to the doctor what the drug company said, he tested for Lupus. I don't have Lupus but the test showed Thyroid Peroxidase antibodies in my blood.

After I got off the Lamictal my joint swelling went down within 3 weeks. I could actually walk from the front of the house to the back without stopping on the sofa for a rest.

I am now taking Neurontin for seizure control, it does a good job, and so far, no side effects.

I always read the pharmacy brochure when I get put on a new Rx and that warning was not there when I started taking it. While I was in pain and looking for answers, I checked to see when they updated that info. In the year 2000 they updated the warning on the Rx, but I was never told by Eckerds (my pharmacy). If I had been informed, I would have saved myself 2 more years of hell and damage from Lamictal.

The doctors had no clue what was going wrong, they blew me off. Even though I was limping, could barely think and looked like I died and forgot to fall.

When I get more of my "brain power" back, I am going to do something about that.

Most people don't read the pharmacy drug brochure, but I do. I love Chemistry and realize I am not your average person... do they figure people don't read it so why inform people??

There is a part of me that knows the damage Lamictal did created the problem, but I am more upset that I was never told that the brochure was amended with a new symptom warning.

Sorry to have gone on about this but I have been curious if there are any others out there that has suffered autoimmune problems due to Lamictal.

I am also left with a Geographic tongue. Anyone else have that problem??

You guys deserve an award for waking up every day and wanting to help others.

The only time I felt this bad was right after a seizure and only if I hit my head so hard that I had a concussion. I knew it would pass so I never had pity parties.

This does not pass -- I am ssooo impressed with you guys.

sheila

[Guest guest]

No objection from me!

One question though. I thought H2O2 was hydrogen peroxide? Of course I'm confused now.

who is very interested in this discussion! On the road to retirement? Check out MSN Life Events for advice on how to get there!

[Guest guest]

This is not Peroxide. Vitamin O is a Solution that has

been " saturated " with Oxygen.

That means they created an environment where they were able to put

more Oxygen in the water that normal. A solution that has been

saturated is one that has more of " something " than would be there

normally.

Been a long time since I explained this concept but the process is

similar. Remember in Chemistry Lab heating water to get salt to

dissolve and then when you cooled the water down salt (NaCl) fell

out of solution.

Same basic concept.

What falls out is call the precipitate.

Well the oxygen would be the precipitate in this case.

Here is a reminder of your chem lab ...

http://www.infoplease.com/ce6/sci/A0840034.html

(Hope I didn't bring up bad memories.)

sheila

>

[Guest guest]

This is not Peroxide. Vitamin O is a Solution that has

been " saturated " with Oxygen.

That means they created an environment where they were able to put

more Oxygen in the water that normal. A solution that has been

saturated is one that has more of " something " than would be there

normally.

Been a long time since I explained this concept but the process is

similar. Remember in Chemistry Lab heating water to get salt to

dissolve and then when you cooled the water down salt (NaCl) fell

out of solution.

Same basic concept.

What falls out is call the precipitate.

Well the oxygen would be the precipitate in this case.

Here is a reminder of your chem lab ...

http://www.infoplease.com/ce6/sci/A0840034.html

(Hope I didn't bring up bad memories.)

sheila

>

[Guest guest]

This is not Peroxide. Vitamin O is a Solution that has

been " saturated " with Oxygen.

That means they created an environment where they were able to put

more Oxygen in the water that normal. A solution that has been

saturated is one that has more of " something " than would be there

normally.

Been a long time since I explained this concept but the process is

similar. Remember in Chemistry Lab heating water to get salt to

dissolve and then when you cooled the water down salt (NaCl) fell

out of solution.

Same basic concept.

What falls out is call the precipitate.

Well the oxygen would be the precipitate in this case.

Here is a reminder of your chem lab ...

http://www.infoplease.com/ce6/sci/A0840034.html

(Hope I didn't bring up bad memories.)

sheila

>

[Guest guest]

I can't remember the chemical formulation of hydrogen peroxide.. the stuff that my mom was taking was water, with an extra oxygen molecule to it... it does not fizz when in contact with skin or anything... she took several drops in water or juice and then chugged it down. The theory was the extra oxygen was pulled off and absorbed into the blood, increasing oxygenation and all the benefits that are tied with that.

