Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 Hello Sue I've been self treating for almost a year now because of the suffering I've been through at the hands of doctors in my area who know little or nothing about thyroid disease. I WILL say that I DO know more than the last 4 doctors I had, about THIS disease, and I stand by that whole heartedly. I may not know much about heart surgery, brain scans, or even thyroid scans, and that sort of thing, but my disease I have been FORCED into investigating and knowing. I am doing the exact opposite of what 4 doctors advised and would not do, and I'm now part of the living, not the walking (or should I say crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of these nightmarish experiences with this disease, I DO question MOST doctors on the sbjct, except for a small handful. After yrs of being on synthetic T4 meds, $ynthroid and Levoxyl both, I made the switch to Armour Thyroid, and I will NEVER regret it one little bit. Of course, I can't do my own scan or surgery, but you get the picture on the treatment program---it's my own, and I'm doing much better. Shomon???? > Hello all > > Both here and on the Internet I have seen several references to > Shomon. To be honest I am hesitant to get into her stuff because > what I saw seemed to question doctors, etc. While I plan to learn > all I can from Internet stuff, I am NOT going to put it instead of > or in place of what my doctor tells me to do! LOL one site said you > don't need a doctor but can just treat it yourself! My best friend > in Fort Lauderdale said she should have just flown up here and cut > the stuff out of my neck. > > BUT... after what my surgeon told me yesterday about my symptoms not > being related to the thyroid stuff (sheesh!) I am going to dig and > get the best info I can. Oops I am rambling... <G> Is anyone > familiar with Shomon before I go out and waste money on her > books? <G> > > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 Thanks ... I am glad you are doing so well! Perhaps too it partially makes a difference where we live -- those of us in cities known for advance medical studies and care might have different experiences than those who don't. I am NOT negating the experiences of those who have experiences such as yours. I am just saying that it is VERY dangerous in ANY case to advise people to go against the advice of their personal physicians... especially over the Internet to people we don't know. We have no idea what their other physical OR yes, mental, needs are. But I don't mean to stir things up... if that is the " general consensus " of this forum -- to ignore our doctors and treat ourselves -- perhaps I am just in the wrong forum, as I certainly don't mean/want to stir things up. Sue > Hello Sue > > I've been self treating for almost a year now because of the suffering I've > been through at the hands of doctors in my area who know little or nothing > about thyroid disease. I WILL say that I DO know more than the last 4 > doctors I had, about THIS disease, and I stand by that whole heartedly. I > may not know much about heart surgery, brain scans, or even thyroid scans, > and that sort of thing, but my disease I have been FORCED into investigating > and knowing. I am doing the exact opposite of what 4 doctors advised and > would not do, and I'm now part of the living, not the walking (or should I > say crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of these > nightmarish experiences with this disease, I DO question MOST doctors on the > sbjct, except for a small handful. After yrs of being on synthetic T4 meds, > $ynthroid and Levoxyl both, I made the switch to Armour Thyroid, and I will > NEVER regret it one little bit. Of course, I can't do my own scan or > surgery, but you get the picture on the treatment program---it's my own, and > I'm doing much better. > > > > > Shomon???? > > > > Hello all > > > > Both here and on the Internet I have seen several references to > > Shomon. To be honest I am hesitant to get into her stuff because > > what I saw seemed to question doctors, etc. While I plan to learn > > all I can from Internet stuff, I am NOT going to put it instead of > > or in place of what my doctor tells me to do! LOL one site said you > > don't need a doctor but can just treat it yourself! My best friend > > in Fort Lauderdale said she should have just flown up here and cut > > the stuff out of my neck. > > > > BUT... after what my surgeon told me yesterday about my symptoms not > > being related to the thyroid stuff (sheesh!) I am going to dig and > > get the best info I can. Oops I am rambling... <G> Is anyone > > familiar with Shomon before I go out and waste money on her > > books? <G> > > > > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 Thanks ... I am glad you are doing so well! Perhaps too it partially makes a difference where we live -- those of us in cities known for advance medical studies and care might have different experiences than those who don't. I am NOT negating the experiences of those who have experiences such as yours. I am just saying that it is VERY dangerous in ANY case to advise people to go against the advice of their personal physicians... especially over the Internet to people we don't know. We have no idea what their other physical OR yes, mental, needs are. But I don't mean to stir things up... if that is the " general consensus " of this forum -- to ignore our doctors and treat ourselves -- perhaps I am just in the wrong forum, as I certainly don't mean/want to stir things up. Sue > Hello Sue > > I've been self treating for almost a year now because of the suffering I've > been through at the hands of doctors in my area who know little or nothing > about thyroid