I'd never known anyone else that did it.

We still have a bottle of it in the freezer, it does not freeze, it remains liquid... and mom has been gone since '91...

I think the understanding of how thyroid affects brain chemistry could benefit a lot of us.. We do know that low hormone contributes to the brain fog (and farts) that many of us deal with. Mine has gotten a LOT better in the last year... so I know that there can be improvement... I just don't know to what extent thyroid levels affect the electro chemical health of the brain..... I'm also fascinated by the high IQ levels that I've been seeing among us... is there any kind of a link there? or is it just that the ones that do show up seeking to learn are those than have higher IQs and the average folks dont' go the extra step?

Has any body else dug into this much at all?

Topper ()

On Thu, 19 Aug 2004 16:58:34 -0400 " Lambert" writes:

No objection from me!

One question though. I thought H2O2 was hydrogen peroxide? Of course I'm confused now.

who is very interested in this discussion!

[Guest guest]

I can't remember the chemical formulation of hydrogen peroxide.. the stuff that my mom was taking was water, with an extra oxygen molecule to it... it does not fizz when in contact with skin or anything... she took several drops in water or juice and then chugged it down. The theory was the extra oxygen was pulled off and absorbed into the blood, increasing oxygenation and all the benefits that are tied with that.

I'd never known anyone else that did it.

We still have a bottle of it in the freezer, it does not freeze, it remains liquid... and mom has been gone since '91...

I think the understanding of how thyroid affects brain chemistry could benefit a lot of us.. We do know that low hormone contributes to the brain fog (and farts) that many of us deal with. Mine has gotten a LOT better in the last year... so I know that there can be improvement... I just don't know to what extent thyroid levels affect the electro chemical health of the brain..... I'm also fascinated by the high IQ levels that I've been seeing among us... is there any kind of a link there? or is it just that the ones that do show up seeking to learn are those than have higher IQs and the average folks dont' go the extra step?

Has any body else dug into this much at all?

Topper ()

On Thu, 19 Aug 2004 16:58:34 -0400 " Lambert" writes:

No objection from me!

One question though. I thought H2O2 was hydrogen peroxide? Of course I'm confused now.

who is very interested in this discussion!

[Guest guest]

Oh that is interesting.

It does freeze but it freezes at a lower temperature than water. Now don't go trying to lower your freezer temperature.... but if you do, be sure to collect the data <smile>.

Topper you would be very interested in what a few seizures did for my brain.

I became more and more interested in Science, particularly Chemistry, with each seizure.

I felt my brain was being rewired leaving me very curious about all sorts of new stuff. I felt my IQ being raised. I was starting to comprehend really difficult material. It was so interesting.

If this brain fog leaves behind some sort of brain damage, as seizures do, then our brains are being "rewired".

Neurons will find another path when they encounter a damaged area and they will keep taking that same path until it is permanently rewired.

I wander about that "brain fog" and what it did to me when it was at its worst.

I can't stop creating stuff.... cigar box purses, jewelry, totes, polymer clay..... I feel so creative I could pop !

This happened in the middle of my brain fog. I barely had the energy to make a purse but felt driven. Heck, I sold one of my purses on Ebay for $100.00. It was a neat Mardi Gras purse.... I'm from New Orleans so I really got into it.

My house is a mess because I have a different project going in every room.

Am I alone in this ???

sheila

Re: Epilepsy, thyroid and adrenal

I can't remember the chemical formulation of hydrogen peroxide.. the stuff that my mom was taking was water, with an extra oxygen molecule to it... it does not fizz when in contact with skin or anything... she took several drops in water or juice and then chugged it down. The theory was the extra oxygen was pulled off and absorbed into the blood, increasing oxygenation and all the benefits that are tied with that.

I'd never known anyone else that did it.

We still have a bottle of it in the freezer, it does not freeze, it remains liquid... and mom has been gone since '91...

I think the understanding of how thyroid affects brain chemistry could benefit a lot of us.. We do know that low hormone contributes to the brain fog (and farts) that many of us deal with. Mine has gotten a LOT better in the last year... so I know that there can be improvement... I just don't know to what extent thyroid levels affect the electro chemical health of the brain..... I'm also fascinated by the high IQ levels that I've been seeing among us... is there any kind of a link there? or is it just that the ones that do show up seeking to learn are those than have higher IQs and the average folks dont' go the extra step?

Has any body else dug into this much at all?

Topper ()

On Thu, 19 Aug 2004 16:58:34 -0400 " Lambert" writes:

No objection from me!

One question though. I thought H2O2 was hydrogen peroxide? Of course I'm confused now.

who is very interested in this discussion!

[Guest guest]

Oh that is interesting.

It does freeze but it freezes at a lower temperature than water. Now don't go trying to lower your freezer temperature.... but if you do, be sure to collect the data <smile>.

Topper you would be very interested in what a few seizures did for my brain.

I became more and more interested in Science, particularly Chemistry, with each seizure.

I felt my brain was being rewired leaving me very curious about all sorts of new stuff. I felt my IQ being raised. I was starting to comprehend really difficult material. It was so interesting.

If this brain fog leaves behind some sort of brain damage, as seizures do, then our brains are being "rewired".

Neurons will find another path when they encounter a damaged area and they will keep taking that same path until it is permanently rewired.

I wander about that "brain fog" and what it did to me when it was at its worst.

I can't stop creating stuff.... cigar box purses, jewelry, totes, polymer clay..... I feel so creative I could pop !

This happened in the middle of my brain fog. I barely had the energy to make a purse but felt driven. Heck, I sold one of my purses on Ebay for $100.00. It was a neat Mardi Gras purse.... I'm from New Orleans so I really got into it.

My house is a mess because I have a different project going in every room.

Am I alone in this ???

sheila

Re: Epilepsy, thyroid and adrenal

I can't remember the chemical formulation of hydrogen peroxide.. the stuff that my mom was taking was water, with an extra oxygen molecule to it... it does not fizz when in contact with skin or anything... she took several drops in water or juice and then chugged it down. The theory was the extra oxygen was pulled off and absorbed into the blood, increasing oxygenation and all the benefits that are tied with that.

I'd never known anyone else that did it.

We still have a bottle of it in the freezer, it does not freeze, it remains liquid... and mom has been gone since '91...

I think the understanding of how thyroid affects brain chemistry could benefit a lot of us.. We do know that low hormone contributes to the brain fog (and farts) that many of us deal with. Mine has gotten a LOT better in the last year... so I know that there can be improvement... I just don't know to what extent thyroid levels affect the electro chemical health of the brain..... I'm also fascinated by the high IQ levels that I've been seeing among us... is there any kind of a link there? or is it just that the ones that do show up seeking to learn are those than have higher IQs and the average folks dont' go the extra step?

Has any body else dug into this much at all?

Topper ()

On Thu, 19 Aug 2004 16:58:34 -0400 " Lambert" writes:

No objection from me!

One question though. I thought H2O2 was hydrogen peroxide? Of course I'm confused now.

who is very interested in this discussion!

[Guest guest]

Oh that is interesting.

It does freeze but it freezes at a lower temperature than water. Now don't go trying to lower your freezer temperature.... but if you do, be sure to collect the data <smile>.

Topper you would be very interested in what a few seizures did for my brain.

I became more and more interested in Science, particularly Chemistry, with each seizure.

I felt my brain was being rewired leaving me very curious about all sorts of new stuff. I felt my IQ being raised. I was starting to comprehend really difficult material. It was so interesting.

If this brain fog leaves behind some sort of brain damage, as seizures do, then our brains are being "rewired".

Neurons will find another path when they encounter a damaged area and they will keep taking that same path until it is permanently rewired.

I wander about that "brain fog" and what it did to me when it was at its worst.

I can't stop creating stuff.... cigar box purses, jewelry, totes, polymer clay..... I feel so creative I could pop !

This happened in the middle of my brain fog. I barely had the energy to make a purse but felt driven. Heck, I sold one of my purses on Ebay for $100.00. It was a neat Mardi Gras purse.... I'm from New Orleans so I really got into it.