disease. I WILL say that I DO know more than the last 4 > doctors I had, about THIS disease, and I stand by that whole heartedly. I > may not know much about heart surgery, brain scans, or even thyroid scans, > and that sort of thing, but my disease I have been FORCED into investigating > and knowing. I am doing the exact opposite of what 4 doctors advised and > would not do, and I'm now part of the living, not the walking (or should I > say crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of these > nightmarish experiences with this disease, I DO question MOST doctors on the > sbjct, except for a small handful. After yrs of being on synthetic T4 meds, > $ynthroid and Levoxyl both, I made the switch to Armour Thyroid, and I will > NEVER regret it one little bit. Of course, I can't do my own scan or > surgery, but you get the picture on the treatment program---it's my own, and > I'm doing much better. > > > > > Shomon???? > > > > Hello all > > > > Both here and on the Internet I have seen several references to > > Shomon. To be honest I am hesitant to get into her stuff because > > what I saw seemed to question doctors, etc. While I plan to learn > > all I can from Internet stuff, I am NOT going to put it instead of > > or in place of what my doctor tells me to do! LOL one site said you > > don't need a doctor but can just treat it yourself! My best friend > > in Fort Lauderdale said she should have just flown up here and cut > > the stuff out of my neck. > > > > BUT... after what my surgeon told me yesterday about my symptoms not > > being related to the thyroid stuff (sheesh!) I am going to dig and > > get the best info I can. Oops I am rambling... <G> Is anyone > > familiar with Shomon before I go out and waste money on her > > books? <G> > > > > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 I agree with you, .... docs that aren't familiar with this, and as common as it is they really should be... have caused me so much agony.... When I went in with a problem with my foot, so bad that I could not walk on it.... the doc said that it was Plantar Faciitis. He showed me some exercises, gave me a little plastic heal cup to put in my shoe. Told me how much Ibuprohem I should take a day to bear the pain. Gave me a note for my boss that said that I was to do NO walking for a full two weeks... AND said that I would deal with it for life, the cause? I was fat. He asked me a dozen times, at least, if I remember hearing when it snapped. I told him that I had not. Then... years later... after needing crutches to walk because of the pain, I find out it is a common symptom of hypothyroidism. That it is cause for labs to be done to check hormone levels and to increase. Even though this doc was in the same small clinic that the doc I was seeing for thyroid was, they never conferred. When I went in for my next labs, even though the notation was in my files that I had PF and I walked in with a severe limp and pain... My dosage was not increased, the condition was not discussed and I was just left to suffer. The additional pain that I went through during the months that I was on crutches, when I could not even set my foot on the ground, forget about walking or standing, included the tendons going up the back of the leg with the bad foot and up into my back, strain and stress to the good leg resulting in strained and pulled muscles, plus the affect on my shoulders, arm pits and upper back from using the crutches. AND on top of all of that, because I used them for so long with no visible cast I was mocked on the public bus going to and from work, folks often not giving me a seat because they felt that I only used the crutches to get a seat. One time I even fell trying to struggle to stay on the crutches and hold the bar to balance. Now I'm treating my self. Adjusting the dosage and timing according to my symptoms. Not only do I not need crutches to walk, I don't need that stupid heal cup anymore!!! And, unless I'm going out and about I don't even wear shoes. My foot is fine. So is my back and the leg tendons..... All from getting on the correct dose of replacement hormone. On my own. Topper () On Sat, 28 Aug 2004 10:36:33 -0500 " " writes: Hello SueI've been self treating for almost a year now because of the suffering I'vebeen through at the hands of doctors in my area who know little or nothingabout thyroid disease. I WILL say that I DO know more than the last 4doctors I had, about THIS disease, and I stand by that whole heartedly. Imay not know much about heart surgery, brain scans, or even thyroid scans,and that sort of thing, but my disease I have been FORCED into investigatingand knowing. I am doing the exact opposite of what 4 doctors advised andwould not do, and I'm now part of the living, not the walking (or should Isay crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of thesenightmarish experiences with this disease, I DO question MOST doctors on thesbjct, except for a small handful. After yrs of being on synthetic T4 meds,$ynthroid and Levoxyl both, I made the switch to Armour Thyroid, and I willNEVER regret it one little bit. Of course, I can't do my own scan orsurgery, but you get the picture on the treatment program---it's my own, andI'm doing much better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 I agree with you, .... docs that aren't familiar with this, and as common as it is they really should be... have caused me so much agony.... When I went in with a problem with my foot, so bad that I could not walk on it.... the doc said that it was Plantar Faciitis. He showed me some exercises, gave me a little plastic heal cup to put in my shoe. Told me how much Ibuprohem I should take a day to bear the pain. Gave me a note for my boss that said that I was to do NO walking for a full two weeks... AND said that I would deal with it for life, the cause? I was fat. He asked me a dozen times, at least, if I remember hearing when it snapped. I told him that I had not. Then... years later... after needing crutches to walk because of the pain, I find out it is a common symptom of hypothyroidism. That it is cause for labs to be done to check hormone levels and to increase. Even though this doc was in the same small clinic that the doc I was seeing for thyroid was, they never conferred. When I went in for my next labs, even though the notation was in my files that I had PF and I walked in with a severe limp and pain... My dosage was not increased, the condition was not discussed and I was just left to suffer. The additional pain that I went through during the months that I was on crutches, when I could not even set my foot on the ground, forget about walking or standing, included the tendons going up the back of the leg with the bad foot and up into my back, strain and stress to the good leg resulting in strained and pulled muscles, plus the affect on my shoulders, arm pits and upper back from using the crutches. AND on top of all of that, because I used them for so long with no visible cast I was mocked on the public bus going to and from work, folks often not giving me a seat because they felt that I only used the crutches to get a seat. One time I even fell trying to struggle to stay on the crutches and hold the bar to balance. Now I'm treating my self. Adjusting the dosage and timing according to my symptoms. Not only do I not need crutches to walk, I don't need that stupid heal cup anymore!!! And, unless I'm going out and about I don't even wear shoes. My foot is fine. So is my back and the leg tendons..... All from getting on the correct dose of replacement hormone. On my own. Topper () On Sat, 28 Aug 2004 10:36:33 -0500 " " writes: Hello SueI've been self treating for almost a year now because of the suffering I'vebeen through at the hands of doctors in my area who know little or nothingabout thyroid disease. I WILL say that I DO know more than the last 4doctors I had, about THIS disease, and I stand by that whole heartedly. Imay not know much about heart surgery, brain scans, or even thyroid scans,and that sort of thing, but my disease I have been FORCED into investigatingand knowing. I am doing the exact opposite of what 4 doctors advised andwould not do, and I'm now part of the living, not the walking (or should Isay crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of thesenightmarish experiences with this disease, I DO question MOST doctors on thesbjct, except for a small handful. After yrs of being on synthetic T4 meds,$ynthroid and Levoxyl both, I made the switch to Armour Thyroid, and I willNEVER regret it one little bit. Of course, I can't do my own scan orsurgery, but you get the picture on the treatment program---it's my own, andI'm doing much better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 I agree with you, .... docs that aren't familiar with this, and as common as it is they really should be... have caused me so much agony.... When I went in with a problem with my foot, so bad that I could not walk on it.... the doc said that it was Plantar Faciitis. He showed me some exercises, gave me a little plastic heal cup to put in my shoe. Told me how much Ibuprohem I should take a day to bear the pain. Gave me a note for my boss that said that I was to do NO walking for a full two weeks... AND said that I would deal with it for life, the cause? I was fat. He asked me a dozen times, at least, if I remember hearing when it snapped. I told him that I had not. Then... years later... after needing crutches to walk because of the pain, I find out it is a common symptom of hypothyroidism. That it is cause for labs to be done to check hormone levels and to increase. Even though this doc was in the same small clinic that the doc I was seeing for thyroid was, they never conferred. When I went in for my next labs, even though the notation was in my files that I had PF and I walked in with a severe limp and pain... My dosage was not increased, the condition was not discussed and I was just left to suffer. The additional pain that I went through during the months that I was on crutches, when I could not even set my foot on the ground, forget about walking or standing, included the tendons going up the back of the leg with the bad foot and up into my back, strain and stress to the good leg resulting in strained and pulled muscles, plus the affect on my shoulders, arm pits and upper back from using the crutches. AND on top of all of that, because I used them for so long with no visible cast I was mocked on the public bus going to and from work, folks often not giving me a seat because they felt that I only used the crutches to get a seat. One time I even fell trying to struggle to stay on the crutches and hold the bar to balance. Now I'm treating my self. Adjusting the dosage and timing according to my symptoms. Not only do I not need crutches to walk, I don't need that stupid heal cup anymore!!! And, unless I'm going out and about I don't even wear shoes. My foot is fine. So is my back and the leg tendons..... All from getting on the correct dose of replacement hormone. On my own. Topper () On Sat, 28 Aug 2004 10:36:33 -0500 " " writes: Hello SueI've been self treating for almost a year now because of the suffering I'vebeen through at the hands of doctors in my area who know little or nothingabout thyroid disease. I WILL say that I DO know more than the last 4doctors I had, about THIS disease, and I stand by that whole heartedly. Imay not know much about heart surgery, brain scans, or even thyroid