My house is a mess because I have a different project going in every room.

Am I alone in this ???

sheila

Re: Epilepsy, thyroid and adrenal

I can't remember the chemical formulation of hydrogen peroxide.. the stuff that my mom was taking was water, with an extra oxygen molecule to it... it does not fizz when in contact with skin or anything... she took several drops in water or juice and then chugged it down. The theory was the extra oxygen was pulled off and absorbed into the blood, increasing oxygenation and all the benefits that are tied with that.

I'd never known anyone else that did it.

We still have a bottle of it in the freezer, it does not freeze, it remains liquid... and mom has been gone since '91...

I think the understanding of how thyroid affects brain chemistry could benefit a lot of us.. We do know that low hormone contributes to the brain fog (and farts) that many of us deal with. Mine has gotten a LOT better in the last year... so I know that there can be improvement... I just don't know to what extent thyroid levels affect the electro chemical health of the brain..... I'm also fascinated by the high IQ levels that I've been seeing among us... is there any kind of a link there? or is it just that the ones that do show up seeking to learn are those than have higher IQs and the average folks dont' go the extra step?

Has any body else dug into this much at all?

Topper ()

On Thu, 19 Aug 2004 16:58:34 -0400 " Lambert" writes:

No objection from me!

One question though. I thought H2O2 was hydrogen peroxide? Of course I'm confused now.

who is very interested in this discussion!

[Guest guest]

My house is a wreck, shucks, my whole life is crazy b/c I get so many irons in the fire. I'm not doing creative things, but I belong to a couple of boards and several organizations (not to mention this group) and have some technical projects going and other stuff. My family has always thought my sis was the 'smart' one, but everytime I do one of those iq tests online, I come up genius.

Blessings,

Debbie K.

-----Original Message-----From: Sheila McLaughlin

My house is a mess because I have a different project going in every room.

Am I alone in this ???

sheila

[Guest guest]

My house is a wreck, shucks, my whole life is crazy b/c I get so many irons in the fire. I'm not doing creative things, but I belong to a couple of boards and several organizations (not to mention this group) and have some technical projects going and other stuff. My family has always thought my sis was the 'smart' one, but everytime I do one of those iq tests online, I come up genius.

Blessings,

Debbie K.

-----Original Message-----From: Sheila McLaughlin

My house is a mess because I have a different project going in every room.

Am I alone in this ???

sheila

[Guest guest]

My house is a wreck, shucks, my whole life is crazy b/c I get so many irons in the fire. I'm not doing creative things, but I belong to a couple of boards and several organizations (not to mention this group) and have some technical projects going and other stuff. My family has always thought my sis was the 'smart' one, but everytime I do one of those iq tests online, I come up genius.

Blessings,

Debbie K.

-----Original Message-----From: Sheila McLaughlin

My house is a mess because I have a different project going in every room.

Am I alone in this ???

sheila

[Guest guest]

BRILLIANT!!!!

I get it. :-D Thank you Sheila................I got straight A's in chem lab!!

the nerdy LA chick

> >Reply-To: The_Thyroid_Support_Group >To: The_Thyroid_Support_Group >Subject: Re: Epilepsy, thyroid and adrenal >Date: Thu, 19 Aug 2004 21:39:46 -0000 > >This is not Peroxide. Vitamin O is a Solution that has >been "saturated" with Oxygen.

(snip of chem lab) Is your PC infected? Get a FREE online computer virus scan from McAfee® Security.

[Guest guest]

BRILLIANT!!!!

I get it. :-D Thank you Sheila................I got straight A's in chem lab!!

the nerdy LA chick

> >Reply-To: The_Thyroid_Support_Group >To: The_Thyroid_Support_Group >Subject: Re: Epilepsy, thyroid and adrenal >Date: Thu, 19 Aug 2004 21:39:46 -0000 > >This is not Peroxide. Vitamin O is a Solution that has >been "saturated" with Oxygen.

(snip of chem lab) Is your PC infected? Get a FREE online computer virus scan from McAfee® Security.