scans,and that sort of thing, but my disease I have been FORCED into investigatingand knowing. I am doing the exact opposite of what 4 doctors advised andwould not do, and I'm now part of the living, not the walking (or should Isay crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of thesenightmarish experiences with this disease, I DO question MOST doctors on thesbjct, except for a small handful. After yrs of being on synthetic T4 meds,$ynthroid and Levoxyl both, I made the switch to Armour Thyroid, and I willNEVER regret it one little bit. Of course, I can't do my own scan orsurgery, but you get the picture on the treatment program---it's my own, andI'm doing much better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 I also treat myself quite happily. After years of my own research, I believe that I know more about thyroid function than about 95% of most doctors. If you knew how much time they actually studied this in medical school, you would see that it doesn't take much to know more than they do. I went to a top doctor and after about a year I realized he wasn't telling me anything I didn't already know. Why waste the money. The average GP takes a week of study on the thyroid at university. The idea that treating yourself after doing research and careful study is dangerous is a notion that the doctors love to foster in people. It's good for business. Thyroid replacement was just cooking up and eating the thyroid gland of cows and sheep for many years. People just figured out how much to cook up to feel good. The first thyroid patient who did this beginning in 1890 lived to be almost 80. Then, after thyroid extracts were developed, there was 73 years of people just figuring out how much it took to make them feel good. Thyroid patients generally had healthy long lives. Few were killed by their own ignorance, but many were killed by doctors prescibing huge doses to start with. Thyroid treatment isn't rocket science. One study done found that people who didn't go to doctors lived longer than the rest of us. Doctor errors are the major cause of death in patients. Check out: Medical Errors - A Leading Cause of Death http://www.cancure.org/medical_errors.htm Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 The thing is that right now you are in flux... you are coasting on what was in your tissues per surgery... what needs to be watched is what happens as the excess stores are used up and you are dependant on your remaining gland.... To stay on top of that, to be aware of what your body is doing as it adjusts... is going to KEEP you from getting as bad as us.... We want you to be a poster child of the GOOD stuff in all of this!!!!! *shy smile* Topper () On Sun, 29 Aug 2004 14:20:24 -0000 "Sue" writes: Well I hope you are right. <G> But I have to keep in mind that my thyroid problems were not as "extreme" as many of you have had so I also may not have as many positive changes. I still don't get it how he says I should not have had the symptoms and that they can be caused by other things such as depression. But I've BEEN depressed and "this ain't it." Besides... you don't get DIZZY from depression, and that was one of my problems before the surgery... and I have NOT been dizzy since even though he says the surgery should not have made me feel any different. I am still convinced I DID and DO have symptoms.Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 The thing is that right now you are in flux... you are coasting on what was in your tissues per surgery... what needs to be watched is what happens as the excess stores are used up and you are dependant on your remaining gland.... To stay on top of that, to be aware of what your body is doing as it adjusts... is going to KEEP you from getting as bad as us.... We want you to be a poster child of the GOOD stuff in all of this!!!!! *shy smile* Topper () On Sun, 29 Aug 2004 14:20:24 -0000 "Sue" writes: Well I hope you are right. <G> But I have to keep in mind that my thyroid problems were not as "extreme" as many of you have had so I also may not have as many positive changes. I still don't get it how he says I should not have had the symptoms and that they can be caused by other things such as depression. But I've BEEN depressed and "this ain't it." Besides... you don't get DIZZY from depression, and that was one of my problems before the surgery... and I have NOT been dizzy since even though he says the surgery should not have made me feel any different. I am still convinced I DID and DO have symptoms.Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 The thing is that right now you are in flux... you are coasting on what was in your tissues per surgery... what needs to be watched is what happens as the excess stores are used up and you are dependant on your remaining gland.... To stay on top of that, to be aware of what your body is doing as it adjusts... is going to KEEP you from getting as bad as us.... We want you to be a poster child of the GOOD stuff in all of this!!!!! *shy smile* Topper () On Sun, 29 Aug 2004 14:20:24 -0000 "Sue" writes: Well I hope you are right. <G> But I have to keep in mind that my thyroid problems were not as "extreme" as many of you have had so I also may not have as many positive changes. I still don't get it how he says I should not have had the symptoms and that they can be caused by other things such as depression. But I've BEEN depressed and "this ain't it." Besides... you don't get DIZZY from depression, and that was one of my problems before the surgery... and I have NOT been dizzy since even though he says the surgery should not have made me feel any different. I am still convinced I DID and DO have symptoms.Sue Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.